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Title: HOSPITAL MY ARSE. (updated) ha,ha (updata) Post by Yorky on Apr 8th, 2007, 9:38pm seems like iv been away ages well i was right in my prediction....wack 6.30 on the dot trex,oxy,ice did nada went off the kip scale still ramping higher,at 9pm rushed to hospital (blackpool vic) they did not have a fucking clue about ch. left me in a cubicle, screaming/crying.....rolling about. dont know how many stethascope,carrying tits...entered while it was gale force 10. vaguely remember one off them say "i have never seen anything like this.....he appears to have no injuries,has he just banged his head " my thought was "fucking wanker...read my notes,and educate your knowledge ,as any proffesional person would want to ?(or go put a plaster on ,for some very unfotunat dick, that had cut her finger while threading a needle..WTF. anyway i came round at a bout 12am...with some indian nurse/docter....waffling on (did not understand , one hiota,what he was babbling on about) i hour later they turned up to say.."right get up we need your bed >:( , heres an envalope, now piss off, and give it to your gp on tuesday. a very angry yorkshireman. :D |
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Title: Re: HOSPITAL MY ARSE. Post by Kevin_M on Apr 8th, 2007, 9:54pm Yorky, I did the prevent drain and switchback, keep the O2 loaded and trex handy. The gradual verap ramp up will not catch it for awhile, even when arriving back at 720 like it did before, hits are the routine and always be ready. It's tough to get it back in the cage again. Hang in and hang tough with it bro!!! |
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Title: Re: HOSPITAL MY ARSE. Post by purpleydog on Apr 8th, 2007, 9:56pm I hear ya Yorky. I'm about ready to go there myself, I had 3 PF hours yesterday, otherwise, it's been every 90 damn minutes, and I can't control them. Almost a constant HA. I'm sorry to hear you had to go. I am with a friend who has Ch, and at least he can tell them what I need, because I can't talk like this. Hang in there. We'll do it together, if you can, I can. (I hope) |
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Title: .Re: HOSPITAL MY ARSE. Post by Yorky on Apr 8th, 2007, 10:01pm on 04/08/07 at 21:56:48, purpleydog wrote:
http://i93.photobucket.com/albums/l62/yorky_2006/clusterheadpic.jpg show that |
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Title: Re: .HOSPITAL MY ARSE. Post by purpleydog on Apr 8th, 2007, 10:21pm on 04/08/07 at 22:01:26, Yorky wrote:
Excellent Idea York. Think I'll print this, cause if they don't understand this picture, I'll probably get a little violent with any inanimate objects... |
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Title: Re: .HOSPITAL MY ARSE. Post by Yorky on Apr 8th, 2007, 10:30pm on 04/08/07 at 22:21:49, purpleydog wrote:
got my oxy,red bull,coffee,cigs all near computer...looks like im in for a busy nite :'( . no head pain yet ? just a great big shadow in my eye ? pf2uall..... ps i will flick between chat and, mmmmmm p..n |
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Title: Re: HOSPITAL MY ARSE. Post by Sean_C on Apr 8th, 2007, 10:35pm on 04/08/07 at 21:38:22, Yorky wrote:
Stickin your finger up your ass accomplishes the same thing as poppin an oxy Yorky. Kip 10's suck, in my opinion nothing works at that point, sorry to hear you had to deal with it. Sean................................ |
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Title: Re: HOSPITAL MY ARSE. Post by sldrswyfe on Apr 8th, 2007, 10:40pm Hey Yorkey...isn't almost EVERY trip the hospital during a hit like that??? It seems to me the norm...to be treated either like shit, or as if absolutely nothing is wrong...YOU'RE over reacting...probably just want a shot of demoral...drug addict...all that screaming, crying, rolling about..."those drug addict's will do just about anything, I've heard about them.." You know what I would find shocking? When Im in the emergency room losing my mind, eye tearing like crazy, nose running all over...for a nurse or a dr. to gently take my hand, lead me to oxygen, turn it on, hand me the mask..gently and reassuringly pat my back, turn off the lights and close the door almost all the way...then come back in about ten or twenty minutes...and ask, "Are you ok now? Tell me what happened tonite...." That IS THE WAY WE ALL DESERVE TO BE TREATED...AND THAT'S THE POINT OF ALL OF THIS OUCH, MAGNUM...we will be treated that way...let''s make sure WE SEE IT AND EXPERIENCE IT. I am very sorry you were so ill, and treated so poorly..you need and deserve so much better than that..Please rest if you are able, lie down if you can...if you'r stomach is ok...have some warm tea and wrap yourself in a soft blanket....it's over...for now..you're ok.. Sherri |
