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        New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> Here again!
        
(Message started by: athome on Sep 21^st, 2006, 5:08pm)

Title: Here again!
Post by athome on Sep 21^st, 2006, 5:08pm

Well, its been over a year and THERE BACK!! I have no o2 and no dr to prescribe. Gerneral MD will not do it and previous neuro is no longer seeing patients - the new dr will see me in 4 weeks. Then I will have to explain what I have been dealing with for 16 years and he will look at me like HUH? and then I will beg for o2. Why can't this be easier... :(

Title: Re: Here again!
Post by Edski_1 on Sep 21^st, 2006, 7:15pm

I've never used O2, but...at times when I've gotten hit with an attack while driving I'll blast the fans on me and try to breath deeply and regularly.

Very moderate success, but at least I was trying to think of something else...

I'd try harder on the GP. My GP was willing to fight for me to get more zomig than I'd want to take in a month.

:)

Title: Re: Here again!
Post by thebbz on Sep 21^st, 2006, 9:14pm

Send your old neuro a release of medical information for yourself. Request a copy of his records with the diagnosis. The GP may not listen to you but its hard to argue with the proper diagnosis by the proper professional. Did he or she die? No longer seeing patients? What about records? Those records are not theirs they are yours.
I hate going in and sounding like a broken record. Anymore I go in and throw my records on the table, from there its teamwork or they are fired.
all the best
jb

Title: Re: Here again!
Post by Charlotte on Sep 21^st, 2006, 9:21pm

Good luck. It helps to go in prepared, like Thebbz said.

It takes awhile to get the records, so start now. Call the old office. If the neuro moved offices, they will have to contact him or her to get permission to release your records to you, and there will probably be a small fee & some more rigamarole, faxing, & mailing.

Also, see an eye dr if you can & go through the eye dilation and have them give you a report to take with you, including nystagmus & color blind & whatever.

And take in literature on any meds you take or want to take.

Once, again, I wish you luck. Let us know the date & we will pray & vibe for ya.

Charlotte

Title: Re: Here again!
Post by athome on Sep 21^st, 2006, 11:52pm

I decided that it is time to change GP - he is of no help at all. When I called asking for the o2 he said "Sorry but o2 is considered treatment and I am not the treating dr you need a Neuro" >:( Neuro is now only seeing MS patients - I will request my info from him and see what the new neuro says? The old Neuro did not seem all that familiar with CH and I went in with all my backup info but he did his own thing (test MRI..., then gave me migraine meds, then I said o2 please and he gave me the Rx)
The cold AC thing I've tried before (this week as a matter of fact) but it does not do it for me.
Thanks for your input - PFDAN to all...

Title: Re: Here again!
Post by chewy on Sep 22^nd, 2006, 7:03am

Florida

Dr. Roberta Rose
Sebastian

Potter Priscilla
Miami

David Torrisi
Pensacola

Steven Wheeler
Miami

Steven Kobetz
Miami

Frank Wierichs
Venice

Michael L. Waters
Jacksonville

John F. Wilker (Family Practice Associates)
St.Cloud

Dr. Todd Hartley
Maitland

Sam Synder
Ft Lauderdale

James L. Cimera
Ft. Lauderdale
[b][/b]

Title: Re: Here again!
Post by kcopelin on Sep 22^nd, 2006, 7:48am

And there's always welding O2 if all else fails. Jonny can tell ya how to adapt the regulator, ect. I had more trouble getting O2 than anything else-so odd that docs were willing to throw all manner of toxic meds at me, and narcotics, but when I asked for O2 they were "suspicious". What's up with that? [smiley=huh.gif]
PFDAN
Kathy

Title: Re: Here again!
Post by georgej on Sep 22^nd, 2006, 10:26am

on 09/22/06 at 07:48:54, kcopelin wrote:

I had more trouble getting O2 than anything else-so odd that docs were willing to throw all manner of toxic meds at me, and narcotics, but when I asked for O2 they were "suspicious". What's up with that? [smiley=huh.gif]
PFDAN
Kathy

It's a good question. We hear it over and over on the board. I wonder whether we'd like the answer very much.

George

Title: Re: Here again!
Post by athome on Sep 23^rd, 2006, 1:17am

I wonder also what the big deal is with the o2 - and like someone said maybe we are better off not knowing?

Chewy: Thanks so much for the list - are those all GP and especially Wheeler someone had mentioned him to me but was not sure what type of MD he was and could not find him on my insurance?

Title: Re: Here again!
Post by Charlotte on Sep 23^rd, 2006, 1:15pm

Please do changes docs. Part of the reason migraine meds have been foun to help ch, but not used in quite the same way. I will try to find the links and post them here.

Charlotte

http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=jun2003;action=print;num=1049244429

and what's all the kudzu about has a link to everything you will ever need

http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action=display;num=1110584362

There were some other links which I cannot find now but ill look for later.

Title: Re: Here again!
Post by athome on Sep 25^th, 2006, 10:17pm

Thank you Charlotte for the information - I will definetly read into. Kudzu? first time I heard of it I am reading about it to get all the info. THANKS again!!