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(Message started by: Spkcks on Apr 17th, 2007, 12:34pm)

Title: New to this site
Post by Spkcks on Apr 17th, 2007, 12:34pm
New to this site
Not new to my condition of "12 years"
The People on this site are abusive with their wit or inappropriate comments or veterans knowing it all. It seams this site voices in sarcasm, hostility, or belligerence! Always easier to point a finger than lift a helping hand. I have spent years researching CH in and out of this country.
Who is ready to have a Electro implant placed into the stem of their brain in relief of cluster headache sessions?
Try voicing a positive opinion, a positive thread with positive people..

Title: Re: New to this site
Post by Kevin_M on Apr 17th, 2007, 12:37pm

on 04/17/07 at 12:34:36, Spkcks wrote:
Try voicing a positive opinion, a positive thread with positive people..


Ok.  You first.

Title: Re: New to this site
Post by nani on Apr 17th, 2007, 12:39pm

on 04/17/07 at 12:34:36, Spkcks wrote:
Who is ready to have a Electro implant placed into the stem of their brain in relief of cluster headache sessions?
Try voicing a positive opinion, a positive thread with positive people..


OK...positively NOT me.


Title: Re: New to this site
Post by Yorky on Apr 17th, 2007, 12:40pm
JUST WHO THE FK ARE YOU TO BELCH.

now try again....so implants to the head.....will make you the number 1 clustrer eva?

what we do is humour 1 and other through ouir pains....

you dont have to stay.

Title: Re: New to this site
Post by Rosybabe on Apr 17th, 2007, 12:44pm
I think you are generalizing WAY too much..

everyone is entitled to his opinion but you coming here and saying  :

The People on this site are abusive with their wit or inappropriate comments or veterans knowing it all. It seams this site voices in sarcasm, hostility, or belligerence

means everyone is acting like that..

Sorry but I don't think so...

Title: Re: New to this site
Post by Brewcrew on Apr 17th, 2007, 12:49pm

on 04/17/07 at 12:34:36, Spkcks wrote:
New to this site
Not new to my condition of "12 years"
The People on this site are abusive with their wit or inappropriate comments or veterans knowing it all. It seams this site voices in sarcasm, hostility, or belligerence! Always easier to point a finger than lift a helping hand. I have spent years researching CH in and out of this country.
Who is ready to have a Electro implant placed into the stem of their brain in relief of cluster headache sessions?
Try voicing a positive opinion, a positive thread with positive people..

And what have you done that's positive since you got here?

You've got a LOT to learn about tact.

Title: Re: New to this site
Post by john_d on Apr 17th, 2007, 1:00pm

on 04/17/07 at 12:34:36, Spkcks wrote:
Always easier to point a finger than lift a helping hand.


Really?  Interesting.

Title: Re: New to this site
Post by Callico on Apr 17th, 2007, 1:03pm
Perhaps he was a bit intemperate with his post, but this is a response to a post as a NEWBIE that didn;t know sinusbuster had been dealt with a number of times.  He got flamed and totally dissed for trying to share his experience TRYING an advertized remedy that happens to advertize on this site.  Cut him some slack.  

I realize we tend to be impatient due to our own pain and problems, but at least take the time to see who is posting and what the background is behind it.  It is a good thing this place is so anonymous, because I doubt most of you would have the balls to respond to me personally to my face the way you respond to new posters or to those who ask tolerance or decorum in your postings.

Flame away.  He has a very valid point.

Jerry

Title: Re: New to this site
Post by artonio7 on Apr 17th, 2007, 1:06pm

on 04/17/07 at 12:34:36, Spkcks wrote:
New to this site
Not new to my condition of "12 years"
The People on this site are abusive with their wit or inappropriate comments or veterans knowing it all. It seams this site voices in sarcasm, hostility, or belligerence! Always easier to point a finger than lift a helping hand. I have spent years researching CH in and out of this country.
Who is ready to have a Electro implant placed into the stem of their brain in relief of cluster headache sessions?
Try voicing a positive opinion, a positive thread with positive people..


