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Title: used to be alone Post by calif_brian on Nov 30th, 2006, 1:18pm hello im new to posting but have been reading for a while a kind person from reding calif sent a quick message.took a while to stopcrying for hours (just came back from that again just thinking about it i have had ch since late 99 stsrted slow now chronic tried everything but inj and musrooms i have had every operation for sleep apenea some more than3 times one dr even screwed up so bad but thats another story and 130000 bucks that can help. as for the one that wants some one to understand check this out i do drink im one of the few that can have a libation from time to time some times it is a mistake but i fight the beast on my terms.yes i have thought have killing the beast who of has not. this past yearand a half i have lost alot including my mother anurizem i had the dnr 8 days on support i helped unplug her adjust pain med up and held her hand with my father on the other side of the bed 8 hrs latter she passed i miss her.when i got back from az needless to say i was not in a good mood i had trouble with the beast. for months my wife said suck it up it dont hurt that bad if i went to lay down and rest after a bad night she told me i was anti social. get this she would move my o2.when i was i onpain meds you name it no needles except for 2 spinal epederals. i would be inside on narcotics yes i know they dont work and fentynal she would make fun of or rude comments like go suck on your lolipop.the drooping eye face etc she said i was drunkseveral times a day when i havent even cooked with any wine or beer etcfor over 5 months ps my wife dosent cook i do even while iwas working or going to do battle with the beast i would cook and go lay down u all now what a lot of heat and cooking fumes can do to us. oh i forgot she also said she wished i would die and a little later she said she wished i was dead. she will not talk to me but a single male neighbor who saw a 7 and laughed and made fun of my condition4 years ago her father divorced 5th time no money on fixed income80 plusshe was afraid i would turn him awaymaybe its because her 3 other husbands used him his money and stole from him the wife to she is a recovering speed freack 12 years she started again afew months ago but said she stope maybe she is gun shy im sorry but i ramble on just trying to give you an idea of the life here take a breack if you got this far and take a deap breathi will try toget to the point.we have been to therapymy wife befoare we went said she wants me to leave our home 3000000 equity 130000 settellment she wants me to leave it all behind so she can keep the house and my settellment for a really bad surgery ok lets say im a drunk need help tried hypnosis counseling thearpy massage thearpyeverything so there is more but the point is several times in front of wittnesses and the therapist by the way she had a migraine once and knows how i feel i have an atty i know all set up i asked my wife to read the letter to explain nothing. i asked the wife at thearpy and the thearpist to read it guess whatthey would not read it they say they do not need tothay understand i did not mkae them read it i just set it in front of them i was calm not mad just looking for understandig not pitty or special treatment oh yea prior toasking my wife and thearpist i have legal docs here if they read it i will sign over my share of the house my settelmeNT MONEY EVERYTHING and go to a rehab with no meds no o2 nothing 30 days of battlewith the beast unarmed alone awawy from home whom i kidding they woul;d not read it.if that is not enough i will get in my used car and leave.11.5 years of marrige she is on the second new car she ever owened i bought both of them. her comment was just leave now leave everything there is nothing here that i want is what she said thats in condensed a little. before anyone says or thinks there is other problems with me yes you are right we are human and subject to flawsbut even after this my wife told the therapist that i am the sweetest kindess etc man she has ever met but guess what for more info call or email i dont type fast or well but i try fixxing 747s is easier than thisand finding rare parts for rare one of a kind airplanes is easier than finding pieces of my broken heart thanks for letting me vent thanks and a pain free day to all |
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Title: Re: used to be alone Post by Cathi04 on Nov 30th, 2006, 2:02pm Brian, WOW! You sure are dealing with a whole lot right now! It constantly amazes me how CH can affect every facet of a life. I put it that way, because it is more than just YOUR life....it's those who love you. Your family, your friends, your work.....everything is affected! I'm glad you made it to Clusterville. here you can read about help for your CH. Please take time to read the topics on the left, ask questions and share infor about your CH.....no 2 Clusterheads are alike, but everyone is still searching for some common denominator. There is a lot of information here awaiting you, and plenty of people who care, so fire away, my friend!!! Please, Brian, give us some detail......are you epi or chronic? Are you using any meds now to deal with the hits? There's a lot of evidence in your post that you have not had a good Neuro, and you have suffered additional pain due to misinformation on your Dr's part. Let's get you on the right track!!! Again, I say, welcome, Brian! Pull up a chair, and start reading, writing and at the very least, getting your affliction under control, once and for all!!! Cathi |
