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Title: Seratonin Syndrome Seizure Warning Post by catlind on Mar 24th, 2007, 11:31am Tuesday after a doctors appointment we discovered some new information that my doc is going to submit to be examined and possibly added to the FDA warnings of SSRI's and Triptan usages. All these last few days that I've been trying to post updates and spelling mistakes and missing words, things that are NOT normal for me - they weren't exhaustion. For the last 3 weeks, I have been having seizures. I have been on Lexapro at different times when my head gets bad to help with the depression that comes with chronic pain. This last time, high cycle, and a suicidal teen pushed me to the limits and they put my on double dose lexapro. Now I haven't taken triptans for 3 years since the docs discovered the utter danger of it for me, but something odd happened. Apparently the AMOUNT of triptans we CHers use and the often times we are also on ssri's both for the headaches and for the depression can cause a chain reaction resulting in a permanent adversity to that particular medication. In my case it was lexapro. I was literally having life threatening seizures and NONE of us knew it. According to my doc, each person is so individualized with Clusters that there is no way of knowing who will suffer it, or how severe, or for how long the effects will last after stopping the meds. Quote:
http://www.drugs.com/lexapro.html What you need to know is that you may not recognize the seizure: In my case, I would have what can only be called 'narcoleptic' episodes, where my eyes would suddenly close and I would open them again and be 'speaking in tongues'. One eye would wander, I would fall asleep or lose my coordination for no apparent reason and in the middle of a normal activity, I would smell strange smells that no one else could smell, I had double vision and blurred vision. Please, if you have ANY signs like Jacks had, or any signs listed above like I had get to an ER ASAP - it's better to be safe than dead or brain dead. Cat |
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Title: Re: Seratonin Syndrome Seizure Warning Post by ClusterChuck on Mar 24th, 2007, 11:40am Damn, girl! You need a break! I hope everything is straightened out now. Thanks for the timely warning! Chuck |
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Title: Re: Seratonin Syndrome Seizure Warning Post by Pinkfloyd on Mar 24th, 2007, 3:51pm on 03/24/07 at 11:31:34, catlind wrote:
I have a vision of a blond Canadian with an Italian accent, winking at me. :-* Bob Glad you're ok Cat |
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Title: Re: Seratonin Syndrome Seizure Warning Post by ClusterChuck on Mar 24th, 2007, 4:35pm on 03/24/07 at 15:51:15, Pinkfloyd wrote:
Bob, watch out for the 2X4 she is hiding behind her ... Chuck |
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Title: Re: Seratonin Syndrome Seizure Warning Post by catlind on Mar 24th, 2007, 11:30pm I was once told by a doctor that "you're too damn stubborn to die" - think it might have sumpin ta do with that 2x4..... ;) Cat |
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Title: Re: Seratonin Syndrome Seizure Warning Post by artonio7 on Mar 25th, 2007, 4:59am on 03/24/07 at 11:31:34, catlind wrote:
Sorry to hear of this new nightmare Catlind... I'm currently taking Lexapro, Verap, and Imitrex ... Thanks for the heads up. Here is a useful link about Serotonin Syndrome http://tinyurl.com/9ayr5 with warm regards, Tony |
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Title: Re: Seratonin Syndrome Seizure Warning Post by Rosybabe on Mar 25th, 2007, 2:51pm OMG!! now we not only had to deal with CH's but with seizures too!!! |
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Title: Re: Seratonin Syndrome Seizure Warning Post by pieface_49 on Mar 25th, 2007, 9:13pm There was a link in another forum today concerning the inverse link between narcolepsy and CH. http://www.neurologyreviews.com/jun06/headache.html I hope I typed it correctly. |
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Title: Re: Seratonin Syndrome Seizure Warning Post by catlind on Mar 26th, 2007, 3:56am Now that I find VERY interesting since the drug Provigil works on the suprachiasmatic nucleus in the hypothalamus - what is believed to be command central of CH. I'll be keeping that article for sure. And please please remember, my post was to inform of MY experience, Lexapro is a good drug, it just wasn't a good mix in my chemical makeup. The Seratonin syndrome warnings came out a while back now, but there just wasn't enough long term high usage data to understand the impact it would have on those of us who use triptans as secondary consumer demographic. Cat |
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Title: Re: Seratonin Syndrome Seizure Warning Post by Ree on Mar 26th, 2007, 4:23pm I know way too many people that have had issues mixing that drug with anything... and wasn't it one of the drugs that Anna Nichole OD'd on too... sucky drug... be well and ask for something else... another close call your scaring us... be good Ree |
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