Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2007 General Board Posts >> what would you give? this may get interesting...
        
(Message started by: jenright80 on Mar 12^th, 2007, 6:45pm)

Title: what would you give? this may get interesting...
Post by jenright80 on Mar 12^th, 2007, 6:45pm

i was thinking about it last night and realized i would give almost anything to have a normal life again. what would you give to be rid of the pain? arm? leg? kidney? just funny to think about and look at the difference between what you would give in pain vs what you would give while painfree. I would give my index fingers at this point, or have my wages attached by 50 percent for life. In pain, I think i would give all of my appendages and the ability to swallow.

Title: Re: what would you give? this may get interesting.
Post by JeffB on Mar 12^th, 2007, 6:58pm

Swallow???

I would not give up a thing, I wish I never had them but I do. When I'm not in cycle I think I enjoy everything much more than the average person.

Just to add.

I'd hate the fact that I would never be able to meet a lot of the people here if I didn't have these fuggin things. It's all those without ch that's losing out imho. ;)

Title: Re: what would you give? this may get interesting.
Post by barry_sword on Mar 12^th, 2007, 7:21pm

Give up nothing here. Look at things quite differently though and wait for the bad pain to go away!

Feel my cycle is coming to and end, will find out soon! ::)

This how I met you guy's and gals :D wouldn"t give that up either!

Barry

Title: Re: what would you give? this may get interesting.
Post by LeLimey on Mar 12^th, 2007, 7:24pm

Actually much as it really PAINS me I have to agree with Jeff - CH for me has been a mixed blessing. I've met some of the most important and wonderful people I'll ever have in my life through having them and even if I COULD do something to stop them forever I have a little person in my life who I'd want pain free more than I ever could be.

Although on the other hand - I'd give any of Jeff's internal organs ;;D

Title: Re: what would you give? this may get interesting.
Post by JeffB on Mar 12^th, 2007, 7:31pm

Whoa Nelly!!!!!!! Just don't take my external Organ! :o

You know what they say " ~~Two Lips~~ Tullips on an organ is much better than Roses on a piano"!

Title: Re: what would you give? this may get interesting.
Post by fubar on Mar 12^th, 2007, 7:35pm

Everybody has something to deal with... everybody.

Title: Re: what would you give? this may get interesting.
Post by Brewcrew on Mar 12^th, 2007, 7:39pm

Sorry, I'd take the pain before I gave up anything that wasn't mine to give.

This is the hand life has dealt me. My kidney, my index fingers, my ability to pee - it's all been given to me, so I couldn't give any of it up for a selfish reason (taking away the pain). Believe it or not, part of pain's purpose is to let us know we are alive.

When there's no pain, to what do we compare pleasure? Since we all experience more pain than most, I imagine our pleasure meters tip into the overload zone more often than most.

Sorry, there's the philosophy major in me coming out again.

Title: Re: what would you give? this may get interesting.
Post by Paul98 on Mar 12^th, 2007, 7:42pm

Not giving up a thing. CH does not control me like it used to. I have it, I deal with it. I do not like it but my choices are: have ch control my life or ream the beast in the a$$ and enjoy life. ;;D

-P.

Title: Re: what would you give? this may get interesting.
Post by JeffB on Mar 12^th, 2007, 7:42pm

Well said, Brew.

Title: Re: what would you give? this may get interesting.
Post by ClusterChuck on Mar 12^th, 2007, 7:48pm

I have to agree ... Even though I am chronic, and don't have a cycle's end to look forward to, I am keeping all my appendages (especially THAT one) ...

A sufferer just needs to change their attitude, if they are ready to do that: Don't dwell on the hits .. Dwell on, and THOROUGHLY enjoy the PF time between hits.

Chuck

Title: Re: what would you give? this may get interesting.
Post by LeLimey on Mar 12^th, 2007, 7:54pm

on 03/12/07 at 19:31:22, JeffB wrote:

Whoa Nelly!!!!!!! Just don't take my external Organ! :o

You know what they say " ~~Two Lips~~ Tullips on an organ is much better than Roses on a piano"!

Jeff my sweet you're safe - we weren't talking micro surgery ::)

Title: Re: what would you give? this may get interesting.
Post by JeffB on Mar 12^th, 2007, 7:57pm

:P

Thats it, I'm going home.

