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Title: 24 HA's in 15 days....I'M INSANE....... Post by murnahan08 on Jul 31st, 2006, 11:49am I've had 24 HA's in 15 days I'm INSANE. Has anyone else had this many is this normal? I don't know what to do. I'm using the imitrex injections but can only have 2 a day. I started the first week with 1 ha a day the 2nd week 2-3 a day now starting the third week its 2am again at 4am and again at 7:30am and again at 11:00 pm for the last two days. I don't know what to do does anyone have any suggestions on anything that may prevent so many attacks? Or maybe how long this will last? |
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Title: Re: 24 HA's in 15 days....I'M INSANE....... Post by Linda_Howell on Jul 31st, 2006, 12:45pm 24 HA's in LESS than 15 days is not uncommon. Especially for chronics. It may not help in knowing that but at least you can know you're not alone. Do you have oxygen as another, safer abortive? click on this link and if you do not have 02 print this out and take it to your Dr. http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm Linda |
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Title: Re: 24 HA's in 15 days....I'M INSANE....... Post by prcole18 on Jul 31st, 2006, 12:46pm I'm currently getting up to 6 every 24 hours. Im usiing the Imigran injections, although you are only meant to use 2 a day i'm using up to 4. im not telling you to use that many but I just figure i'd rather do this than suffer the pain! |
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Title: Re: 24 HA's in 15 days....I'M INSANE....... Post by Jasmyn on Jul 31st, 2006, 4:31pm Sorry you are going through such a bad patch. Just be careful with so many imitrex injections, they tend to give rebound headaches and bad for the heart. Look on the left for the "imitrex tip". Linda is right, Oxygen is a better alternative as an abortive. What preventatives are you on? |
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Title: Re: 24 HA's in 15 days....I'M INSANE....... Post by Tattoo on Jul 31st, 2006, 6:27pm I was getting 4-5 a day when my cycle started ,but after reading what the good people here had to say I slowed down on my imitrex and the HA also slowed down . I think the imitrex was giving me "rebounds" |
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Title: Re: 24 HA's in 15 days....I'M INSANE....... Post by Jonny on Jul 31st, 2006, 6:54pm on 07/31/06 at 16:31:20, Jasmyn wrote:
Heres what the tip looks like when doing it.....be sure to read it well!! http://im1.shutterfly.com/procserv/47b2db23b3127cce9fbec3f15d1800000036108AZM2bNk5bM6 |
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Title: Re: 24 HA's in 15 days....I'M INSANE....... Post by Richr8 on Jul 31st, 2006, 7:19pm Your experience sounds pretty typical of what many go through. Follow the tips suggested above and hang on. I'd like to plug O2 just one more time as it has been a lifesaver for me. |
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Title: Re: 24 HA's in 15 days....I'M INSANE....... Post by Linda_Howell on Jul 31st, 2006, 7:30pm There are 89 CH-er's listed in Georgia. The top one on the list is from your town. I'd send her a e-mail and ask if she has a good Dr. and go from there. Before you do educate yourself, print out medications and 02 info to give him or her. Let us know. Please? |
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Title: Re: 24 HA's in 15 days....I'M INSANE....... Post by Richr8 on Jul 31st, 2006, 7:31pm on 07/31/06 at 19:24:22, murnahan08 wrote:
You might want to review this: http://www.brightok.net/~mnjday/chtherapy.pdf |
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Title: Re: 24 HA's in 15 days....I'M INSANE....... Post by E-Double on Jul 31st, 2006, 9:27pm Sounds like you're either peaking or there is a potential increase with the use of sumatriptan. Either way.........GET O2!!!!!!!!! Take a deep breathe and try to enjoy the ride |