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Title: Re: HOSPITAL MY ARSE. Post by Yorky on Apr 8th, 2007, 10:46pm on 04/08/07 at 22:35:46, Sean_C wrote:
means "sleep" dont you lot try to confuse me......i tawk propa...ask limey. |
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Title: Re: HOSPITAL MY ARSE. Post by Linda_Howell on Apr 8th, 2007, 10:49pm Quote:
I love you Sean. :-* |
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Title: Re: HOSPITAL MY ARSE. Post by BMoneeTheMoneeMan on Apr 8th, 2007, 10:59pm on 04/08/07 at 22:35:46, Sean_C wrote:
uhh, Sean? Have you been doing a little 'clinical research?' Maybe you might wanna try reikiing your front lawn with your finger in your ass during a kip 10. I heard that helps. ;) |
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Title: Re: HOSPITAL MY ARSE. Post by purpleydog on Apr 8th, 2007, 11:07pm I got my trex, cigs, O2, caffeine, been at it all day. Since Thursday at 6pm. Thing is, if it's at the point to go to the hospital, all that shit ain't working anymore. Wish someone would just knock me out, why can't I just pass out??? I just wish there was something to kill the pain NOW, instantly, when it's like this. Christ. |
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Title: Re: HOSPITAL MY ARSE. Post by Yorky on Apr 8th, 2007, 11:13pm on 04/08/07 at 22:40:24, sldrswyfe wrote:
...then come back in about ten or twenty minutes...and ask, "Are you ok now? Tell me what happened tonite.... " That IS THE WAY WE ALL DESERVE TO BE TREATED...AND what i can remember. 1. rolling screaming....maybe 4 docs watching.....talking...i was..pleading for help. 2.one says (in a sherlock holmes type voice) something like...."how strange....most peculiar >:( . (HE NEARLY MET "THE HOUND OF THE BASKERVILL) 3.when coming round sort of......fucking nurse said "my friend gets bad headache ...WTF. TOO FUCKING ANGRY TO SLEEP....but compter screen...hurting eyes..good night and god bless. rant finished....today will be better [smiley=worried.gif]....any way iv got more pics to show ;) sldwf (sherri baby) wrote turn off the lights and close the door almost all the way...then come back in about ten or twenty minutes...and ask, "Are you ok now?. me well i was in a open room...double doorway...no curtains...or doors....opposite a&e addmisions....must have been at least 10/15 people watching....(at least they may ,mention what they saw, but most importantly what it was.......... i can look in a pile of shit, and find something posative. [smiley=laugh.gif] |
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Title: Re: HOSPITAL MY ARSE. Post by ClusterChuck on Apr 8th, 2007, 11:13pm on 04/08/07 at 22:35:46, Sean_C wrote:
Ummmmm .... Nope ... Ain't gonna touch that line ... on 04/08/07 at 22:40:24, sldrswyfe wrote:
Believe it or not, close to that DID happen to me. But then again, I have been there enough to train LOTS of the ER staff. And I was there, originally, each time, NOT for clusters. Chuck |
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Title: Re: HOSPITAL MY ARSE. Post by LeLimey on Apr 9th, 2007, 2:08am Yorks hon call the emergency doc and tell him what I told you about meds - you can get a prescription filled today so don't wait until tomorrow. Have you still got those booklets I gave you etc? Take it with you if you have if you ever need to go to A&E again and if not tell me and I'll get some more to you. I'm only a couple of hours away and I might feel like shit but I'm not so bad I won't drive up there and kick your arse and you know it!! love Helen xxx |
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Title: Re: HOSPITAL MY ARSE. Post by Yorky on Apr 9th, 2007, 2:37am on 04/09/07 at 02:08:05, LeLimey wrote:
ps hang in there purplydog.....it will ease....you know it willl were rooting for you buddy. i had another jab at 5.40 am........20 mins later, i went for a drive (hey limey.......didnt you go for , your 1st drive in yonks (yonks means "ages" ffs, lingo ::) ) windows all down, freezing....but bloody marvelous) ;) |
