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Title: House Post by Bob P on May 11th, 2007, 8:48pm I got a phone call this afternoon from Lenny Fromer, a Los Angeles clusterhead I met a few years back at the first CalOUCH meeting. He said that this Tuesday's episode of House (in LA) deals with clusters. He got a call from the medical director of the show and was interviewed by her along with his Dr., Kudrow. He said the interview airs on the news after the show. I haven't found any info in TV listings but thought I would pass it along. |
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Title: Re: House Post by nani on May 11th, 2007, 8:57pm You know, I wondered about that when I saw the previews last week. He says something about magic mushrooms. Someone from the busters contacted the show last year, after the LSD and migraine episode. That's pretty effen cool. :D |
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Title: Re: House Post by Rosybabe on May 11th, 2007, 9:00pm that is cool! If you get to find out the time the show will air please let us know!! I will be in Mexico but I can still see the show in cable. |
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Title: Re: House Post by andrewjb on May 11th, 2007, 9:25pm :), great news, please post a link for those of us who cant see it on [ evil edna ] tv. andrew. |
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Title: Re: House Post by sandie99 on May 12th, 2007, 2:28am Great! :) I love House! I watch every episode. But I will have to wait for that episode for few years, because the last time House was on back here, we saw season 1... :( Sanna |
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Title: Re: House Post by BarbaraD on May 12th, 2007, 7:53am I saw my neuro yesterday and he mentioned the migraine episode. I get House on Friday nights, but don't know if it's the latest edition or reruns. If you find out what channel let us know. Hugs BD |
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Title: Re: House Post by Bob P on May 12th, 2007, 8:30am Lenny called again last night to say he had spoken to the series medical director again and the Tuesday timing only applies to local Los Angeles TV. She didn't know when it would air in other places. It's about a 16 y/o boy who hits his head and develops headaches (clusters). |
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Title: Re: House Post by Mastifflvr28 on May 12th, 2007, 9:50am My DVR is set up to record House on Tuesday on 13, KCPQ FOX at 9:00pm. Here's what the info on it says: A 16 year old chess prodigy with intense head pain and behavioral issues offend the members of House's team during his treatment. Mast |
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Title: Re: House Post by nani on May 12th, 2007, 10:46am All new episodes air on Fox, Tuesday nights at 10 PM Eastern (8 Mountain) |
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Title: Re: House Post by john_d on May 12th, 2007, 10:49am very cool, thanks for the heads up Bob P |
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Title: Re: House Post by chewy on May 12th, 2007, 10:50am Boston Tuesday night Fox 13 9 PM |
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Title: Re: House Post by BarbaraD on May 12th, 2007, 11:16am I've got Direct TV -- will check all the FOX stations.... My kids and their 500 channels.. [smiley=huh.gif] [smiley=huh.gif] [smiley=huh.gif] We've got Fox East West and in between.... thanks Hugs BD |
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Title: Re: House Post by Kevin_M on May 12th, 2007, 7:05pm on 05/12/07 at 08:30:26, Bob P wrote:
I hope they express noticeably the essential excluding importance of an MRI to all concerned from the viewing audience who may think they have clusters after the show airs. For reasons hopefully mentioned, the distinction should be made clear as to why it is necessary for clusters even if unrevealing. The audience may think the only reason for an MRI being required was because of a head hit. |
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Title: Re: House Post by Charlie on May 12th, 2007, 10:50pm Thanks Bob. I love House too and I've been hoping they would get to us. It's the kind to thing that seems right up his alley, even if it isn't related to one of the show's bizarre toxic exposure episodes. I'll see it along the way. Charlie |
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Title: Re: House Post by BikerBob on May 15th, 2007, 1:39am Thanks Bob P House TV show... Magic Mushrooms for CH Tues, 5/15, FOX TV, 9pm/8 central. Here's a preview... click on the "Prescribing Magic Mushrooms" video on http://media.tv.ign.com/media/826/826958/vids_1.html BB |
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Title: Re: House Post by FramCire on May 15th, 2007, 4:20am I will download the episode tomorrow and watch it Wednesday night here in China. My wife and i love house. If someone has a newscast online from after the show dealing with it, please link it |
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Title: Re: House Post by ClusterChuck on May 15th, 2007, 11:09am A news reporter from Channel 11, I believe, FOX 11 News in Los Angels, called me about the clip of me. She interviewed me for about a half hour. She said she spoke with Lenny, too. I think the broadcast news will be after the show. Too bad we all don't get FOX 11 news ... Chuck |
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Title: Re: House Post by Racer1_NC on May 15th, 2007, 11:41am Looking at the Fox website for "House" I find tonight's episode is titled "The Jerk". :-/ |
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Title: Re: House Post by Jimi on May 15th, 2007, 11:49am Thats what mine shows too Bill. I guess I will watch and see if it may be a misprint or it may show over in our area at a later time. |
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Title: Re: House Post by nani on May 15th, 2007, 11:52am The Jerk is probably the same episode. The kid (a chess wiz) is a real jerk. Not unlike House, LOL. In the preview House says something about liking him. |
