Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2007 General Board Posts >> let you all down (sorry)
        
(Message started by: Yorky on Apr 6^th, 2007, 10:04am)

Title: let you all down (sorry)
Post by Yorky on Apr 6^th, 2007, 10:04am

:'( after a week of shroom (i had high hopes)

putting up with the pain (nice to trip to though)

:'( tracy as just found me in the dining room,
rolling around , screaming my eyes out .

pleading for her to inject me.

wtf...i thought i would ride this cycle...

not roll about the floor, crying like a baby.

at least the kids wernt aboutT.

"I FUCKING HATE THIS SHIT"

AND I AM NOT GOING TO APPOLAGISE, FOR SWEARING"

crying because of pain.......im 39 ffs.

Title: Re: let you all down (sorry)
Post by boonie on Apr 6^th, 2007, 10:13am

Yorky sorry your going through this, hang tough and I know
it is not easy. I have gone through it myself many times
so I understand your pain. You have my deepest empathy.
Thoughts going your way.

Jim

Title: Re: let you all down (sorry)
Post by artonio7 on Apr 6^th, 2007, 10:14am

Yorky....

You let no-one down. Take your relief the way you can get it.
Know that you're in my prayers.

with warm regards,
Tony

Title: Re: let you all down (sorry)
Post by barry_sword on Apr 6^th, 2007, 10:16am

Vibes going your way from Canada Yorky, hang in there, we are pulling for ya buddy!!

Barry

Title: Re: let you all down (sorry)
Post by Mac_Muz on Apr 6^th, 2007, 10:25am

yer just tired bud... You know this is the chit and so you will deal with it as best you can... You just lost a battle, but then there is still the war eh? Just too bad we didn't get the choice to fight it.... hang in there...

Title: Re: let you all down (sorry)
Post by nani on Apr 6^th, 2007, 10:33am

:( [smiley=hug.gif]

I'm sending vibes and pf prayers for you, honey. Hang in there. BIG hugs, nani

Title: Re: let you all down (sorry)
Post by aprilbee on Apr 6^th, 2007, 11:12am

Sorry to hear you're in pain...you've beat it before and you'll beat it again! I know there's nothing anyone can say to make things look any better when you feel like this...just know we love you and support you! And so does Tracy...you're lucky to have someone who understands.....cherish that. PF vibes coming your way sweetie! :-*

Title: Re: let you all down (sorry)
Post by Guiseppi on Apr 6^th, 2007, 11:29am

Attitude is what keeps us going. Ride the bastard and enjoy PF time. You'll be back on top in no time.

Guiseppi

Title: Re: let you all down (sorry)
Post by LeLimey on Apr 6^th, 2007, 12:13pm

You never have and you never will let me down big guy
lots of love
Helen xxx

If you need anything CALL - I can help okay?

Title: Re: let you all down (sorry)
Post by Langa on Apr 6^th, 2007, 12:50pm

Well, I for one am proud of you. It takes guts to leave our "comfort zone" of treatment to try something new and try to stick with it, medicine free. I know, I tried at least 3 times to stick with it. One day, I practically lived under the hot shower trying to avoid using the trex because I was shrooming. You do get discouraged, but don't give up. The seeds ended up working for me. Actually stopped a 10 month cycle dead in it's track.

Hang in there.

Langa

Title: Re: let you all down (sorry)
Post by Sandy_C on Apr 6^th, 2007, 1:32pm

I'm so sorry you are having such a he77 of a time with with it, Yorky. Hang tough. You have let nobody down. Please know that.

Sending [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif]

Sandy

Title: Re: let you all down (sorry)
Post by Yorky on Apr 6^th, 2007, 1:37pm

sorry been better 4 a few hours (no pain/or sleep stilll)

dear beast,
them injections, soon make you make a swift exit (coward)
now that your trying to,irratate me again,
i just thought i might let you know that there is another waiting for your return .
so bring it on (i feel good people).tired but good.

dear doctor.
i failed with shroom.....so now you can write me a pres cription for a pred. so i can ramp back up to 720mg veripamil. just like old times ;)

ps thanks for your support.

what is the record for,stubbing toes on oxy tank. ;;D

Title: Re: let you all down (sorry)
Post by Guiseppi on Apr 6^th, 2007, 6:17pm

what is the record for,stubbing toes on oxy tank.