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Title: Re: HOSPITAL MY ARSE. Post by wildhaus on Apr 9th, 2007, 3:25am Yorky...... and Chris and Sherri, I hope things improve for you all very soon! Now I have to defend the Drs. and nurses........ I go to 2 hospitals (if have to)........ the small one is "just" the regional one (15min. Drive)......... and the "big" one is in the city of St. Gallen (45 min. Drive) where my neuro is as well as the pain clinic is located...... and the GP in the village where we live..... As soon as I was Diagnosed with CH, I have asked the neuro, as well as the pain clinic to see to it that both ER's are ewer of my condition...... and know what to do.... which they did! And my GP, so she can help me if needed! CH is a very little known condition........ and it is up to us to see that we have the info. Spared around! no one will do it for US! It is our responsibility to see that the close ER to where we live is informed and aware of our condition! And don’t wait until the "house" is burning..... I have seen what you all talk about the ignorens..... about our condition....... but if you want to change things........ venting on this boards (which is very much legitimate) go out when you are pain free or in a low cycle and try to educate....... try to be ambassadors’ of our cause........... at times you’ll encounter refusal at times you’ll encounter willingness............. but the bottom line is TAKE THE TIME and contact the people that you will need when the pain is back..... and explain them what you need...... that is the only way..... and the good way..... do not expect any one do it for you! I might anger some of you…………. but self responsibility is required….. you have to go out there and communicate and educate…… and the excuse of no time…. no one listens yes at times it will happened but the one that listen will then pass to one more and so on….. but to just blame…. and cry they are Ignorant………… is to take the easy way…….. and on the end of the day you have achieved nothing! Michael |
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Title: Re: HOSPITAL MY ARSE. Post by ClusterChuck on Apr 9th, 2007, 3:51am Very well put, Michael! I agree! Chuck |
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Title: Re: HOSPITAL MY ARSE. Post by The mad viking on Apr 9th, 2007, 4:47am Just as i would have said it myself Michael Thank you Michael Svenn |
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Title: Re: HOSPITAL MY ARSE. Post by Paul98 on Apr 9th, 2007, 5:05am on 04/08/07 at 22:46:27, Yorky wrote:
Aahh, but do you do spotted dicks? LOL. Hope your hear behaves today Bro. PF 2 ya. -P. |
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Title: Re: HOSPITAL MY ARSE. Post by Yorky on Apr 9th, 2007, 7:39am on 04/09/07 at 03:25:06, wildhaus wrote:
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Title: Re: HOSPITAL MY ARSE. Post by ClusterChuck on Apr 9th, 2007, 7:48am on 04/09/07 at 07:39:02, Yorky wrote:
That is a frustration, for sure, but nothing we can do about it. What we CAN do is get the word out, and teach people that there IS a difference. It is called, getting the word out. It is NOT just a headache. There are about 130 different, defined, headache types. It is up to us to inform people, especially medical professionals what Cluster Headaches are, and how to help someone, who is in the midst of an attack. You would be needlessly beating your head against the wall (how appropriate a phrase for us!), to get the name changed. Chuck |
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Title: Re: HOSPITAL MY ARSE. Post by sldrswyfe on Apr 9th, 2007, 10:01am Listen...I really am pissed off...really..not just at the individual that sent that kind, informative post about how proative he is,etc. at the responses of "Perfectly said" Obviously none of you read my entire post or paid attention to it...York, I appreciate your diplomacy...I said all of the same things whoever he was said...without a longwinded account praising myself on how organized, and proactive I am. I have done all the same..."Mr OUCH, MAGNUM AND CLUSTER HEADACHE OF THE MILLENIUM"...I was empathizing with a friend who was frustrated and not feeling well...but if this was his hundreth post of it...and doing nothing....If you sir, are implying Im here to whine and cry...HOW DARE YOU..you know NOTHING ABOUT ME AND WHAT I DO AND HAVE DONE..I've been chronic for thirteen years...so take comfort Ive done alot of educating....and I too am pre-registered...Glad to hear it's always sunny where you live..and the drs are all blowing sunshine out of their asses upon your arrival...but many of us have been through alot...and we want to change it..and we are..Oh .. IS THAT WHY IM A MEMBER OF OUCH??? If it werent for your post....I wouldve just complained and done nothing...Thank God we have you to set us straight...and to plaguerize OUCH literature... "Just as it is important to say the right thing at the right time...more important is not to say the wrong thing at the TEMPTING time"....at first I commended your actions..then you were enjoying yourself too much. So Cmon York, Chris let's go back to complaining and doing nothing....while our superiors do all the work....Sherri |