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Title: Re: House Post by BlueMeanie on May 15th, 2007, 12:44pm I doubt its' about Clusters. At least the show I read about. This so-called "jerk", gets in a fight causing a real bad headache. He then begins having all his organs shut down and almost dies. I hope they don't portray this guy as having Clusters sending a wrong message to viewers. Maybe the one Bob is talking about is different. Going to record it anyway just to check it out. |
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Title: Re: House Post by pattik on May 15th, 2007, 6:40pm Lenny posted to the guestbook and said that the local Fox Network station will put the CH video on their website starting tomorrow, for those who are interested in seeing it. |
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Title: Re: House Post by BarbaraD on May 15th, 2007, 8:05pm My damn luck -- I found the Fox Channel here -- we haven't had rain in a week and about 4 this afternoon it started storming and we've lost power three times since then. Hope I get to see the show. Luck of the Irish... oh well, there's always reruns..... Hugs BD |
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Title: Re: House Post by Gator on May 15th, 2007, 8:43pm Damn, Barb. Your power company sounds as bad as mine. Nothing like running a piece of wood through the table saw and the power go out and then come back on before you can get the wood off the blade. |
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Title: Re: House Post by echo on May 15th, 2007, 9:08pm m My head's going to explode! While he's holding on to each side of his head? CH? I personally think not!!. |
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Title: Re: House Post by purpleydog on May 15th, 2007, 9:12pm Anyone take blood thinners for CH? Magnetism? |
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Title: Re: House Post by echo on May 15th, 2007, 9:18pm Hand on the left eye, that's better. House actually said Cluster Headache! That's wonderful!! |
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Title: Re: House Post by Brewcrew on May 15th, 2007, 9:21pm on 05/15/07 at 21:12:17, purpleydog wrote:
No, but now I know why my cojones are so small! [smiley=laugh.gif] |
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Title: Re: House Post by Redd on May 15th, 2007, 9:22pm NOT impressed thus far... I've never watched the show before, and don't think I ever will again. Very very irresponcible in my opinion. |
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Title: Re: House Post by Linda_Howell on May 15th, 2007, 9:23pm Quote:
Oh sure, ruin the plot line and the ending, for us on the left coast Echo. ;;D |
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Title: Re: House Post by Redd on May 15th, 2007, 9:23pm [quote author=echo link=board=general;num=1178930909;start=25#26 date=05/15/07 at 21:18:23]Hand on the left eye, that's better. quote] All the while he's laying down and can speak in complete sentences whineing in a manipulative manner. |
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Title: Re: House Post by john_d on May 15th, 2007, 9:24pm 15 minutes into and they have said the words 'cluster headache' alot. But not much else about the content resembles an actual cluster headache. Kinda silly really. Too bad. |
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Title: Re: House Post by echo on May 15th, 2007, 9:24pm At least XXXXMillion viewers got to hear the words Cluster Headache. Better than nothing. Going back downstairs to watch the blood leaching. edited due to too much wine. STFU jonny! ;;D |
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Title: Re: House Post by echo on May 15th, 2007, 9:27pm Sorry Linda!! I'll shut the fuck up now. Love you sis :-* :-* :-* edited due to the fact I fat fingered the keyboard again. |
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Title: Re: House Post by Jonny on May 15th, 2007, 9:31pm on 05/15/07 at 21:24:48, echo wrote:
I dont watch TV, I watch you folks.......so, I dont have anything to say about TV. |
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Title: Re: House Post by chewy on May 15th, 2007, 9:34pm Quote:
That is absolutely correct my friend! |
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Title: Re: House Post by echo on May 15th, 2007, 9:38pm I'm leaving the last 1/2 to you Linda. Let me know what you think about it. Jonny, You kill me. Love you my brother. Hell you''re better than my blood brothers. You actually know what I deal with! Mine think I'm a fucking nut case. |
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Title: Re: House Post by Lizzie2 on May 15th, 2007, 9:38pm Can't say it's portraying CH well, but at least they got the word out there - as someone above said. Trying to look at it positively at least! They initially said the treatment was morphine and steroids...nope. And then I thought the real shroom dose for CH wasn't high enough to make someone go on a real trip like that. Anyone care to input on that, since I've never tried them? And while CH really effing hurts - anyone who would use that as an excuse to be "hostile" or "irritable" to the world is just using CH as a crutch for bad behavior... At the time of an attack, yes, I am irritable - but not all the time in between them! I dunno....I'm not spoiling the episode by saying any more, but that's my commentary on some of the things they've said and portrayed so far!! This kid is such a jerk........ lol Hugz, Carrie :) |
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Title: Re: House Post by echo on May 15th, 2007, 9:40pm Holy shit Carrie! You're an absolute FOX! :P |
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Title: Re: House Post by Brewcrew on May 15th, 2007, 9:49pm While the symptoms and treatments were mostly bogus, the overall impression was that cluster headaches are serious business, and several million people saw that. That's a good thing. |
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Title: Re: House Post by echo on May 15th, 2007, 9:51pm on 05/15/07 at 21:49:58, Brewcrew wrote:
This is a good thing. |
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Title: Re: House Post by john_d on May 15th, 2007, 10:01pm In the end, I liked the show. House is cool. I may start watching it. And maybe another writer will pick up on the cluster headache idea? It was nice that it was mentioned on nation tv. |
