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        New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> new guy old hat
        
(Message started by: Rebecca on Apr 7^th, 2007, 10:09am)

Title: new guy old hat
Post by Rebecca on Apr 7^th, 2007, 10:09am

Hi
we are new to this sight I say we because my husband has clusters he just started a round the first he has had in a while(1999) he started having them in the 1950 when there was not much out about them so if anyone knows new stuff we can try HELP :-[ :-[

Title: Re: new guy old hat
Post by E-Double on Apr 7^th, 2007, 10:39am

Hiya

This is a great resource to know like the back of your hand...print it out and give it to the doc

http://www.brightok.net/~mnjday/chtherapy.pdf

It will present the appropriate treatments that you should seek and your doctor should know!!!

If you want an abortive with the least amount of side-effects O2 should not only be requested but demanded from your doctor!!!

http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm

I have used Zyprexa as an abortive and have found it to work (for me) as fast as Imitrex and without the "hangover"
http://www.clusterheadaches.com/cgi-
bin/yabb/YaBB.cgi?board=medsarchive2005;action=display;num=1120904753

If you do have the "typical" wake you up in the middle of the night horrors then.... Melatonin might be very helpful
Many of us (myself included) have found that taking 6-9mg (some take more) about a 1/2 hour to 45minutes prior to bed have Knocked out the night visits and can finally get sleep.

With the exception of 10-12 times.....I have slept through the night since August '04 (went chronic in March 05 now just awaken from a 9 month old haha).....Still get hit during the day but my overall quality of life is better because I am not as exhausted all the time.

Some people report that it seems to make them worse....The fact is that we are all different and respond differently to everything therefore it may or may not...

The one thing I will tell you as far as my experience was that I had to stick with it...The first night I took melatonin, I was awoken with a doozy only I was too groggy to find my O2 .....It got a lot better for me....I then slept through the night but would get slammed about 1/2 hour after waking up....kinda like knocking the beast off schedule.....then again I was peaking and this cycle has been all over the place with no real pattern.
I stayed with melatonin and have had decent sleep overall. (Maybe I should start following my own advice again but then I might not wake up for the baby and wife will give me a real headache ;)

It may help and it is natural with not too many sideeffects....also ask your doctor b/c if there are any side effects or contraindications...I think they have to do with mild depression.....

Like I said we are all different.

Best wishes, good luck & stay as positive as you can!!!!

Title: Re: new guy old hat
Post by Callico on Apr 7^th, 2007, 11:39pm

Hi Rebecca,

Glad you found us!

Kudzu has been a great help to me lately as an preventative. It doesn't stop them, but I'm down about 3-5 hits a day after using it for about 4 weeks. I was having 5-8 hits a day. I have also noted a lessened intensity in the hits.

Red Bull if slammed down as fast as you can drink it at the onset of symptoms will sometimes abort an attack, it will at least lessen it greatly.

Welcome aboard.

Jerry