Wow... what a positive post. (sarcasm)

This happens to be my family... and I'm not pleased that you are making such horrible generalizations of them. ( Sincerity )

Lead by example.... ( Friendly Suggestion)

If you care to stick around it's possible you'll find the humanity in this collective group. If not........... happy trails. (Sincerity)

At any rate ... pain free days and nights to you pal. (High hopes)

with warm regards,
Tony

Title: Re: New to this site
Post by Guiseppi on Apr 17th, 2007, 1:13pm
Another opportunity for everyone to take a deep breath, look around and remember why DJ created this board.  Please try and remember when you were still new and confused and everytime you cycled off you figured you had found the cure!!! Whether it was smearing peanut butter on your nose, giving up coffee or drinking extract of a caterpillar. You figured you had found the cure and told everyone so.  Only to have your heart broke 4 months later when they came back.

We need to stay somewhat vigilant cuz the Trolls are out there, but it wouldn't hurt to cut the newer people some slack. I've always taught my trainees, it's much easier to start out at a low level and go to flaming as the situation escalates. When you start out at flaming....there's really no where else to go. Just Guiseppi's 2 cents worth.

Guiseppi

Title: Re: New to this site
Post by Jimi on Apr 17th, 2007, 1:18pm

Quote:
New to this site


No you're not. You have been here before. I went to Tom's Webpage and I recognize it as one I have seen before. I can't remember who you are but you have been here before.

Title: Re: New to this site
Post by ClusterChuck on Apr 17th, 2007, 1:24pm
WOW!!!

What an abrasive, condemming post!

Yes, we can be mean and nasty.  Yes we can be rude and crude.  Yes we can be inappropriate with our comments and wit.  All of that is true.

BUT, take some time to get to know the people here.  You won't find bigger hearts or more caring people.  We TRUELY want to help our fellow sufferers, and supporters.  We care deeply.  We are a very vocal group.

We are dealing with hell on earth.  Maybe we do fly off at the wrong times.  But we are very protective of each other, and for any newbies that come here.  We DON'T want any newbies to get the wrong or dangerous information.

Maybe once you get more used to us, and tolerant, you will see what an awesome group we are.  

Try being a bit less abrasive yourself.  You can learn a lot here, and get a tremendous amount of support.

Chuck

Title: Re: New to this site
Post by seasonalboomer on Apr 17th, 2007, 1:45pm

on 04/17/07 at 12:34:36, Spkcks wrote:
New to this site
Not new to my condition of "12 years"
The People on this site are abusive with their wit or inappropriate comments or veterans knowing it all. It seams this site voices in sarcasm, hostility, or belligerence! Always easier to point a finger than lift a helping hand. I have spent years researching CH in and out of this country.
Who is ready to have a Electro implant placed into the stem of their brain in relief of cluster headache sessions?
Try voicing a positive opinion, a positive thread with positive people..


Fuck off

>:(

Scott

Title: Re: New to this site
Post by vietvet2tours on Apr 17th, 2007, 1:50pm
Piss poor post and piss poor website.

Title: Re: New to this site
Post by JeffB on Apr 17th, 2007, 1:51pm
[smiley=bigcry.gif]

Title: Re: New to this site
Post by Gator on Apr 17th, 2007, 1:52pm
You're lucky all you got was a little ribbing.

What is recommended on the way in by DJ, himself?  


Quote:
Familiarize yourself with the message board

It's probably a good idea to watch the Message Board for a bit before you post...



Quote:
Your first post

Now, about that first post of yours. Please share your experience with us. What are your symptoms? How long have you had clusters? Are you episodic or chronic? What meds have you tried? What works for you? If you have a question, try to be specific, it helps us help you.


You paid no attention to that.  Instead you jumped in with both feet and used your first post to tell us that sinus buster sucks, which we already know.  Had you familiarized himself with the message board, you might have known that.

If that wasn't enough, you then turn around and proceed to tell us how we can make our own generic sinus buster stuff.  Why would we want to?  Sinus buster sucks, right?  I mean, you said so yourself.

