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        New Message Board Archives >> 2007 General Board Posts >> Tired, wired, and all together sick of this
        
(Message started by: artonio7 on Jun 17^th, 2007, 12:55am)

Title: Tired, wired, and all together sick of this
Post by artonio7 on Jun 17^th, 2007, 12:55am

SHIT!
:(

Title: Re: Tired, wired, and all together sick of this
Post by crftymom on Jun 17^th, 2007, 1:03am

Hang in there Tony. [smiley=hug.gif]

Title: Re: Tired, wired, and all together sick of this
Post by Callico on Jun 17^th, 2007, 1:03am

I'm sorry my friend. hang in there! PM me if it would help to talk.

Jerry

Title: Re: Tired, wired, and all together sick of this
Post by Racer1_NC on Jun 17^th, 2007, 1:05am

Hang tough Tony.....

Bill

Title: Re: Tired, wired, and all together sick of this
Post by Ray on Jun 17^th, 2007, 2:00am

Misery loves company, my friend. I too am wired, and tired, and trying to get ready to go back to bed after dancing with the beast. [smiley=hug.gif]

Ray

Title: Re: Tired, wired, and all together sick of this
Post by UN solved on Jun 17^th, 2007, 2:24am

You're not alone. You're never alone. We feel your pain.

Hang in there :)

[[{ PF WISHES ]]}

UNsolved 8)

Title: Re: Tired, wired, and all together sick of this
Post by Linda_Howell on Jun 17^th, 2007, 2:33am

That's right Tony.

Don't think about anything except aborting...resting in between, geting ready for the next one.

After that I'm sure it will get better and then you can come back to harrass us once again. ;)

You are one tough SOB Tony. Do Not let him win. Breathe some cold air/or 02

pace,
rock
slam some Red Bull..
Scream
cuss and yell

We're right here hon.

Title: Re: Tired, wired, and all together sick of this
Post by Jonny on Jun 17^th, 2007, 3:08am

Youve got a friend!

Title: Re: Tired, wired, and all together sick of this
Post by The mad viking on Jun 17^th, 2007, 3:30am

Hang tough Tony....

Title: Re: Tired, wired, and all together sick of this
Post by LeLimey on Jun 17^th, 2007, 5:28am

Hang in there honeybun - we loves ya
Helen xxx

Title: Re: Tired, wired, and all together sick of this
Post by barry_sword on Jun 17^th, 2007, 6:33am

Sorry Tony, hang in there.

Barry

Title: Re: Tired, wired, and all together sick of this
Post by tanner on Jun 17^th, 2007, 8:16am

on 06/17/07 at 03:08:59, Jonny wrote:

Youve got a friend!

Make that many, many friends!

Hang in there my friend!

.........Tim

Title: Re: Tired, wired, and all together sick of this
Post by taraann on Jun 17^th, 2007, 9:06am

Friggin A Tony! Sorry I hope it calms down quick! Hang in there. Lemme know if ya need a good vent, cause I'm all ears if you do. [smiley=hug.gif]

Title: Re: Tired, wired, and all together sick of this
Post by thebbz on Jun 17^th, 2007, 11:28am

Fargin no good demon sun of beotch, go away! you stabbin jabbin mind numbin worthles peece of whale dung.Leave us alone bastard!
were all with ya
jb

Title: Re: Tired, wired, and all together sick of this
Post by chewy on Jun 17^th, 2007, 11:54am

Repeat after me:

It will pass.
It will stop.

It will pass.
It will stop.

It will pass.
It will stop.

It will pass.
It will stop.

Title: Re: Tired, wired, and all together sick of this
Post by michael on Jun 17^th, 2007, 11:56am

You CAN get through it Tony

We ALL know what you are feeling

Title: Re: Tired, wired, and all together sick of this
Post by cathip on Jun 17^th, 2007, 1:31pm

Aww, Jeeze, Tony! I hate it when the beast goes at someone with a vengeance!!!
You've got your artillery, right??
You've got our support, right?

OK, now, here is the tough part, but you can do it.......
Keep fighting! Never, ever let him win! Save your energy to fight with, and remember, CHer's are the strongest people on the face of this earth........

and we are here, wishing you PF really, really soon!

:PI really, really hate the beast........
Cathi

Title: Re: Tired, wired, and all together sick of this
Post by Turts on Jun 17^th, 2007, 4:07pm

hang tight Tony, you WILL get thru this !!!

Turts

Title: Re: Tired, wired, and all together sick of this
Post by andrewjb on Jun 17^th, 2007, 6:02pm

SHIT ! :'(. breath deep, all things will pass. andrew.

Title: Re: Tired, wired, and all together sick of this
Post by Ray on Jun 17^th, 2007, 6:33pm

Called Tony, left voicemail..... :-X

Ray

Title: Re: Tired, wired, and all together sick of this
Post by TonyG1 on Jun 17^th, 2007, 8:16pm

Hang in there my friend!!