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Title: Re: HOSPITAL MY ARSE. Post by wildhaus on Apr 9th, 2007, 11:15am Hi Sherri (If I may call you in your first name) No I don’t know you….. ! And if in any way you feel I was attacking you personally or offended you in any way, sorry, it was never my intention nor was I trying to emplay or reflect in any way that you sit idol or any other implication! I do apologize to you! But I did not use such an abusive language………. the way you do…… and I can say about my self that I do not (ever) engage in “mud fights” nor do I point fingers at an individual nor on the boards or at other communication methods our community is using…… I can also say that I respect each and every one in our community…….. and if I disagree with them, I let them know, but use a respectful language at all times! Unless I am very wrong we have all the right to our opinion….. and we have to expect also to be criticized…… but we should do it in a proper manner and in an polite way……. constructive and educated (argumented) discussion is not only good its productive! Sherri, I am relatively new to this boards, and I believe you are to……. some respect and friendliness is a much better way to gain respect of others especially in such a tight community….. Again I do apologize to you if I had offended you…… but at the same time I do belive in what I posted…… Chris and Yorke……. If you find yourself offended by my post my apology is to you to! Michael |
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Title: Re: HOSPITAL MY ARSE. Post by sldrswyfe on Apr 9th, 2007, 11:34am Dear Michael" I apologize at the strength of my reaction...and to you personally...really....I am not trying to gain anything except understanding...after years of frustration...and not being believed and turned away...after working very hard to be diplomatic...my dad has a video business...I begged him for years to film me during a hit...to show to dr's...to show...someone...and I did not have a good support system....this is so emotional...I am sorry...truly.. and appreciate your feedback and response....it hit a nerve and hopefully I will never have to be "touchy" ever again after I get to know some people that get it.... I feel like I've been in a fishbowl,at the bottom of the ocean, screaming at the top of my lungs for thirteen years...and noone ever listened...I thank God I am here to even have the difference of opinion...Sorry Michael...I should have just breathed for awhile before responding.....Sherri [smiley=oops.gif] |
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Title: Re: HOSPITAL MY ARSE. Post by purpleydog on Apr 9th, 2007, 11:36am Michael, you didn't offend me. I believe everone here tries to educate people on CH, doctors and nurses alike, anyone in the medical profession, as it comes up. I do. And it's a great idea to educate those that need it, in order to help us. I think some of us live in such large communities, it's hard to have our doctors get ahold of a hospital(s), to flag your file, so you can be treated right away. Here in the US, most of the time, at the ER, it's wait your turn to see the doc. Most hospitals are very busy handling cases they have. If you try to go down there when you don't need them, chances are, no one will have the time to talk to you about it. I'm just telling it like it is in a lot of communities. My neuro understands my situation, and his comment was, go to the ER, it wouldn't do any good for him to let any of them in my city know about my condition in advance. IMO, I think talking about it with our neuros in his office is best. And educating the nurses, so they know how urgent our call is if you do call. |