You even had a handy dandy link ready for us to rush out and buy the stuff to make a treatment that sucks.

You're lucky you didn't get run out of here on a rail.

In the past, this kind of behavior was considered that of a snake oil salesman or at least a profiteer looking to make money off our pain.  The troll poking sticks would have come out and the ladies of the stick would have had you roasted and served up on a platter.

Chalk it up to experience and get over yourself. I have an idea, why don't you try voicing a positive opinion, a positive thread with positive people.


Title: Re: New to this site
Post by sldrswyfe on Apr 17th, 2007, 2:02pm
Chuck...since when have you been protective of me??? You jackass. :P

Guys...is this a real post or a test??? Seriously...is it?

Title: Re: New to this site
Post by wildhaus on Apr 17th, 2007, 2:04pm
Hi my name is Michael.......
I am sorry that you had to join us......
The people on this site are the most interesting “bunch” of people……
and with such a vest amount of practical know how and knowledge
that puts top neurologist in the “shade”.
And on top of it it’s a very competionet and understanding community
that will help each and every one – no quotation asked!

I don’t know you, nor do I understand your motives…..
I am (sort of) new to this community and new to this condition (CH)
I find your post way out of line and with out merit……….
I have been welcome into this community with open hands and
in a very friendly meaner………… with not only practical advice
but also emotional advice…… and open and understanding “ear”

Dear “Spkcks“ I am not going to condemn you on your post,
I will just ask you to go and read and learn and when you’re done
I would suggest, start again, you still don’t know it all…….. and when
you can say I have seen and learned it all….. then and only then,
you may and can write such an abusive and insulting Post, providing
you are still holding to your (qutioneble) opinion…….

Michael

Title: Re: New to this site
Post by artonio7 on Apr 17th, 2007, 2:06pm

on 04/17/07 at 14:02:55, sldrswyfe wrote:
Chuck...since when have you been protective of me??? You jackass. :P

Guys...is this a real post or a test??? Seriously...is it?


Yes Sheri this is a test... now why didn't you recite the secret code when making this post... two demerits and "No Soup For You.... One Year!!!!"

;)

with warm regards,
Tony

Title: Re: New to this site
Post by sldrswyfe on Apr 17th, 2007, 2:17pm
And if this editor is authentic...

I am here only a few weeks and have begun some genuine friendships....some AWESOME people that will finallly really know your pain.

Look at it as when you start a new job...you get to know who's who...and everyone is feeling you out.  I don't know too much myself yet either regarding this site...I have had my feelings hurt badly...gotten angry...but you know what?  Just like friends...we resolve our misunderstandings by talking like humans.

And  if you truly DO have CH's...and have for twelve years...you should be well aware we all get crabby and resentful and frustrated...but that is what this site is for...others knowing that...and saying "Aw, shut up"...and knowing you're having a bad day/week/month.

Unless you're always this way...it's not going to help you AT ALL.  Almost all of us have been through the wringer....poked, prodded...tried a thousand treatments that made us feel horrible...suffered the side effects of meds that don't agree with us...try again...reintroduce yourself...and see the overwhelming response you'll receive.

Honestly...I wouldn't have the balls to post that!!!  I love you guys....Sherri

Title: Re: New to this site
Post by sldrswyfe on Apr 17th, 2007, 2:25pm
Tony...

Honestly, I cant wait to meet you.  All the way around the board we have so much in common.  From you reading Wayne Dyer...I've been into him since I was eigtheen...and Louis Hayes...metaphysics period.

To your sense of humor.  And your kind, warm, sincere spirit...I love ya Tony!!!  Really looking forward to meeting you....             Thoughtully, Sherri  PS. "Aw, Shut up"

Title: Re: New to this site
Post by Mosaicwench on Apr 17th, 2007, 2:31pm

on 04/17/07 at 12:34:36, Spkcks wrote:
The People on this site are abusive with their wit or inappropriate comments or veterans knowing it all. It seams this site voices in sarcasm, hostility, or belligerence!


