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        New Message Board Archives >> 2007 General Board Posts >> Clusters on Wikipedia.org
        
(Message started by: echo on Nov 29^th, 2007, 1:01pm)

Title: Clusters on Wikipedia.org
Post by echo on Nov 29^th, 2007, 1:01pm

I had not seen this before. Interesting tool.

Nice pic about clusters and mention of this site.

http://en.wikipedia.org/wiki/Cluster_headache

Title: Re: Clusters on Wikipedia.org
Post by Rosybabe on Nov 29^th, 2007, 1:24pm

yeah, I think someone from this site or OUCH added the info in wikipedia. Thanks to whoever did the job.

Hugs

Rosy.

Title: Re: Clusters on Wikipedia.org
Post by BobG on Nov 29^th, 2007, 1:29pm

That’s a nice write up. Wikipedia is a popular site. Sure hope it educates a lot of people. From the looks of it it could very well have been written by someone here or OUCH.
Wonder who it was that volunteered to lie still during an attack to have the scan done. Many thanks to a very brave clusterhead.

Title: Re: Clusters on Wikipedia.org
Post by Melissa on Nov 29^th, 2007, 1:35pm

Next time someone asks me what I have, I'm telling them I have Hemicrania angioparalyticia.

Title: Re: Clusters on Wikipedia.org
Post by Karla on Nov 29^th, 2007, 2:14pm

What an excellant write up. Mentions ouch, ch.com, and cluster busters. All excellant sources of info. I like how it mentions in there the treatments including the alternative treatments as well. Kudos to whoever wrote the article.

Title: Re: Clusters on Wikipedia.org
Post by Guiseppi on Nov 29^th, 2007, 2:28pm

C'mon somebody fess up to this! What an awesome educational tool. Very well written and cited.

Guiseppi

Title: Re: Clusters on Wikipedia.org
Post by nani on Nov 29^th, 2007, 2:31pm

on 11/29/07 at 13:29:13, BobG wrote:

Wonder who it was that volunteered to lie still during an attack to have the scan done. Many thanks to a very brave clusterhead.

That was Ben, inventor of the clustermasx.
A lot of us had some input on that article. I added some kudzu info, which I see isn't there any longer. [smiley=huh.gif]

Title: Re: Clusters on Wikipedia.org
Post by Monty on Nov 29^th, 2007, 2:40pm

on 11/29/07 at 14:31:22, nani wrote:

A lot of us had some input on that article. I added some kudzu info, which I see isn't there any longer. [smiley=huh.gif]

That's because (to wiki editors), kudzu is an unproven therapy on par with placebo. It is considered inert as far as a medicine, but potentially is quite dangerous and could cause people to explode. Therefore, it should not be in wikipedia. The fact that so many people seem to think it helps is 'interesting' but self-proclaimed 'experts' in the wiki hierarchy have more sway at wikipedia than patients with decades of expertise.

The best one can hope from wikipedia is no glaring errors and a link to patient support sites.

Title: Re: Clusters on Wikipedia.org
Post by Melissa on Nov 29^th, 2007, 2:43pm

on 11/29/07 at 14:40:00, Monty wrote:

but potentially is quite dangerous and could cause people to explode.

ummmmm.....ok

LOL!! I'm waiting to go KA-BOOM!!!!

;;D

Title: Re: Clusters on Wikipedia.org
Post by nani on Nov 29^th, 2007, 2:44pm

on 11/29/07 at 14:40:00, Monty wrote:

That's because (to wiki editors), kudzu is an unproven therapy on par with placebo. It is considered inert as far as a medicine, but potentially is quite dangerous and could cause people to explode. Therefore, it should not be in wikipedia.

OK, what? :o Is that sarcasm, or do you know something I don't, LOL?

Title: Re: Clusters on Wikipedia.org
Post by Melissa on Nov 29^th, 2007, 2:48pm

nani, if you read the whole thing through a couple times, it's actually quite sarcastic. At least, that's how I took it.

Title: Re: Clusters on Wikipedia.org
Post by Monty on Nov 29^th, 2007, 2:53pm

Yeah, that was sarcasm. Kudzu I like. Wikipedia is great in some ways, terrible in others.

Title: Re: Clusters on Wikipedia.org
Post by nani on Nov 29^th, 2007, 2:57pm

OK... I get it ...LOL

Title: Re: Clusters on Wikipedia.org
Post by Opus on Nov 29^th, 2007, 9:49pm

Quote:

Some have reported partial relief from narcotic pain killers. Percocet (Oxycodone with paracetamol) has had widespread success amongst some cluster headache patients, especially males.

This line needs some cleaning up. There is a doctor who thinks he is right about everything that will delete any alternative therapies. Just having the links is good because the article should be about proven facts.

Paul

Title: Re: Clusters on Wikipedia.org
Post by Pinkfloyd on Nov 30^th, 2007, 12:07am

The article has been morphing and building for quite some time. It was a struggle to keep the entheogenic information on the page. (One person wasn't too happy about it and kept removing it) But, once there was enough background info and references, it stayed, as it should.
I imagine Nani that at some point, we'll be able to make the Kudzu info stick.
The page has continued to grow and has become a pretty good entry into Wikipedia, IMHO.
One of the major contributors no longer posts here but obviously continues with his work, helping to spread the word on clusters.

Bobw

Title: Re: Clusters on Wikipedia.org
Post by Maffumatt on Nov 30^th, 2007, 5:51pm