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Title: Re: HOSPITAL MY ARSE. Post by sldrswyfe on Apr 9th, 2007, 12:51pm Well said Purpley...Michael I wish I would've put it like that...I am new to the board and the internet...I didnt realize you werent from the states....It is probably a little different for us...I have tried my hardest to cover all bases...to explain as thoroughly as possible...they have witnessed my attacks...and are not moved...I have been registering, unable to speak..(.I write all my info. on a card I keep in my wallet...and just slide it across the desk) and while I can barely remain seated listened to receptioninst chewing potato chips loudly...picking them off of her shirt and putting the crumbs in her mouth....while my sweat is dripping onto the desk...OUCH means the world to me...and you may not believe this at the moment...but I am good to have on your side...I am passionate about educating the medical field...we WILL see and experience what I told Yorky...we will walk into emergency rooms...and be led to oxygen without question or being asked a million questions when we are unable to speak at the moment...or argued with by uneducated nurses and residents and students and doctors....What is the problem with handing someone an oxygen mask..when they are telling you that is what they need??? I could understand if you were calmly lying on a guerney requesting a shot of demerol or 3 80mg Oxycontin...being questioned and the concern..of course...just hand us the mask...pleeeeaaaasssse. |
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Title: Re: HOSPITAL MY ARSE. Post by Yorky on Apr 9th, 2007, 2:22pm on 04/09/07 at 11:15:52, wildhaus wrote:
;;D ;;D ;;D PF2UALL JUST KEEP YOUR ARGUING TO YOUR OWN THREADS ;;D mine are for "happyness" only :-* |
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Title: Re: HOSPITAL MY ARSE. Post by Yorky on Apr 9th, 2007, 2:32pm FOR ALL OF US ;) http://www.youtube.com/watch?v=1loyjm4SOa0 http://www.youtube.com/watch?v=LaxS7JocV6Q [img][/ihttp://www.youtube.com/watch?v=1loyjm4SOa0mg] |
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Title: Re: HOSPITAL MY ARSE. Post by UN solved on Apr 9th, 2007, 2:46pm I've learned that going to an ER during a hit is useless, a waste of time, and may lead to violence or a jail term. SO ... no matter how bad the hit ... I ride it out until it's over. If they are really bad and keep coming ... I go to the ER BETWEEN hits and get something to prevent it for awhile ( like a dose of SoluMedrol or DHE ). Waiting to be seen in an ER while in the throws of a 'big kipper' ... is just plain insanity. Every second that goes by is torturous. Try to prevent them when their bad !! Goodluck UNsolved |
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Title: Re: HOSPITAL MY ARSE. Post by Yorky on Apr 9th, 2007, 2:59pm on 04/09/07 at 14:46:03, UN solved wrote:
well her husband was forever shouting"weve been here 2 hrs, its a fucking joke" just being a tosser. i lost the plot.............it took 8 people , to get me off his throat (honest) when my hit had stopped.....i got told off,by plod ,but i appolagised,and explained it was not me :-[ i am not a violent person. pf2uall |
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Title: Re: HOSPITAL MY ARSE. Post by Mac_Muz on Apr 9th, 2007, 3:00pm Yorky man yer gettin kicked around these days hard.. try findin the floor ya can't miss it... I gave up tryin to ask anyone for help. I can afford 3 ibuprofens... |
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Title: Re: HOSPITAL MY ARSE. Post by Yorky on Apr 9th, 2007, 3:10pm on 04/09/07 at 15:00:53, Mac_Muz wrote:
I gave up tryin to ask anyone for help , try findin the floor ya can't miss it... ;;D ;;D ;;D ;;D ;;D |
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Title: Re: HOSPITAL MY ARSE. Post by Yorky on Apr 9th, 2007, 3:37pm http://i93.photobucket.com/albums/l62/yorky_2006/Image035.jpg me today [smiley=laugh.gif] you ugly mother yorks ;;D ;;D (is there a plastic surgeon.....in the house ;) ps (it will be a big job [smiley=laugh.gif] ) pf |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha Post by sldrswyfe on Apr 9th, 2007, 4:38pm Hey UNsolved: I agree it is useless to go to the ER during hits...in between...definately....I used to sleep in my car parked in the ER parking lot...when I ran out of oxygen at home...I'd register once, then go out to my car, had a pillow and blanket...I slept in the driver's seat, with the pillow on the stearing wheel and leaned forward...I actually find that to be the best position possible during a hit...I have wanted to design a chair that mimicks sitting in the drivers seat with the stearing wheel and a pillow on it and resting the left side of my head on the top of the wheel (Im left sided only).....RE going to er during the hit...by the time you register, then sit in the waiting room and ride the hit out there with an audience..then get put in the back...where they wont administer oxygen until you see the Dr...what the hell??? You usually get seen right after the hit passes...it's best to have oxygen right next to you..wherever you are... I dont have any....in the middle of dealing with insurance, etc over it...hopefully soon...but it is a waste of time....Sherri |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha Post by Mac_Muz on Apr 9th, 2007, 6:39pm Doode ya gotta get a better cell phone ;;D poor sob.... :-[ What is it now something like 4 hours sleep in 4 weeks? I can't figure how you can type better than me takin hits like that... You make perfect sence. Buck it up, you get there ya old codger! ;;D |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha Post by Mac_Muz on Apr 9th, 2007, 6:50pm on 04/09/07 at 16:38:49, sldrswyfe wrote:
