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        New Message Board Archives >> 2007 General Board Posts >> Looking for a ch link
        
(Message started by: taraann on Jun 20^th, 2007, 6:04am)

Title: Looking for a ch link
Post by taraann on Jun 20^th, 2007, 6:04am

of doctors recommended by state. I could have sworn there was one over at OUCH and I dont' see it??? If anyone has the link or has any suggestions for a good neurologist in Hernando CO. Florida or atleast nearby, I'd be very appreciative!

Title: Re: Looking for a ch link
Post by Bob P on Jun 20^th, 2007, 7:42am

http://www.ouch-us.org/chgeneral/doctors.htm

Title: Re: Looking for a ch link
Post by Brewcrew on Jun 20^th, 2007, 7:43am

Tara,

I can't find it either, but I've put out some feelers to try to locate it for you. Stand by.

Title: Re: Looking for a ch link
Post by taraann on Jun 20^th, 2007, 8:37am

Thanks guys

Title: Re: Looking for a ch link
Post by Brewcrew on Jun 20^th, 2007, 9:44am

Thanks, Bob.

Title: Re: Looking for a ch link
Post by Gator on Jun 20^th, 2007, 1:04pm

There is tons of information on the OUCH website (http://www.ouch-us.org/index.shtml). Those who came before me worked their butts off collecting useful and interesting information on diagnosing, treating and living with cluster headaches. The last time I updated the site index file, there were 534 pages and I've added pages since then. Most of the information on the website is linked to from the "Treatments and Other Information" page:

http://www.ouch-us.org/chinfo1.htm

Such as:

Cluster Headaches - General Information and Research

http://www.ouch-us.org/chgeneral/chgeneral.htm

Medication Studies and Research

http://www.ouch-us.org/medications/medstudies.htm

Surgical Treatments for Cluster Headaches

http://www.ouch-us.org/chgeneral/surgery.htm

Non-Prescription Cluster Help

http://www.ouch-us.org/chgeneral/nonmed.htm

Disability and Employment Rights

http://www.ouch-us.org/chgeneral/disability.htm

and much, much more.

If you find information you think should be included on the OUCH Website or dead links on the website, please let me know by sending a link to the information to webmaster@ouch-us.org.

Title: Re: Looking for a ch link
Post by taraann on Jun 20^th, 2007, 1:29pm

Thx mike.

Here's another question... when calling new doc offices I asked if the doctor was familiar with CH. Is that what you all did? So far I'm waiting for a call back from one office cause the snotty secretary said she didn't know, so I left my name and number and asked her to ask the doctor and call me back. I just don't want to waste me time on an appt with yet another clueless doc. Do you think I"m going about this wrong?

Title: Re: Looking for a ch link
Post by Brewcrew on Jun 20^th, 2007, 1:59pm

I never had to make that call, Tara. My GP referred me, I called and made an appointment (shit, what did I know at the time?), and he turns out to be one of the premier headache specialists in all of SE Wisconsin.

Hell, I thought I had sinus problems back then. You're in a little different position. I'd tell the snotty secretary (there seem to be an abundance of them in neurology, for some reason) that you want to make an evaluation / initial consult appointment with Dr. X, but to make sure this isn't a waste of your time, you'd like to have the doc call you first because you have a few questions. If they don't call you back in a reasonable time, move on to the next one.

Any doc that won't return my phone calls isn't worth my time or money.

JMHO.

Title: Re: Looking for a ch link
Post by Maffumatt on Jun 20^th, 2007, 4:37pm

You have done a damn fine job on the site Mike, thanks for the hard work.

Title: Re: Looking for a ch link
Post by Bob P on Jun 20^th, 2007, 6:59pm

I gave up trying to find a doctor who knew clusters.
I educated myself on clusters and then taught my doctor.
I think it works well to have a Doc who is clueless. I tell him what I have (clusters) and what I want to try as a treatment. He's really just there to sign the scripts.

Title: Re: Looking for a ch link
Post by Linda_Howell on Jun 20^th, 2007, 7:55pm

Quote:

--------------------------------------------------------------------------------
I gave up trying to find a doctor who knew clusters.
I educated myself on clusters and then taught my doctor.
I think it works well to have a Doc who is clueless. I tell him what I have (clusters) and what I want to try as a treatment. He's really just there to sign the scripts.

Me too. Jeeze second time this month someone has agreed with BobP

I was lucky though that my Dr. does not have the God complex and is willing to learn from me. Most are NOT.

What I would ask instead of "are you knowledgable about CH is...do you now or have you ever had, any CH patients" THAT is a big clue.

Title: Re: Looking for a ch link
Post by ClusterChuck on Jun 20^th, 2007, 8:37pm

on 06/20/07 at 18:59:48, Bob P wrote:

DAYUM!! Two in a row agreeing with Bob !!! What is the world coming to?

I went to my neuro last week. She was shocked I didn't have a new request!

Chuck