Not sure but I swear I've dented an e-tank or two with my forehead! :o

Guiseppi

Title: Re: let you all down (sorry)
Post by Charlie on Apr 6^th, 2007, 7:38pm

You haven't let any of us down. You haven't become homicidal...,,yet. Ranting here helps

All I can come up with is that it won't hurt to try my technique angain. The worst thing that can happen is that it won't work. It can you know.

Dr. Wright’s Circulatory Technique:

I am not sure what mechanism is triggered by this but whatever it is, at least indirectly helps kill the pain. I do know that this technique has nothing to do with meditation, relaxation, or psychic ability. It is entirely physical and takes some work. It involves concentrating on trying to redirect a little circulation to the arms, hands, or legs. It can described as a conscious circulatory flexing. Increased circulation will result in a reddening and warming of the hands. Try to think of it as filling your hands with redirected blood. The important and difficult part is that it has to be done without interruption through the pain. Do not give up in frustration. It may not work on the first try. Every now and then it will work almost immediately. I lived for those moments. Try experimenting between attacks. You will find that it gets easier with practice.

I was given less than five minutes instruction in the use of method. The doctor, while placing his arm on his desk, showed me that he could slightly increase his arm and hand circulation. After several attempts, I was able to repeat this procedure and use it successfully. I have had about a 75% success rate shortening these attacks. My 20 minute attacks were often reduced to 10 minutes or less. Once proven that I had a chance to effectively deal with this horror, I always gave it a try as I had nothing to lose but pain.

Perhaps it will help if you think of it as trying to fill the arm as if it is were an empty vessel. I used to try to imagine I was pushing blood away from my head into my arm. Use your imagination. There is one man who wrote that his standing barefoot on a concrete floor shortened his attacks. This may be similar as it draws some circulation away from the head. Cold water, exercise, or anything affecting circulation, seems to be worth a try. My suggestion is to not let up immediately when the pain goes. Waiting a minute is probably a good idea. So long as you do not slack off, this has a chance of working.

This technique is very useful while waiting for medication to take effect or when none is available. It costs nothing, is non-invasive, and can be used just about anywhere. It is not a miracle but it helped me deal with this horror. It can be a bit exhausting but the success rate was good enough for me and a cluster headache sufferer will do just about anything to end the pain. It gives us a fighting chance.

Charlie

Title: Re: let you all down (sorry)
Post by Jonny on Apr 6^th, 2007, 7:47pm

Listen up shit=head, I went 23 years chronic with no meds or diagnosis........get your head out of your arse and deal with it the best you can!

It can be done and im still here to yell at you, got it?.....Good!

Title: Re: let you all down (sorry)
Post by Sean_C on Apr 6^th, 2007, 8:03pm

Never been much of a cryer over physical pain myself, went 10 years chronic without anything, I will admit those days sucked though ;;D

You can do it Yorky, just hang tight till the dosage of shrooms is right for you. ;)

Cheers,

Sean............................

And if I hear you fussin anymore jonny and I will both kick your arse ;;D

Title: Re: let you all down (sorry)
Post by andrewjb on Apr 6^th, 2007, 8:06pm

http://www.youtube.com/watch?v=leGAYNe2UzU&mode=related&search=. ;).

Title: Re: let you all down (sorry)
Post by Sean_C on Apr 6^th, 2007, 8:26pm

I got a laugh out of this one, very cool, brings me waaaaaaaaaay back ;;D

http://www.youtube.com/watch?v=LYV6PAckr5w

Cheers,

Sean.........................

Title: Re: let you all down (sorry)
Post by Brewcrew on Apr 6^th, 2007, 8:29pm

You apologize to no one for this, big guy. Got it? It would be like apologizing for having MS or MD or cancer. You didn't bring this on yourself. We're all in this together, and I'm going to need you to cover me someday.

Never doubt that any one of us would take this for you if we could.

Title: Re: let you all down (sorry)
Post by JenniferD on Apr 6^th, 2007, 9:04pm

Yorky, we're all still here for you, no apologies, no asking, no questions. It is what it is and we deal with it, and deal with it WITH each other and FOR each other.

You hang tough. And when its time to rant or vent, you do it. When its pf time, you cherish and enjoy it.

With all strength, I'm with ya.

Peace,
Jen

Title: Re: let you all down (sorry)
Post by Kevin_M on Apr 6^th, 2007, 10:06pm

Quote:

so now you can write me a pres cription for a pred. so i can ramp back up to 720mg veripamil. just like old times

Know the time Yorky. Cruised ok awhile with the switch but ended it to a long span of extended hell getting back to what took many years to find and get right. The pred will be useful here.

I'll try it again though.