Your sort of a glutton for punishment too huh? Go to a car garage where they have welding tanks and you won't run out of O2... sitting in cars, in view of public? sleeping in cars??? HUH? Oh no not me. I am lefty, but this crap in in the right side of my head (only) I am dyslexic which seems to be characteristic as well, so I have a ggood excuse to typo and be a ingeneral fool, sometimes I get misunderstood.. I am always sure where the floor is and I try to aim at one with a carpet and not much else, or it might get broken.... And then I want nothing to do with anything living.... it ain't pretty ya know.... Yorky can some how post, and take hits... I can't, I can't even post in bad shawdows and make any sence when i read it later.... I tried and it was a dismal flop even by my low standards.. :-/ |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha Post by Yorky on Apr 9th, 2007, 7:22pm no Yorky can some how post, and take hits... I can't, I can't even post in bad shawdows and make any sence when i read it later.... I tried and it was a dismal flop even by my low standards.. i cant..8 days sat here i have learnt computers. (im a builder) last one i had was a "sinclaire spectrum get oxygen etc,near computer (and other womd) learn prevew post .....check ....post.....i log on and off....all day long if i have typed some (goggallyballocks) i amend....on my nxt visit. if you need to dance......watch your toes on the , oxygen tank. ps i find it hard to talk to people...on phones etc...you have to talk then. a computer willwait....while you feel better after a pace and will let you just carry on as if nothing happened although ,,computers are tricky....they are also cheeky? (mine wants me to let him get some sleep....the cheeky |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha Post by Charlie on Apr 9th, 2007, 8:39pm Part of this is the difference between Europe and the U. S. I don't think their health geeks automatically assume we are drug freaks as they do here. Fear of lawsuits is big here too. I come at this differently. Here in my little town and in Utica, NY...where I was when I was first hit, every doctor and nurse I ever asked about CH knew what it was and most of them had some experience with it. I guess it's not at all usual. Upstate New Yorkers do all right with CH, it seems. You need to write all your CH info down on a card and make some copies to carry with you describing your CH and medications you use. The worst thing that can happen is that they won't pay attention but it should help. Hang on Sherri. http://www.subscribe.smileygenerator.us/all/albums/0riginals/console.gif?SSImageQuality=Full Charlie |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha Post by sldrswyfe on Apr 9th, 2007, 9:27pm Its so good to hear from you dear Charlie...and thanks for the encouragement...you always manage to make me cry....that :'("hug" is really needed today...thanks |
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Title: Re: HOSPITAL MY ARSE. Post by alienspacebabe on Apr 9th, 2007, 9:41pm on 04/09/07 at 12:51:51, sldrswyfe wrote:
I've recently learned a lot about treatment and diagnosis in ERs. They cannot and will not "treat" you until they have some idea of what might be wrong. At one local hospital, it was enough for me to have an index card that said: Cluster Headaches Oxygen 15 lpm Non-rebreather DO NOT TOUCH ME I honestly don't know of a condition that oxygen can make worse. But.... I've also recently learned that the doctors don't want to fix symptoms before they know what's wrong. (for example, it takes a while to get pain medication, especially for abdominal pain). jmo, Lizzie |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha Post by sldrswyfe on Apr 9th, 2007, 10:02pm As I stated in my post...I understand not being given narcotics...but if Im telling a Dr I need oxygen...I cannot understand what the problem is with that...I have never asked for anything other than oxygen....and have been given a verydifficult time about that... I fully understand that a dr doesnt want to treat without knowing what is wrong...If i was shouting give me ten thousand mg's of morphine IV...NOW...I would get it...no that was my entire point...what condition could oxygen possibly harm..it's fortnuate for you that it has worked out that way...I hope it continues... |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha Post by UN solved on Apr 9th, 2007, 11:50pm on 04/09/07 at 22:02:20, sldrswyfe wrote:
O2 can burn/scar your lungs pretty quick they say. I always ask for a 'bubbler' and I never leave it on for too long. Be Careful People !! ;) UNsolved |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha Post by pieface_49 on Apr 10th, 2007, 1:34am Here is a link to have your Neuro/GP fill out as well as yourself. Perhaps it is sufficient, perhaps it needs some work? Take it with you to the hospital. It can't hurt and can only help. http://headaches.about.com/library/forms/f-emerg-doc-ch.htm I too suffered the indignity recently of sitting in an emergency room for 3 hours cowled in a corner, crying, smacking myself... Those present did not understand nor comprehend. Everyone was looking, wondering what was wrong with this man? A BP of 161/90 during a better moment should have given the hospital staff the clue I needed help. I was so upset with the hospital, I got online and contacted them. I told them in no uncertain terms "In my time of need, you did absolutely nothing and treated me just like someone with an upset stomach or a bad cut". Just sit there and wait your turn. This had to be because the hospital staff did not understand. There was one kind lady who approached me and asked "what is wrong with you?". She said "May the hand of God touch you" and she touched and hugged me. We both cried. This was the best treatment of the whole friggin evening. I can't agree more that we need to be proactive. I know there is work in progress through OUCH and other organizations. I plead ignorance myself when it comes to educating the medical community. Has anyone put together a packet/information that can be taken and distributed/discussed with the medical community? I have been a medical study to all those in the medical community for 4 years. 4 years of 2 MRI's, 1 CT Scan, countless trips to Dentists, Gum specialists, GP's, Neurologist's and misdiagnoses. Today most of them know about CH, but I don't think they understand. My Dentist knows, pulled some bottom and all my top teeth ;;D. What can I do to help our cause? I know I must approach them all with info. Want to make sure it is the correct information and do not want to overwhelm them. Any suggestions? My heart goes out to those who are suffering. Like the Angel who touched me in the hospital said "May the hand of God touch you and heal you". |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha Post by pieface_49 on Apr 10th, 2007, 1:42am For those that have not seen this info: http://headaches.about.com/od/workingwithyourdoctors/Working_With_Your_Doctors_As_Educated_Treatment_Partners.htm |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha Post by Brewcrew on Apr 10th, 2007, 9:42am on 04/09/07 at 23:50:54, UN solved wrote:
This will happen after about 20 hours of continuous use. So unless you've got about 6 "M" tanks hooked up in series, it shouldn't be a problem. And the humidity won't make any difference if, for some reason, you were to stay on 100% O2 for that long. If it ain't workin' after 20 minutes, it ain't workin'. |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha Post by UN solved on Apr 10th, 2007, 9:54am on 04/10/07 at 09:42:19, Brewcrew wrote:
Thanks Brew ! I learn something new everyday ! I'm not a regular user of O2 since it doesn't do squat for me. ( I must rely on the Trex inj ). I had a nurse tell me differently ... she must have been a moron ! [smiley=laugh.gif]. I still have to have the bubbler or it will start hurting my throat / nose :-/ UNsolved |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha Post by Brewcrew on Apr 10th, 2007, 10:16am on 04/10/07 at 09:54:49, UN solved wrote:
That's a different matter entirely. Pure O2 will dry out your throat and nasal membranes pretty quickly. I used to use the humidifier exclusively, but over the years I've just gotten used to it without. |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha Post by Yorky on Apr 10th, 2007, 11:36am on 04/09/07 at 18:39:36, Mac_Muz wrote:
http://i93.photobucket.com/albums/l62/yorky_2006/IM000049a.jpg new phone .....now.....old codger ? |