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Title: Re: House Post by Redd on May 15th, 2007, 10:08pm My only concern is the "general" impression this show left on the public of the nature of CH vs all the other things that were involved with this kid. I can say one thing...it left me with the impression that CH "in the end" was a mis-diagnosis among all the others. notice how as they treated him for other issues the CH attacks ceased? It was not benificial to our plight at all in my view...but then again I'm just a woman with clusters, what the hell do I know? I'm going to take a nice long bath and try to wash away the filth left behind... |
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Title: Re: House Post by Ree on May 15th, 2007, 10:16pm Yes they did mention Clusters... but they also mentioned some freaky things like he had small testicles and that having to do with the hypothalumus... hmmmm I thought that was interesting.......... They lost me when he peed on the floor after tripping out on mushrooms... and then there was blood in the urine... I changed the channel... ree |
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Title: Re: House Post by E-Double on May 15th, 2007, 10:20pm Another good episode but unfortunately for us it did nothing to really bring about awareness of the severity of pain.....I guess that the name was mentioned consistently throughout and the mention of the rarity is a good thing though. edited b/c my opinion changed due to the personality and rage disorders that have evoked my CH. Off to eat some burgers |
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Title: Re: House Post by JDH on May 15th, 2007, 10:28pm on 05/15/07 at 21:49:58, Brewcrew wrote:
And of the several million who saw it I imagine there were quite a few who Googled CH's afterwards and that's a good thing too. Wonder if DJ will see a spike in visitors? Jim |
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Title: Re: House Post by Brewcrew on May 15th, 2007, 10:30pm on 05/15/07 at 22:20:06, E-Double wrote:
With all due respect, I disagree. A whole bunch of people saw a glimpse into a world we all know too well. The details are unimportant because Joe Lunchbox watching House won't remember any of that anyhow. He will, however, remember "Cluster Headaches." |
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Title: Re: House Post by broomhilda on May 15th, 2007, 10:30pm I agree raising awareness is important, however I am cautious this will bring many to their dr stating they have ch, therefore leading to misdiagnosis and treatments...IMO off my box :-X |
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Title: Re: House Post by cootie on May 15th, 2007, 10:33pm Oh great......I went and emails several of our friends that don't know SQUAT about Brad's CH and never have 'got it'........thought this show mite really SHOW EM what it's like. I could just hear them snickering in fronta the tv when it got to the small testicles part Pam Great ch was mentiond on a popular tv show 'no doubt'......a foot in the door.......but kinda stuck it in the door ina foolish manner I thought. Jus my opinion......... |
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Title: Re: House Post by E-Double on May 15th, 2007, 10:37pm check again Bill........ya probably quoted me as I was editing......... I agree that the name being mentioned is important and many will now search but so much could have been done. It just would not have been as interesting. I personally think the migraine episode in which he used LSD to relieve the pain was better and it showed that a lot of schiesters exist in regards to treating HA's in general. E |
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Title: Re: House Post by Not4Hire on May 15th, 2007, 10:46pm ...just switch over to "Boston Legal" I think y'all have symptoms of Asperger's, anyway. (purrrrrrr.....) |
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Title: Re: House Post by Brewcrew on May 15th, 2007, 10:46pm on 05/15/07 at 22:37:53, E-Double wrote:
That's what happened, E. Probably more common ground than uncommon. |
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Title: Re: House Post by Lizzie2 on May 15th, 2007, 11:05pm I guess the question is the following: Is misinformation connected to CH better than no information about CH at all? On the one hand, it gets the name "cluster headaches" out there, as House has a large viewing audience. On the other, while some people might go to google, I imagine the vast majority will not - and this will be the picture of clusters that they will have in their minds. And I can't wait until the next time I tell someone I have CH, and they say, "Oh...I saw that on 'House'..." I'm a nurse, and sometimes they discuss conditions I've never heard of on House (happened at the end of the show), but I don't even go and google them. They portrayed his condition as so bizarre (as they always do) that I can't imagine many people sitting there saying, "Hey...I wonder if this is the explanation for what I have!" But maybe I'm wrong there!! A med blogger once described House very well. Said that the show's writers seem to pick up a medical textbook, and, without medical knowledge, try to depict the symptoms. So if for example a condition said something like, "causes excessive bleeding", then on House they would show the guy bleeding from every single orifice, including his eyes, and screaming bloody murder as blood is coming out of his ears and mouth as well. All of the diseases make people look like they are about to give birth to an alien or something like that. If you met someone with the majority of these things, they wouldn't appear the way they do on the show. But it's the dramatic effect. Ultimately, I'm curious to know what people think about my original question. Is misinformation connected to CH better than no information about CH at all? Take care, Carrie :) |
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Title: Re: House Post by lionsound on May 15th, 2007, 11:23pm on 05/15/07 at 23:05:03, Lizzie2 wrote:
