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        New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> New to clusters, glad to have found you!
        
(Message started by: CourtingChaos on Jul 28^th, 2007, 12:28am)

Title: New to clusters, glad to have found you!
Post by CourtingChaos on Jul 28^th, 2007, 12:28am

Hi ... my name's Cory and I'm so glad to have found this site!

Excited to find people that I know truly get what this is and not roll their eyes or consider me a drama queen; who actually understand this whole cluster business and can help me make my way through dealing with this new diagnosis.

Several doctors/neurologists/tests, etc. later, cluster headaches is the winner. Have hit on this site and read up on your info a few times in my efforts to gain knowledge and there's truly some great information and support here.

Does seem like you are a family! That's awesome. Good information, nice people (looked through the photos from yearly meetings). This site is a haven for the misunderstood (work/family).

Thanks in advance to anyone who reaches back out towards me! coryehenson@yahoo.com

Title: Re: New to clusters, glad to have found you!
Post by thebbz on Jul 28^th, 2007, 12:38am

Courting Chaos,
I like that moniker. Yep a site with lots of headbangers for sure. We all have heard, "oh you have migraines", and we all would like to beat them with a hammer. ;;D
Welcome and knowledge is the key for a fight with the demon.
all the best
thebb
http://www.plainboard.com/ch/chtherapy.pdf
some light reading for ya

Title: Re: New to clusters, glad to have found you!
Post by George_J on Jul 28^th, 2007, 1:17am

Welcome, Cory. Happy to meet you, and looking forward to getting to know you. Feel free to ask any questions about treatments, or just feel free to vent if you need to.

Download the pdf at:

http://www.ouch-us.org/medications/oxygen/o2links.htm

for excellent information on the use of oxygen to treat CH. Oxygen, properly administered, is an effective and safe abortive treatment for a great many of us.

Best wishes,

George

Title: Re: New to clusters, glad to have found you!
Post by MR_FLOOR on Jul 28^th, 2007, 5:29am

on 07/28/07 at 00:28:51, CourtingChaos wrote:

Excited to find people that I know truly get what this is and not roll their eyes or consider me a drama queen; who actually understand this whole cluster business and can help me make my way through dealing with this new diagnosis.
there's truly some great information and support here.

Does seem like you are a family! That's awesome. Good information, nice people (looked through the photos from yearly meetings). This site is a haven for the misunderstood (work/family).

Cory,

You don't know the half of it,you will meet a group of the most compassionate and caring people in the world,and I'm not kidding.This will be your new lifeline.Stick around learn much and read lotts and most of all welcome to your new family.

Dave

Title: Re: New to clusters, glad to have found you!
Post by michael on Jul 28^th, 2007, 9:14am

Welome to the family Cory.

Sorry you had to come looking, but glad you found us.

Pain free wishes

Mike

Title: Re: New to clusters, glad to have found you!
Post by Barry_T_Coles on Jul 28^th, 2007, 11:45am

Hi Cory [smiley=wave.gif]

Title: Re: New to clusters, glad to have found you!
Post by lionsound on Jul 28^th, 2007, 9:16pm

Welcome, Cory! :)

Feel free to ask and questions that you may have.
Support is the best medicine!

be well and Pain Free!!!
-Lionsound

Title: Re: New to clusters, glad to have found you!
Post by Brewcrew on Jul 28^th, 2007, 9:25pm

We've been waiting for you.

C'mon in.

Title: Re: New to clusters, glad to have found you!
Post by Mosaicwench on Jul 28^th, 2007, 11:12pm

Cory - is there anyone close to you that you consider a supporter? Someone who helps you through hits and cycles?

If so. please invite that person to come visit us. We have an area just for supporters and we welcome all who come. I'm a supporter of 15 years.

I'm sorry for the reason that you're here, but glad you found us.

Title: Re: New to clusters, glad to have found you!
Post by CourtingChaos on Jul 28^th, 2007, 11:34pm

Guys I tell you what..I was leary about posting on here, I haven't been in chat rooms in YEARS (cop shops...I was a deputy....and military....I'm ex army) and thought twice (okay three times) about posting information but finally said what the heck and joined up.

As far as supporters...I have a few. I'm a single mom of two teenage boys (They ROCK) and they are here for me...and I have a friend who is checking out websites and sources everywhere to try to hook me up with good information. Course....I hide from them when these things hit...I don't want these guys to see me whimpering and writhing around like a mortally injured animal...

So.....I scoped out you guys...and already support! Thanks so much! ;;D

Title: Re: New to clusters, glad to have found you!
Post by Sandy_C on Jul 29^th, 2007, 4:08pm

Hi Cory, and welcome. This place IS a family.

I found it several years ago, and for some strange reason (probably because of all of the fruitcakes here - myself included), I can't stay away for long. Even when I'm out of cycle, I find myself here constantly, just to see how my adopted brothers and sisters are doing.

Please don't be afraid to post here. Ask any questions you need to. We will all try to help you in whatever way we can, even if it's only to lend a shoulder.

Sandy

Title: Re: New to clusters, glad to have found you!
Post by Metalcreature on Jul 29^th, 2007, 7:35pm

Hello Cory,

Welcome to this awesome website. I, like you are also a new member. Dealing with the pain we go through, isnt easy, but i think as time goes on, were going to find people on here that will give us comfort knowing we are not alone.

I hear you as far as liking to be alone when you have a hit. I dont want anyone seeing me either, because i feel embarrased about it. But, i think opening up your heart and mind here is the best medicine.

Take care Cory, and all my hopes and prayers for nights of rest and PF sleep.

Title: Re: New to clusters, glad to have found you!
Post by Guiseppi on Jul 29^th, 2007, 10:58pm

I'm active LE and was concerned about posting too! There are several active and retired on the board. So glad you found us, stick around, hopefully we can help ya!

Guiseppi