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        Supporter's Corner >> Children and Cluster's >> Question...
        
(Message started by: Mishka on Oct 19^th, 2005, 10:06pm)

Title: Question...
Post by Mishka on Oct 19^th, 2005, 10:06pm

I have a question... is CH hereditary?

Title: Re: Question...
Post by Drk^Angel on Oct 19^th, 2005, 10:38pm

It's believed to be... I believe I've read that 7% of cases appear to be inherited.

PFDAN............................. Drk^Angel

P.S. Made a mistake... 5% instead of 7%...

"Cluster headache may be inherited (autosomal dominant) in about 5% of cases." -- ICHD-II

DA

Title: Re: Question...
Post by LeLimey on Oct 20^th, 2005, 12:32am

There is alot of gene research going on into it at the moment but yes, it CAN be.

Title: Re: Question...
Post by zanychef on Oct 20^th, 2005, 12:34am

none in my family but if i find out there where can i shoot them? ;)

Title: Re: Question...
Post by LeLimey on Oct 20^th, 2005, 1:01am

Yes dear.. with imigran!

Title: Re: Question...
Post by zanychef on Oct 20^th, 2005, 1:04am

12 bore for the uncle who disses my mum ;;D
probably him anyway lol

Title: Re: Question...
Post by Mishka on Oct 20^th, 2005, 6:49am

thanks for your answers! :)

Title: Re: Question...
Post by Out0fTheMist on Nov 15^th, 2005, 4:10pm

My daughter Samantha is 4th generation documented heriderity CH sufferer. The first 2 great grandfathers were word of mouth documented but Sam's dad and grandad are documented by the same neuro. Unfortunatly the same neuro (that treated her dad and grandad) will not see children under 18 and neuros I am dealing with now are grrrrrrr.
Hope this helps.
Ruth :)

Title: Re: Question...
Post by seasonalboomer on Nov 15^th, 2005, 4:17pm

on 11/15/05 at 16:10:00, Out0fTheMist wrote:

Wow! What a legacy.... Must make for interesting family stories. Not being cheeky. Just know that a certain amount of shared family lore comes out of all this. My Dad and I are able to share the good, bad and ugly of CH together. "So, Dad what was the craziest thing you ever did to try and relieve a "head"?" Fun stuff like that...

Scott

Title: Re: Question...
Post by Out0fTheMist on Nov 16^th, 2005, 11:30am

Hi Scott,
I wish I could claim to interesting stories but Sam's dad died 6 years ago at age 42 from a massive stroke. This is one legacy I wish I knew nothing about.
Mini-strokes scare me in regards to these headaches. David's mini-strokes were confirmed by a neuro during a CH attack while undergoing a MRI test. There seems to be little research in connection from one to another. I urge everyone who suffers CH's to make your neuro's research this connection seriously.
For all family members and supporters of CH's, I urge same thing. It's scary enough watching an attack of CH's on a loved one and I would never want to scare anyone by this other threat but I see it as a real threat and know it personally as a real threat. Not enough is being done in research concerning CH and until the few who suffer and their families push the issue I doubt it will be researched. If David had not been undergoing the test when it happened, we would never have known or linked the two (CH & Stroke) together.
I think it's better to be armed with knowledge even if its scary then to not know what is happening as a result of CH and the pain it causes not only the CH sufferer but their loved ones.
Blessings and love
Ruth [smiley=heart.gif]