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        New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> Umm...hi
        
(Message started by: _Broken_ on Dec 3^rd, 2006, 10:59am)

Title: Umm...hi
Post by _Broken_ on Dec 3^rd, 2006, 10:59am

New here. Been watching for a while. Good thing going here. Glad to be a part of it. Yeah. Guess that's all. Bye!

Broken

Title: Re: Umm...hi
Post by vietvet2tours on Dec 3^rd, 2006, 2:49pm

on 12/03/06 at 10:59:59, _Broken_ wrote:

New here. Been watching for a while. Good thing going here. Glad to be a part of it. Yeah. Guess that's all. Bye!

Broken

Needin jest a wee bit more information here.

Title: Re: Umm...hi
Post by Jonny on Dec 3^rd, 2006, 2:55pm

Hi Kid!

Title: Re: Umm...hi
Post by _Broken_ on Dec 3^rd, 2006, 3:13pm

vietvet2tours, what kind of information would you like?

Jonny, just so you know, I'm 20. Not really a kid.

Broken

Title: Re: Umm...hi
Post by CynthiaB on Dec 3^rd, 2006, 3:29pm

It was a long time ago, but I was still a kid when I was 20.

Oh, I forgot. We're interrogating the new ~~kid~~
man.

When were you diagnosed?
Do you have a good neuro?
Have you tried oxygen?
What meds are you on?
Are you episodic/chronic?
Are you in cycle now?
What's your favorite tv show?

Welcome to the party. We're sorry you had to come looking for us, but glad you found us.

cynthia

Title: Re: Umm...hi
Post by _Broken_ on Dec 3^rd, 2006, 3:47pm

Wow. Let's see if I can get that all in order. First of all I gave you the wrong idea. I'm a supporter, not a sufferer. He's got a good nero and he uses O2 when its bad enough. As for meds, there's to many to count. He's been chronic for 3 or 4 years now I think. Not in cycle, that I know of. He doesn't like to talk about it. I love the Dark Angel shows but I'd rather snuggel up with a good book. How's that for now?

Broken

Title: Re: Umm...hi
Post by Yorky on Dec 3^rd, 2006, 4:23pm

He's been chronic for 3 or 4 years now I think. Not in cycle, that I know of. He doesn't like to talk about it

if he is chronic.....but not in cycle ?

Title: Re: Umm...hi
Post by CynthiaB on Dec 3^rd, 2006, 6:55pm

Everything, from your screen name to your little sayings, presents you as a sufferer. Not that being a supporter is anything to sneeze at. It's a tough job. They have a board a couple of clicks below...but you'll have to explain yourself all over again. They're going to be just as confused as we are.

I'm not going to even say a word about the chronic/cycle/don't ask/don't talk whatever that means.

[smiley=huh.gif]

Title: Re: Umm...hi
Post by _Broken_ on Dec 3^rd, 2006, 9:38pm

Like I said Yorky, I'm not sure. He doesn't like to talk about it. He's a quite person and hides it very well. You can't tell if he's hit until he says something or goes for the O2. By then its usually at the peak where he can't stand it anymore.

CynthiaB, thanks for the suggestion. I was going to start there but this seemed to be a better place. Like I said, I've watched for a while and have gotten pretty good at navigating my way around. I haven't really looked there much but I'll be sure to check it out.

Broken

Title: Re: Umm...hi
Post by AussieBrian on Dec 3^rd, 2006, 11:05pm

on 12/03/06 at 21:38:46, _Broken_ wrote:

You can't tell if he's hit until he says something or goes for the O2. By then its usually at the peak where he can't stand it anymore.

Suggest he hits the O2 at the immediate onset, far more effective that way.

Title: Re: Umm...hi
Post by BB on Dec 4^th, 2006, 1:26am

Hi Broken,

I like the poem your friend wrote for you :)

Can you get some more for us please? Thanks heaps. :-*

Painfree wishes to all.

Annette

Title: Re: Umm...hi
Post by Barry_T_Coles on Dec 4^th, 2006, 2:35am

What Brian said.
Barry

Title: Re: Umm...hi
Post by _Broken_ on Dec 4^th, 2006, 6:38am

on 12/03/06 at 23:05:47, AussieBrian wrote:

Suggest he hits the O2 at the immediate onset, far more effective that way.