THAT is a very good question. My hubby and I were just talking about this. No easy answer. BUT.... If it gets supporters, families, friends, and news reporters talking about CH then the exposure IS a good thing. If someone I know(some of my friends are doctors) tells me they saw it, I can correct what was shown and appreciate that they thought of me. Also I think that people know that show's a drama queen unto itself. |
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Title: Re: House Post by Pinkfloyd on May 15th, 2007, 11:34pm In the end, they attributed his aggressive behavior to his personality and not any of the problems he was suffering from. They didn't properly diagnose him until the took that off the table. So, although some people will miss that, the show did not say that people with clusters might hit you upside the head with a time clock. They did say to use a low dose (10mg psilocybin) and a low dose will not produce the side effects shown on the show. it might make a guy hit on a cute nurse/doctor though ;-) They mentioned "new research shows that psilocybin treats cluster headaches" and the only research in the last 40 years of this type began here and continues at Clusterbusters. Thanks to everyone here that has been involved. Indirectly, you were all mentioned. That research is yours (ours). You'll notice that the clusters stopped after the dose of psilocybin. I was a bit afraid that some of the continuing symptoms, as new ones appeared, would be attributed to the dose of psilocybin, but in the end, all the symptoms were consistant with the disease he had, and not the psilocybin. They portrayed a very smart kid....with a bad attitude...maybe the writer got that by visiting this site ;-) It was nice to hear Cluster Headaches on a widely viewed show. It was also nice to hear inna-gadda-da-vida again ;-) Bobw |
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Title: Re: House Post by ClusterChuck on May 15th, 2007, 11:53pm Unfortunately, I can't get FOX here ... So I missed the show ... BUT, I did check my testicles. They look fine to me! Not at all small. Chuck |
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Title: Re: House Post by echo on May 15th, 2007, 11:59pm on 05/15/07 at 23:53:18, ClusterChuck wrote:
just chcked mine as well. They seem ok. |
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Title: Re: House Post by echo on May 16th, 2007, 12:02am BTW - My wife just informed me that she wants a divorce. Whatever! |
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Title: Re: House Post by Charlie on May 16th, 2007, 12:54am Quote:
I'll take your word for it, Chuck. NO PIX! I saw it. I love House and find it hard to turn it off. Lots of use of the words "cluster headaches" is great. I forget which politician said that any publicity is good publicity. It's probably true in this case but it will be hard to explain that CH doesn't come with belligerent behavior, and as Bob W. said that the kid's 10mg psilocybin trip ain't Kosher. Being able to talk or communicate in semi-coherant fashion such as depicted, doesn't work either. Still, CH got a little air time. Charlie |
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Title: Re: House Post by Lizzie2 on May 16th, 2007, 1:15am Oh I agree ultimately that the mention is good - that in this case, any publicity is most likely good publicity. At least I hope so...and because I'm generally an optimistic person, that's the angle I'm going for! BobW - thanks for the bit about the dose of psilocyban. I didn't think that low doses caused trips like that - just from reading what people have said here over the past few years. I am very glad that the buster treatment had some airtime. I would really be interested in how people who have no idea what clusters are perceived this show. I can't ask my family because they have already had their education from me. *grin* G'nite! Carrie :) |
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Title: Re: House Post by BikerBob on May 16th, 2007, 2:34am on 05/15/07 at 21:38:12, Lizzie2 wrote:
The kid had CH and a more serious ailment as well. I thought I heard her tell House "no more than 30 milligrams" when she approved it. That's not dried shrooms. They can only use synthesized psilocybin in research studies at hospitals, like Dr. Grob is doing at UCLA and Dr. Moreno is doing at U of A and like they did in the Hopkin's study. 30 mg psilocybin is the amount that was used in the Hopkin's study. It's equivalent to about 4-6 grams of dried shrooms. Message from Jon Hanna several months ago... Quote:
BB |
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Title: Re: House Post by Brewcrew on May 16th, 2007, 7:25am Listen to us - we sound like a starving African kid criticizing the relief worker for handing him a bowl of gruel instead of chateaubriand. ;;D |
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Title: Re: House Post by BarbaraD on May 16th, 2007, 8:11am I liked the part when House said, "Well at least give me credit for diagnosing Cluster Headaches." CH was mentioned about a dozen times -- that part was good. But the treatment was NOT standard treatment for CH - No O2 (House should have known about that - where has he BEEN). And Blood thinners? Anyone had that? Where the hell was the Imitrex? All in all it was a good show and they did get CH mentioned. I could get that violent if someone touched me - but the guy only held out his hand - he didn't touch - maybe the kid just thought he was going to. Hugs BD |
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Title: Re: House Post by pattik on May 16th, 2007, 8:39am Here's a link to Lenny's TV interview in L.A. Great job Lenny! (you may get a commercial first). http://tinyurl.com/27gthl |
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Title: Re: House Post by Jimi on May 16th, 2007, 9:37am Now that was good. Much better than the TV show last night. Too bad this was to a much smaller audience. |
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Title: Re: House Post by Kevin_M on May 16th, 2007, 9:44am on 05/15/07 at 23:23:39, lionsound wrote:
Hope we don't remain an E. Nygma Forever. on 05/15/07 at 23:34:23, Pinkfloyd wrote:
Was it this website the writers researched character type, or... smart kid http://batman.ugo.com/images/galleries/batman_forever_filmtv/batman_forever_7.jpg bad attitude http://batman.ugo.com/images/galleries/batman_forever_filmtv/batman_forever_9.jpg Riddle me this http://www.icelebz.com/celebs/jim_carey/thumbs/photo30.jpg ;) |
