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        New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> Lurker Comes To Life!!
        
(Message started by: Mare on Feb 21^st, 2007, 11:20pm)

Title: Lurker Comes To Life!!
Post by Mare on Feb 21^st, 2007, 11:20pm

Been lurking for some weeks now, thought it past time that I said hello..........and thank you. Thank you for just being here, how blessed I was to find this site. Your dedication to one another and the cause of furthering knowledge of CH is such a breath of fresh air.

Thank you , thank you, thank you. :)

Title: Re: Lurker Comes To Life!!
Post by georgej on Feb 22^nd, 2007, 12:29am

Pleasure to meet you, Mare.

Are you a clusterhead, or are you a supporter? Both are certainly welcome here.

Best,

George

Title: Re: Lurker Comes To Life!!
Post by Barry_T_Coles on Feb 22^nd, 2007, 2:26am

Hi Marehttp://bestsmileys.com/waving/2.gif
Welcome aboard.
Cheers
Barry

Title: Re: Lurker Comes To Life!!
Post by duckie on Feb 22^nd, 2007, 4:19am

Hi Mare, welcome to CH world!!! PF vibes, Lii

Title: Re: Lurker Comes To Life!!
Post by Guiseppi on Feb 22^nd, 2007, 9:48am

Welcome to the asylum! When you get a chance post a little about yourself. How long you've had CH what you've tried, what did and didn't work etc. It's what makes the board so valuable, all the info exchanged, and again, welcome aboard!

Guiseppi

Title: Re: Lurker Comes To Life!!
Post by Mare on Feb 22^nd, 2007, 10:03am

Ooops, should have done that! I've had CH since the early 80's. I typically have a cycle lasting 6 to 8 weeks and then a two year remission. As a lot of you know, "back in the day" there was a lot of treatment for sinus and migraine going on so we missed the boat for a lot of years.

I was finally diagnosed with CH in 96, treated with anti-depressents to "keep me calm" ::) and oxygen. Of course I fell in love with the oxygen.

Ironically after that diagnoses I've been cluster-free for almost 11 years. Didn't I just think I had it licked!! [smiley=laugh.gif] That is, until the beast showed up at my door the first of this year.

My work situation has changed now and I can't have the oxygen with me as my husband and I are team truck drivers and that would be considered hazmat in the cab so this cycle has been a booger. I also had my gall bladder removed two weeks ago so as you can tell, we've had a lot going on.

I'm feeling like I'm coming up on the end of the thing so I'm going to try to get back on the truck today and see how it goes.

I should add that I use imetrex and so far it's worked well for me. I'm sorry this is so long and also sorry I don't have anything new to add.

I've just been overjoyed to find you all here and am grateful for all of the information. We've all come a long way, even since 96.

PF days and nights to all.

Title: Re: Lurker Comes To Life!!
Post by TonyG1 on Feb 22^nd, 2007, 7:57pm

on 02/22/07 at 10:03:55, Mare wrote:

I was finally diagnosed with CH in 96, treated with anti-depressents to "keep me calm" ::) and oxygen. Of course I fell in love with the oxygen.

Ironically after that diagnoses I've been cluster-free for almost 11 years. Didn't I just think I had it licked!! [smiley=laugh.gif] That is, until the beast showed up at my door the first of this year.

Hi Mare, wow 11 years free of the beast ... that it excellent -- so sorry they have returned !! :( Pleasure to meet you and welcome to the board !!

T.

Title: Re: Lurker Comes To Life!!
Post by RichardN on Feb 23^rd, 2007, 1:09am

Hi Mare & Welcome Home

Sooo sorry you can't have the 02 with you . . . jeez, you'd think there would be some way arround that. It's my only abortive . . . very glad you have the Imitrex to fall back on.

Hoping the beast doesn't like the road and gives you some PF time.

Be Safe, PFDANs

Richard