He tried that for a while but it didn't do anything. And then when it was at that point the O2 was useless.

Annette, I'll see what I can do. She writes a lot but live pretty far away. I write a little myself but don't have much time to with school. I want to write books for a living but school come first.

Broken

Title: Re: Umm...hi
Post by chopmyheadoff on Dec 5^th, 2006, 8:10am

on 12/03/06 at 21:38:46, _Broken_ wrote:

You can't tell if he's hit until he says something or goes for the O2. By then its usually at the peak where he can't stand it anymore.

Broken

:-[ bloody hell - he's brave :-X

Title: Re: Umm...hi
Post by Jonny on Dec 5^th, 2006, 4:56pm

on 12/05/06 at 08:10:15, chopmyheadoff wrote:

:-[ bloody hell - he's brave :-X

;;D

Title: Re: Umm...hi
Post by Jonny on Dec 5^th, 2006, 9:16pm

Broken,

Are you a guy or a gal?

Is your sufferer your girlfriend, boyfriend, Mom, Dad?

Its hard to tell you much when you tell us less. ;;D

Title: Re: Umm...hi
Post by tanner on Dec 5^th, 2006, 10:57pm

Broken, please don't go away! We are not nearly as mean and cynical as we first come across (ok maybe some of us are), but really the more info you give, the more help we can offer. I am a chronic so I am not worth a crap at supporting but that's just me. Some here can do both. Some here are worth their weight in gold. stick around long enough to see.

...please....Tim

Title: Re: Umm...hi
Post by _Broken_ on Dec 6^th, 2006, 6:59am

on 12/05/06 at 22:57:00, tanner wrote:

Tim, you're so sweet. I'm not going anywhere. I know what its like here. I've watched for a few years before I finally joined. At time some of you can be jerks but there's to much good for me to leave. Don't worry. You're stuck with me now. ;;D

on 12/05/06 at 21:16:34, Jonny wrote:

Broken,

Are you a guy or a gal?

Is your sufferer your girlfriend, boyfriend, Mom, Dad?

Its hard to tell you much when you tell us less. ;;D

I'm a girl and my sufferer is a very close friend. What more info would you like? I don't know what you need so you'll have to tell me.

Broken

Title: Re: Umm...hi
Post by Jonny on Dec 6^th, 2006, 7:48pm

on 12/06/06 at 06:59:48, _Broken_ wrote:

What more info would you like? I don't know what you need so you'll have to tell me.
Broken

Well, you say many things that dont seem typical.....like

on 12/03/06 at 15:47:34, _Broken_ wrote:

He's got a good nero and he uses O2 when its bad enough.

Anyone that has chronic CH knows to get on 02 at the first sign of it and not when its bad enough!

on 12/03/06 at 15:47:34, _Broken_ wrote:

He's been chronic for 3 or 4 years now I think. Not in cycle, that I know of.

Which is it?......it cant be both.

on 12/03/06 at 21:38:46, _Broken_ wrote:

You can't tell if he's hit until he says something or goes for the O2. By then its usually at the peak where he can't stand it anymore.

Again, anyone with CH would be on that 02 as soon as they felt it coming!

Then Brian trys to help.

on 12/03/06 at 23:05:47, AussieBrian wrote:

Suggest he hits the O2 at the immediate onset, far more effective that way.

and you say......................

on 12/04/06 at 06:38:59, _Broken_ wrote:

He tried that for a while but it didn't do anything. And then when it was at that point the O2 was useless.

Im sure you would love to explain all this mess, I call it a mess because I cant make heads or tails of it to tell you the truth!

;)

Title: Re: Umm...hi
Post by _Broken_ on Dec 6^th, 2006, 8:16pm

Jonny and CynthiaB, let me try and clear some of this up. I'm not sure of if he's chronic or not because he doesn't like to talk about it, as I said before. He's been going through a rough patch lately but it's usually not this bad. You can never tell when he's hit or not because he hides it. As for the O2 thing, you should know that for many of you, its different of each person. If he uses it before its absolutely nessacry, its useless. And lastly I wasn't sure what you needed for info because I'm not very good at explaining myself. Is that better? I hope so.