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Title: Re: House Post by Angie on May 16th, 2007, 9:58am I really like to watch House I said to Barry "I hope I still like the show after this episode airs" Well I still like HOUSE, I don't feel that the actor Kid portrayed the pain at its fullest. Maybe he should have done research before he played the part. Still it is the first medical show I have seen that talks about CH. There may have been more shows out there I just have not seen them. Angie |
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Title: Re: House Post by Bob P on May 16th, 2007, 10:47am Good job Lenny. Thanks for the heads up on the program and nice job in the news bite. Thanks! |
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Title: Re: House Post by Lejla on May 16th, 2007, 11:30am on 05/12/07 at 02:28:04, sandie99 wrote:
Sanna, I have some good news for you! You can watch all three seasons of house at this website: http://www.tv-links.co.uk/ This link will take you directly to all the shows so just scroll down to H and you'll see House there. I just finished catching up on all the episodes I missed. Also, there is the Movies tab on top of the page that has some great movies like 300 that just came out and some other movies that are still in theaters. Try it and let me know how it works out. Lejla |
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Title: Re: House Post by Racer1_NC on May 16th, 2007, 11:34am on 05/16/07 at 08:39:35, pattik wrote:
Excellent! |
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Title: Re: House Post by Redd on May 16th, 2007, 11:46am on 05/16/07 at 11:34:29, Racer1_NC wrote:
I concure...great interview... very informative and educational. Chuck's clip is getting alot of exposure world wide. I can't thank everyone enough for all you've done. |
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Title: Re: House Post by BobG on May 16th, 2007, 12:09pm If you Google....House "the Jerk".... you'll get a site where, if you scroll down, you can post comments about the show. I think everyone should copy/paste what they said here over there. |
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Title: Re: House Post by nani on May 16th, 2007, 12:31pm on 05/15/07 at 23:53:18, ClusterChuck wrote:
I checked mine... they're still quite large and made of brass. ;;D I liked that he had no more clusters after the psilocybin dose. |
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Title: Re: House Post by minnie on May 16th, 2007, 12:39pm I guess getting the term cluster headaches out their is good.I haven't checked any websites connected to the house show so my suggestion might already be there.It would be nice if they linked to the episode with some info.something to the effect that cluster headaches were just a part of this characters health problems.This is definately a dramatization.Then have some links for good info and maybe the cluster quiz.(not saying this would happen but it would be nice) As a supporter who's been on this sight a while this is just my observation.....There are many real cluster headache related health problems that if used in a dramatic yet medically correct way would probably hold viewers attention as much as this episode did.So many people have had treatments that never would begin to help clusters. some example many have...had teeth pulled,some women have been told hysterectomies,sinus surgeries,ect.the list can go on. Medications have been tried that are not prescribed right for clusters.O2 not prescribed with right flow or mask.People have had problems with prednisone not tapored right again the list goes on.plus how many have been misdiagnosed before clusters were finally diagnosed..especially because women do get cluster headaches.Not to mention the treatment you get at E.R's and Dr,'s offices.Your not drug seekers and you do know that narcotics don't work but prompt treatment with O2,Trex,ect..can work (sometimes) Add lack of sleep,Knowing that the pain will come again sometimes to the exact hours it will be.Not always being able to do the things you want (social engagements,work,ect..) because you may be getting hit then and can't /won't deal with it in this setting.The whole family is effected by clusters and it is nobodies fault but the beasts... What I am trying to say is that cluster headaches on their own cause so many health,and life challenges.I think that seeing a show take on the many challenges and not mixing it in with non-related issues would be a better benefit to those who may have not yet been correctly diagnosed with clusters.I probably am not saying this right so if someone else understandswhat I'm saying and can say it so it's not a ramble please do... ;).... Minnie who really hopes this makes sense p.s. with the likes of goatie,chewy,chuck and the crew if people watch south park an episode with some of you guys should get some ratings.. ;;D..ya know I love ya. :-* |
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Title: Re: House Post by Linda_Howell on May 16th, 2007, 1:33pm Brewcrew, I guess I am one of the ones who expected Chateaubriand. CH is a very dramatic condition and ratings would soar through the roof if they had the correct facts, and that actor had portayed it like it really is. I am glad the word cluster headaches was used as often as it was. Lenny's interview was awesome as were some of the other links including the link to this site. Thank you Lenny and thanks again Chuck and Justin for getting that video made. (that's the last time I will be nice to you though Chuck) Linda |
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Title: Re: House Post by fubar on May 16th, 2007, 1:46pm I guess it's good to get the word out about clusters and the possibility that these now-prohibited drugs could help. I think it's a bad idea to jump all over the writers or producers when the portrayal of a disease isn't 100% accurate. For one thing, it's a fictional TV drama. They 'use' certain factoids to build a story. Hopefully it is convincing enough to give you that 'suspension of disbelief' that the director is shooting for. Secondly, if we continually berate them for inaccurate portrayals, they will move on to other subjects that don't piss off all of the people with the disease. I do wonder how many people now are now convinced they have CH simply from what they learned on the show. -fubar |
