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        New Message Board Archives >> 2007 General Board Posts >> reminiscing 
        
(Message started by: taraann on May 31st, 2007, 12:14pm)
Title: reminiscing
Post by taraann on May 31st, 2007, 12:14pm
about when I first found this place.

I remember reading and reading for hours upon hours.  I cried so many tears.  I just could not believe that I was not alone!  I could not believe that other ppl were going through what I was, wow, what an incredible feeling.  I had to keep wiping my blurry eyes to continue reading.  That was before I even knew my grandfather had suffered these horrible headaches!  This place truly is such a godsend, a lifesaver, awesome, incredible.

I just was thinking about that today.
Title: Re: reminiscing
Post by vig on May 31st, 2007, 3:05pm
If I see where I was then compared to where I am now, I realize I owe a HUGE debt to all here.

thank you
Title: Re: reminiscing
Post by Mark C on May 31st, 2007, 3:13pm
This place is truly DIVINE!

Thank you DJ!

Mark
Title: Re: reminiscing
Post by Charlotte on May 31st, 2007, 3:42pm
Finding the place gave me a life line.


Charlotte
Title: Re: reminiscing
Post by tanner on May 31st, 2007, 6:03pm
 Ditto
Title: Re: reminiscing
Post by catlind on May 31st, 2007, 7:38pm
In all my years online, over 10, I have never been able to stay on a message board beyond a year.  It's hard to believe that I found this place 5 years ago now.

I still remember when I first found it, and I read and read and read like a starved dog;  then I cried and cried, and I kept calling Clark over and saying "I'm not alone, there are other people, read this, it's my life...."  

I actually found it after seeing a special on headaches, in which I believe it was Simon from the UK that had a starring role.  I taped it and took it to my doc. and then went online to search.

This place has been a lifeline more than once for me, and the family and friends I have found here are ones that cannot be explained or described.  I've never met another group of people that have the generosity, the compassion and caring, of that of clusterheads.

Thanks DJ!

Cat
Title: Re: reminiscing
Post by Racer1_NC on May 31st, 2007, 7:50pm
In almost 4 years it's been the best of times and the worst of times.

Saved my life.......and raised my blood pressure 10 points.

Bill
Title: Re: reminiscing
Post by Jonny on May 31st, 2007, 8:22pm
Theres no place like home....when your a clusterhead/supporter!  ;)
Title: Re: reminiscing
Post by artonio7 on May 31st, 2007, 8:50pm

on 05/31/07 at 20:22:38, Jonny wrote:
Theres no place like home....when your a clusterhead/supporter!  ;)


True... now where are those munchkins Dorthy? [smiley=laugh.gif]

with warm regards,
Tony and Oscar ... not.. Toto too
Title: Re: reminiscing
Post by Jonny on May 31st, 2007, 9:06pm

on 05/31/07 at 20:50:42, artonio7 wrote:
now where are those munchkins Dorthy? [smiley=laugh.gif]


I will refrain from my first thought comment on that ;;D
Title: Re: reminiscing
Post by Charlie on Jun 1st, 2007, 1:29am
It's unique and I slobbered when I first found this place even though it had been years since my last full-fledged hit. Reading about so many victims hit hard but the way things are done here, makes me have to stick around. I've been on epilepsy and other message boards but it's just not the same thing. http://smiles.ru/coll/shura/reading_help.gif?

It's a wonderful place and they don't kick me off.

Charlie
Title: Re: reminiscing
Post by George_J on Jun 1st, 2007, 2:27am
Back in 2000, when I first found this place, I'd already been dealing with CH for 30-some-odd years, so the Black Dog and I had had plenty of time to get used to each other.  

Most of you probably know that I've always been a regular, clockwork episodic--CH was just something that came with the spring and fall--part of what I was.  Part of what I am.  A thread that ran through my life.  I always thought of it as a price that I paid for being alive.  Maybe others didn't have to pay it, but I did.  So be it.  In that sense, I guess I can't say that CH.com saved my life--I decided to live with it long ago.

I'd never met, spoken to, or had any contact with anyone else who had CH.  It never occurred to me that I would.

So when I found CH.com, I guess I felt more--strange--than anything.  There are others.  Imagine that.  While I was in cycle, I read, and read, and read.  Posted very little, if at all.

For a very long time, I did my best to put the cycle behind me when it was over.  I think a lot of episodics do that.  So I didn't visit after my cycle ended in 2000.  During my cycle in 2003, I lurked again, but quit visiting when it ended.

In 2006, I again showed up--but decided to see whether I might stay around to be of some help this time.  The advice that's often given here to "pay it forward" really struck home.  I'm not a doctor.  My experience with meds is quite limited, since I elected years ago to forgo treatment.  The only thing I really have to offer is my experience--and my strong belief that CH can not only be survived, but defied.  That living is all the sweeter and more intense when it's juxtaposed against a sometime hell that few other people can comprehend.