Broken

Title: Re: Umm...hi
Post by Jonny on Dec 6^th, 2006, 8:26pm

on 12/06/06 at 20:16:19, _Broken_ wrote:

As for the O2 thing, you should know that for many of you, its different of each person. If he uses it before its absolutely nessacry, its useless.

Thats the biggest crock of shit that I ever heard!

Are you really 20 years old?

FYI, 02 dont work for ANYONE unless they hit it early! (at least not that ive read in seven years here)

"He dont like to talk about it, he dont like to talk about it, he dont like to talk about it"

WTF is that?

Title: Re: Umm...hi
Post by Linda_Howell on Dec 6^th, 2006, 8:38pm

O.K. Broken....you say you are a supporter and that is great. We LOVE our supporters here and hold them in the highest esteem, but you casn't tell us wehter or not he/she is chronic or episodic and you don't know a lot of what he/she goes through but you are here to...what? Ask questions? Find out how you can help him/her?

We can help you but you really DO have to give us more to go on....REALLY.

Being quiet and not wanting to talk about it gives us no clue and therefore you may be better off leaving him/her alone to work it our for themselves. Tell him or her to come here and "present" and we will help him or her out with possible meds to talk to the Dr. about Preventatives as well as abortives...ways to cope etc.

::)

Linda

Title: Re: Umm...hi
Post by Jonny on Dec 6^th, 2006, 9:08pm

on 12/06/06 at 06:59:48, _Broken_ wrote:

I'm not going anywhere. I know what its like here.Ive watched for a few years before I finally joined.

Then I guess your lack of knowledge of 02 is your own fault for not paying attention?

No matter how we cut this you should never again speak on the subject of CH, Felicia......YOU could get someone killed!

Now go play with your friends, where you belong!

Title: Re: Umm...hi
Post by _Broken_ on Dec 6^th, 2006, 9:21pm

Yeah Jonny. It is me. I wanted to come back because I wanted to help and to undestand this a little better. My sufferer is my father and he doesn't like it that I'm here any more than you do but I'm not leaving this time. So I lied. I'm not 20 and don't live in NYC. I thought you would treat me different if you didn't think it was me. And guess what. I was right! You didn't talk down to me like I was some little kid. I can understand this thing. If you help me. Sorry for bothering by coming back.

Broken(Felicia)

Title: Re: Umm...hi
Post by CynthiaB on Dec 6^th, 2006, 9:23pm

I am new to this group, so I am speaking only for myself and not for this group.

While I am frequently playful, as are others...I am not playing. This is serious for me, and for my supporters.

We are struggling to survive emotionally. It isn't a game for us and I, for one, don't have the time or energy to play with you.

Title: Re: Umm...hi
Post by Jonny on Dec 6^th, 2006, 9:39pm

on 12/06/06 at 21:21:03, _Broken_ wrote:

I was right! You didn't talk down to me like I was some little kid.

Just what dont you understand?

on 12/03/06 at 14:55:12, Jonny wrote:

Hi Kid!

Your Father does not want you here...does that mean anything to you?

You come here and lie about who you are and we are suppose to trust you?

You should be playing video games with your friends and not be on a pain website!!

Take care of this, Billy!!!

Title: Re: Umm...hi
Post by BB on Dec 6^th, 2006, 9:48pm

My dear Felicia,

Its great that you are supporting your dad and that you wish to learn about CH to be a better supporter.

However, as Cynthia said, the pain of CH is real, is serious and is tremendous. It is something that you and I, as non sufferers, will never be able to understand unless we experience it ourselves first hand. Therefore to be a good supporter, the very first thing you need to learn is RESPECT.

We need to RESPECT their pain, we need to RESPECT their needs, we need to even RESPECT their grumpiness ... Treat your CHer and all CHers with RESPECT first and foremost and then you will start to be a good supporter.

