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        Cluster Headache Help and Support >> Cluster Headache Specific >> Not getting my hopes up
        
(Message started by: ScottEinDC on Jan 18^th, 2006, 2:58pm)

Title: Not getting my hopes up
Post by ScottEinDC on Jan 18^th, 2006, 2:58pm

This morning a shadow started creeping in. Since my insurance time frame for my prescription is running low I thought I would try something else. I took a "Goody's Extra Strength Headache Powder" with a giant glass of water. No less than five minutes later...and still five hours later, nothing! Coincidence? I hope not...but I'm also not counting my chickens.

Anyone else try this?

Title: Re: Not getting my hopes up
Post by Karla on Jan 18^th, 2006, 4:29pm

I have heard of one other person having luck with that for the lower level ch. (shadows)

Title: Re: Not getting my hopes up
Post by upnover on Jan 18^th, 2006, 5:17pm

about 10 yrs ago i did'nt have ins. so I'd try all kinds of stuff.. My favorite fo shadows were a dr. Pepper and a snickers bar I look back now i have to laugh. But I also had luck w/ BC powder and Dr.Pepper

Good Luck

Title: Re: Not getting my hopes up
Post by ScottEinDC on Jan 18^th, 2006, 7:37pm

upnover: A YUMMY prescription if I've ever heard of one.

OK, had another shadow this evening, tried it again...same results...within five minutes, gone....will keep updating this as I try it.

Title: Re: Not getting my hopes up
Post by marlinsfan on Jan 18^th, 2006, 9:47pm

I kill shadows with coffee. Works most of the time.

Title: Re: Not getting my hopes up
Post by BarbaraD on Jan 19^th, 2006, 5:15am

The powders (I use Excedrin ES) will kill a shadow, but be CAREFUL - they will also cause rebounds if you use them too frequently. Coffee will work most of the time for me. And of course O2.
Hugs BD

Title: Re: Not getting my hopes up
Post by ScottEinDC on Jan 19^th, 2006, 8:18am

Yesterday was very interesting.

I had the shadow come on three times.

90% of the time my shadows become full CH hits. Not yesterday. The first was in the morning (10a) and I knocked it out with the headache powders. The second was in the evening (7p), knocked that one out with the powders. The third came around 9pm and I felt that it wasn't smart to try a third powder, so at that point, I used my Maxalt as prescribed and that worked. So, essentially a pain free day....minus the shadows.

:-/

Title: Re: Not getting my hopes up
Post by upnover on Jan 19^th, 2006, 10:36am

Is this a new cycle? ..If so I have found that when I have not had a cHA for a few months and then out of the blue my shadows start thats when i'm starting a new cycle.I hope thats not your case.

Title: Re: Not getting my hopes up
Post by zwibbs/Scott on Jan 19^th, 2006, 10:44am

Hey Scott---If it works for you-GREAT !!! Keep updating on how this whole thing progresses.

Title: Re: Not getting my hopes up
Post by ScottEinDC on Jan 19^th, 2006, 11:23am

upnover: this is one cycle for the past three months now! Ahhhhhhh.

Zwibbs/Scott: I have a feeling I might need to agree with Barbara's statement earlier...careful for the rebounds. I've already been hit three times today and it isn't even noon!! A new record....Maybe I've pissed our friend off by not letting him do his business yesterday that he's going to totally eff my day up!

Title: Re: Not getting my hopes up
Post by upnover on Jan 19^th, 2006, 11:45am

I could'nt imagine a 3 mth cycle i'm sorry to hear it for you
good luck in your quest

Title: Re: Not getting my hopes up
Post by E-Double on Jan 19^th, 2006, 12:01pm

on 01/19/06 at 11:45:32, upnover wrote:

I could'nt imagine a 3 mth cycle i'm sorry to hear it for you
good luck in your quest

Then you couldn't imagine some here who have been 20+ yrs chronic.

It sucks to have just one attack imagine decades worth non stop

Title: Re: Not getting my hopes up
Post by MJ on Jan 19^th, 2006, 12:02pm

Scott, glad you got a wee bit of a break anyways.

on 01/19/06 at 11:45:32, upnover wrote:

I could'nt imagine a 3 mth cycle i'm sorry to hear it for you
good luck in your quest

upnover - many here cant remember way back when they only had them for 3 months. Some began many, many years ago.

welcome by the way.

MJ

Title: Re: Not getting my hopes up
Post by RichardN on Jan 19^th, 2006, 12:16pm

When my wife found this site 2/02, had done the MRI, CTs, doc first prescribed Vioxx, then Atenelol in increasing doses . . . didn't help. I was at that time having 6-8 attacks a day and was taking 8-10 Goodies powders a day, logic being that in powder form it would get into my system faster, so, when I felt another coming, down the Goddies and start the dance til the "whoosh" and gone . .. . usually within 20 minutes. Then of course I found you guys and learned that most CH attacks are in the 20 min range and will go on their own . . . . . mostly I was just eating up my stomach.

If it works for you . . . . go for it. Since oxygen entered my life, I haven't taken a powder.

Be Safe, PFDANs

Richard

Title: Re: Not getting my hopes up
Post by MJ on Jan 19^th, 2006, 12:38pm

Richard

Most CH attacks are in the 45 - 90 minute range. sometimes longer. For me average 1-2 hours.

See

http://www.mayoclinic.com/health/cluster-headache/DS00487/DSECTION=2

Title: Re: Not getting my hopes up
Post by sandie99 on Jan 19^th, 2006, 1:13pm

Scott,
I hope it keeps on working! :)
I once killed ch hit with ice cream... too bad it worked only once, but it sure was yummy. ;) Good luck! :)

Sanna