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Title: Here we go again! Post by jules06 on Feb 8th, 2006, 1:17pm Hello all, Just registered as a new member. I live in the UK and am once again dealing with the demon. Currently I am in week 6 of this particular cluster and getting 4-6 flares a day. These are really hurting as I have just had an appendectomy which led to scepticaemia so the timing couldn't be worse (not that there is ever a good time!), the lack of sleep is killing me. I've dealt with alot of pain in my life through sport and have broken, torn and dislocated more than my fair share but I would do all of that again gladly to never have another episode. |
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Title: Re: Here we go again! Post by seasonalboomer on Feb 8th, 2006, 1:22pm on 02/08/06 at 13:17:43, jules06 wrote:
Hey Jules, Welcome to clustervania! You taking anything for the Cluster? Using O2 for hits? Anything? Scott |
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Title: Re: Here we go again! Post by mrs mac on Feb 8th, 2006, 1:25pm hi jules!!! sorry to hear that you are having such a hard time just now!!! the guys here are great, you will never feel alone again!!! stick around and i am sure there will be loads more welcomes for you sandra xxxxx |
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Title: Re: Here we go again! Post by LeLimey on Feb 8th, 2006, 3:14pm Hi Jules Nice to meet you, just wish it wasn't through CH ::) What meds are you using? Lets see if there is anything we can do to help you out. Tell us as much about you as you can bear to type and we'll see what we can do to help you kick this to the kerb ASAP! Take care Helen |
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Title: Re: Here we go again! Post by Jasmyn on Feb 13th, 2006, 4:28am Hello Jules and welcome here. Like everyone asked, what meds are you on? On the left hand side there is very good info to browse through. Mrs Mac is right, you will never feel alone again. These lights are on 24/7. |
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Title: Re: Here we go again! Post by Dragnlance on Feb 13th, 2006, 9:05am Sorry that you had to find us. Welcome. :-/ Depending on what meds you are taking now, there are sometimes other things you can do that might work better. If you havent tried it, Oxygen has virtually no side effects, and no conflicts with meds. Used properly, it can be an effective abortive to CH. Hope you are pain free soon!! Dragnlance |
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Title: Re: Here we go again! Post by FramCire on Feb 13th, 2006, 8:55pm There are a lot of things you can use to try and get more sleep. Ambien, Melatonin (my personal fave at 9 mg), and others. Welcome aboard, I hope you can find the right thing to help you get sleep. It took me weeks and weeks to find 9mg of Melatonin was going to get me sleep. I am a new person again (also 480 of Verapomil 2x240). Share your meds and other things you try and I bet the people here can give you tips to help you sleep. Sorry you are here but glad to have you. |
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