You are still very young and there are a lot of things in life for you to experience and learn, both medically as well as socially, before you achieve the maturity required to post comments about the this condition. Even I, as a doctor, freely admit that I didnt know much about CH and that I need to learn, from different resources and from the people here, that I sometimes can make a booboo and say wrong things too. However, out of RESPECT for everyone, I am always ready to say sorry and admit mistakes and continue to learn humblily.

We do want you here, Felicia and I for one really enjoy your poems. Just hang around, read a lot more and think even more before posting. You will with time become an expert supporter, just as your dad being an expert CHer.

Love you :-*

Take care my sweet.

Annette

Title: Re: Umm...hi
Post by _Broken_ on Dec 7^th, 2006, 7:07am

on 12/06/06 at 21:39:22, Jonny wrote:

Just what dont you understand?

Your Father does not want you here...does that mean anything to you?

You come here and lie about who you are and we are suppose to trust you?

You should be playing video games with your friends and not be on a pain website!!

Take care of this, Billy!!!

No Jonny, my father will not be taking care of this. He doesn't want me here because he doesn't want me to have to deal with people like you that will try to upset me until I leave. Well guess what? Not going anywhere! I am not just a kid. I am the oldest daughter of a sufferer that has 3 little sisters to take care of and 3 sufferers that need me plus whatever highschool throws at me. You think you can beat me down until I finally leave again? I'm staying no matter what you or any other person on this site says because I came here to do good. I came here to help people like you and me and I'm not going to let them be tossed aside because of you.

Annette, I do respect the pain here. Even Jonny though he may not believe it, he was the role modle that pushed me to come here and help people. Where do you think my poems come from? If I didn't respect each and every one of these sufferers and supporters here, do you think I would have fought so long to gain a name here? Would I have stuck around after all the crap I've been put through? I hate the fact that everyone thinks I'm so stupid little brat that wants attention and doesn't belong here. I belong here just as much as any of you. If I didn't respect what these people go through do you think I would have taken another sufferer with me after all ready dealing with 2? Most of you say supporting is nothing like the pain of suffering. You're right. Sometimes, it wrose. All 3 of them get getting hit is like someone hitting you in the heart with a bat. I don't mean to yell at you,Annette but it has to be said.

You may not want me here, but that's to bad. I'm staying because I want to help people. If that means I get yelled at my every person here, so be it. I will continue to ask and I will try to help.

Broken

Title: Re: Umm...hi
Post by chopmyheadoff on Dec 7^th, 2006, 7:22am

what the f#ck ???

can someone please tell me what is going on here ?

Title: Re: Umm...hi
Post by BB on Dec 7^th, 2006, 8:09am

Dear Felicia,

RESPECT means respecting yourself first ie being honest and truthful and speaking only the truth.

I know that you are very mature compared to many other 16 years old but you need to be careful when speaking on behalf of your father about how he uses his medications such as oxygen.

Your father likes to hide his attacks from you because CH is a very complicated condition where many of the world top specialists dont understand, let alone a 16 years old. Its attacks can be really ugly and painful to witness. Since he hides it away from you, you may not fully understand how he uses the medication.

It can be dangerous when you say things like not using oxygen until the pain is really really bad, as this is totally wrong. Oxygen works best when used as early as possible. Once the pain is really bad it is impossible to keep still and calm enough to breath normally for oxygen to work. When you talk about chronic CHer who is not in cycle, it is very confusing as chronic CHers dont have cycles, if they have cycles they are episodic not chronic.

Making wrong statements may lead people who are new to the condition to be doing/believing the wrong thing which can be dangerous or at least may make them suffer more unnecessarily.

If you wish to learn to be a better supporter then be yourself and ask your own questions, but think twice about talking on behalf of your father. I believe that if your father wishes to discuss how he uses his medications he will post himself.

Take care and painfree wishes to you all.

Annette

Title: Re: Umm...hi
Post by nani on Dec 7^th, 2006, 8:51am

on 12/07/06 at 07:07:41, _Broken_ wrote:

I hate the fact that everyone thinks I'm so stupid little brat that wants attention and doesn't belong here.

