Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> long nite again
        
(Message started by: spanooch on Apr 18^th, 2006, 8:51am)

Title: long nite again
Post by spanooch on Apr 18^th, 2006, 8:51am

found you guys last time i sailed with the demon, tried the www and it worked. nothing ever works twice for me. dont feel like typing rite now, mo latuh. wanted to say what you already know....glad i found you, its a big ocean to sail alone. my first post, wont be the last, see you around the wharf when i feel a little better.
spanooch

Title: Re: long nite again
Post by Dragnlance on Apr 18^th, 2006, 9:44am

Sorry to hear you are suffering. We know what you are going thru.

I have to ask the usual.

Have you tried oxygen?

How about Kudzu?

What meds do you take now?

Read read read. This place has tons of info, and every day you will learn more.

Hoping you get pain free soon

Dragn

Title: Re: long nite again
Post by Jasmyn on Apr 19^th, 2006, 3:46am

Welcome Spanooch and I'm just as glad you found us.

Yes, meds sometimes works on and off, it seems to be the nature of things here.

You are not alone in this fight anymore and hope you have some PF days soon.

Title: Re: long nite again replys
Post by spanooch on Apr 19^th, 2006, 8:57am

this is awesome, thanks 4 your support. 52 yrs age and suffering since 19. first 8 yrs. chronic. tried everything, same as you. hate to let the kids see me, dont wanna scare em. i would love to fill you in more now that there is finally someone who just dosent look at me and say 'rub on some 'vagisil' and go back to work', but i dont type well.

tried www 2 yrs ago after reading it here, it helped. tried oxy last nite....now we're talkin!! wonder if thats why massive www helps...lot of oxy in water.

mo latuh, and remember...the fish are right over the next swell ( in other words dont ever drop your anchors out of frustration )

good luck!!

Title: Re: long nite again replys
Post by Richr8 on Apr 19^th, 2006, 12:05pm

on 04/19/06 at 08:57:12, spanooch wrote:

tried oxy last nite....now we're talkin!!

Now if you haven't already, get yourself a non-rebreather mask and kick up the flow rate to 15 lpm+ for some real relief.

Title: Re: long nite again
Post by Dave_S on Apr 26^th, 2006, 11:44am

Oxygen is the best in my book a great boost can be had if you can keep it cool there is a post on this page from me asking how to do this and dang it has made a huge differance dont worry about the typing thing we are all big kids and can read spelling errors and all for gosh sake dont give up because you cant type or spell well you might get better at it you might not but I just found this site after an almost 20 month period of 3 hours on 3 hours off non stop almost 2 years of insanity just what little I have learend has helped tremedisly and god knows if you dont find the answers your doctors never will it took me 3 years 5 doctors after i discovered oxeygen to get a doctor to finaly write a perscription for it. Since I am having a rare pain free day so far I hope to read a lot of the posts because a lot of the technical doctor stuff is beond me and I hope to find some answers in plain english. Good luck and keep in touch because there is not a lot of help with this unless you can really advocate for treatment
Dave S