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New Message Board Archives >> 2007 General Board Posts >> I dont know what to do.
(Message started by: stephenireland on Jul 30th, 2007, 3:03pm)

Title: I dont know what to do.
Post by stephenireland on Jul 30th, 2007, 3:03pm
I really dont know what to do. It seems everything is falling from beneath my feet. Been put on meds for epilepsy as the neurologist seems to think that it might help. I am feeling down, tired and sicky (side effects from tablets) *have a period of 2 hours hyperactivity after taking the Epilim tablets*

Anyway my work are frustrated at me because my Dr has signed me off for another month. My inlaws are doing my head in (living with them as me and my partner couldnt afford to pay our rent because i have been out of work) and now i just recieved news that my DLA claim (disability claim) has fallen through. (contesting this but its hard because i cant seem to concentrate)

**break in write up due to CH attack*

Im going to sign out saying thank you to those who are giving me some help and support over the phone and msn. You know who you are and I dont know what I would do without you. Also thank you to all those who replied to my recent posts and sent me some really supportive pvt messages. also a HUGE thank you to my partner who is the most loving and supportive partner i could ever wish for. Crying now! anyway love to all.  

Hugs x
Steve

steve02sw15@hotmail.com

Title: Re: I dont know what to do.
Post by Guiseppi on Jul 30th, 2007, 3:06pm
Hang on tight with both hands guy, you're in the worst peiod right now where your brain starts whispering to you that it's hopeless, IT'S NOT! I'm not sure what's available in your country but I'm sure some of your country folks will pipe up soon.

Everyone of us have been where you are now. It hurts and it sucks. Hopefully we can get some people online who are nearer to you and get you pointed towards a more knowmeldgeable neuro, until then we're always here for you.

Guiseppi

Title: Re: I dont know what to do.
Post by LeLimey on Jul 30th, 2007, 6:35pm
Hi Steve
I've just pm'd you my phone number. Give me a call and we'll get you sorted with both benefits meds and work - don't worry, there's a lot of info that's going to be just what you need now and we'll do our level best to help you get sorted. You are not alone with this okay?!

Helen

Title: Re: I dont know what to do.
Post by Jonny on Jul 30th, 2007, 6:40pm
Hang in there buddy, your with family now and we will help in any way we can!!!

Title: Re: I dont know what to do.
Post by Charlie on Jul 30th, 2007, 8:38pm
Been there Steve. We know what it's like and we understand.

In case you haven't seen it, here is the technique that got me through a lot. The price is right too.

                                         Dr. Wright’s Circulatory Technique:

I am not sure what mechanism is triggered by this but whatever it is, at least indirectly helps kill the pain. I do know that this technique has nothing to do with meditation, relaxation, or psychic ability. It is entirely physical and takes some work. It involves concentrating on trying to redirect a little circulation to the arms, hands, or legs. Think of feeling your pulse in your hand. Increased circulation will result in a reddening and warming of the hands. The important and difficult part is that it has to be done without interruption through the pain. Do not give up in frustration. It may not work on the first try. Every now and then it will work almost immediately. I lived for those moments. Try experimenting between attacks. You will find that it gets easier with practice.

I was given less than five minutes instruction in the use of method. The doctor, while placing his arm on his desk, showed me that he could slightly increase his arm and hand circulation. After several attempts, I was able to repeat this procedure and use it successfully. I have had about a 75% success rate shortening these attacks. My 20 minute attacks were often reduced to 10 minutes or less. Once proven that I had a chance to effectively deal with this horror, I always gave it a try as I had nothing to lose but pain.

I used to try to imagine I was pushing blood away from my neck into my arm. Use your imagination. There is one man who wrote that his standing barefoot on a concrete floor shortened his attacks. This may be similar as it draws some circulation away from the head. Cold water, exercise, or anything affecting circulation, seems to be worth a try. My suggestion is to not let up immediately when the pain goes. Waiting a minute is probably a good idea. So long as you do not slack off, this has a chance of working.

This technique is very useful while waiting for medication to take effect or when none is available. It costs nothing, is non-invasive, and can be used just about anywhere. It is not a miracle but it helped me deal with this horror. It can be a bit exhausting but the success rate was good enough for me and a cluster headache sufferer will do just about anything to end the pain. It gives us a fighting chance.

Charlie      



Title: Re: I dont know what to do.
Post by sandie99 on Jul 31st, 2007, 2:44am
Steve,
[smiley=hug.gif][smiley=hug.gif][smiley=hug.gif][smiley=hug.gif][smiley=hug.gif]
and prayers are headed your way.

Lots of PF wishes,
Sanna

Title: Re: I dont know what to do.
Post by sldrswyfe on Jul 31st, 2007, 11:43am
Hang on Steve.  We all do know and understand...no one on this earth could concentrate in the condition you are AT PRESENT...it will pass.

Everyone has given such wonderful sentiments, I can only say Im with them.  We are all here for you and to help in any possible way.  We care about you.

Thoughtfully,  Sherri

Sometimes when it gets really bad for me...I picture all of my friends here standing around me in a circle holding hands, supporting me, picking me up, giving me their energy...it really helps as a focal point when Im in pain...and always lifts my spirits...

Title: Re: I dont know what to do.
Post by aloneuk on Jul 31st, 2007, 12:09pm
get your self on msn,  you got my number mate USE IT !
we're all here for you chin up mate, it will pass,

mask is in the post you should get it 2morro

ike

Title: Re: I dont know what to do.
Post by Jackie on Jul 31st, 2007, 2:49pm
Wow, ike...you do good work, Sweetie..... :-*

Do we know how Steve is doing?

Love to all...
Jackie

Title: Re: I dont know what to do.
Post by Charlie on Jul 31st, 2007, 7:45pm
Just wondering Steve:

If one of the epilepsy drugs you are taking is Topomax. It can be nasty as it's known to affect concentration and I found that it made me a bit paranoid. It has some really crappy side effects. Let us know and let your doctor know.

I took the stuff for my epilepsy and while a wonderful drug for seizures, it made me nuts.

Charlie

Title: Re: I dont know what to do.
Post by sldrswyfe on Jul 31st, 2007, 8:58pm
Topomax was made in hell.  I couldn't tolerate the side effects from the lowest dose.  Talk about anxiety, my heart pounding and my thoughts being muddled.

And the Dr's telling me "no one else experiences these side effects"???

Title: Re: I dont know what to do.
Post by aloneuk on Aug 1st, 2007, 1:27pm

on 07/31/07 at 14:49:05, Jackie wrote:
Wow, ike...you do good work, Sweetie..... :-*

Do we know how Steve is doing?

Love to all...
Jackie


jackie im only sorry i cant do more!

steve im here anytime mate you know that,

ive not heard from you today so check in ok?

ike

Title: Re: I dont know what to do.
Post by stephenireland on Aug 2nd, 2007, 7:06am
hey all sorry i havnt replied been poorly and down. but hey its a new day...

the inlaws are on at me because im not at work. saying its just a headache which is really winding me up.

The drugs i am on are Epilim and indometacin. They are making me feel worse.   Hyperactive at times then when they wear off i feel knackered. Also stomach / heart burn.

other than that i am greatful to be here x love to all x

Title: Re: I dont know what to do.
Post by Batch on Aug 2nd, 2007, 11:07pm
Are you using O2 to abort the CH attacks?

Title: Re: I dont know what to do.
Post by 1stdonna on Aug 3rd, 2007, 12:11am
If you are referring to Inderal (indometacin) as we know it here, it is a migraine drug and isn't of any help, except for a few, for clusterheadaches

Praying you will find something that works.....soon!



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