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Title: Re: HOSPITAL MY ARSE. Post by Kevin_M on Apr 10th, 2007, 11:41am on 04/09/07 at 21:41:46, alienspacebabe wrote:
Makes sense, Liz. |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha Post by UN solved on Apr 10th, 2007, 12:14pm Oh $hit !! Go back to the other phone [smiley=laugh.gif] J/K UNsolved |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha Post by Yorky on Apr 10th, 2007, 10:38pm doctors visit today.... dear dr atherton (park road medical center,st annes,lancashire,blackpool,england) thank you 4 letting me go to your practice this morning thank you 4 all your support thank you 4 listening thank you 4 cradeling me, in your arms,when i was getting slammed,with a 10,and screaming my knackers off...tears "streaming" down my face (i think he was crying too) you are in the same league as dj (almost) thank you all clustervill. :-* ps he as put me on a pred 5mg tabs , 6 times a day. |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha Post by UN solved on Apr 11th, 2007, 1:42am on 04/10/07 at 22:38:21, Yorky wrote:
That's super ( if it works ). [smiley=headbanger.gif] 5mg X 6 a day = 30mg a day ..... that's a relatively small dose ( at least for me ). I'm not saying that you won't see side effects from that dose ... but I usually start @ 60mg a day and taper down from there. ( Been as high as 100mg a day ) Goodluck w/ it ! UNsolved |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha (updata) Post by Yorky on Apr 11th, 2007, 8:46am cheers unsolved will bear that in mind.......but when will they kick in . they are more intense, and fster at ramping up ? ? only had 7 so far (preds) and nada, if owt there more intense ? glad to hear your on a roll... ps, dont forget to have that beer 4 me > |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha (updata) Post by Mac_Muz on Apr 11th, 2007, 9:34am Well the new phone didn't help much! LOL and yeah yer still an old codger... I am too... The good news is I had 3 nights off, but found the floor again last night, right down in the dog cookie crumbs this time. American dogs are a bit spoiled and don't do a neat job of tiding up their mess... While I was down there rollin around I got the idea, which was wondering if dog biscuit bits packed in my eye might not make me feel better, but I decied against it, just incase my wife decided to cart me off for help. I wasn't sure I could explain why I had dog biscuits bits in my eye ya know? Before I knew I had Ch I used to try to defeat pain with pain somewhere else. I saw that in a James Bond movie once... So Yorky in my way I am just bein a pain, so maybe you will forget another pain, but i am not gonna hold my breath, but hey it is still worth a try... ;;D poor sob :-[ |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha (updata) Post by sldrswyfe on Apr 11th, 2007, 10:49am That is so funny about the dog biscuits while you were down for the count...I can completely relate...I have gotten up with the back of my head in a dog's water bowl...I have long hair...so you can imagine what standing up was like..and other strange places pondering weird ideas too...that's funny, I thought I was the only crazy one!! York...your family is beautiful!! And about your accent and the different vocabulary...it is difficult to understand...but you do a good job...my husband once worked at this place where he had to call people in Scotland I believe....he had to quit because he just could not understand what they were saying...it was really funny.....I agree with your and tracy's sentiments of CH (the picture of you two with your fingers up)...Hope you are feeling much better |
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Title: Re: HOSPITAL MY ARSE. (updated) ha,ha (updata) Post by Mac_Muz on Apr 11th, 2007, 1:14pm on 04/11/07 at 10:49:47, sldrswyfe wrote:
Nope you ain't the only crazy around here... LOL I have long hairs too, on the current conservation program at 55 ya know. More or less 1/2 way down my back, but I am no pretty boy either.. I can still dream huh? So how's that dog wadda? Does it work like cream rinse, but just nasty cold and slimey? I gonna go play with the hat pin in my eye later. I would now, but I like to think it's like saving things for the future by waiting... these friggin ch's piss me right off.. I wish they had some way of getting even with, I really do. Once i got bit by a brown recluse and now I go spida huntin' and boy do I get feelin good when I find one and smoosh it... |
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