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Title: Re: House Post by Racer1_NC on May 16th, 2007, 1:47pm I found this site, supposedly run by a MD, that gives a review of last night's show. http://politedissent.com/archives/1652 |
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Title: Re: House Post by Brewcrew on May 16th, 2007, 2:01pm on 05/16/07 at 13:33:48, Linda_Howell wrote:
Dramatic condition, yes. Soaring ratings, no. Most people can't get out of their own heads for two seconds, so don't set your expectations too high. We'd all love to make the entire world sit down and watch a well done CH documentary. We'd be very lucky if we got 1% to sit down for any length of time at all, let alone watch. |
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Title: Re: House Post by Linda_Howell on May 16th, 2007, 2:13pm O.K. Bill. ;;D What I am basing my comment on is what Svenn told me when he presented Justins video to a room full of Neurologists/students in Norway. He said some got up after only a few mins of watching Chucks hit with tears in their eyes and the rest who stayed... were astounded. I truly believe if that show had been done right, with of course, the usual Hollywood drama added in, it could have really been good for us, as well as for the ratings. Just thinking here now....I could imagine where they could have shown someone who was a child and growing up with this....flunking out of college, lost jobs, lost wives, finally getting a correct diagnosis with, of course, all the added drama this show is known for. o.k. I'm done. ;;D |
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Title: Re: House Post by thomas on May 16th, 2007, 2:25pm on 05/16/07 at 14:13:37, Linda_Howell wrote:
Yep, I'm sure they could get one hell of a script here. |
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Title: Re: House Post by DonnaHar on May 16th, 2007, 2:53pm Thanks for the site mention.. http://politedissent.com/archives/1652 It would be to our advantage if someone knowlegable about the mushrooms (and other preventatives) would elaborate on their use and benefits and the research being done. Anywhere we drop a seed for thought is a baby step in the right direction. |
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Title: Re: House Post by Brewcrew on May 16th, 2007, 3:07pm on 05/16/07 at 14:53:50, DonnaHar wrote:
BINGO! That seed might not even germinate...but it might. |
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Title: Re: House Post by vietvet2tours on May 16th, 2007, 4:10pm I find this to be particularly disturbing.This is what should have been shown.Artonios movie. http://www.youtube.com/watch?v=LAf_QFmTPkw |
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Title: Re: House Post by Lenny on May 16th, 2007, 4:30pm First of all,i was very disguested with the show house,how they portrayed clusterheadaches (the only thing that they got right was the pronounciation of clusterheadaches,and of course the name clusterheadache) for me it was hard to watch the show( they were so wrong) . As far as the interview went,i dont remember much,as far as watching it ( i was in shock of how old i looked)they made me look 20 years older,marks on my face that i dont have and freckles on my arms that dont exist,BTW Dr.Kudrow looked 20 years older aswell. If anyone out there ever does an interview ( make sure that they put the make-up on ). I do want to thank them for not focusing on my crotch,after all ( i am hung like a hamster ;;D ). I sure hope that this post will go thru ( its been a long time ). I tried to get on last week,i could not remember my password ( here at work and organizing a droor,what to keep what to throw out and found my password). Anyways i do want to apologize to everyone out there of the way we were portrayed,i know i dont have to,but i am doing it anyways. Well i got to get back to work ( lunch was over about a half hour ago). What do you guys think if we all send an e-mail to our local fox channels regarding of how wrong they were as far as portraying us ( of course we dont want to get too nasty with them if you know what i mean).I will as soon as i get home tonight.Please forgive my spelling. PFDAN, Lenny |
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Title: Re: House Post by cootie on May 16th, 2007, 4:37pm I was tickled pink to hear about the episode......not complainin or nothing......but I just WISH that they could of explain'd ch better while on the subject and explained the pain, how often people are hit and the anxiety they feel in fear of it and then better explained his other sypmtoms were NOT ch before they moved on.......cuz basically sum may not of gotten the connection or disconnection Pam Hope Brad doesn't get teased about testicle size at his meeting tonight or beating people over the head with clocks......cuz suma them I emailed to watch the show cuz of it bein about ch. 8) 8) 8) |
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Title: Re: House Post by Kevin_M on May 16th, 2007, 5:14pm on 05/16/07 at 16:30:24, Lenny wrote:
Placing the medical detectivery on the platform of the disturbed genius, it's about making drama and having the doctors look good. The mentioning of clusters, also of psylocibin were a plus, higher expectations can make you feel like... http://images.rottentomatoes.com/images/movie/coverv/00/133300.jpg but we still have our "special purpose". ;) |
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Title: Re: House Post by Flounder on May 16th, 2007, 5:51pm on 05/16/07 at 13:46:43, fubar wrote:
I totally agree with this! This was a good thing even if they didn't get all the facts straight. I also thought Lenny's interview was great. At the end of it though, he said that it didn't run in families. I wonder where he got that from? |
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Title: Re: House Post by BikerBob on May 16th, 2007, 6:06pm on 05/16/07 at 16:37:20, cootie wrote:
Hi Pam, you could tell those people that the kid in show had 3 problems: cluster headaches, hemochromatosis and being a jerk. The severe head pain was from cluster headaches and was treated with psilocybin. All of the kid's other problems were from hemochromatosis and being a jerk. BB |
