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        Cluster Headache Help and Support >> Cluster Headache Specific >> Saw a NEW Doc today.
        
(Message started by: mynm156 on Jan 12th, 2006, 6:19pm)
Title: Saw a NEW Doc today.
Post by mynm156 on Jan 12th, 2006, 6:19pm
GEEZE!!!!

Yeah So I go in ARMED to the teeth with mediacal records and letter from last doc (Who because of insurance change I cant see with out paying a FRANKLIN)  Anyway,  He gave me the Verapimil, Lopressor, but only gave me TWO TREX NS with 3 refills.  I am like dude that will get me till next week.  Oh BUT it gets BETTER!  He gave 60 vicodine!!!  I am like whats this for?  Breakthrough pain.  BREAK THROUGH PAIN.  Oh well better get a part time job to pay the other doctor.  it was worth a try anyway.  

PF DAYS AHEAD FOR US ALL!!!

MYNM156
Title: Re: Saw a NEW Doc today.
Post by llreed on Jan 12th, 2006, 8:07pm
The Doc. Hunt isn't cool,
Seen my new doc. today - have to say it went alot better than yours.  The uncool thing about my ins. is it will only pay for 3 tex per month.  God I hope the O2 works as well as I hear.
Fun Times - Can you pick another from the list?  It's like playing the lotto - except for having to explain whats wrong over and over again.
As for the Vicodin - sell it??? throw it away???  ;;D

PF Wishes
llreed
Title: Re: Saw a NEW Doc today.
Post by thebbz on Jan 12th, 2006, 10:21pm
Knowing what you do about CH and considering what the new doctor did for you, are you really going back? [smiley=eek.gif]
Hang in there
jb
Title: Re: Saw a NEW Doc today.
Post by mynm156 on Jan 13th, 2006, 8:32am
No I am not going back to him for CH.  He is gonna help me figure out a reoccuring kidney stone problem and I will just save up for the doctor that treats me the best so far.  He wants to see once every four months or so to check me out I suppose thats an FDA thing who knows.  Anyway,  maybe the Vicodine will help with a Shadow every once in a while I know my wife will enjoy one every so often  hahahahahahah.
Title: Re: Saw a NEW Doc today.
Post by marlinsfan on Jan 13th, 2006, 9:00am

on 01/12/06 at 20:07:39, llreed wrote:
 God I hope the O2 works as well as I hear.


Make sure you use it right. See the link onthe left. High-flow regulator, and non-rebreather mask are key to its success.
Title: Re: Saw a NEW Doc today.
Post by Karla on Jan 13th, 2006, 9:21pm
I had a dr perscribe me 90 oxycondone/month for ch.  I was chronic getting hit 8x a day.  each lasting 1 1/2 hrs. I found the vicodin good for when I had exceeded my imitrix for the day, It brought my kip10's down to a 9 or 8.  At least it keept me from feeling suicidal and going to ER.  However, I did continue to look for an alternative to help achieve pain free status.  I did finaly find something.
Title: Re: Saw a NEW Doc today.
Post by thebbz on Jan 13th, 2006, 9:39pm
For me all the pain killers are sometimes a trigger and never touchs the pain, however they do come handy for my wife as well LOL. And I didn't go to the neuro when I dislocated my finger. ;;D Stay in the fight as always
jb
Title: Re: Saw a NEW Doc today.
Post by mynm156 on Jan 14th, 2006, 11:12am

on 01/13/06 at 21:39:44, thebbz wrote:
they do come handy for my wife as well LOL.


HAHAHAHA  As a matter of fact my wife par took lastnight!   hahahaha  
Title: Re: Saw a NEW Doc today.
Post by chewy on Jan 14th, 2006, 11:21am

Quote:
maybe the Vicodine will help with a Shadow every once in a while


Vikes eliminate my shadows by turning them into a full blown CH.
Title: Re: Saw a NEW Doc today.
Post by mynm156 on Jan 15th, 2006, 4:33am

on 01/14/06 at 11:21:51, chewy wrote:
Vikes eliminate my shadows by turning them into a full blown CH.

