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        New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> Back After Eight Years!
        
(Message started by: nhrenton on Jul 24^th, 2006, 4:18am)

Title: Back After Eight Years!
Post by nhrenton on Jul 24^th, 2006, 4:18am

My old friend came back to me: I woke up at 12:45 with sharp pain, watery eyes, runny nose.

I had gone eight years without CH--maybe 1998 to 2006. Why the cessation? I don't know. I had lost weight, smoked less, gotten married, had kids.

This week, while playing basketball, I knocked out a tooth and loosened another--could that physical trauma be the cause? Or perhaps the resultant marital stress that my injuries created (a long story)? Or the combination thereof?

Luckily, the pain, while intense, was brief; I resorted to my usual home remedies: strong coffee and Tiger Balm applied to the affected side. Soon after I drank the cofee, that glorious post-headache daze/haze came. Do you know what I mean?

I remember searching for CH help on the internet in the early 90s--I'm glad to see the progress. But hey! All in all, I'd rather not have to know you!--Our acquaintance signifies pain!

Are there any other sorts out there with remissions of equal length? Have you folks any advice? Do you know of a CH specialist in Southern California--I live in Burbank. Capitis dolor racemo sanandus est!

Title: Re: Back After Eight Years!
Post by georgej on Jul 24^th, 2006, 9:19am

Welcome back, but sorry you're here.

My remissions are typically running around three years now. They used to be much shorter--about six months.

on 07/24/06 at 04:18:40,

1153729120;start=0#0>nhrenton wrote:

Capitis dolor racemo sanandus est!

I've worked it all out but the "sanandus" part. My latin is old and rusty.

Regards,

George

Title: Re: Back After Eight Years!
Post by Bob_Johnson on Jul 24^th, 2006, 11:55am

Some philosopher-type said: "Why? is the most painful word in the English language." Drop the issue: endless rumination/guessing only increases the distress.

1. Search the OUCH site (button on left) for a list of recommended M.D.s.

2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

3. Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

4. http://www.achenet.org/physicians/ On-line screen to find a physician.

5. http://www.headaches.org/consumer/index.html Call 1-800-643-5552; they will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

Title: Re: Back After Eight Years!
Post by Guiseppi on Jul 24^th, 2006, 12:45pm

Finished a 2 year remission, (longest ever), in November Now into my 8th month of this cycle, (longest ever!) There is no figuring the beast, only battling it. Good luck on your search for a knowledgeable neuro. The good ones are worth their weight in gold.

Guiseppi

Title: Re: Back After Eight Years!
Post by Richr8 on Jul 24^th, 2006, 1:23pm

Sorry you had to, but glad that you found this place. I know it has been a big help to me. I do not know anything about longg remissions, but some here do and I am sure they will chime in.

If you are not up on the latest treatmentss you might want to have a look here:

http://www.brightok.net/~mnjday/chtherapy.pdf

Also, if you haven't experienced the wonders of Oxygen , be sure to review the Oxygen info on the left panel. It is a lifesaver for many of us.

Title: Re: Back After Eight Years!
Post by mr.c on Jul 25^th, 2006, 12:23am

My longest remission was four years. ;;D

That ended May 1 this year.

However, I think a remission started a week ago :D

I hope you have a quick recovery.

michael

Title: Re: Back After Eight Years!
Post by TxBasslady on Jul 25^th, 2006, 1:57am

Needless to say, if I went 8 years with no CH, and it came back...I'd be ticked >:(

Hope you find what you need here. Many years of suffering found here. Lots of home remedies that work for some.

Stay with us...let us know how you're doing.

PF vibes,

Jean

Title: Re: Back After Eight Years!
Post by nhrenton on Jul 25^th, 2006, 8:08am

Thanks to all who have replied--not so bad last night--but I did have that imminent feeling--right before bedtime--yet it never blossomed. I still have imminent feeling now, so we'll see.

I'll keep working my way through the site; one immediate thought that struck me--why can't we get OTC oxygen? Or is that possible?