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Title: Re: House Post by TonyG1 on May 16th, 2007, 6:09pm You take the good with the bad... the real question is how many ppl said hmm.... wonder what cluster headaches are ? How many of those ppl may have taken the time to look it up ... <who knows...> publicity for good or bad is still good ... :) |
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Title: Re: House Post by Jonny on May 16th, 2007, 6:15pm on 05/16/07 at 18:06:13, BikerBob wrote:
Im thinking that this explanation will just make it worse when it comes to those backwoods bikers.....LOL ;;D But, I could be wrong ;) |
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Title: Re: House Post by cootie on May 16th, 2007, 6:38pm All they'd hear is migraine......hemo-homo and JERK........so why bother !? No tiny testicle bikers in this HOUSE Pam ;;D |
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Title: Re: House Post by taraann on May 16th, 2007, 7:58pm on 05/15/07 at 22:30:40, broomhilda wrote:
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Title: Re: House Post by DannyV on May 16th, 2007, 9:33pm They were way off with the symptoms and behaviors. I found it to be very misleading as far as CH was concerned. |
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Title: Re: House Post by Charlie on May 16th, 2007, 9:48pm Screw being nice. It gets us nowhere while making a stink at least gets this horror better known. Being nice isn't what people who make big changes do. The worst thing that can happen is that it won't work. Charlie |
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Title: Re: House Post by sandie99 on May 17th, 2007, 12:46pm on 05/16/07 at 11:30:39, Lejla wrote:
Wow! Thank you so much, Lejla! :) I just went there and begun to watch "The Jerk" episode of the House. It works, yahoo! :D PF days, Sanna |
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Title: Re: House Post by Brewcrew on May 17th, 2007, 1:10pm Has anyone ever heard the phrase, "There's no such thing as bad publicity?" The symptoms were inaccurate, the treatment was partially inaccurate, yes. But a couple million people heard the words "cluster headache" and derived a small amount of information from it. I'm failing to see this as a bad thing. Sorry to be the punch in the turdbowl. |
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Title: Re: House Post by seasonalboomer on May 17th, 2007, 1:23pm you mean for people that hear the word cluster headaches that saw the show and they say, "yeah, that crazy litte f&*ker that beat the snot out that guy with the chess clock, watch out for THOSE people - they could GO OFF on somebody." you mean like that kind of publicity? Scott |
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Title: Re: House Post by Margi on May 17th, 2007, 1:27pm on 05/17/07 at 13:23:57, seasonalboomer wrote:
Scott, you forgot part of it.... ::) |
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Title: Re: House Post by Brewcrew on May 17th, 2007, 2:42pm on 05/17/07 at 13:23:57, seasonalboomer wrote:
Yes. Before the show they just said, "Huh?" Would you rather they hear something wrong about CH and then you can correct them, or they just not hear about it at all? There is no such thing as bad publicity. |
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Title: Re: House Post by artonio7 on May 17th, 2007, 2:47pm on 05/17/07 at 13:10:19, Brewcrew wrote:
ummm, okay... If at the beginning of his new appointment, someone were to use the name... for instance... Pope Benedict in a story line and refer to him as; the pope, a shoplifter, a cross-dresser, a fireman and a dog groomer...and then showed an actor portraying him doing skateboard jumps while wearing a fireman's hat and a tutu, and the only thing accurate is the pope part, would that be a good thing or a bad thing? I guess if it were on an episode of Benny Hill, it would be funny but if it were on the Catholic News Network it could be construed as misleading if not blasphemous. Make no mistake... I am aware that House is fictional and it dramatizes and sensationalizes for the desired effect... but I also feel that CH in and of itself in it's accurate representation would have and could have achieved the same results desired by the writers. There is nothing we can do about the misrepresentation, except take them "the directors, writers and producers" to court over misrepresentation, causing us emotional distress. After-all part of our problem as sufferers is not being diagnosed or treated properly. Doing so would generate more attention to Cluster Headaches than the show generated. Sometimes ya have to cause a headache to cure a headache. ;;D with warm regards, Tony |
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Title: Re: House Post by seasonalboomer on May 17th, 2007, 3:33pm on 05/17/07 at 14:42:38, Brewcrew wrote:
To be honest..... I really don't care if anyone but doctors and family members learned about cluster headache. I don't care if when my condition comes up at cocktail party that someone says, "sorry mate for the dodgy hypothalamajingy you got hung with". But, I don't want someone to hear about my condition and wonder if I beat my wife because you know, "they can fly into a rage, I saw it on House"...... Why this need for everyone to know about Cluster Headaches? We're here on the internet for almost in the world to find. Our hundreds of active folks have educated more doctors than we can count about these things. It's all happening without needing the "movie of the week" version of our condition. Not everything in this world is furthered for the better by publicity. Scott |
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Title: Re: House Post by Redd on May 17th, 2007, 3:49pm Scott: The reason we as sufferers and members of OUCH NEED "accurate" publicity, is that "with" it, the very nature of the condition will help prompt further research, so maybe...just maybe...people like Chuck and Sail Pappy...you and me...can be better treated. Find something that DOES work for US and not be taking off lable meds meant for other diseases because "maybe" it will work for us too. "Accurate" publicity will drive this condition to a place where people will have an easier time receiving SSD, or able to keep their jobs under the ADA and FMLA be for themselves or a supporter caring for spouse because it is a recognised disability. This is why we need publicity. |
