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        New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> There may be hope
        
(Message started by: mathieulives on Oct 30^th, 2006, 10:30pm)

Title: There may be hope
Post by mathieulives on Oct 30^th, 2006, 10:30pm

Well i've had 1 episode in 3 days, i've aborted a number of them so it seems the verap is kicking in after 3 weeks. Thank you all for your support. Anyone out there who needs support feel free to email me. I'm here for you all too, please let me know how I can help others.

Heres to being PFF, pain free forever.

Title: Re: There may be hope
Post by Linda_Howell on Oct 30^th, 2006, 10:44pm

Quote:

--------------------------------------------------------------------------------
Well i've had 1 episode in 3 days, i've aborted a number of them so it seems the verap is kicking in after 3 weeks. Thank you all for your support. Anyone out there who needs support feel free to email me. I'm here for you all too, please let me know how I can help others.

Glad to hear the Verapamil is kicking in but "feel free to e-mail me" ?????????

Why don't you stick around here to support others as they come in through the door. If you've been helped here that's great. Return the favor. As we all say..."grab an oar and start rowing"

Title: Re: There may be hope
Post by leftsideonly on Nov 1^st, 2006, 1:12am

Damn Mathieulives - Don't run.
I just found this site after suffering with this beast for over 10 years by myself. I found this site to be a Godsend. I cried like a baby knowing I wasn't alone anymore(finally). I certainly don't want to bust your bubble but if you are a CH sufferer there is one thing I know for sure ... it will return. Hopefully not soon - but there is no cure right now.

I am going to stick around to help others and continue to learn more about this disorder. The one thing any of us can ill afford to do is stop talking about it. There aren't enough of us to have a voice with the big drug companies - but there are enough to continue to try new things and report results. Who knows maybe before your next episode there will be a cure - hate for you to not be in the know.

Best wishes to you my friend!

Peace and PF wishes,
Andre
:)

Title: Re: There may be hope
Post by chopmyheadoff on Nov 2^nd, 2006, 3:35am

^^^ good post , well said !!!

chop

Title: Re: There may be hope
Post by BB on Nov 2^nd, 2006, 5:17am

on 11/01/06 at 01:12:31, leftsideonly wrote:

There aren't enough of us to have a voice with the big drug companies - but there are enough to continue to try new things and report results.

Andre
:)

Ditto that !!

If each of us try a little bit within our ability, the sum will be great!

Annette

Title: Re: There may be hope
Post by Barak on Nov 2^nd, 2006, 8:27am

exactly why we all have to stick together through this and hold it out till death. there will be a cure just we dont know when yet maybe next year :D so stick around please:D

Title: Re: There may be hope
Post by Sandy_C on Nov 2^nd, 2006, 7:32pm

I'm glad that you are doing well, and are pretty much pain free. Why not stick around on these boards to offer advice and support to those who are hurting?

I've been out of cycle for 16 months. I'm still here, at least three times a week. Why, because I've been there, experienced the awful pain of CH, and have found so much help, information, caring and support from the people here. I have to give back as much as I've received.

Sandy

Title: Re: There may be hope
Post by nohandgunsallowed on Nov 3^rd, 2006, 9:01pm

glad to hear the good news...pf wishes on ye