Shalom everbody!

Title: Re: what would you give? this may get interesting.
Post by Charlie on Mar 12^th, 2007, 8:32pm

Helen is truly evil......I like evil http://www.netsync.net/users/charlies/gifs/blinds peek.gif

I was lucky and I could always count on the pain going away for most of the year. I never counted on it going away for the last 16 but I'm not complaining....

The thing is that it might go away. I've thought about it before concerning epilepsy too. The latter is not so simple for me though.

Hang on to your appendages...... :o 8)

Charlie

Title: Re: what would you give? this may get interesting.
Post by Gator on Mar 12^th, 2007, 9:09pm

Nada. I gave up a lot of precious pain free time, either dwelling on the last hit or worrying about the next one, learning how to cope with this crap. I won't voluntarily give up anything else to the beast.

Title: Re: what would you give? this may get interesting.
Post by chewy on Mar 12^th, 2007, 9:20pm

I'd give Jonnys right nut.

Left one to!

Title: Re: what would you give? this may get interesting.
Post by E-Double on Mar 12^th, 2007, 9:24pm

I have a normal life.
I have a great job, great wife and a fantastic little baby.
Life is good.

The daily pain sucks but it could be worse.
It is pain but it goes away.......even if they do always come back it is still temporary.

Gotta agree with the rest of the freaks.

I guess I gave up on being episodic a couple of yrs ago.
Cheers to my 3rd anniversary. :-/ :-*

Title: Re: what would you give? this may get interesting.
Post by Jonny on Mar 12^th, 2007, 9:26pm

on 03/12/07 at 21:20:43, chewy wrote:

I'd give Jonnys right nut.

Left one to!

Thanks pal, I knew I could count on you!

Title: Re: what would you give? this may get interesting.
Post by AussieBrian on Mar 12^th, 2007, 9:33pm

on 03/12/07 at 21:20:43, chewy wrote:

I'd give Jonnys right nut.

Left one to!

on 03/12/07 at 21:26:37, Jonny wrote:

Thanks pal, I knew I could count on you!

You make such a lovely couple. Can I have pick of the litter?

Title: Re: what would you give? this may get interesting.
Post by Melissa on Mar 12^th, 2007, 9:49pm

Nuttin here either. ;;D

Title: Re: what would you give? this may get interesting.
Post by Karla on Mar 12^th, 2007, 9:56pm

Prior to finding a preventative that works... If I had nuts I would give both away to get rid of the pain. However, I am a woman and that isn't possible. I did however have a complete hysterectomy to rule out the role hormones may or may not be playing in ch and migraines. Being chronic and getting hit 8x a day in pain 16 hours a day with only a handful of 15-30 min breaks is no way to have any quality of life except for when I would sleep and not get hit. I found very little to live for or to enjoy while awake. It consumed me for years. I praise God everyday that I now have a preventative that works and has given me my life back outside of occassional migraines. All I can say is hang on and keep searching for an answer in finding something that works for you. You will find something. It is just a matter of time.

Title: Re: what would you give? this may get interesting.
Post by sandie99 on Mar 13^th, 2007, 4:21am

That's one good question... As boring as it may sound but I cannot figure out what I could give up. Probably the only thing I could give up would be something like eating pizza. ;;D

Be careful with what you promise, though. I've heard examples how people promised to God that they'd give some of their body parts if their pain/their closeones pain would go away and that actually took place!

PF days,
Sanna

Title: Re: what would you give? this may get interesting.
Post by BB on Mar 13^th, 2007, 4:57am

The true measurement of a man is his ability to bear sufferings, not with despair, but with greatness of the mind.

M Scott Peck

Title: Re: what would you give? this may get interesting.
Post by thomas on Mar 13^th, 2007, 8:51am

I'm not giving up one more damn thing to fight this. I have given enough already, I will just continue to fight.

Title: Re: what would you give? this may get interesting.
Post by Dragnlance on Mar 13^th, 2007, 8:57am

Nothing is ever so bad that it can't be worse. I have had these damn things all my life, so I believe it or not, this IS normal for me. I give up enough of my life for them now. I will not give up more.

As so many of my friends have noted, without CH and THIS place, I would not have met them or had such an impact on my life.

