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        New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> I introduce myself
        
(Message started by: tony-PA on Dec 26^th, 2007, 10:49pm)

Title: I introduce myself
Post by tony-PA on Dec 26^th, 2007, 10:49pm

Hi, my name is tony, now I live in Italy (sicily) after a long staying in NY (1971/1993). It's a while I read you and I'm member of Ouch-italia.
First of all: forgive me my english; I used to speak it fluently, but since I moved back to Italy ( :'( my biggest mistake ) have not too many chances to practice it, so the result is evident.
I suffer from clusters since 1995; at beginning I noticed that as soon I had my usual wodka my head, right eye, dental arch exploded. After a useless strolling to dentist, othorinos, oculists etc... (you know well), I went to a neurologist and knew the diagnosis: at least I stopped feel a martian.
My first clusters lasted 30/40 days with only 1 attack a day (8.00 pm exact) end of march once a year. Each attach was cut off with imigran vial. After the 4th cluster I had an unexpected cluster in october and noticed that they started to last little longer than usual. I supposed that the injections could have their negative role in this change and start to limit imigran for the kip 9/10 cases.
Actually I'm in remission since feb.28.06 (only a single unexspected attack last July 23) , take verapamil (400mg/d) for a while when feel some signal, to return to my maintenace dose of 120mg/d that take anyway.
Wishing all of you happy new year, hope some day we'll kill the beast. ciao

Title: Re: I introduce myself
Post by Guiseppi on Dec 27^th, 2007, 10:15am

Welcome to the board Tony, sounds like you were lucky fairly early with a diagnosis and a treatment plan that worked! The only thing I would suggest is to get hooked up with a doctor in Italy so you'll be ready when they come back. It seems they ALWAYS come back! ;)

And have you tried oxygen yet? Is it available in Italy for home use? I have been able to almost completely eliminate my imitrex use by using oxygen. Read the oxygen link on the left and talk with your doc about it. It's been a miracle fix for many on the board!

I'm a 3rd generation transplant from Italy.......welcome Paisono!!!!

Guiseppi

Title: Re: I introduce myself
Post by tony-PA on Dec 27^th, 2007, 1:58pm

ciao giuseppe, I have used O2 for the last clusters. Only couple of times I used imitrex for very bad attacks and usually I use half dose. In italy there is only the 6mg available.
No problem to get O2 in Italy . Hope will not need it, but I always keep a big bottle just in case.
Also I drink a lot of water.
Thank you, ciaooooo ;)

Title: Re: I introduce myself
Post by Linda_Howell on Dec 28^th, 2007, 10:41pm

Welcome Tony. Don't worry about your English. We have put up with Riccardo and a few others from OUCH Italia for a long time. ;) (I'm joking)

Your English is a lot better than any of our Italian.

Quote:

Actually I'm in remission since feb.28.06

good for you. May that continue indefinetly.

Linda