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(Message started by: Hammered2 on May 17th, 2007, 10:16pm)

Title: Numbers
Post by Hammered2 on May 17th, 2007, 10:16pm
how many people have CH?  What are the incidence per pop.         Hammered2

Title: Re: Numbers
Post by thebbz on May 17th, 2007, 10:19pm
Read the home page here...its all there. On the left
happy reading.
jb

Title: Re: Numbers
Post by JeffB on May 17th, 2007, 11:41pm
I'm still working on fractions! Look to the left and read.

pf to ya bud!

Title: Re: Numbers
Post by Linda_Howell on May 18th, 2007, 12:37am
When I first found this place in 1998...I read and lurked for about 3 to 4 months before my 1st. post.

This place is a lot more concise and informative than it was back then.   Much more to read and much more information.  The advice is still the same though.

   Read the links to the left.

   Go to OUCH and read even more.

    Get a feel for the boards, so you know where to post specific questions or comments.

    Get to know at least the "general feel " of the people here.  

                end of lecture.  ::)

     

   



Title: Re: Numbers
Post by AussieBrian on May 18th, 2007, 12:48am
1 people is 2 too many.

Title: Re: Numbers
Post by kayarr on May 18th, 2007, 1:04am

on 05/18/07 at 00:48:50, AussieBrian wrote:
1 people is 2 too many.


Amen!

Title: Re: Numbers
Post by tommyD on May 18th, 2007, 7:06am
You should indeed read and research the information on this site. And we old timers should be willing to answer simple questions, because it can take a good bit of time and frustration to find a specific piece of information here.

We are one-in-a-thousand, so I've heard it said; somewhere around one-tenth of one percent of the population. That would mean about 300,000 people in the US have cluster headache.

The one-per-thousand number is disputed. I have seen claims for higher and lower; I recall  .07 percent to .4 percent. A neuro once told us that geography matters. The prevalence in greater the farther one gets from the equator.  In the UK, which is way far north (check a world map - it is farther north than Maine), the prevalence might be around one in 500, so I've heard.

-tommyD


Title: Re: Numbers
Post by Yorky on May 18th, 2007, 7:12am

on 05/17/07 at 22:16:29, Hammered2 wrote:
how many people have CH?  What are the incidence per pop.         Hammered2
my doc tells me "he as 2 ch patients, out of 6500 registered at his practice  (as anyone else asked there doc ? )

Title: Re: Numbers
Post by Brewcrew on May 18th, 2007, 7:49am
How 'bout this:

69 out of every 100,000 people suffer from CH.

That's 0.069%

That's about 207,000 people in the US.

Title: Re: Numbers
Post by gore2424 on May 18th, 2007, 7:53am
My neuro's office staff (5 Dr.) has a total of 7 other patients with CH I have asked him to pass out flyer's about yearly convention and always give him the info weeks before the DavCon meet & greet along with my name, phone #, and e-mail address only one has e-mailed me once in the last 3 years and never have meet or e-mailed me back so maybe they dont have it so bad as to want any help and I always write down about this greatest web site in the whole world Terry (the builder)

Title: Re: Numbers
Post by BarbaraD on May 18th, 2007, 8:16am
Years ago my neuro had 27 CH patients and every time I go in he tells me of several more he's added so I'd guess the count is over 50 now. He also has a large practice of migraine patients.

Title: Re: Numbers
Post by catlind on May 18th, 2007, 8:23am

on 05/17/07 at 22:16:29, Hammered2 wrote:
how many people have CH?  What are the incidence per pop.         Hammered2


Until there is an epidemiology study by Richard Lipton or someone of equal credibility (he was responsible for the Migraine One study that put triptans on the map) there will be no DEFINITIVE answer.  Many specialists have their own ideas and numbers, as you can read in this thread.

Cat


Title: Re: Numbers
Post by michael on May 18th, 2007, 1:11pm
Just read tommyD's reply.

I am very interested in the comment that the prevailance is greater the further one gets from the equator. Has anyone else heard of this.

I have for a long time wondered about this. Cluster Headaches have something to do with the Hypothalamus, which is the home of the biological clock, which takes an input from the optic nerve.

Many sufferers have their clusters around the time of the equinoxes, a time when day and night are the same length. At the equator night and day are the same length all year round, but the further one moves away from the equator, the greater is the veriation in length between night and day between the equinoxes.

Just a thought.

Mike

Title: Re: Numbers
Post by Paul98 on May 18th, 2007, 2:17pm

on 05/18/07 at 00:48:50, AussieBrian wrote:
1 people is 2 too many.



Brian.... Hmmm...That statement packs so much into it!

You got that one right ;)

-P.

Title: Re: Numbers
Post by catlind on May 18th, 2007, 6:13pm

on 05/18/07 at 13:11:37, michael wrote:
Just read tommyD's reply.

I am very interested in the comment that the prevailance is greater the further one gets from the equator. Has anyone else heard of this.

I have for a long time wondered about this. Cluster Headaches have something to do with the Hypothalamus, which is the home of the biological clock, which takes an input from the optic nerve.

Many sufferers have their clusters around the time of the equinoxes, a time when day and night are the same length. At the equator night and day are the same length all year round, but the further one moves away from the equator, the greater is the veriation in length between night and day between the equinoxes.

Just a thought.

Mike



Mike there is a great deal of anecdotal evidence to support this as well as research being done to try to provide factual correlaton between the equatorial relationship as well as the solstice relationships.

Knowing that, and then figuring out what to do about it are worlds away.  To my understanding, if you have clusters and move to the equator, you will still have clusters.  If you live at the equator, and don't have them, you are less likely to develop them within the context of how little we know about how they develop.

How to say a whole lot of something and provide nothing  :-/

Cat



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