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Title: Re: 24 HA's in 15 days....I'M INSANE....... Post by starlight on Jul 31st, 2006, 11:08pm I get five a night when not taking the right dose of melatonin (and sometimes rogue hits in the evening). Unfortunatley this is the way my cycle gets about 2-3 weeks into cycle. You sound similar--it is nighttime REM--then when you get rid of one and go back to bed you get another hit--Mine sometimes keep hitting me after I am up in the morning. Have you tried oxygen? Even with high frequency it can be VERY helpful. Also after breathing oxygen I don't have trouble falling back to sleep (while also on melatonin). Imitrex I have not used in a while but I seem to remember it causing problems with getting back to sleep. You are probably approaching a peak in your cycle and then frequency will probably begin diminsihing. It sucks--there is no question about it. Good luck--I hope you can find relief with oxygen or try melatonin! Starlight |
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Title: Re: 24 HA's in 15 days....I'M INSANE....... Post by MJ on Aug 1st, 2006, 1:13am on 07/31/06 at 11:49:15, murnahan08 wrote:
Hi murnahan and welcome to the site. Due to the fact the hits are increasing with time, I think like the others said take a hard look at how medications may affect your clusters. They may relieve the pain for one hit but add 2 hits to replace it. The best suggestion is continue asking questions and keep reading and inputting here. Some things that have been helpfull for me. Vigorous repetitive excersize, Hmmmmmmmmmm I guess thats it dammit ;;D unless you include CB treatments. just read the link thing posted by Richr8 http://www.brightok.net/~mnjday/chtherapy.pdf Keep your chin up it could be worse. (24 in two days is not entirely uncommon for a few of us.) |
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Title: Re: 24 HA's in 15 days....I'M INSANE....... Post by TxBasslady on Aug 1st, 2006, 2:52am You've received very good advice....so I'll just say Welcome! I hope you get better soon....it sounds like you've had a rough go. Let us know how you're doing. PF vibes, Jean |
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Title: Re: 24 HA's in 15 days....I'M INSANE....... Post by sandie99 on Aug 1st, 2006, 10:38am Welcome! :) You're not insane, you just have ch. You're not alone. [smiley=hug.gif] Welcome to your ch family. Here's info, support and friends whenever you need. :) Best wishes, Sanna |
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Title: Re: 24 HA's in 15 days....I'M INSANE....... Post by murnahan08 on Sep 29th, 2006, 8:29am Hey guys thanks for the support. My ha's lasted 6 weeks and then I was pain free for 4 weeks thought they were gone and now there back. I can't believe this. Doctor put me on PREDNISONE and VERAPAMIL maybe thats what stopped them for 4 weeks? I have always been episodic but I'm wandering if maybe I'm going chronic? I finished the pred about 2 weeks ago and my ha's started 1 week after I finished them. I'm calling the doctor today to see about getting ox because I only have 6 injections left and insurence will only pay for 4 a month. Yea that only last a day hu! I'm also going to try the melatonin! Thank you everyone just wanted to let you all know how I was doing. murnahan08. |
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Title: Re: 24 HA's in 15 days....I'M INSANE....... Post by Edski_1 on Sep 29th, 2006, 5:48pm Everyone's different, so it's hard to say especially if you are new to this. But "cycle" is a baaaaaaad word here. 24 in 15 days is roughly 15 hours between events...that's in my definition of brutal. I sypathize completely - At my peak I get about a 12 hour average between. I don't know how folks getting 5-6 of these a day deal with it. Overall periodicity is odd for me, at least. I seem to have a series of 10-15 week periods of clusters and relatively PF times, followed by a more complete "remission" for about 18 months. Some of the "cycles" I go through are worse than others... But keeping track of when and how many (and how severe) these attacks are is a good practice. At the very least I feel like I have the upper hand, using my intelligence and logic to try and figure out the beasts next move. As others said, you need to at least find an abortive. Good luck, and welcome. |
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Title: Re: 24 HA's in 15 days....I'M INSANE....... Post by TonyYZF on Sep 29th, 2006, 7:47pm Hi Murnahan, I am at the tail end of my first recorded cycle. At least I hope it is the tail end, shadows are escalating. When I was getting hit, I got 4 to 12 hits a day. most days averaged about 6 but peak days were about 10 to 12. Hope this info helps relieve your concern a bit. Hope you feel better soon. PF wishes. Tony |
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