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        New Message Board Archives >> 2007 General Board Posts >> nerve block infusion
        
(Message started by: cash5542 on Jul 21^st, 2007, 12:17pm)

Title: nerve block infusion
Post by cash5542 on Jul 21^st, 2007, 12:17pm

After 2 days of dhe injections Lisa is not getting better. It looked like it may be lightenong up but actually hits are coming harder and more frequent today and o2 isn't always working. She called Jefferson and they want her to come up Mon. morning for a nerve block infusion. Any pros or cons? We are so worn out and discouraged. She's already on 1120 Verapamil and 200 Topomax. Prednisone is not an option.

Thanks so much for your support. I don't know how we would have gotten through this past week without you guys!!! I am not sure how I am going to hold up this week.

Charlotte

Title: Re: nerve block infusion
Post by Lenny on Jul 21^st, 2007, 12:39pm

Has she tried the combo.of lithium with the verapamil (it worked wonders for me) as for many others on this site ??? BTW that combo.was the only one that would somewhat tame the beast for me.
Wishing many PFDAN coming her way.........Lenny
on 07/21/07 at 12:17:45, cash5542 wrote:

She's already on 1120 Verapamil and 200 Topomax. Prednisone is not an option.

Title: Re: nerve block infusion
Post by Opus on Jul 21^st, 2007, 2:36pm

She had too many side effects from the Lithium. A temporary nerve block should do no harm, something permanent like cutting the nerve seems to make thing worse in the end. I would ask about a temporary nerve stimulator. Probably experimental though and wouldn't be covered. If there is proof that the CH's can make her asthma worse, it maybe considered a medical necessity.

I hope Lisa gets a break soon.

Paul