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Title: Hello All Post by Erebus on Oct 3rd, 2006, 9:12pm Just introducing myself. My name is Kasey. I'm a 26 years old (well 27 next month) guy with CH. I was diagnosed when I was 15 years old. When I was first diagnosed, I was chronic. The first episode was easily 6 months long with 3 to 6 headaches a day nearly everyday. I was in Junior High School at the time. The first episode started when I arrived at school early and had to wait in a small area between two sets of doors before they unlocked them. One of the girls decided to start spraying hair spray in this enclosed area. Soon I was on the ground with what the principal described as a seizure. I really don't remember the incident itself but the doctors later assumed the hair spray triggered it. I later spent a lot of time in and out of Doctor's offices and Hospitals have tests down and head scans for tumors. They never found a tumor and eventually said it was CH after a Nerologist saw me. I only recently started doing much research online about CH. Late last night I started an episode and today found this site. My episodes are more like 5 times a year now lasting 2 to 3 days most the time. I'm curious if others are left with flu like symptoms after your headaches? I am often left with extreme nausia, runny nose, water eyes, and in some cases diarea. |
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Title: Re: Hello All Post by nani on Oct 4th, 2006, 12:05am Hi Kasey. Welcome. Sorry you had to find us. When I was young, my episodes were not classic, and often short lived like yours. About your other symptoms: part of the criteria for a CH diagnosis are the autonomic symptoms you describe (watery eye, runny nose) although they don't usually last too long once the pain subsides. Some people have reported nausea, and I get nauseaous when I'm in extreme pain, but diarrhea is a new one from what I can recall. Is it possible that any meds you're using are causing gastric problems? What treatments are you using? Have a look at the oxygen info link on your left. Most of us get relief from it and it's safe. Read all you can here, there's a lifetime of combined knowledge on this site. Keep us posted... pain free wishes, nani |
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Title: Re: Hello All Post by BB on Oct 4th, 2006, 12:50am Hello Erebus I am sorry to hear that you have cluster but now that you are here ; Welcome Home! Your post cluster symptoms are very similar to that of my DH, who is the one with cluster. He gets a low grade headache, body ache and pain, runny nose and nausea which can last from minutes to several hours. He never had diarrhoea though. Knowledge is the first line of treatment for cluster so spend some time reading the Board, go back to the archives too once you have read everything for this year. Post as many questions as you need to. Remember that the only silly question is the one that didnt get asked. :) There is much strength in unison. We cant guarantee that we will have your cluster all figured out, but we can promise that as long as you need good advice and support, you will always find it here, no matter what time of night or day. Take care and painfree wishes to you. Annette |
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Title: Re: Hello All Post by Erebus on Oct 4th, 2006, 12:54am Not really on any meds right now. I haven't found where anyone else has the diarea either. Not something that always occurs (thank god) but after really bad episodes it seems to happen. I sometimes take Excedrin Migraine which seems to help. Was on Imetrex for a while and DHE (really early on). I have used oxygen and it helps sometimes. |
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Title: Re: Hello All Post by Erebus on Oct 4th, 2006, 1:00am Thank you both BTW. I do plan on reading a lot on here! |
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Title: Re: Hello All Post by thebbz on Oct 5th, 2006, 9:41pm Sorry you have to be here but hello anyway. Recheck the o2. I used it several times improperly and it did not work. Check out clustermasx.com and try it again. Hope your doing better. Your in the toughest club ever. jb |
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