Not me every once in a while it helps.  
Title: Re: Saw a NEW Doc today.
Post by crazydog on Jan 15th, 2006, 7:51am
I’m not sure I like the term breakthrough pain for CH but then pain is a very personal thing.

I do like Vicodin for shadows and it has not been a trigger for bringing out the beast; otherwise, I would not take it.

When I do face the beast I like the Vicodin most for what I would not call “breakthrough pain” but would rather call “sufferable pain” vs. maybe something like “suicidal pain”.
Title: Re: Saw a NEW Doc today.
Post by mynm156 on Jan 18th, 2006, 1:51pm

on 01/15/06 at 07:51:51, crazydog wrote:
I’m not sure I like the term breakthrough pain for CH but then pain is a very personal thing.

I do like Vicodin for shadows and it has not been a trigger for bringing out the beast; otherwise, I would not take it.

When I do face the beast I like the Vicodin most for what I would not call “breakthrough pain” but would rather call “sufferable pain” vs. maybe something like “suicidal pain”.


I agree! BREAK THROUGH is not a great term but understandable.  I have been using Stadol for several years as my relief when I just cant take it anymore.  I  understand the addictive part of this.  When I broke my arm I got these pain killers that I remember made me feel (NICE)  I dont get that with the Stadol maybe because it is more like a magic bullet when the trex hasnt worked all the way or the Shadows are really bad.  I guess that it the pain that takes all the FUN out of taking pain med.  hahahaha  

Well I just as soon not take seven pills(NOT NARCS) a day along with Trex at all!!!!!

PF DAY 4 us all!!!

MYNM156
Title: Re: Saw a NEW Doc today.
Post by upnover on Jan 18th, 2006, 5:10pm
not trying to rob this thread but did you try to get the Dr. to contact your ins. company and make other arangments I know this was how I went from 8 shots a month to 24


on 01/12/06 at 20:07:39, llreed wrote:
The Doc. Hunt isn't cool,
Seen my new doc. today - have to say it went alot better than yours.  The uncool thing about my ins. is it will only pay for 3 tex per month.  God I hope the O2 works as well as I hear.
Fun Times - Can you pick another from the list?  It's like playing the lotto - except for having to explain whats wrong over and over again.
As for the Vicodin - sell it??? throw it away???  ;;D

PF Wishes
llreed
Title: Re: Saw a NEW Doc today.
Post by Phil the Desert Rat on Jan 18th, 2006, 7:18pm
Vicadin did nothing for me...maybe helped me catch a nap between meltdowns...ate them like candy.  They're sort of like M&Ms...except without the colorful candy shell...and they're not chocolate inside...and they cost more than 75 cents a bag...and my friends never asked me for M&Ms.  haha

Best of luck.  

Phil
Title: Re: Saw a NEW Doc today.
Post by CrazyDog on Jan 18th, 2006, 11:23pm
I think you need to define what it means to eat Vicodon like candy.

Like for example, I just bought a 1 pound bag of M&M's the other night. And before I got home I had already eaten 3 hands full.

Now the store is 5 blocks away so that’s not even one hand full per block but I am pretty sure in Medical terms if this where Vicodin it would have busted me out of my current cycle.

Granted I would be dead but none the less it would have cured me of CH.
Title: Re: Saw a NEW Doc today.
Post by Phil the Desert Rat on Jan 19th, 2006, 12:36am
Like candy = instead of one every 12 hours (as directed), there were days I was popping one every few hours.  It wasn't smart in retrospect, but just wanted the pain to stop.   Didn't understand at the time that vicadin was useless against CH...just thought I had a high tolerance or something. :-/  Know better now.  I'll stick to M&Ms.  And the Rx's.  And will use O2 next time around.

--Phil


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