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Title: Re: House Post by BlueMeanie on May 17th, 2007, 5:22pm I deleted yesterday's post because I had not seen the show at the time. I was relating my experience to the harrassment I received at work from those who did see the show. I was a laughing stock at House's expense. Today, after seeing the show, I am still at the same mindset. That show didn't relate anything to the Cluster Headaches i've had all these years and it totally misrepresented our condition. I personally would have rather them NOT even shown the program. :-[ |
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Title: Re: House Post by vig on May 17th, 2007, 5:45pm I have it on my DVR if anybody wants to come over and watch it. :) |
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Title: Re: House Post by Brewcrew on May 17th, 2007, 5:49pm Okay, I've changed my mind. Let's pass a law that forces everyone to watch a one-hour documentary on CH produced by us. Then we can tell the producers of House to go fly a kite. |
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Title: Re: House Post by john_d on May 17th, 2007, 5:56pm on 05/17/07 at 15:33:35, seasonalboomer wrote:
Like most causes, we raise awareness hoping to galvanize support from the public and the government. And then maybe some money and time will be spent on the issue. That's the premise anyway. edit: Frankly, the only org I really see as helping me is clusterbusters. Maybe the awareness will get it legalized for cluster headache use. That's my hope. |
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Title: Re: House Post by Lizzie2 on May 17th, 2007, 9:16pm [quote author=BlueMeanie link=board=general;num=1178930909;start=100#102 date=05/17/07 at 17:22:01]I deleted yesterday's post because I had not seen the show at the time. I was relating my experience to the harrassment I received at work from those who did see the show. I was a laughing stock at House's expense. Today, after seeing the show, I am still at the same mindset. That show didn't relate anything to the Cluster Headaches i've had all these years and it totally misrepresented our condition. I personally would have rather them NOT even shown the program. :-[/quote] Great...I haven't gone back to work yet since the show aired, but I work tomorrow. Can't wait to hear what things people have to say, as I've always been rather vocal about cluster headaches... :-/ |
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Title: Re: House Post by BlueMeanie on May 17th, 2007, 11:10pm on 05/17/07 at 21:16:39, Lizzie2 wrote:
Don't worry Lizzie, according to the docs on the show, to have Cluster headaches you must be a male with headaches, (not even on one side of the head), be bad tempered and irritable, and have small testicles. ::) Maybe you don't have CH's ;;D |
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Title: Re: House Post by sandie99 on May 18th, 2007, 9:32am I've seen just the first few minutes of House, so I cannot comment the whole episode. As some of you know, I have quite nicely experience what comes to journalism theories. I have discussed whether bad publicity is better than no publicity on several occasions. And last night, I had that talk about ch with my best supporter. Here's what I think: once someone knows SOMETHING about any topic, is so much easier to get additional information and knowledge to that than begin from scratch. CH has now some publicity thanks to House and there's a ground to build on. I've noticed that when I tell people about my ch, they are not that interested after first 30 seconds but just think of some sort of migraine no matter what I say. If I had shown them House first, that would be another matter - its funny how easily TV shows make people talk! ::) ;;D Hugs, Sanna |
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Title: Re: House Post by Yorky on May 18th, 2007, 9:56am it actually says "ch " 12 times ;) thanks for the link to watch it. (im hooked , dont usually like sitcoms) so my hypothalamus, governs the family jewels ::) |
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Title: Re: House Post by jaynik on May 18th, 2007, 12:48pm didn't see much of the house episode to make judgement on if it accurately related what we go through, but the coolest thing was that fox out here in L.A. did an expose featuring a ch sufferer.they only gave a brief description about this, but they were accurate and because of the news we got great publicity. maybe now more docs will start doing more research, or at the very least those poor people out there who are suffering from this and do not know what the cause of their pain is, can finally get the right diagnosis |
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Title: Re: House Post by Opus on May 18th, 2007, 12:52pm Of course we knew the writers would screw up the facts of CH, I'm sure most of the medical stuff on the show is just made up garbage for the sheep. Writers typically have no technical knowledge, look how many think that the sprinklers go off with the fire alarm. What I like about House MD is they have gotten a life with chronic pain down well. I can relate to anti-social aspect of a brilliant man living a life of pain. Of course the brilliant part doesn't describe me. Hugh really makes the character come to life. It is funny how the Brits think his American accent is fake sounding and most Americans have no idea he is British. Paul |
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Title: Re: House Post by fubar on May 18th, 2007, 8:31pm on 05/18/07 at 12:52:24, Opus wrote:
At least you use Linux. :) I don't mind being thought of as brilliant. I won't fault the writers for picking up on that. |
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Title: Re: House Post by mynm156 on Jun 2nd, 2007, 5:17am My wife was sooooooooooo Excited I dig the show but man did they ever blow it. BUMMER but maybe JUST maybe it will help get it out there more!! MYNM156 |
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