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        New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> Please help a newbie!
        
(Message started by: 1swearymary on Jun 21^st, 2006, 11:15am)

Title: Please help a newbie!
Post by 1swearymary on Jun 21^st, 2006, 11:15am

Hi to you all, have looked at this site on and off for a while but have only just registered. I live in the UK and am a chronic Ch'er. I only found some real help when i found the UK site for Clusterheads so I know how important these places are for people 'cos I was DESPERATE! I found more info than I got from doctors in years, the same old story I'm afraid, I was being treat by a dentist for jaw pain, sinus probs and GP insisted it was migraine when I knew it was very different as i have both.
Anyway, I need some help and I figure this is the place to get it. I'm visiting Orlando, Florida in Sept. and want to find out about getting some oxygen. I was wondering if any of you guys who live in that area could give me any info.
When I travelled to Greece last year I had to pay a good lump for large and portable tanks then I found out I could just go to pharmacy and get a small tank for 26euros.
Would very much appreciate any help you can give, I just thought it would be much quicker than bouncing my head off endless brick walls here in UK. Many thanks :)

Title: Re: Please help a newbie!
Post by BobG on Jun 21^st, 2006, 12:00pm

on 06/21/06 at 11:15:50, 1swearymary wrote:

Hi to you all,

Hi back at ya. Welcome to the board.

the same old story I'm afraid, I was being treat by a dentist for jaw pain, sinus probs and GP insisted it was migraine
We've all been there! And the CT scans and the MRI's and the eye doctor.

I can't help with the Florida oxygen but I'm sure there will be someone come along soon to help you.

Title: Re: Please help a newbie!
Post by 1swearymary on Jun 21^st, 2006, 12:03pm

thanks for that, hopefully someone can help. Feeling rather ragged today and it's just nice for someone to say hello.

Title: Re: Please help a newbie!
Post by Linda_Howell on Jun 21^st, 2006, 12:28pm

To get 02 anywhere in the US you will need a prescription from a Dr.

You don't say how long you plan to be in Orlando, but I believe you can rent a 02 rig from "LINCARE."

Here is their info:

Orlando-North Center
224 West Central Parkway
Suite 1016
Altamonte Springs, Florida 32714

(407) 682-6644

FAX (407) 682-6623

Hope this helps. Linda

Title: Re: Please help a newbie!
Post by 1swearymary on Jun 21^st, 2006, 1:46pm

Thanks for that Linda, the thing is we don't get scripts from our doctors anymore, the whole system here in the UK has changed and it's not as easy or straightforward as it was promised to be. Thanks for the info tho much appreciated.

Title: Re: Please help a newbie!
Post by LeLimey on Jun 21^st, 2006, 3:38pm

Hi Sweary Mary!
LOVE the name LOL
I'm in an air products region although I know the guidelines are the same for all of them (see holiday o2 rules) Air Products provide a holiday service throught Europe and the US. You pay in £'s here before you go so there isn't any messing about that end. The freephone number for Air products is 0800 373580 and have you home oxygen order handy if poss. If not you'll have to just give them usual, name address post code and GP info so they can check your needs and arrange it for you.
SHOULD be a lot better!
If you need help finding any other o2 suppliers details shout okay?
Have a lovely holiday!
Helen

Title: Re: Please help a newbie!
Post by LeLimey on Jun 21^st, 2006, 3:43pm

on 06/21/06 at 13:46:03, 1swearymary wrote:

Just so you know, you can still get a letter from your doctor here stating what you need. A prescription from this country wouldn't work overseas but that letter would give another doctor the info needed to prescribe from for you - hope that bit helps too!
Helen

Title: Re: Please help a newbie!
Post by marlinsfan on Jun 21^st, 2006, 9:15pm

Hi Mary,
I live in South Florida, about 200 miles south of Orlando. My supplier is All-Med Services:
14101 Commerce Way
Miami Lakes, FL 33016
+1-305-826-0244

Of what Linda provided doesn't work, call All-Med and see if they can refer you to a supplier in Orlando/Kissimmee/Altamonte Springs (all nearby towns).

Good luck,
Jose

Title: Re: Please help a newbie!
Post by Barry_T_Coles on Jun 22^nd, 2006, 7:41am

Hi SwearyMary
Welcome to the best little nut house around.

LeLimey "Helen" knows more about this caper than i will ever know, take her advise & i hope you get to enjoy your trip.

If you ever come down under I can help out with the way things are done here.

Kind Regards
Barry

Title: Re: Please help a newbie!
Post by 1swearymary on Jun 22^nd, 2006, 4:28pm

Thank-you to you all, knew this was the best place to ask!! Insurance next job!! They never heard of Cluster headaches!

Title: Re: Please help a newbie!
Post by LeLimey on Jun 22^nd, 2006, 4:34pm

When going for insurance last year to go to Dallas I told them I had CH, they asked what meds I used and I said migraine meds, which, triptans are! They put it down as "Cluster Headaches" and in brackets "like migraines" and it didn't cost anything extra so I hope that helps!

Title: Re: Please help a newbie!
Post by chewy on Jun 22^nd, 2006, 8:29pm

If you get hit while in the states go to the nearest fire house. They will have oxygen for you to use.

Title: Re: Please help a newbie!
Post by 1swearymary on Jun 23^rd, 2006, 5:25am

Thanks for that tip bout fire stations, brill idea.
As for the insurance I had one qoute on-line for £600, one for £250. The thing is I've got other health problems apart from CH and migraine, I'm worried the insurance and the oxygen is going to cost me as much as the holiday. So I'm thinking of talking to another insurance, declaring pre-existing but asking them not to cover for them as I will make sure I have everything I need with me to control my symptoms. At the worst it would mean a few days in bed in the villa. Then I get get regular cover for everything else, I know they'll prob charge me a premium just for having these problems but I'm hoping it will be cheaper.

Title: Re: Please help a newbie!
Post by LeLimey on Jun 23^rd, 2006, 6:24am

Hells bells, thats extortionate!
I only paid 48 pounds last year for two of us!
Let me double check who I booked through and I'll let you know asap
Do you post at OUCH UK?
Ask there either on the members or support board for some other tips of who to go with.
Helen

http://www.clusterheadaches.org.uk/home/index.cfm?address=../home/txt_welcome.cfm&added=Dec2001&code=AD

Title: Re: Please help a newbie!
Post by 1swearymary on Jun 23^rd, 2006, 9:00am

thanks Helen, I can't post on ouch at the moment, It's been a while since I've been on. forgotten my password and have since changed e-mail address as well. Am waiting for e-mail from Les with my sign in details. Rachel

Title: Re: Please help a newbie!
Post by LeLimey on Jun 23^rd, 2006, 9:25am

Hi Rachel,
no problems, I'll ask for you and let you know via here!
Helen

Title: Re: Please help a newbie!
Post by LeLimey on Jun 27^th, 2006, 6:24am

Hi Rachel,
Just arranged travel insurance through the Post Office (no one tell Rex LOL) for £45.40 with cluster headaches as part of the policy too so I hope that helps you!
Helen
You might also want to look at Directline and www.gotravelinsurance.co.uk which were both recommended by other UK ch'ers
Have a fantastic holiday!
Helen

Title: Re: Please help a newbie!
Post by 1swearymary on Jun 27^th, 2006, 3:01pm

Thanx Helen, had a rough coupla days so haven't done anything with it yet but thanks so much for the help as always

Title: Re: Please help a newbie!
Post by LeLimey on Jun 27^th, 2006, 4:53pm

Hi Rachel,
I'm sorry your struggling.. you know I'm not that far from you, let me know if there is ever anything I can do okay?
Helen