T.

Title: Re: Tired, wired, and all together sick of this
Post by Mosaicwench on Jun 17^th, 2007, 8:25pm

We're praying for your cycle to come to an end.

Hang tough dear.

Title: Re: Tired, wired, and all together sick of this
Post by sldrswyfe on Jun 17^th, 2007, 8:56pm

Isn't it maddening Tony?? But you KNOW it eventually stops...as if it never happened...WTF??? I feel like slapping people when they tell me "dont let it win",etc...but it is the honest truth....you will laugh again, sleep again, go out and have fun...even if it is hard to believe right now. HANG ON. We all know and understand...completely.

Title: Re: Tired, wired, and all together sick of this
Post by taraann on Jun 17^th, 2007, 9:56pm

on 06/17/07 at 20:56:36, sldrswyfe wrote:

Funny huh... even for chronics things get really bad ( well ok I gotta speak for my own chronicness i suppose) but then they go back to their own normal schedule and then they are easier to deal with. I sleep a bit better for awhile, etc. Just remember it's not always this awful, this out of control!!!

Title: Re: Tired, wired, and all together sick of this
Post by Charlie on Jun 17^th, 2007, 10:17pm

Rats.

Sorry Tony but hang tough and give this a try again. The worst thing that can happen is nothing:

Dr. Wright’s Circulatory Technique:

I am not sure what mechanism is triggered by this but whatever it is, at least indirectly helps kill the pain. I do know that this technique has nothing to do with meditation, relaxation, or psychic ability. It is entirely physical and takes some work. It involves concentrating on trying to redirect a little circulation to the arms, hands, or legs. It can described as a conscious circulatory flexing. Increased circulation will result in a reddening and warming of the hands. Try to think of it as filling your hands with redirected blood. The important and difficult part is that it has to be done without interruption through the pain. Do not give up in frustration. It may not work on the first try. Every now and then it will work almost immediately. I lived for those moments. Try experimenting between attacks. You will find that it gets easier with practice.

I was given less than five minutes instruction in the use of method. The doctor, while placing his arm on his desk, showed me that he could slightly increase his arm and hand circulation. After several attempts, I was able to repeat this procedure and use it successfully. I have had about a 75% success rate shortening these attacks. My 20 minute attacks were often reduced to 10 minutes or less. Once proven that I had a chance to effectively deal with this horror, I always gave it a try as I had nothing to lose but pain.

Perhaps it will help if you think of it as trying to fill the arm as if it is were an empty vessel. I used to try to imagine I was pushing blood away from my head into my arm. Use your imagination. There is one man who wrote that his standing barefoot on a concrete floor shortened his attacks. This may be similar as it draws some circulation away from the head. Cold water, exercise, or anything affecting circulation, seems to be worth a try. My suggestion is to not let up immediately when the pain goes. Waiting a minute is probably a good idea. So long as you do not slack off, this has a chance of working.

This technique is very useful while waiting for medication to take effect or when none is available. It costs nothing, is non-invasive, and can be used just about anywhere. It is not a miracle but it helped me deal with this horror. It can be a bit exhausting but the success rate was good enough for me and a cluster headache sufferer will do just about anything to end the pain. It gives us a fighting chance.

Charlie

Title: Re: Tired, wired, and all together sick of this
Post by john_d on Jun 17^th, 2007, 10:33pm

"It is said an Eastern monarch once charged his wise men to invent him a sentence, to be ever in view, and which should be true and appropriate in all times and situations. They presented him the words: 'And this, too, shall pass away.' How much it expresses! How chastening in the hour of pride! How consoling in the depths of affliction!"

Abraham Lincoln, Address to the Wisconsin State Agricultural Society, Milwaukee, WI, September 30, 1859

Title: Re: Tired, wired, and all together sick of this
Post by E-Double on Jun 17^th, 2007, 10:45pm

on 06/17/07 at 21:56:08, taraann wrote:

You nailed it sistah!
Take it light Tony

Title: Re: Tired, wired, and all together sick of this
Post by Lotus on Jun 18^th, 2007, 1:01am

http://www.youtube.com/watch?v=Swl4YKCOetc

Dont give up because you are loved ...

Hugs

Title: Re: Tired, wired, and all together sick of this
Post by George_J on Jun 18^th, 2007, 1:40pm

Sorry to hear you're getting slammed, Tony. But you know it will get better. Hope it does so very soon.

Hate to nag, but are you using the oxy yet?

[smiley=oops.gif]

Best wishes,

George

Title: Re: Tired, wired, and all together sick of this
Post by JenniferD on Jun 18^th, 2007, 2:02pm

my friend, I'm sending so many vibes and prayers your way! It'll end soon. Stay strong sweetie.

love ya,
Jen

Title: Re: Tired, wired, and all together sick of this
Post by ClusterChuck on Jun 18^th, 2007, 5:55pm

Pookiekins, hang tough, my friend!