I'm glad I decided to "come into the open"--I've made some good friends here, so far unmet, and I hope I've actually done a few people some good.  If so, it's been worth it.  

Not to mention that this place is somewhat....addictive.  ;)

Best wishes,

George
Title: Re: reminiscing
Post by sandie99 on Jun 1st, 2007, 2:51am
This is a great place! Best for us clusterheads. :)

Thank you all for your support!

Hugs,
Sanna
Title: Re: reminiscing
Post by taraann on Jun 1st, 2007, 11:35am

Quote:
Not to mention that this place is somewhat....addictive.  

Best wishes,

George
Very addictive!
Title: Re: reminiscing
Post by Guiseppi on Jun 1st, 2007, 12:29pm
Not that I'm lacking in reasons to keep my wife, but her finding this site helped me regain a (somewhat) normal life again. I will forever owe her, and all of you, for this place. For people like Linda, Charlotte, Kathy and their hugs when I'm down, for everyone I've had the pleasure of chatting with online, and even that a%#hole Johnny for the times he'd tell me to stop being a baby and nut up! ;;D This place is a Godsend.

Guiseppi
Title: Re: reminiscing
Post by Margi on Jun 1st, 2007, 12:44pm

on 05/31/07 at 19:50:53, Racer1_NC wrote:
Saved my life.......and raised my blood pressure 10 points.

Bill


LOL Ditto  - I think you and I have raised each other's blood pressure a few times, haven't we?  I'm so happy to see your username still active, Bill - I was worried about you because I'd heard you'd left and I would hate to ever see that happen.

Ch.com and DJ were lifelines for us - we landed here 10/31/1998, Mike was in the worst cycle I'd ever seen.  DJ told me about oxygen and Doc Jerry told me about Water Water Water and, within a week, I had my husband back.  I honestly credit those two men with preventing a suicide.  

We'll never be able to give back what we've gotten here.
Title: Re: reminiscing
Post by catlind on Jun 1st, 2007, 12:48pm

on 06/01/07 at 12:29:34, Guiseppi wrote:
and even that a%#hole Jonny for the times he'd tell me to stop being a baby and nut up! ;;D This place is a Godsend.

Guiseppi


What I found fascnating about this place is that the kicks in the a$$ are actually the most helpful.  Jonny and Slammy (where is he anyway??) were instrumental in me still being here today - when I fell into a pity party a few months after finding this place, after Clark had been deployed the 2nd time in a year, and I was trying to take care of 3 small kids on my own, and I was so incredibly wrapped up in the pain rather than life, they gave me the much needed kick in the a$$ and told me to stop whining.

I quickly learned that there are far more important things to concern yourself with than wallowing in self pity because of headaches.

The love and support along with the kicks in the a$$ are what make this place unique.  We all need a few moments of self pity every now and then, the folks here ensure that you only take a few moments, and then get on with living.

Cat
Title: Re: reminiscing
Post by Racer1_NC on Jun 1st, 2007, 2:10pm

on 06/01/07 at 12:44:17, Margi wrote:
LOL Ditto  - I think you and I have raised each other's blood pressure a few times, haven't we?  

Indeed. I have learned the past is no indication of the present or future.  ;)


Quote:
I'm so happy to see your username still active, Bill - I was worried about you because I'd heard you'd left and I would hate to ever see that happen.

I came as close as anyone can...... Once again, that is the past, I now look to the future.  :)

Bill
Title: Re: reminiscing
Post by Margi on Jun 1st, 2007, 5:33pm
you know what, though, Bill?  Those of us that have been in the trenches slugging it out in the mud actually DO form pretty tight bonds in the process.  I think, once we come out of the ditch and see the sunlight, we realize that our goals are shared.

Hell, Ree and I were like cats hissing when we first met and I still, to this day, consider her one of my best friends.  Same with Cathy in England and Nani too.  We all had some pretty good hair pulling matches in the beginning but now...all folks I'd feel totally comfortable standing back to back with instead of how we started out:  toe to toe.  Same with Scott (seasonalbloomer) - he had a real 'tude when he landed here and, of course, me being the crank that I am, I had to tell him that ;).  But now, I look forward to our PM conversations and get a huge kick out of his sense of humour (even if his Wings DID shut down my Flames.

You're on my list now too, Bill.  My back to back list, not my toe to toe list.

Onwards and upwards, right?

Oh and, I hear ya on the coming close thing...I actually went so far as to delete myself once and then had to go begging, hat in hand to DJ to let me back in.  Kinda like Hotel California, huh?  You can check out anytime you want but...you can NEVER leave. (with apologies to Don Henley)
Title: Re: reminiscing
Post by taraann on Jun 1st, 2007, 6:06pm
I think well I know with our pain, lackof sleep at times we become overly sensitive.  I KNOW i do.  I get down right bitchy and have taken little things to heart a few times, esp in the beginning here.  A few times I thought I came across very bitchy and wasn't taken that way at all ... now I"m just babbling ::) What else is new :P


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