It would be a mistake to think that everyone feels that way, Felicia. I don't.
A little bit of "life" advice though... always be who you are, and always be proud of it. Never let your opinion of yourself be influenced by others. Stand tall, lil girlfriend...
hugs, nani

Title: Re: Umm...hi
Post by vietvet2tours on Dec 7^th, 2006, 9:21am

on 12/06/06 at 21:21:03, _Broken_ wrote:

http://im1.shutterfly.com/procserv/47b5db27b3127cce9128e65bcc7300000016108Eas2LNu3bi

Title: Re: Umm...hi
Post by chopmyheadoff on Dec 7^th, 2006, 10:02am

hi hun, iv just been given the heads up and i think its admirable that you want to find out about your dads condition.

i also think its wrong that way you have been treated here and think some people should bite their tongues a bit more.

however, what annette says about wrong information is very true, to someone new here might get wrong ideas.

i think you should ask what you want to know as yourself, no need to pretend.
but you must also understand that we on here suffer extreme amounts of pain and tempers can get frayed quite easily.

as i said , i really respect and understand that you want to feel part of what your old man is going through but i think you should sit down and tell him how you feel, tell him that your old enough now to discuss it with him.
who knows, maybe he will be relieved that he has another ally (sp) in fighting the beast.

he will probly still not want you to see him when he is being hit though. this is the nature of the beast and im a "hider" too.

good luck sweety, dont take the stick your getting too hard. ;)

chops

Title: Re: Umm...hi
Post by CynthiaB on Dec 7^th, 2006, 12:01pm

You have stated that you came here to help people. That is very admirable in theory, but dangerous in practice.

I think you have some misconceptions about the way this place works. Or maybe I do...If so,I'm sure I'll be set straight. It is my understanding that people come here in need, usually in dire straits... stick around for a long time....participate and learn a bit along the way. Then they are ready to turn around a give it back to the new people who are coming here in dire straits.

Most of the people coming in here are so humbled by pain or watching the suffering of a loved one that they are unable to be deceptive. It takes too much energy. When we are beginning to heal, we appreciate what we have been given here too much to disrespect this place and the people who make it possible.

My temper is not frayed secondary to pain. I would find this behavior inappriopriate at any time. The lies and angry disrespect have soured the contribution Felicia could have made as a supporter...with complete honesty from the very beginning.

Title: Re: Umm...hi
Post by Jonny on Dec 7^th, 2006, 8:51pm

on 12/07/06 at 10:02:58, chopmyheadoff wrote:

i also think its wrong that way you have been treated here and think some people should bite their tongues a bit more.

Well Chops, how do you feel about someone that starts a thread saying that all the people here do nothing but complain and whine about their pain, they do nothing about it!

Then they delete themself when called on it.

Only to start a new profile as somebody in a new city and a new age with a whole new story?

Do you really like being beatin by the beast and people here you THINK you can trust?

Wake up and read the thread again, man!

Title: Re: Umm...hi
Post by Linda_Howell on Dec 7^th, 2006, 9:06pm

Felicia, I am so Pi$$ed off at you right now I coould spit.

HOW DARE YOU COME HERE PRETENDING!!!!!!!!!!!

You had me and others suckered into to your $hit and we all tried so hard to help what we thought was someone in pain.........How f-ing dare you.

I feel like a fool now and I will never ever trust anyone here like this again. Hope you are satisfied with your self. You need to be so ashamed and if your Dad ever pm's me again I will block him. We used to be friends. No more little lady you need some serious help.

You have not only lost trust here for yourself...you have lost trust for your Dad and your Mom too. Happy now?

Bleah :'(

Title: Re: Umm...hi
Post by Linda_Howell on Dec 7^th, 2006, 9:27pm

Need to say one more thing to those I pm'd asking to please give Felicia a break as she is only a 14 yr. old .

(and you know who you are)

I apologize. She does not deserve one anymore.

Title: Re: Umm...hi
Post by _Broken_ on Dec 8^th, 2006, 7:13am

What aren't you people getting?

First of, Linda, don't blame my dad. He had no part in this whatsoever. He didn't even know I was coming back unti after my fisrt couple posts. It's not his fault.