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Title: Re: used to be alone Post by calif_brian on Nov 30th, 2006, 3:22pm my docs rulled out the norm crap fast and early and got to o2 a long time a go 10 bottles e tanks all over the houes the nero quickly pointed out that nothing can be done but manage the pain 2 years pain management they can bite me i had better luck fighiting the beast i call it a dragon a mytical creature that breathes fire and brings destruction wherever it goes but it is make believe right. also sleep apnea10 sleep studies +. they thought curing sleep apnea would cure ch yea right still got both and a lot of steell in my chin and jaw i had bimaxmandibular advancment the most intrusive and painfull elective surgery you can have i was told .go figure i go to the extreme every where. my new meds have gotten me up and moving more than any other treatment to date but that is just me i hesitate to mention it for fear of the stigma around it but we all know not to judge what works i keep it discreet and out of view of all but the soon to be x i was told to watch my weight for sleep apenea so far i have lost 20 lbs in 5 years aaaaaaaaaaaaaaaaaaaaaaaaaaaaa 5 9 165 to 5 9 145lbs 46 years olds. on my meds i eat once a day sometimes every other. a good day ill get 2 meals wwwwwwwwwwwhhhoo gotta go at a 6 and ++++++++++++++++beback laterr |
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Title: Re: used to be alone Post by Cathi04 on Nov 30th, 2006, 3:32pm Brian, are you sure you're at the right flow rate?? Have you heard of a Clustermasx?? As for what meds............well, lay it out, please?? NO, the replies you get probably won't be what you want to hear, but, nonetheless........I'm gonna guess fentnayl patch?? This is a group who has heard it all, and they don't want to harm you, they want to help!! Anywhooo, we're here, Brian!!! Cathi |
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Title: Re: used to be alone Post by calif_brian on Nov 30th, 2006, 5:26pm durlgesic patch is the fenteayl so is the lollipop it is marked cancer paitients only lets get simple topomax/lithium every cet you can think of perc darvo etc/dialaudid/imitrex /lidocain/1year 1500mmg vicodin every 4 hours every??????????4 hours 1 year morphine methadose 5 and 10mmg 2 seperate spinal epiederals/every odone /every otin like oxy or roxy oh all opiods with a fent chaser i can not see giving myself an inj i know i missed some but i still have the bottles put away for peeople that do not bieleve now i use cannibis different types help for pain sleep etc. i also take valium 1 a day in the morning o yea and when im in battle and need back up o2 wide open i have been on o2 since 2000 but check your flow rates and time as lung damage will( not may) will occur im an aircraft mechanic and have handled o2 for a long time ps if you have trouble getting o2 go to a pilot supplie shop they have all kinds of bottles and there better than e tanks as they are strong and cleaner then make friends with a fbo and have them refil as needed o2 scrip not for me i have a n p and if you have that you can put o2 in a plane ;;D or ???? back all those drugs and im drunk 24 7 so says the wife any way doing battle if im looking for o2 guide(it is most always in reach) me or set it at my feet or stay out of the way please im at a full blown 10 by then. the can is hard to light and eatting to slow to kick in at 10 or high 9 an idea pick a day and tell it here how you handle pain how you handle food best of all what you think aboutat ten me at 10 im on the floor cant fall far from there i remember trying to move and walk in my early days crack your head on a night stand and you know what i mean)i think the hiss from the regulator is my back up if i can just hold on till it gets there come guys lets move it faster please i do not know how much longer i can last an eternity passes waiting oh wow im i feeling better no still a 10 but wait can i thinki feel better but still a 10a while latter breathing slows a little what is so wet dry the tears later look around realize where i am what i just went thru sometimmes i get up move around just a little celebration for making it thru wait did i swap out the bottle better do it now 8 9 10 hhhhiiiiiiiiiiiiiiiiiiiiiiiiissssssssssssssssssssssssssssss repeat 2nd bottle runs out io lay there afraid to move who knows when or if sleep will come 430 am coffe pot on auto grab a cup try to clear head sit and wait for the sun to shine 530am wife gets up first words what the fuck was all that fucking noise last night dont you know i need to get some sleep i have to get up and go to work in the mornings and why is the end table messed up whats with all the blood oh you fell out of bedand hit your head serves you right for drinking i say what no i got next to no sleep plus a cluste oh dont give me that we are all in pain suck it up and take it like a man clean up that mess oh and you can sleep on the sofa or in the back yard for all i care i need my sleep my last night in bed over 4 years ago sofa stories latter |
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Title: Re: used to be alone Post by vietvet2tours on Nov 30th, 2006, 5:48pm Yep his flow rate is jest a leetle bit high. |
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Title: Re: used to be alone Post by chewy on Nov 30th, 2006, 6:09pm This like reading the DaVinci Code |
