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        New Message Board Archives >> 2007 General Board Posts >> Clusterheadaches On CNN
        
(Message started by: barry_sword on Aug 19^th, 2007, 9:08am)

Title: Clusterheadaches On CNN
Post by barry_sword on Aug 19^th, 2007, 9:08am

I had CNN on but with the radio playing. Just walked by and saw something on CNN in big letters "Clusterheadaches and Verapamil, then before I could turn on the tv sound it went to a commercial.

Anybody else see this? I have no idea whether it was aired or is coming up on a future show.

Barry

Title: Re: Clusterheadaches On CNN
Post by Grandma_Sweet_Boy on Aug 19^th, 2007, 10:24am

I saw it too. They were just warning folks about Verap and the possible effects on heart and blood pressure. For the most part, it's stuff that our well educated folks here already know and already do heed the warnings.

They did say "the worst headache known" though which is a good thing.

Title: Re: Clusterheadaches On CNN
Post by barry_sword on Aug 19^th, 2007, 10:30am

Thanks Carol. :)

Barry

Title: Re: Clusterheadaches On CNN
Post by sandie99 on Aug 19^th, 2007, 11:44am

Every little bit helps! :)
I'm glad that ch was mentioned.

Sanna

Title: Re: Clusterheadaches On CNN
Post by sldrswyfe on Aug 19^th, 2007, 5:48pm

I know verapamil has the potential to cause problems...but I have low blood pressure avg. 110/85...and the highest dose didn't change it it all.

Im a glad that somehow, our condtion is getting out there...as Sanna said, every little bit counts. We'll get there....

Title: Re: Clusterheadaches On CNN
Post by Redd on Aug 19^th, 2007, 5:59pm

My BP is normally low as well, and Verap dropped my BP through the floor at 200 mg a day. I pulled back to only 100 mg a day and I was still passing out.

That was time to go off of it.

Title: Re: Clusterheadaches On CNN
Post by fubar on Aug 20^th, 2007, 12:44pm

I was at 720 mg/day and it didn't do anything for my clusters. My neuro was perplexed that it didn't change my BP at all either. I was on Verap + Lithium for over 18 months and finally gave up on it.

Title: Re: Clusterheadaches On CNN
Post by Rosybabe on Aug 20^th, 2007, 5:09pm

My BP is in average of 100/50 almost all the time, sometimes goes lower. I am not a good candidate for verap..

Title: Re: Clusterheadaches On CNN
Post by sandie99 on Aug 21^st, 2007, 11:05am

My BP dropped a lot as well back in my verap days. And because it has been low before, I begun to pass out - scaries moment took place when I was travelling on the London Underground.
My neuro didn't believe that until he saw it himself... He went all white in the face! After that another neuro put me back on verap, but much higher dose and that time I didn't faint... Go figure.