You CAN survive this!

I will call you tonight.

Chuck

Title: Re: Tired, wired, and all together sick of this
Post by midwestbeth on Jun 18^th, 2007, 9:51pm

Well SHIT! Sorry you are getting slammed Tony. Unfortantely I am feeling your pain. Kick the beasts ass. You can do it.

Beth

Title: Re: Tired, wired, and all together sick of this
Post by gMike on Jun 18^th, 2007, 10:53pm

Hoping for the best for you! Live slow!

Title: Re: Tired, wired, and all together sick of this
Post by ClusterChuck on Jun 19^th, 2007, 1:55am

OK, I FINALLY got to talk to you!!! OR should I say I got to LISTEN to you!!!

Do you realize how long we were on the phone? I checked my cell phone ... The call started at 10:42PM and finished at 01:37 AM ...... ALMOST THREE freekin hours!!! And I never got to say two words ... You were flappin yer jaws the WHOLE time, and you NEVER let me say a thing ....

SHEESH!!! What a motor mouth!!! [smiley=laugh.gif] ;)

It WAS good talking to you tonight, buddy!!!

Now KICK THAT BEAST'S ASS !!!!! How DARE he interrupt our phone conversation??

Chuck

Title: Re: Tired, wired, and all together sick of this
Post by sldrswyfe on Jun 19^th, 2007, 7:58am

I am chronic Tony, have been for over a decade...it sounds as if you are, Im not sure.

I do know it never completely stops, but there are the impossible times and then God willing the longer hours in between...it is so difficult to be positive and believe you will actually be able to enjoy a meal again or lay your head down again...but you will...no matter what your brain is saying. It's also very hard to be "chipper" when you're sleep deprived and in so much inescaple pain.

Regarding Charlie's theory...to my UTTER AMAZEMENT...(sorry Charlie, I didn't believe it was going to work for one second)...it worked on the first try for me. And he is also accurate in saying, AT TIMES, not every one, you can instantaneously abbort the attack. God, is that an amazing feeling.

Being that you have gone so long without using 02, I have had a seven year break and just got it withing the past month, you have heavily relied on your mind for pain control...I believe you will be able to successfully do this.

It has actually been "confusing" to re-learn depending on 02...I am learning to do both at the same time...and if Im lucky, spend alot less time using 02. Whatever you do, the very best to you Tony.

Title: Re: Tired, wired, and all together sick of this
Post by Rosybabe on Jun 19^th, 2007, 12:53pm

Tony, I am praying so you can find relief soon..

Title: Re: Tired, wired, and all together sick of this
Post by artonio7 on Jun 22^nd, 2007, 1:14am

So very sorry to all of you for being so scarce for the last week or so. A couple of cycles are overlapping and it is making life a little less pleasant than usual. I am chronic and am used to getting frequent hits each day but in the last few weeks I was getting hit more frequently and harder. My system was plumb worn out and a depression started to take it's toll... these two cycles overlapping is a real pain in the a$$.

I want to thank you all for your kind words of encouragement, prayers, vibes and phone calls. It means so very much to me. You have all been there and done that... there is so much weight in your words of encouragement.

I am using oxygen. (Thank you all my nagsome friends)

Although the oxygen is very helpful in aborting some of the attacks I noticed it doesn't always work and during these last couple weeks I've been getting hit very frequently and at times the o2 does nothing at all. Is this normal?

I hesitated saying anything about it at first because I do not want to discourage anyone from using o2. I use it as recommended; 15 lpm with a clustrmasx, for 15 minutes.

Again all of you thank you for your encouragement and well wishes.

with warm regards,
Tony

Title: Re: Tired, wired, and all together sick of this
Post by LeLimey on Jun 22^nd, 2007, 4:31am

Tony there will always be hits that nothing works for and at best something will take the edge off it. It sucks but it's true.

I have found with O2 (and every abortive actually) that delaying starting using it makes it either take longer to kick in or not work depending on how long so my advice is go for the O2 at the first hint of a twinge.

Its not like Imi - you aren't going to "waste" it if it's only a shadow so just jump face first into that mask the minute you think that first "Oh Shit" okay?!

lots of love
Helen xxx

Title: Re: Tired, wired, and all together sick of this
Post by B14CK5H33P on Jun 27^th, 2007, 9:40pm

Sorry to hear you've been getting hit harder. I know the cycles within cycle all too well.
Had the same experiences with o2 not wanting to work.
Are you doing it right?

Reason I ask is, Jean told me awhile back that you are hyperventilating into the mask, you're not getting the full benefit, and if you are leaning forward, it is like a kink in a waterhose... you're not getting the full oxygen. Make sure you sit straight up and try to breathe it in normally. Best advice I can give.

Sending vibes. Been hoping to run into you on Skype.

Peace,
Carl