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        New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> Cakelady's back
        
(Message started by: cakelady on Apr 6^th, 2007, 3:14pm)

Title: Cakelady's back
Post by cakelady on Apr 6^th, 2007, 3:14pm

Damn it.

I have been pain free for almost three years. I started shadowing yesterday and got woken up by a shadow last night (how weird is that)

Called the doc this morning and was in the office by noon. Started the Flexeril to relax the neck and am now armed with O2 and waiting.

And scared, very freakin' scared. I know what is coming if the beast comes back.
:-[

Title: Re: Cakelady's back
Post by Guiseppi on Apr 6^th, 2007, 3:20pm

I hate the gnawing fear when he comes back. The good news is we're all still here for and with you! Do you use any other meds as a prevent? Do you have any additional meds as abortives? I treat my oxygen like a security blanket when on cycle, never outta my sight! But I also use lithium as a prevent and imitrex jab when all else fails.

Hoping you have a mild, short cycle and an even longer remission this time!

Guiseppi

Title: Re: Cakelady's back
Post by cakelady on Apr 6^th, 2007, 3:55pm

If it does hit I'll hit the steroids and verapamil. I hate both. The prednisone make my face swell up like a clown and the V makes my whole body tender to the touch. The last cluster I was able to withstand it with out either. The time before that I have two rounds of Pred and enough V to bury a city.

So I'll see how it goes. I've been at this for 35 years now.

Title: Re: Cakelady's back
Post by Rebecca on Apr 7^th, 2007, 10:25am

my husband just started a new round to so he got started on the lithium and prednisone combo just this passed thursday the last time he had on was in 1999 we hope that this combo works again to stop it. can you tell me does age have anything to do with how often you have a round? I was told that the older he gets the less he will have. :-/

Title: Re: Cakelady's back
Post by testy01 on Apr 21^st, 2007, 10:43am

Hi Cakelady

Like you, I've been pain free and gone a long time. Like you, I'm in the "Oh hell, here we go again" phase of things. What a drag, I thought I'd gotten over this whole thing forever.

All the best to you.

Jack