If this was INDEED true (which it's not), then you would fit right in!

Welcome.

Title: Re: New to this site
Post by Brewcrew on Apr 17th, 2007, 2:33pm

on 04/17/07 at 14:25:00, sldrswyfe wrote:
Tony...

Honestly, I cant wait to meet you.  All the way around the board we have so much in common.  From you reading Wayne Dyer...I've been into him since I was eigtheen...and Louis Hayes...metaphysics period.

To your sense of humor.  And your kind, warm, sincere spirit...I love ya Tony!!!  Really looking forward to meeting you....             Thoughtully, Sherri  PS. "Aw, Shut up"

Sherri - What is that umber, odiferous spot on the end of your proboscis?

Title: Re: New to this site
Post by sldrswyfe on Apr 17th, 2007, 2:34pm
Of course Im laughing like a mental patient right now at the rude post and the funny, happy  picture next to it..and the little "I love Yabb" thing...while bitching us out....

And they copied off of me...."Im new to this site, but not new to CH's"...Plaguerizer!!!

Title: Re: New to this site
Post by Mac_Muz on Apr 17th, 2007, 2:34pm
I dunno nuthin' and that's my story, but here is his link
http://www.members.tripod.com/had_it/clustermh.htm

I do question things alot when you read down and find out how nifty the so-called medical teams are supposed to be, but then I crumble to the floor and add bits of dog bicuit in my eye, so what do I know?

What I'ld like to know Sir is if you are a sufferer?

I see you are 50, and somehow have only had the symtoms 12 years, which i find a bit odd.

Also you don't seem to have dealt with chronics, which I am NOT...

Title: Re: New to this site
Post by ClusterChuck on Apr 17th, 2007, 2:35pm

on 04/17/07 at 14:25:00, sldrswyfe wrote:
Tony ... ... ... Honestly, I cant wait to meet you.

Sherri, hun, be careful of what you wish for.  Tony is a STRANGE person ... are you SURE you want to meet someone like HIM??

After all, he is an ARTIST!!!  (and a VERY good one, at that)  And you KNOW how strange THOSE people are !!!

<shaking my head>

Chuck

Title: Re: New to this site
Post by sldrswyfe on Apr 17th, 2007, 2:37pm
Bill...

I dont appreciate the very intellectual manner of your  implication that Im a brown noser...you brown noser!!

Title: Re: New to this site
Post by artonio7 on Apr 17th, 2007, 2:38pm

on 04/17/07 at 14:35:15, ClusterChuck wrote:
Sherri, hun, be careful of what you wish for.  Tony is a STRANGE person ... are you SURE you want to meet someone like HIM??

After all, he is an ARTIST!!!  (and a VERY good one, at that)  And you KNOW how strange THOSE people are !!!

<shaking my head>

Chuck



....flings brushes at Chuck while reciting incantations....

POOF... you're wearing clothes!
;;D

with warm regards,
Tony

Title: Re: New to this site
Post by ClusterChuck on Apr 17th, 2007, 2:40pm

on 04/17/07 at 14:38:26, artonio7 wrote:
POOF... you're wearing clothes!

OMG!!  Not THAT magical curse!!!

ANYTHING but THAT!!!   Lock me in a rubber room with Chewy, but not THAT!!!

Chuck

Title: Re: New to this site
Post by Mac_Muz on Apr 17th, 2007, 2:40pm
sldrswyfe, I thought you were getting ready for lessons?
So it's brown nosing now eh?  [smiley=laugh.gif]

Title: Re: New to this site
Post by sldrswyfe on Apr 17th, 2007, 2:45pm
Mac...suck an egg!!

And you're story about the dog biscuits caused damage to my keyboard..."snarfed" coffee over that one...in fact Im having trouble typing...that was so funny....

