Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> Hello Again! Update on Fig.........
        
(Message started by: Fig on Sep 15^th, 2006, 11:49pm)

Title: Hello Again! Update on Fig.........
Post by Fig on Sep 15^th, 2006, 11:49pm

I'm Marion, from Upstate New York. I've just turned 60--a long time to suffer, don't you think? I've been reviewing things, looking for clues, answers.... One thing I remember is that ever since I was a young child I would periodicly feel a lightning bolt blast jolt thru my skull (always on the left side). It would burn and throb, leave me shaken for a minute or so. Sometimes I'd see black. Often I'd be left with a dul headache. These "blasts"/"jolts" would come out of nowhere, any time. They continue to this day. Also now, for years I get severe headaches day after day where I can do nothing and feel stupid and depressed. A doctor did once tell me I have clusters, but they don't seem to fit the typical pattern. All I know is this--they're hell, they're scary, they mess up my life and nothing seems to help other than waiting them out. Any thoughts? Thanks. You guys are great. Hugs, Marion

Title: Re: Hello Again! Update on Fig.........
Post by nani on Sep 15^th, 2006, 11:54pm

Hi Marion, have a look at this:
http://headaches.about.com/od/otherheadpain/a/ice_picks.htm

Hope you get some answers.
pain free wishes, nani

Title: Re: Hello Again! Update on Fig.........
Post by BB on Sep 16^th, 2006, 5:15pm

Hello

Your symptoms are definitely not classical CH.

So you have had them for nearly 60 years without the need to medicate?

How often do you get these jolts and headaches for in a day? And how many days in a month? and how many months in a year?

Have you seen any neurologist?

Your symptoms could be some form of epilepsy.

Please see a neurologist for review and actual diagnosis.

Good luck with everything and painfree wishes to you.

Annette

Title: Re: Hello Again! Update on Fig.........
Post by Jonny on Sep 16^th, 2006, 5:43pm

Go to another doctor cause the one you saw was a quack!!

Title: Re: Hello Again! Update on Fig.........
Post by Fig on Sep 16^th, 2006, 8:07pm

Thanks, guys. I do have tension headaches and migraines---I have some form of hea.dache almost every day. I take pain meds (Darvocet or Ibuprofen). I do have a neurologist, whom I see for another problem--I have NF (Neurofibromatosis). On my last MRI they found a small tumor just outside my brain, behind my right eye (the side where my headaches are). We're leaving it alone for now. I've had EEG's done--no sign of epilepsy. Any way you slice it, this whole deal is a bummer, no? I think you all are the bravest bunch of people I've ever met. Marion