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Title: Newly diagnosed CH sufferer... Post by JESSICA.D on Jan 20th, 2006, 1:17pm Hello everyone! I'm a 22 years old woman that just got diagnosed with CH. I've been having those attacks every 2 years, but up to now, didn't know what they were. The information on this website was amazing!!! I can finally try and explain to my employer why I'm sometimes late for work, and my family understands me a lot better now. I even asked my doctor to change my medication due to some info I had gotten on this site, and it worked!!!!!Thanks to all of you, and I wish you all better!!! Jess -xxxx- |
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Title: Re: Newly diagnosed CH sufferer... Post by Guiseppi on Jan 20th, 2006, 1:52pm Welcome to our little corner of paradise, so sorry you had to join the club, but so glad you found us! 25 years of the beast here, and the board constantly gives me ideas for tweaking meds for better effects. Please keep us updated on what does and doesn't work for you. It's how everyone here learns. And again, welcome! Guiseppi |
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Title: Re: Newly diagnosed CH sufferer... Post by MJ on Jan 21st, 2006, 1:19am Welcome Jess Info is free to all. Share and share alike. |
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Title: Re: Newly diagnosed CH sufferer... Post by upnover on Jan 21st, 2006, 8:32am Welcome to the board better late than never |
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Title: Re: Newly diagnosed CH sufferer... Post by marlinsfan on Jan 21st, 2006, 2:31pm Welcome to the nuthouse. A bit more about what you do to handle the beast? You say you switched meds, what do you take now? Are you aborting with Oxygen? If not, give it a try. It's cheap, safe and very effective. |
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Title: Re: Newly diagnosed CH sufferer... Post by thebbz on Jan 21st, 2006, 2:49pm Don't grab info and run. Stick around and row! Welcome and glad you could benefit. jb |
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Title: Re: Newly diagnosed CH sufferer... Post by Barry_T_Coles on Jan 21st, 2006, 8:46pm Hi Jess Welcome to the best nut house around, sad that you have to be here but your among people who are only to willing to help. I’ve only been here one year but what iv'e learned over that year has been of enormous value to help me work through. If you haven’t tried o2 you really should it works brilliantly for a lot of us. It’s great that your Doc is taking notice of your input for the condition cos normally they are totally unaware of it. Kind Regards Barry |
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Title: Re: Newly diagnosed CH sufferer... Post by JESSICA.D on Jan 23rd, 2006, 9:46am Thanks to all of you!! When all of this started this year, the docs gave me a type of narcotic (trianal) to try and kill the pain. Well, needless to say, that really didn't work... Then they tried prescribing me Imitrex, but 25mg pills. That didn't really help either, because the second the pain starts getting just a little too strong (which is almost every time), I throw up. So when I found this site, I went back to the doc and asked for injectable Imitrex. He didn't know about it but looked it up, and we managed to have a special order because no pharmacy around had it. Up to now, it's been working really well. The only draw back is that it's 50.00$ a shot.... But, as all of you already know, no price is too high to keep the beast away!!! At least this time, I have some medication to rely on. Two years ago, when I got the first bout, they didn't want to give me anything. I saw my medical file and the docs had suspected CH, but since I'm a girl and under 30, they couldn't believe it... The docs didn't mention anything about O2 though... How could I get to try that? I just ask the doc and he prescribes a tank? I'm new to this, so please help me!!! |
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Title: Re: Newly diagnosed CH sufferer... Post by marlinsfan on Jan 23rd, 2006, 10:10am Bring this with you next time you see your doc: http://www.brightok.net/~mnjday/chtherapy.pdf It has great info on meds, including Oxygen. Also, print the oxygen info link on the left. If the doc doesn't agree, find a new doc. O2 is cheap and safe, and very effective. |
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