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        New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> Hello from Wales
        
(Message started by: fog on Mar 22^nd, 2006, 11:16am)

Title: Hello from Wales
Post by fog on Mar 22^nd, 2006, 11:16am

Hi everyone...
Just thought I'd better register and join THE 'club' :)

I was finally diagnosed last year with chronic ch... REALLY glad to find this place and probably need to tell my story... but can't think too straight right now...

Just want to say thanks for being there. Just knowing that helps.

Cheers BFN

Title: Re: Hello from Wales
Post by nani on Mar 22^nd, 2006, 1:12pm

Hi fog, sorry you're in the club, but I'm glad you found the clubhouse. :)
There is lots of info and support here. While you're waiting to tell your story...read, read, and read some more.
pain free wishes, nani

Title: Re: Hello from Wales
Post by LeLimey on Mar 22^nd, 2006, 1:43pm

Hello Taffy! ;;D
(Mind you I can't talk since my maiden name was Williams!)
Its nice to meet you, just sorry its here.
Looking forward to hearing more from you when you're up to it.
Take care
Helen

Title: Re: Hello from Wales
Post by Charlotte on Mar 22^nd, 2006, 4:00pm

Welcome.

Charlotte

Title: Re: Hello from Wales
Post by Melissa on Mar 24^th, 2006, 9:39pm

Maybe have her read this thread? ;)

Welcome home Fog. It sucks you had to seek us out, but you're in good company.

:)mel

Title: Welcome Fog!
Post by Richr8 on Mar 25^th, 2006, 12:43am

Glad you found the best bunch of CH supporters on the planet. You no longer have to fell alone. Read all you can on the site and jump in with questions or just to share the good and the bad.

We're here for you.

pf wishes,

rich

Title: Re: Hello from Wales
Post by RichardN on Mar 25^th, 2006, 12:59am

Hi Fog & Welcome Home

Someone will post the link to "friends and employers" that may help with your lady and others.

This place is all about sufferers helping each other and battling our common beast. What this site has done for me? . . .

When my wife found this site (2/02), I had been through a year of tests (MRI, CTs, etc.) mis-diagnosis, non-working meds. When I got here and found a "name-for-the-pain" I was having 6-8 attacks per day and sometimes 3-5 per night, Kip 5-9, 20min to 2hrs long. I was a basket case . . . afraid to go to sleep,afraid of the next one . . . how soon? how bad? how long? Afraid to take my grandson to the woods or a movie . . . . life really sucked.

Here I found WHAT was happening to me and the means to deal with it. For me it was Verapamil and oxygen which I demanded with copies of info off this site in hand. Within 2-3 weeks I had my first PF day in a very long time (had 3 attacks that night but had the 02 to help kill them), upped the Verapamil to a workable level (different for all of us) . Oxygen is my only abortive . . . . can't take triptans (Imagran, Imitrex) as I have high cholesterol and some arterie blockage. Can kill the beast in minutes if used early-on in the attack.

DO copy the 02 info here and take it to your doc. It works for 60-70% of us. Must be used with a 15 lpm regulator and non-rebreather mask (the one with the bag) or clustermask to be effective . . . . a real miracle for those of us it works for.

Water/water/water. Due to other medical problems, I am required to drink lots of water daily these past two years. When I came here, I did do the water x 3 thing, but not near as much as now. I'm convinced this has been beneficial in reducing frequency and intensity of attacks.

The upside of all this is that I have the CH part of my life under control . . . . have been (knock-on-wood) mostly PF this past year . . . occasional attacks, but often several PF days in a row. and they are manageable with the 02.

Also, here you can chat with people who truly know your pain and a wealth of information to help you get YOUR life back. One of my favorite mottos on this board is "Nothing works for everyone, but SOMETHING works for everyone" Here you have a very good chance of finding the "something" that works for you.

Be Safe, PFDANs

Richard

Title: Re: Hello from Wales
Post by Jasmyn on Mar 25^th, 2006, 4:56am

Welcome Fog

I can only reiterate what Richards said so well:

Quote:

Also, here you can chat with people who truly know your pain and a wealth of information to help you get YOUR life back. One of my favorite mottos on this board is "Nothing works for everyone, but SOMETHING works for everyone" Here you have a very good chance of finding the "something" that works for you.