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        Cluster Headache Help and Support >> Cluster Headache Specific >> Pulsating Brain freeze
        
(Message started by: Nanc on Jan 24^th, 2006, 2:00am)

Title: Pulsating Brain freeze
Post by Nanc on Jan 24^th, 2006, 2:00am

I recently started having Cluster headaches :-/ It feels like pulsating brain freeze. Has anyone had this?

Title: Re: Pulsating Brain freeze
Post by agonymum on Jan 24^th, 2006, 2:22am

its so hard to describe that pain unless you are talking to a fellow sufferer i think its near impossible to describe it .(mindblowing?)
i can relate to the description of brain freezing though ,but it just doesnt sound enough on its own does it ?

have you been perscribed anything for your HA 's ?

best wishes xx

Title: Re: Pulsating Brain freeze
Post by sandie99 on Jan 24^th, 2006, 3:08am

Nanc,
welcome aboard! :)

I'm so sorry that you have ch. :(
But it's wonderful that you have found your way here. :)
You can find lots of info and support right here.

Best wishes & PF days,
Sanna

Title: Re: Pulsating Brain freeze
Post by Barry_T_Coles on Jan 24^th, 2006, 3:08am

on 01/24/06 at 02:22:15, agonymum wrote:

i can relate to the description of brain freezing though ,but it just doesnt sound enough on its own does it ?

have you been perscribed anything for your HA 's ?

best wishes xx

Hi Nanc & welcome
I agree with agonymum tell us a bit more about yourself & how it feels, the more we know the better we can help.

Kind regards
Barry

Title: Re: Pulsating Brain freeze
Post by upnover on Jan 24^th, 2006, 7:46am

More info but if you mean it's so cool it burns I can relate

Where is your pain located an how long does it last the frequency is also some of the ? you'll want to think about.
And the most important have you seen your DR ?

Title: Re: Pulsating Brain freeze
Post by Karla on Jan 24^th, 2006, 11:40am

Have you been diagnosed yet? Try the cluster quiz<== link on the left of your screen. I don't know about the rest of you but my migraines pulsate and throb. My ch stab and are extreame in debth.

Title: Re: Pulsating Brain freeze
Post by example1 on Jan 25^th, 2006, 3:08am

Hey all. I'm totally new here, so please disregard any faux-pas or posting errors :) I figure I'll address the topic of this post, but also give some background about my symptoms etc.,

I was diagnosed today, officially. What a relief. I am currently experiencing my second cycle (I believe) and had a 3 year hiatus between headaches. In that respect I feel lucky. It sounds like some of you deal with CH much more frequently than I do. I'm truly sorry about that. I believe I had CH in high school a little bit. I was definitely awakened multiple times at 18 in the middle of the night with throbbing headaches. I didn't think much about it, other than enjoying the relief when the headache passed.

About describing CH, I told my boss the other day that it felt like I had a 4 ft metal pole going from my left eye through the back of my head and that somebody was banging on the pole with a hammer. I think that conveyed the point pretty well.

CH is truly scarry. I am so thankful for my fiance, who is one of the sweetest people in the world and truly my savior. She is always there with a massage or calm words to help me through, even if sometimes I look like a maniac!

Here are my basic symptoms, people can tell me if they're similar or different than yours:

Always on the left side of my head, always behind my left eye-ball. It starts as a mild throbbing and my left eye begins to hurt. That's about 5-10 minutes before the serious pain starts. That's when I pop the Excedrin and try to wait it out. That's also when I am reminded that Excedrin and waiting aren't very helpful. Lots of tears from the left eye; extreme light sensitivity (which apparently is weird for CH), extreme aggitation with people, light, sounds, tasks, words, everything basically. My heart starts to beat more quickly and I start feeling clostrophobic, given that I'm usually in the middle of doing something at work. I'm a manager at a school for kids with emotional difficulties, so I'm usually dealing with intense personal crisis or staff members who need my assistance.

Recently it has happened at 9am sharp, which doesn't do me much good at work.

It is frustrating because I am worried that my coworkers will think that I'm milking it--that I'm staying home with a "headache" when I call in. I'm not sure how to convey what a cluster headache is to those who don't have it. One look at any CH related website would probably do the job though.

Anyway, just throught I would throw in my 2 cents and say hello. It really is nice to see so many people on here who share my pain. I hope everyone has a good night.

Title: Perhaps this will help..
Post by Richr8 on Jan 25^th, 2006, 6:42pm

http://www.ouch-us.org/chgeneral/dealwithemp.htm

Bes of luck and may PFDs