Second of all, I came here and lied because I couldn't get any sort of decentcy if I told you who I was from the begining. Jonny and others like him would have pulled the same $hit he did last time, just like he is now. The only reason I lied is because I wanted a fresh start and I knew no one here would be willing to give that to me.

Third of all, I never said to use the O2 as my father does. I just said that that's the way he uses his because that works for him. I never told any one to do anything that didn't work for everyone.

I came here to learn most of all. Cynthia, I was here before and people pushed me out because I asked questions. I knew a little and I wanted to help newbies, by sending them to people who knew what they where doing. I wanted to help new supporters too and insead I got beaten out by a bunch of men that act like 5 year olds. I asked questions this time and now I'm going through the same $hit again. WTF?

Broken
Felicia

Title: Re: Umm...hi
Post by Charlotte on Dec 8^th, 2006, 8:21am

Linda, I agree that what Felicia did is the thing I personally hate most, but you say she lost your trust for her parents. Why? If your kid made a mistake would you expect everyone to blame you for their personal decision? You have 7 kids. I have 5.

I trust BJ and Bec. Very much. And I still love Felicia even though she made a mistake.

Charlotte

Title: Re: Umm...hi
Post by seasonalboomer on Dec 8^th, 2006, 10:04am

uh oh, my drama quotient hasa already been filled to the brim today. i better go.

Title: Re: Umm...hi
Post by Kevin_M on Dec 8^th, 2006, 11:12am

on 12/08/06 at 07:13:56, _Broken_ wrote:

I asked questions this time and now I'm going through the same $hit again. WTF?

on 12/08/06 at 07:13:56, _Broken_ wrote:

What aren't you people getting?

Is this one of your new questions, to learn and help with?

What I'm not getting is this:

Quote:

how do you feel about someone that starts a thread saying that all the people here do nothing but complain and whine about their pain, they do nothing about it!

Then they delete themself when called on it.

Only to start a new profile as somebody in a new city and a new age with a whole new story?

Do you really like being beatin by the beast and people here you THINK you can trust?

If this question was posed to you, how would you respond? So far your response has been a lot whining and complaining mixed with wanting to learn and help. Are you so different from the way you perceive us?

on 12/08/06 at 07:13:56, _Broken_ wrote:

What aren't you people getting?

What I am not getting is how this deceptive plan was suppose to fool someone like Jonny.

on 12/08/06 at 07:13:56, _Broken_ wrote:

What aren't you people getting?

I'm not getting how using another name was going to change your questions, responses and intentions other than to constantly weave more web to the deception, which fell apart with every new strand. How far would you have continued if it wasn't for Jonny?

So far, I hope you can find some appreciation for what you've learned from Jonny. I missed a lot of high school though, maybe I missed where learning these plans are formed and just not getting it like you say, but I didn't see it get off the ground either.

Maybe as Felicia, supporter, learner, helper, you know, like many here that you gave a harsh assessment to, it might be a better idea than a _broken_ plan.

Title: Re: Umm...hi
Post by chopmyheadoff on Dec 9^th, 2006, 6:07am

on 12/07/06 at 20:51:03, Jonny wrote:

Well Chops, how do you feel about someone that starts a thread saying that all the people here do nothing but complain and whine about their pain, they do nothing about it!

yeah well anyone who said that to me would get their teeth kicked in in seconds flat . . .
i must have missed that one . .

iv obviously missed all the history here, i just prefer to make my own mind up before i judge someone

chops

Title: Re: Umm...hi
Post by chopmyheadoff on Dec 9^th, 2006, 6:27am

on 12/07/06 at 12:01:06, CynthiaB wrote:

Most of the people coming in here are so humbled by pain or watching the suffering of a loved one that they are unable to be deceptive. It takes too much energy.

i couldnt agree more, this is why i choose to give people the benefit of the doubt, imagine what it would fel like genuinly coming here looking for help and being flamed to death. it would probly finish you off.

now i have been reading passed threads to "catch up" as it were and this is obviously not the case here.

this thing we suffer is no fcuking joke
this place is not a playground

lets not treat it like one. >:(

chops