Title: Re: New to this site
Post by Mac_Muz on Apr 17th, 2007, 2:49pm
sldrswyfe, Well ok I'll give it a wurl gurl and if the egg works I'll letcha know!  ;;D

Umm is that thee shell i grind into my eye, or do I do the yoke? Just yoking

Title: Re: New to this site
Post by sldrswyfe on Apr 17th, 2007, 2:57pm
The entire unpeeled egg...but promise you get it on tape!!! ;;D

Title: Re: New to this site
Post by Mac_Muz on Apr 17th, 2007, 3:07pm
now I'm scared!  :o
 
Ralph came home drunk one night, slid into bed
beside his sleeping wife, and fell into a deep
sleep.

   He awoke before the Pearly Gates, where St. Peter
said, "You died in your sleep, Ralph."

  Ralph was stunned. "I'm dead?  No, I can't be!
I've got too much to live for.  Send me back!"

   St. Peter said, "I'm sorry, but there's only one
way you can go back...as a chicken."

 Ralph was devastated, but begged St. Peter to send
him to a farm near his home.

   The next thing he knew, he was covered with
feathers, clucking, and pecking the ground.

   A rooster strolled past. "So, you're the new hen,
eh?  How's your first day here?"

  "Not bad," replied Ralph the hen, "but I have this
strange feeling inside.  Like I'm gonna explode!"

 "You're ovulating," explained the rooster.

  "Don't tell me you've never laid an egg before?"

  "Never," said Ralph. "Well, just relax and let it
happen."

   Ralph did, and a few uncomfortable seconds later,
out popped an egg! Ralph was overcome with emotion
as he experienced motherhood. He soon laid another
egg. His joy was overwhelming!

   As he was about to lay his third egg, he felt a
smack on the back of his head, and heard his wife
shout,

   "Dammit, Ralph! Wake up.  You're sh**ting in the
bed!"

Title: Re: New to this site
Post by minnie on Apr 17th, 2007, 3:14pm
Mac_Muz,
  Too funny  [smiley=laugh.gif] Hope ya don't mind but I'm gonna E-mail that joke..thanks for the laugh.
   Minnie

[smiley=crackup.gif]    [smiley=spit.gif]    [smiley=ohjez.gif]

Title: Re: New to this site
Post by midwestbeth on Apr 17th, 2007, 3:30pm

Quote:
Always easier to point a finger than lift a helping hand.


It seems pretty easy for you to do.


Quote:
It seams this site voices in sarcasm,


really?

Beth  ;;D

Title: Re: New to this site
Post by George_J on Apr 17th, 2007, 3:47pm

on 04/17/07 at 12:34:36, Spkcks wrote:
New to this site
Not new to my condition of "12 years"
The People on this site are abusive with their wit or inappropriate comments or veterans knowing it all. It seams this site voices in sarcasm, hostility, or belligerence! Always easier to point a finger than lift a helping hand. I have spent years researching CH in and out of this country.
Who is ready to have a Electro implant placed into the stem of their brain in relief of cluster headache sessions?
Try voicing a positive opinion, a positive thread with positive people..


The hell are you talking about?

I went back and read your other thread--the Sinus Buster one.  You practically got kissed.  

A third of the posts were "aw--don't bust on the guy", and a third were "well, if that didn't work for you, something else will", and a third were just joking around--and not at your expense.  

And come on.....Schnorking hot pepper juice up your nose is a pretty weird thing to do--especially if you keep doing it when it doesn't work.

George  



Title: Re: New to this site
Post by Jonny on Apr 17th, 2007, 5:08pm
What a cry baby this punk is....LOL ;;D

Title: Re: New to this site
Post by sldrswyfe on Apr 17th, 2007, 7:22pm
George..

Funny response...got a laugh out of it.  Hot pepper juice? In your nostrils...ouch.

I once read a story about some guy, that when he went out to dinner, he'd put olives up his nose and inhale the "juice" out of them claiming they helped to clear his sinuses...he even ordered extra ones....the letter was written by his horrified wife... :-/

Title: Re: New to this site
Post by Sean_C on Apr 17th, 2007, 8:59pm
I haven't seen a troll in a while ;;D Felt kinda nice to see the family pull together ;;D

Cheers,

Sean...................................... ;;D

Title: Re: New to this site
Post by nani on Apr 17th, 2007, 11:04pm
I've seen that website before, too.
So, Tom, what was your nick-name last time?  