George--I can't vouch for my own Latin perfection at all--just three years in college--but I wanted to come up with a signoff a la Cato. sanandus is the gerundive, i.e. future passive participle, of the verb sano --to cure, heal (sc. sanatorium, sanity, sane). That is a passive periphrastic construction with sum (sc. Carthago delenda est).

The thing I guessed on is racemo; I made that the ablative of means of racemus (cluster [of grapes]), but now I think I should use the genitive of description. That would make my ending tag dolor capitis racemi sananda est. That means something like this: Cluster headaches must be cured! I welcome improvements from any other Latin scholars there--hey!--Could Latin study have an etiologic effect?

Dolor capitis racemi sananda est!
--nhrenton (nhrenton@earthlink.net)

Title: Re: Back After Eight Years!
Post by big_guy on Jul 27^th, 2006, 6:00am

I just found this site also. Mine are back after 19 years. I've been married for 18 years so my wife had never seen this. Oh by the way dear, I may turn into a raving screaming lunatic tonight.

best wishes

big guy

Title: Re: Back After Eight Years!
Post by LeLimey on Jul 27^th, 2006, 6:45am

Hi Big guy,
Get your wife along to this site, let her read up about CH, let her chat to us, we'll help her understand and we'll support her too. Its hell on earth watching someone you love go through this and those who go through that hell deserve every reward life has to offer.
She is more than welcome too :)
Helen

Title: Re: Back After Eight Years!
Post by JeffB on Jul 27^th, 2006, 1:32pm

on 07/27/06 at 06:00:58, big_guy wrote:

Nice to see a positive attitude!
I had a 5 yr period pain free, until about 2 years ago!

Title: Re: Back After Eight Years!
Post by nhrenton on Jul 28^th, 2006, 6:58am

Sorry Big Guy--
Have you had an injury that might have triggered the relapse? Anything stressful? Or perhaps just the heatwave that's been gripping the northern hemisphere?

I've been feeling the foreshadowing throb for about five days now--but I've only woken up twice in pain.

Good luck!

nhrenton@earthlink.net

Title: Re: Back After Eight Years!
Post by Dissident on Jul 28^th, 2006, 10:44am

Got my very first cycle when I was 8. Didn't get another till I was 16 (8 year remission). Now get em every two years.
Clusterheads have gathered and archived lots of info on CH since 1998. Good luck finding something that helps :)

Title: Re: Back After Eight Years!
Post by Linda_Howell on Jul 28^th, 2006, 11:39am

Quote:

I'd rather not have to know you!--Our acquaintance signifies pain!

Not to me it doesn't. My acquaintance with everyone here over the last 8 years signifies family and support.
Kind of like the glass is half full instead of half empty.

I'm VERY familiar with Burbank. I spent most of my life in that city until I had to get out of the smog, traffic, gangs, crime and congestion. I will do some checking for you as to a Dr. there and get back to you. Check your PMs periodically, o.k.? :)

Linda

Title: Re: Back After Eight Years!
Post by nhrenton on Jul 29^th, 2006, 8:58am

Thanks, Linda.
A word in defense of Burbank; we plead guilty to smog and congestion, but we claim to live in a city with few gangs or little crime.

Title: Re: Back After Eight Years!
Post by Linda_Howell on Jul 29^th, 2006, 12:33pm

Now I beg to differ. lol ;;D

My son is a Burbank cop.

Detective, actually...of....drum-roll here...Gangs and gang-related activity. He's a busy man these days.

Linda

Title: Re: Back After Eight Years!
Post by Jonny on Jul 29^th, 2006, 6:29pm

on 07/25/06 at 08:08:29, nhrenton wrote:

one immediate thought that struck me--why can't we get OTC oxygen? Or is that possible?

Go to a welding supply house and rent a bottle.....thats what I do ;;D

Title: Re: Back After Eight Years!
Post by Kevin_M on Jul 29^th, 2006, 8:39pm

on 07/24/06 at 11:55:16, Bob_Johnson wrote:

This is the best method I know of to find such a physician.

Helpful and nicely compiled Bob.

Title: Re: Back After Eight Years!
Post by Linda_Howell on Jul 29^th, 2006, 9:11pm

Yee-Haw !!!!!!!

Now get thee to an 02 supplier as well. ;)

Linda