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New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> New to the forum
(Message started by: tripspot on Jan 11th, 2007, 5:21am)

Title: New to the forum
Post by tripspot on Jan 11th, 2007, 5:21am
I cant express how much better i feel now, knowing that im not alone in this struggle what seems to be for my life and sanity as a human being.

Ive been suffering from my clusters for about 5 years now. It wasent until maybe 2 years ago that i was finally diagnosed with this debilitating disease. Ive read alot on this forum and have learned so many new tools to use in this fight against the "beast". That word describes so good i cant even tell you all. Just to know that i can come here with my problems and share everything i need to with such passionate people makes more difference then you all know. Ive just ordered my medigas or 02 you can say and am going to get the clustermasx soon. I am currently taking the imitrex shots and they seem to do wonders, but i like to only take them when absolutly necessary. I even went out today and bought some monster and rockstar drinks as i read on here that they might be a good abortive, which sounds like a great idea. Anyways ihope to learn alot more from you all and hope to speak with you all soon..

Mike.. ;;D

Title: Re: New to the forum
Post by AussieBrian on Jan 11th, 2007, 5:46am
Mike, you're no longer alone.  

Title: Re: New to the forum
Post by barry_sword on Jan 11th, 2007, 6:00am
Hi Mike

 Barry

Title: Re: New to the forum
Post by tripspot on Jan 11th, 2007, 7:43am
thanks guys. ill be around alot, my cluster is just begining.

Title: Re: New to the forum
Post by georgej on Jan 11th, 2007, 10:16am
Welcome, Mike.

If you are prescribed Verapamil, be certain that you know and understand the cautions against using energy drinks containing taurine.  The combination can apparently lower blood pressure to dangerous levels in some individuals.

Again, welcome.  I hope this is a short and uneventful CH cycle for you.

Best,

George

Title: Re: New to the forum
Post by Mattrf on Jan 11th, 2007, 1:32pm
Mike you may want to read up on the Imitrex tip on the left, there are many that say you only need about a third of a shot to abort and at the cost and the limited number the doctor will give you, the tips can help you make them last longer and cost less in the long run.
Welcome to the funny farm, glad you found us stick around.

Matt

Title: Re: New to the forum
Post by Salvelinus on Jan 11th, 2007, 7:03pm
Mike, I'm really sorry you need to be here, but I'm glad you are.  There's lots of good info here, study hard.

Stay strong!

Title: Re: New to the forum
Post by TonyG1 on Jan 11th, 2007, 9:07pm
Hi Mike - Sorry you have the condition that brought you here but welcome aboard !!   Great info here and more importantly great ppl !!

May the cycles be short and Pain free time long !!

Title: Re: New to the forum
Post by artonio7 on Jan 12th, 2007, 1:48am
Hi Mike and welcome! Stick around. I'm finding that these folks are good folks.

Title: Re: New to the forum
Post by JeffB on Jan 12th, 2007, 7:09pm
Welcome, dude.

Title: Re: New to the forum
Post by tanner on Jan 12th, 2007, 7:32pm

Hi Mike, sorry to meet you ,but very happy you found us!

Don't listen to Tony tho....we are really a bunch of arseholes in disguise ;;D

Sorry tony couldn't resist ;)

Hope your episode leaves quickly.....Tim

Title: Re: New to the forum
Post by JeffB on Jan 12th, 2007, 7:39pm
I take offense to that, Tim. I am not in disguise.  ;;D

Title: Re: New to the forum
Post by georgej on Jan 13th, 2007, 2:22am
No indeed, Tim.  We are a blessing in disguise.

http://jimmyakin.typepad.com/photos/uncategorized/blessingindisguise.jpg

Title: Re: New to the forum
Post by swimchica623 on Jan 13th, 2007, 11:56am
Hi Mike!
Sorry I don't have as nifty as a picture...hehehehe.
If this is your first time using o2 and you don't get the hang of it at first, don't dispair!!!  I'm so agitated and wiggly during hits that I had a hard time keeping the mask on and getting quick at putting it on at the VERY first sign..and even knowing exactly what the very first sign is for you (I actually get a little itchy in my eye and around it before any of the classic cluster stuff starts so I put it on then at once I caught that pattern it worked so much better).  I wanted to give up with the o2 because it kinda worked but not really but everyone here kept pushing me with it and once I got the hang of it it became a lifesaver!  Still getting help with it as my prescription is wrong, so never give up to get what you need!  And always ask for help here everyone is super and some have been dealing with this for umm longer than I've been alive!
Hope this cycle isn't too bad for ya....
Lisa

Title: Re: New to the forum
Post by swimchica623 on Jan 13th, 2007, 12:02pm
Hi Mike!
Sorry I don't have as nifty as a picture...hehehehe.
If this is your first time using o2 and you don't get the hang of it at first, don't dispair!!!  I'm so agitated and wiggly during hits that I had a hard time keeping the mask on and getting quick at putting it on at the VERY first sign..and even knowing exactly what the very first sign is for you (I actually get a little itchy in my eye and around it before any of the classic cluster stuff starts so I put it on then at once I caught that pattern it worked so much better).  I wanted to give up with the o2 because it kinda worked but not really but everyone here kept pushing me with it and once I got the hang of it it became a lifesaver!  Still getting help with it as my prescription is wrong, so never give up to get what you need!  And always ask for help here everyone is super and some have been dealing with this for umm longer than I've been alive!
Hope this cycle isn't too bad for ya....
Lisa

Title: Re: New to the forum
Post by swimchica623 on Jan 13th, 2007, 12:04pm
hey Mike I just checked out your profile...you are 21 too!!  You might be stealing my "baby" status here lol.  When's your bday?  
Nice to have someone my age here...always hangin out with these old fogies.  XD

(just kiiiiiiiding of course!!!!!!!)

Lisa

Title: Re: New to the forum
Post by barry_sword on Jan 13th, 2007, 2:44pm
Hi Lisa.This ole fogy at 47 can still do 30kms. of rock riding on a mountain bike and still go home and cook dinner and drink a six pack of beer before going to bed at 7:00pm. Not bad eh! [smiley=laugh.gif] [smiley=laugh.gif]
Nice to meet you!

  Barry

Title: Re: New to the forum
Post by Jonny on Jan 13th, 2007, 3:02pm

on 01/12/07 at 19:32:33, tanner wrote:
Don't listen to Tony tho....we are really a bunch of arseholes in disguise ;;D


Tim nailed it.....LOL ;;D



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