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Title: Re: used to be alone Post by CynthiaB on Nov 30th, 2006, 6:15pm Jonny,I think that's one of the sweeetest things I've ever heard you say ;) |
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Title: Re: used to be alone Post by vietvet2tours on Nov 30th, 2006, 6:26pm But it's so perfectly clear. |
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Title: Re: used to be alone Post by Shedz on Nov 30th, 2006, 6:29pm [smiley=confused.gif] |
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Title: Re: used to be alone Post by Guiseppi on Nov 30th, 2006, 6:34pm Ummmm.....yeah...... Guiseppi |
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Title: Re: used to be alone Post by thebbz on Nov 30th, 2006, 8:42pm I hate it for ya. And I am glad I'm not your liver. I would hope you get to feeling better. Consider weaning off some of the dope. If you can. all the best jb |
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Title: Re: used to be alone Post by georgej on Nov 30th, 2006, 9:55pm It isn't easy trying to sort this out, but one thing is obvious. You've got issues. I'm with JB on this. Bluntly, you've got to get off all the damn narcotics before you can even think about what to do about CH. The simple fact is that narcotics are not doing squat for you. I'm not going to blow sunshine up your butt--you've got a nasty jones, and it's not going to be easy. As far as the cannabis goes, all I can say is that most of the cannabis users I've heard from here consider it a trigger. So if you smoke a fat one, chances are you're going to end up with another headache. And so then, I take it, you dose yourself with another narcotic. Real helpful. Keep this up, and you're going to end up in a refrigerator with a tag on your toe. Sorry if this sounds unsympathetic, but that's tough. Detox, get your life together, and maybe we can be of some help to you in dealing with your CH. George |
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Title: Re: used to be alone Post by Linda_Howell on Nov 30th, 2006, 11:02pm Brian, I was the one who pm'd you because I saw you were from California and right about where I used to live too. You are still not alone my friend and everyone here, including me will take you under their wings and help you help yourself. I had no idea you were taking this amount of Narcotics/Cannabis etc. Paragraphs are our friends here Brain. PLEASE....as I had an almost impossible time of reading and even gave up at a certain point. I would like so much for you to come to San Diego in January Brian. We're not Doctors for sure but we can all let you know what do about things like the 02 and what to talk to your Dr. about to get you set up on a path where you have some hope. Linda |
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Title: Re: used to be alone Post by calif_brian on Dec 1st, 2006, 12:23pm i quit all narcs 8 26 06 started canabis 8 28 06 no withdrawl o2 is at 8 litters a min. as far as drink i had 2 on my bday 11 24 none since then. as far as paragraph try to type and do battle. i can not type well on a pf day. san diego in jan sounds better than durango co . or the ranch in the moutains north east of here to cold. remember it is easy to listen ,yet it takes compassion to understand. ps i read in a news letter that nerotin check spelling is working for some i tried it 2 or 3 years ago no help still have some i have a lot of pills left over. if the doc said give a week i gave it 2 no help try some thing else. the day after i started my new med a friend told me i had not looked that good in years they still do not know what i use |
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Title: Re: used to be alone Post by calif_brian on Dec 1st, 2006, 1:15pm a quick note to all that might judge. from day 1 i have been in to see my reg gp at least once month blood heart liver etc as well as specalist visits hospital stays etc i had so many marks from blood draws and iv. my ass still feels like a pin cushion from all the dem/mor/etc they shoved in my butt cheeks. dr findings extreme tolerance to pain antibotics overused and have diminished effect highly tolerant to opioids/with fent no improvment paitient shows signs of extreme fatigue probable cause sleep apenea aggravated by ch syndrome have exhaustyed all tradtional modality paitient requested more holistic approach as other treatment has had no improvement. paitent was informed of this treatment 2 years ago and is now presenting himself for this line of treatment. i will countinue to monitor patient with monthy office vists ,testing and evaluation. paitent also request to see a therapist to disscuss hypnosis and conseling . the paitent also wishes to learn more on medatation as he has tryed and found on his own. claims this works better than morphine. informed paitient of pros and cons of this type of approach, the risk factors involved.paitient wishes to countinue so folks what do you take me im on canabis and o2 the first has been used to treat people for over 5000 years how long has yours been treating people. plus there is so many ways to get the medicine out of the plant with out smoking it trivia quiz time hope you all studied q1 how many people have overdosed on pot /weed /hemp /refer/canabis/thc etc in recorded history world wide???????????????????????????? hint the number of people will fit in a football stadium |
