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        New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> So Glad I Finally Found You All!!!!!!!!!!!!!!!!!!!
        
(Message started by: seccsij on Mar 13^th, 2006, 5:47pm)

Title: So Glad I Finally Found You All!!!!!!!!!!!!!!!!!!!
Post by seccsij on Mar 13^th, 2006, 5:47pm

;)Hi. I have suffered for 21 years now, since I was 15. It has been a total nightmare and, of course, it's not over, is it? It never will be!
Now that I am not suicidal anymore, I hope others can benefit from what I have learned. I had to endure abuse, disbelief, scorn, alienation & ridicule to learn what I have. Now, with Emotional Release Therapy, Cognitive Behavioural Therapy, meditation, laughter, love and relaxation , I am having less frequent, less severe attacks.
* I can't work any more, indefinately!
* I had to leave my children with their father and move 600kms away!
* I have survived 9 suicide attempts!
* Most people I know think I'm either crazy or lying or both!
I AM improving though.
I no longer believe that I deserve Clusters.
I only suffer for around 5 weeks each year now instead of the 6 months of every year I suffered in my 20's.
I have discovered that the psychological, emotional, sexual, mental & physical abuse that I experienced during my childhood and 16 years of marriage, have significantly contributed to my auffering. ::)

I am wondering now, how many other sufferers have been abused and are self- critical with low self-esteem?

I am feeling better for having found you all! Now I don't feel so alone anymore! Thnx [smiley=laugh.gif]

Title: Re: So Glad I Finally Found You All!!!!!!!!!!!!!!!
Post by Richr8 on Mar 13^th, 2006, 7:46pm

And I am glad also. Welcome! Sorry you had to find us, but glad that you did. It looks as though you have had a particularly difficult time. I would suggest that you read all that you can. No one has reported any universal miracle cures, but oerhaps oneof the many regimens described here will work for you. Prednisione tapers are my "current" weapon of choice despite the health risks associated with it. I am consdering other approaches for next season. Prednisone tapers have reduced my cycles to several weeks from 12 weeks. I use O2 as an abortive and Verapamil as a preventive with 6mg of Melatonin to help with the sleeplessness brought on by the beast and the Prednisone.
Anyway, dig in, start reading and ask all the questions you want. There are lots of great folks here who know exactly what you are going through and will help in any way they can. Hopefully your life with the beast will begin to improve from here forward now that you have found this place.
pf wishes

Title: Re: So Glad I Finally Found You All!!!!!!!!!!!!!!!
Post by MJ on Mar 13^th, 2006, 8:06pm

on 03/13/06 at 17:47:40, seccsij wrote:

I no longer believe that I deserve Clusters.

I am feeling better for having found you all! Now I don't feel so alone anymore! Thnx [smiley=laugh.gif]

Hi Seccsij

I dont think anyone deserves Clusters.

Most here suffer from too much self esteem. Perhaps we can help.

Many here have suffered on a daily basis for 30 plus years and more..
We generally dont let other stuff bother our exquisite pains. We work, we play, yet we all have delays in our days.
Suicide attempts are heard of but rare due to CH. Why 9 tries? Is it CH that wont let you work?
I myself only get 10-12 attacks a day but I also get at least 3-4 hours without pain in a deep dark cycle to live.

Title: Re: So Glad I Finally Found You All!!!!!!!!!!!!!!!
Post by seccsij on Mar 13^th, 2006, 8:17pm

[smiley=laugh.gif]Thank You so much for you welcome. Please excuse the doom and gloom of my post b4. I have been sitting here for 3 hours now, reliving CH history and marvelling at all I have learned and achieved. A few years ago, I was so depressed, I could not escape the dark, even when PF. Now, I have. To only suffer 5 weeks each year for 2 years is like a miracle after getting around 130 p/yr for 19 yrs. I feel almost normal for the 1st time ever and I read everything I can find about us. I too , hope to help others in some way, as you are helping me. Thank you both very much. (no-one deserves CH but I THOUGHT I did for years and years because I felt I musn't be chasing my tail enough to help myself. silly, eh?) :P

Title: Re: So Glad I Finally Found You All!!!!!!!!!!!!!!!
Post by LV on Apr 12^th, 2006, 4:37pm

HI
Im Lv got a note from a fellow Aussie that you were looking for me re O2
Sorry if have not replied. Unfortunately dont get opportuntiy to look at the site much
and could not find your message so am replying to you through this

with respect to liquid 02 - it did seem to help - but I was taking so much stuff with it -
I am not a chronic sufferer - I go through phases and then am lucky enough to have 2-3 year breaks

I got my liquid 02 from a health shop - I assume you can also order it over the net. I no longer have the details of the bottle that I had

All the best and hope you get some relief
LV

Title: Re: So Glad I Finally Found You All!!!!!!!!!!!!!!!
Post by seccsij on Apr 15^th, 2006, 6:33pm

Thanks for getting back to me LV.
Have tried O2 water (which tasted worse than my Nans' old black cough linctus! haha) but it didn't work.

Because of CH.com, I am now taking Melatonin and yesterday had my first PFDAN in 6 weeks. YAY!!!!
I hope their gone soon though because the pharmacist told me not to take the melatonin with my Lovan (anti-depressant) as both tabs may use the same enzyme in the liver to process and it could harm my liver. (I drank alcohol every day of CH for 19 years with no liver damage showing on tests so I am TRYING this!

hope you and all here get PFDANs soon xJx