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New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> Histamine Treatment
(Message started by: MR_FLOOR on May 14th, 2007, 11:12pm)

Title: Histamine Treatment
Post by MR_FLOOR on May 14th, 2007, 11:12pm
I've had 2 Histamine treatments 1 worked better then the other but they both worked. I'm wondering what everybody or anybody knows about it

Title: Re: Histamine Treatment
Post by MR_FLOOR on May 16th, 2007, 1:52am
The proper terminology for it is Histamine desensitization

Dave

Title: Re: Histamine Treatment
Post by Ray on May 16th, 2007, 11:15am
Hello:

I've had them twice, series of IV treatments with Dr. Diamond in Chicago.  For some CH patients, it can break up the cluster and give a PF period of months or years.  For me, it was ineffective, but I saw others who were PF.

My best to you,

Ray

Title: Re: Histamine Treatment
Post by MR_FLOOR on May 16th, 2007, 2:30pm
They worked for me the 1st time for 8 years the 2nd time for 2 years my doctor is Urban I'm sure if you where in there for 10 days you must have met him

Dave

Title: Re: Histamine Treatment
Post by Ray on May 17th, 2007, 2:40pm
Hello Dave:

I was there in 88-89.  I don't remember a Dr. Urban.  I saw Dr Seymour Diamond.  All in all, it was a rather unpleasant experience for me, but it did work for others, like yourself.

With regards,

Ray

Title: Re: Histamine Treatment
Post by MR_FLOOR on May 17th, 2007, 6:42pm
Hey Ray,

           Your not the first person to say they didn't care for the Clinic but I can't say enough good about them.I guess what works for some does not work for others.Wish you many pain free days Ray.


Dave

Title: Re: Histamine Treatment
Post by Ray on May 17th, 2007, 8:58pm
Hello Everyone:

I wouldn't go so far as to say that I didn't like my treatment....  The Diamond Clinic did a thorough job, just the results were not wonderful for me.  I am not going to say that anyone should stay away from there!

If you would like to know what negatives I would list, it's a short list.  It's kind of the "big mac and fries" of the headache treatment world.  By that I mean: you need to have your questions organized and written down, otherwise the Dr comes in with a whirlwind of assistants and then leaves.  It may be months before you get to go there again.

[In general, not related to the Diamond Clinic in particular]
You need to be an informed consumer with all medical doctors, be prepared to ask for what you want/need and keep up with the research and treatments available.   If the Dr proposes something you don't want, or feel would be helpful, don't buy into it for fear of offending the Dr.  Be aware that all medications have side effects, ask what to watch out for!

Wishing you all many PF days and nights,

Ray



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