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Title: Re: used to be alone Post by LeLimey on Dec 1st, 2006, 1:47pm Brian in cluster headache attack the blood vessels on the affected side of your head swell by up to 20 times their normal size. What we need are vaso constrictors to reduce the size of the blood vessels. Marijuana is a vaso dilator, it increases the size of your blood vessels. If you think it helps you with your attacks then more power to you. You probably don't have cluster headaches. If you've already found your cure-all may I ask exactly why you are here? |
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Title: Re: used to be alone Post by calif_brian on Dec 1st, 2006, 4:28pm J Pharmacol Exp Ther. 2006 Oct 3 [Epub ahead of print] Cannabinoid (CB1) receptor activation inhibits trigeminovascular neurons. Akerman S, Holland P, Goadsby PJ. Institute of Neurology, London. Migraine is a common and disabling neurological disorder that involves activation, or the perception of activation, of the trigeminovascular system. Cannabinoid receptors are present in brain and have been suggested to have an anti-nociceptive role. Here we determine the effect of cannabinoid receptor activation on neurons with trigeminovascular nociceptive input in the rat. Neurons in the trigeminocervical complex - trigeminal nucleus caudalis (TNC) and dorsal horn of the C1 region- were studied using extracellular electrophysiological techniques. Responses to both dural electrical stimulation and cutaneous facial receptive field activation of the ophthalmic division of the trigeminal nerve, and the effect of cannabinoid agonists and antagonists were studied. Non-selective CB receptor activation, with WIN55,212 (1 mgkg(-1), i.v) inhibited neuronal responses to A- (by 52%)and C-fiber (by 44 %) afferents, an effect that was blocked by the CB1 receptor antagonist, SR141716 (3 mgkg(-1), i.v), but not the CB2 receptor antagonist, AM630 (3 mgkg(-1), i.v). Anandamide (10 mgkg(-1), i.v) was also able to inhibit both A- and C-fiber elicited trigeminocervical complex (TCC) firing, but only after TRPV1 receptor inhibition. Activation of cannabinoid receptors had no effect on cutaneous receptive fields when recording from TCC neurons. The data show that manipulation of CB1 receptors can affect the responses of trigeminal neurons with A- and C-fiber inputs from the dura mater. This may be a direct effect on neurons in the trigeminocervical complex itself, or an effect in discrete areas of the brain that innervate these neurons. The data suggest that CB receptors may have therapeutic potential in migraine, cluster headache or other primary headaches, although the potential hazards of psychoactive side-effects that accompany cannabinoid treatments may be complex to overcome. PMID: 17018694 ---------- |
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Title: Re: used to be alone Post by vietvet2tours on Dec 1st, 2006, 4:33pm on 12/01/06 at 16:28:00, calif_brian wrote:
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Title: Re: used to be alone Post by CynthiaB on Dec 1st, 2006, 5:38pm willsomebodypleasehelpmestopcomingbacktothisthreadaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaa |
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Title: Re: used to be alone Post by chopmyheadoff on Dec 6th, 2006, 3:37am on 12/01/06 at 13:15:17, calif_brian wrote:
the answer is zero, it is impossible to od on pot ( i should know ) oh and one more thing - the full stop is in the bottom right of your keyboard get a grip |
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Title: Re: used to be alone Post by BB on Dec 6th, 2006, 3:50am on 12/01/06 at 16:28:00, calif_brian wrote:
Brian, That was a study done on RATS !!! Annette |
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Title: Re: used to be alone Post by Tata on Dec 6th, 2006, 1:02pm "trivia quiz time hope you all studied q1 how many people have overdosed on pot /weed /hemp /refer/canabis/thc etc in recorded history world wide???????????????????????????? " No offense, but if by "overdosed" you mean turned into a rambling, non-sensical, paranoid goober, I'd have to say I'm pretty sure YOU qualify. Take a tip from Nancy Reagan-- just say no, dude. ;) --the weed is getting to you. |
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Title: Re: used to be alone Post by Linda_Howell on Dec 6th, 2006, 1:06pm Quote:
The image of a rat sitting around zoning with a joint in his paw, a lava lamp at his side and incense burning in the back-ground is hilarious to me. |
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Title: Re: used to be alone Post by Margi on Dec 6th, 2006, 3:37pm don't forget the black lights and tiny little love beads, Linda. ;) Do ya figure these rats are knocking each other over to participate in this study? Do they say in rat language 'hey, man, pass that over here - don't bogart that! I've got a headache!' They must have been rats with migraines if they found conclusive evidence that smoking those tiny little doobies gave them relief. Weed can help migraine, weed triggers cluster - I don't care what the study says - I've seen first hand proof of both. |
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Title: Re: used to be alone Post by JeffB on Dec 28th, 2006, 12:58pm Jesus H Christ. I need a few bongs after reading that long drawn out whatever it was. Weed does nothing for aCH, NOTHING. If anything I think it can be a trigger for some. For me, all it does is give me a chance to relax a little after getting slammed. And I don't think the stuff they smoked 5,000 years ago is anything like we have today. I hope you are off of everything else or at the very least are getting help with your situation. |
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