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        New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> newbie from sa using xefo
        
(Message started by: Hitgirl on Sep 10^th, 2007, 4:43pm)

Title: newbie from sa using xefo
Post by Hitgirl on Sep 10^th, 2007, 4:43pm

Hi Guys! Wow, i was soooo suprised when i found this site, quite unbelievable!

I am 23 years old(turning 23 tomorrow!) and have had ch since age 15. I had my first attack in 2 years at about 3:00 this morning, what a dissapointment! luckily i have great medication that you can buy over te counter, xefo. It helps a lot, but i havent seen anyone else here mentioning that they are using it. It really helps for the pain.

You guys are in my prayers, good luck to all!

Title: Re: newbie from sa using xefo
Post by Rosybabe on Sep 10^th, 2007, 7:59pm

Hi Hitgirl!

Xefo (Lornoxicam) is an anti inflamatory. It does the same job as a Naproxen pill. It is commonly used for arthritis pain and has the same warning labels as Celebrex or Vioxx (they can be a cause of a heart attack).

Personally I never found anti inflammatories to help with my CH, but if it works for you, that is great!

Pain free wishes for you!

Rosy.

Title: Re: newbie from sa using xefo
Post by MR_FLOOR on Sep 10^th, 2007, 8:37pm

Hi Hitgirl,

Tell us more about yourself like what is your medication regiment.Your prevents your abortives.Also have you tried O2 for an abortive,or have you tried energy drinks .Let us know.

Dave

Title: Re: newbie from sa using xefo
Post by Hitgirl on Sep 11^th, 2007, 1:35am

Hi guys,

Thx Rosybabe, wow, i had no idea about the warning label. Thats quite scary! but none the less, i had a good nights sleep, i took one just before i went to bed.

Hi there MR_Floor, i havent really tried much, this is the first time in 8 years that i am doing research. Usually just stuck anything in my throaght that the doctor gave or took a shot. I have used medrol(seriously bad side effects if you use it on long term - so i stopped using it), and then i have used xefo, that works like a dream! honestly i preffer using medication that prevents the episode from happening, rather than using medication just when i feel the episode coming on.

The sad thing is that there isnt a cure and no one can say what the definite cause is.

I have read the letter from "the devil". That really freaked me out. Has any one ever thought that ch can be a spiritual thing rather than a physical thing? what do you guys think?

Title: Re: newbie from sa using xefo
Post by Ray on Sep 11^th, 2007, 1:39am

Welcome to the family.

I wouldn't try to over spiritualize this, but if you are a believer, you certainly can pray about it.

Wishing you PF days and nights,

Ray

Title: Re: newbie from sa using xefo
Post by Wayne on Sep 11^th, 2007, 3:07am

Hi Hitgirl, welcome! Wishing you a PF Birthday

I absolutely, completely agree that its way better to stop the things from happening rather than to get rid of them when they are. That said you need to be a bit careful with yourself, you don't want to damage another part of you because of your head.

Have you been to see a neuro lately so that he can help put you on a proper preventive medication and monitor you if needed.

Cheers,

Wayne

Title: Re: newbie from sa using xefo
Post by lorac on Sep 12^th, 2007, 8:36am

happy birthday hitgirl [smiley=wave.gif]
lorac

Title: Re: newbie from sa using xefo
Post by Rosybabe on Sep 12^th, 2007, 11:00am

Happy Birthday Hitgirl!!

http://i165.photobucket.com/albums/u68/NSUDemonChipmunk/Happy%20Birthday/49.gif

Title: Re: newbie from sa using xefo
Post by Saffy on Sep 12^th, 2007, 3:07pm

Have a good birthday.

Hope you are CH free at the moment. ;;D

Glad you found this site, I am also relatively new and it is very good but the best bit is the lovely people that have talked to me and are willing to give their time and advice.

Saffy

Title: Re: newbie from sa using xefo
Post by Hitgirl on Sep 12^th, 2007, 5:10pm

Hi guys,

Thx so much for the birthday wishes! I really apreaciate it!

I have been to a neuro, but that didnt help at all, all he pratically said is YES, you do indeed have CH...you are the weekest link...goodbye! and uhhmm, go see your local doc for meds. One of te doctors put me on a perpanent dosage of medrol, then I found out that permanent usage of medrol causes a bloating stomach(Physically) and skinny arms(meaning that you are going to look like an ethiopian kid) Since then i have been using xefo(not permanent) i havent had any problems so far and i dont drink more than 2 a day when needed. Has anyone of you had a bad experience with xefo?

(please excuse the english and spelling, i am afrikaans)

Title: Re: newbie from sa using xefo
Post by Wayne on Sep 13^th, 2007, 8:36am

Hi

I don't know where in SA you are, but if you're anywhere close to JHB you could go see the folks at the Headache clinic in Parktown, they're the ones who sorted me out properly.

I unfortunately have no comment on xefo, hadn't heard of it until your post.

Lekker dag verder!

Title: Re: newbie from sa using xefo
Post by Hitgirl on Sep 13^th, 2007, 4:40pm

Hi Wayne.

Thx for the info! Ek waardeur dit!

sleept tight guys!

Ciao

Title: Re: newbie from sa using xefo
Post by MJ on Sep 14^th, 2007, 2:09am

Happy B day hitgirl

Xefo is not approved for sale in the USA. Still trying though. So you wont get too much feedback from the majority here.

It is said to be many times stronger than our anti inflammatory OTC meds like ibuprofen and such. Glad it helps you.

Title: Re: newbie from sa using xefo
Post by phil_h on Sep 14^th, 2007, 7:46am

Welcome aboard Hitgirl , Wishing you pfnad's and hoping you research this board for info to take to your md....................o2,ice packs ,coffee,redbulls and water are staples , without rx,s to abort .. The people here are very experienced with most available treatment possibilities..... So welcome to the place nobody ever wanted to arrive at ; and the place that makes life liveable again .... Alone no more............... phil h

Title: Re: newbie from sa using xefo
Post by MadJack on Sep 15^th, 2007, 2:21pm

Happy belated birthday :)

PFDAN! :D