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        New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> Hey - would like to get to know you all :)
        
(Message started by: crystabelle on May 29^th, 2006, 12:06pm)

Title: Hey - would like to get to know you all :)
Post by crystabelle on May 29^th, 2006, 12:06pm

Hello :)
Guess I should introduce myself!
I'm nearly 18 now, am studying for my A levels this year and have been diagnosed with cluster headaches by my GP. I've had them since I was 15/16 - I was diagnosed around the time of my GCSEs.
Would love to get to know you all and offer some help - I know not many younger people seem to experience these kind of things (judging by surveys but I don't really know...)
So - I'm Crystal, 18ish, live in the UK!
Love x

Title: Re: Hey - would like to get to know you all :)
Post by LeLimey on May 29^th, 2006, 12:55pm

Crystal hello!
Its nice to meet you
Sadly you're not alone and I know two other girls in the UK of 16 and 20, so just either side of you who are also CH'ers.. my 4 yr old is a ch'er too. I think it's just taking time for the medical world to recognise that not only can women get CH but hey... kids can too. :'(
What meds do you use? Have you tried Oxygen? There is a site in the UK called OUCH UK which would be of alot of use to you in helping you with any info you need and putting you in touch with other sufferers.
The URL is http://www.clusterheadaches.org.uk/home/index.cfm?address=../home/txt_welcome.cfm&added=Dec2001&code=AD
It would be well worth your while joining and as I said, you'd meet loads of others (I know a fair few in your area too!)
Looking forward to hearing more from you
Helen x

Title: Re: Hey - would like to get to know you all :)
Post by maffumatt on May 29^th, 2006, 12:56pm

Sorry you had to find us but glad you did. There are quite a few UK'ers here so I am sure they will chime in soon. Have you checked out the OUCH UK website? Welcome and good luck.
Matt