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        Supporter's Corner >> Children and Cluster's >> Does anyone else's child have vision loss?
        
(Message started by: 6kidcrazy on May 1^st, 2008, 1:33pm)

Title: Does anyone else's child have vision loss?
Post by 6kidcrazy on May 1^st, 2008, 1:33pm

My son is 11 yrs. old and he has had CH since he was a baby but was officially diagnosed in the last few years. He gets them mostly in his left eye and it is the most horrifying thing I have ever gone through. He went to the doctor today and they said he had vision loss in his left eye. Does anyone know if this may be related to his CH.

Title: Re: Does anyone else's child have vision loss?
Post by DonnaH_again on May 12^th, 2008, 11:36pm

I am so sorry to hear that your little child suffers CH. It must be just horrible to see this little child go through this. My son started with migraine in the 6th grade and progressed to CH at age 17.

What meds is your doctor treating with? Is this a neurologist?

In my 9 years on this board, I have never heard of vision loss related to CH.

Title: Re: Does anyone else's child have vision loss?
Post by 6kidcrazy on May 13^th, 2008, 1:35pm

Well he has had CH since he was an infant but he sees a Neuro and a headache clinic at Texas Children's that specializes in CH but he is only 1 of like 4 children in the clinic that have CH being that it is so unusual in kids his age well at least that have been diagnosed correctly. I have fought for years telling the doctor it was not migranes these were way worse and only lasted for 10 to 30 min. His only attack pattern has been in his left eye and never varied so we are going to TCH to see and Opthamologist to find out for sure. Thank You for responding it is so nice to have someone to talk to that sees the real trauma behind this horrible thing CH. Many people do not understand why he can't just rin and bear it when it comes on. It really stinks.

Title: Re: Does anyone else's child have vision loss?
Post by 6kidcrazy on May 13^th, 2008, 1:36pm

He is being treated with Imitrex acute spray right now we tried Zomig but no results.

Title: Re: Does anyone else's child have vision loss?
Post by deltadarlin on May 14^th, 2008, 6:50pm

Have you tried oxygen with your son? I think it's wonderful that you were able to find a doctor. Would you mind sharing who his treating physician is? I think there is a list on the OUCH site (or this site) where they try to list doctors and where they are located.

LeLimey (Helen) has a little boy who has clusters. She's been a bit under the weather lately, so she hasn't felt like posting.

Carolyn~aka~deltadarlin