Title: Re: New to this site
Post by Yorky on Apr 17th, 2007, 11:32pm

on 04/17/07 at 23:04:05, nani wrote:
I've seen that website before, too.
So, Tom, what was your nick-name last time?  


http://i93.photobucket.com/albums/l62/yorky_2006/trollredhand.jpg

Title: Re: New to this site
Post by UN solved on Apr 17th, 2007, 11:52pm
why don't you go get those electrodes placed in your brainstem then drop us a note and let us know how it's working for you ?

Thanks for your cooperation. And .. Oh yea, thanks for all those years of research you've been doing both here and overseas too.  

UNsolved

Title: Re: New to this site
Post by Charlie on Apr 18th, 2007, 1:59am
Just because I'm one of the sweetest goddamn bashtards here, I'll make nice.

Don't behave like a rectal aperture. You just don't know what a lovable bunch of psychotic fuckers we really are.

http://www.netsync.net/users/charlies/gifs/slap.gif

Charlie

Title: Re: New to this site
Post by sldrswyfe on Apr 18th, 2007, 7:04pm
Charlie????!!!  Is it really you???  That was great...!!! :D

Title: Re: New to this site
Post by Ree on Apr 18th, 2007, 8:49pm
I havent been around in a while (LENT)... it always cracks me up to see this when I get back...
 "Hi I'm new here... you guys are a bunch of sarcastic not a very nice persons that think you know everything. I'm wondering why you are not excited to see me because I know everything.  Now who will volunteer to have their brain opened up and have probes and gadgets inserted, the line forms here..."  IS THIS GUY FOR REAL???!

Too funny and you guys all crack me up as usual.  Some call it sarcasm. I call it home.  Its nice to be home again.
love Ree

ps how come charlie can say fuckers and I can't say a$$hole...........?

Title: Re: New to this site
Post by Maffumatt on Apr 18th, 2007, 8:53pm

on 04/18/07 at 01:59:21, Charlie wrote:
Just because I'm one of the sweetest goddamn bashtards here, I'll make nice.

Don't behave like a rectal aperture. You just don't know what a lovable bunch of psychotic fuckers we really are.

http://www.netsync.net/users/charlies/gifs/slap.gif

Charlie


Thats the funniest thing I've read in a very long time.......

Title: Re: New to this site
Post by Jonny on Apr 18th, 2007, 9:00pm
You gotta love people that throw a post up here and never return  ::)

Title: Re: New to this site
Post by artonio7 on Apr 18th, 2007, 9:08pm

on 04/18/07 at 21:00:20, Jonny wrote:
You gotta love people that throw a post up here and never return  ::)


why?

Title: Re: New to this site
Post by JeffB on Apr 18th, 2007, 9:33pm
WTF? What do you mean, why?

Are we sippin on some wine tonight, Tony??

How long have you been on this site?? Or are you just being a sassy pants?? ;;D

Title: Re: New to this site
Post by artonio7 on Apr 18th, 2007, 9:36pm

on 04/18/07 at 21:33:23, JeffB wrote:
WTF? What do you mean, why?

Are we sippin on some wine tonight, Tony??

How long have you been on this site?? Or are you just being a sassy pants?? ;;D


Tony's got a bee in his bonnet.
;;D

I'm sure it will pass like bad gas.

with warm regards,
Tony

Title: Re: New to this site
Post by sldrswyfe on Apr 19th, 2007, 7:30pm
JeffB:

"Sassy Pants" ???  That's hysterical...I'll remember that one! ;;D

Title: Re: New to this site
Post by Jonny on Apr 19th, 2007, 7:45pm

on 04/18/07 at 21:08:27, artonio7 wrote:
why?


Why?

Because they dont have CH!

Why would someone find this safe haven for CH and then go away?

Sure, he came back days later...but for what?......to start shit, right?

This guy is a scumbag......when you Tony have spent the years I have here then you can ask "Why not" ;;D



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