Dragn

Title: Re: what would you give? this may get interesting.
Post by aprilbee on Mar 13^th, 2007, 9:26am

Well, to echo the sentiment here, I've given up plenty and still have the pain....so you learn to LIVE with the pain and enjoy every pain free moment you have...

Title: Re: what would you give? this may get interesting.
Post by taraann on Mar 13^th, 2007, 10:01am

on 03/12/07 at 19:48:48, ClusterChuck wrote:

Yeah and I am a firm believer in what don't kill ya only makes yah stronger! We are STRONG, no matter how weak we feel, we are sooooo strong. And I also believe what happens to us in our lives form whowe are, and well I hate myself sometimes but at the same time I appreciate who I am today because of my life struggles. I am who I am cause of what I've gone through and where I've been!

***edited cause I'm kinda lame rightnow

Title: Re: what would you give? this may get interesting.
Post by Sandy_C on Mar 13^th, 2007, 10:36am

I would not give up one single thing.

This is the hand I was dealt, and this is the hand I will play. I fight through the hits, and cherish and enjoy the PF times.

Title: Re: what would you give? this may get interesting.
Post by ClusterChuck on Mar 13^th, 2007, 11:16am

Again, I say, I ain't giving up any limbs.

Besides, if I gave up my right hand, there goes my sex life! (my left hand just doesn't have the knack)

Chuck

Title: Re: what would you give? this may get interesting.
Post by Lizzie2 on Mar 13^th, 2007, 12:04pm

OK I'll bite... First off, for those who don't know, aside from being a chronic clusterhead, I also have a constant migraine that I got on 1/17/01 that never goes away. While I've been hospitalized twice since having the clusters, the underlying migraine is always what leads to the hospital stays. While the clusters, for me, are more painful when they happen, the migraine is more debilitating as it never leaves. I don't get to enjoy the PF times in between - because there are none.

Granted, this is going to sound a lot more negative than my usual outlook as I have been having a VERY bad time of it with the headaches lately. I just got home from a neuro NP appt - and I cried several times throughout the appt - that's how bad things are right now. Normally, I try to have a more positive outlook.

But since things are the way they are, I will say that I would give up quite a lot if I could get rid of this pain. I won't say exactly what, because I don't want to demean those who have had to lose a limb, a kidney, etc. I won't pretend I'm tough or that the pain doesn't upset me in some huge way - because it does - especially right now. It has changed my life in a lot of ways - a few good, but way more than a few have been devastatingly bad.

So while I might be one of the only ones, I'd give up a lot......

PF Wishes,
Carrie

Title: Re: what would you give? this may get interesting.
Post by Mac_Muz on Mar 13^th, 2007, 1:52pm

on 03/13/07 at 10:01:34, taraann wrote:

I'ld buy that.. Not nuthin' it makes me stronger...

Is jonny's nut toasted or plain?

Title: Re: what would you give? this may get interesting.
Post by midwestbeth on Mar 13^th, 2007, 3:10pm

I would not give up a thing. No one is guaranteed a perfect, painfree life. All the experiences we have, good and bad, build our character and makes us who we are. Nope, I would not give up a thing.

Beth

Title: Re: what would you give? this may get interesting.
Post by sailpappy on Mar 15^th, 2007, 11:28pm

;;D ;;D Like Chuck, I don't have the luxury of a cycle that ends from time to time. So I can say in all honesty that I woud give up nothing at all.
Don't get me wrong, I would like to recoup all the water I have sent down the drain, or the time that has slipped off into obscurity waiting for the pain to end.
But could I truely appreciate the painlessnless had I had nothing to compare it to?
Would I have experienced all the truely kind and soulfull hearts that have expressed concern for me with out the depth of the pain that I experience.
I have felt the power that drives the very creation of compassion due to the pain that I live in and knowing what I know now, I dont think I could go back and return all of the commitment of caring and the unmeasureable love that hs been showerd on me over the years and I don't think it would be possible, even if I wanted t do it!
So in the reality of the world we do live in! "THANK YOU BROTHERS AND SISTERS OF PAIN" I truely Love You All! Pappyhttp://home.comcast.net/~jhallahan2/wsb/media/299782/site1303.JPG

Title: Re: what would you give? this may get interesting.
Post by ClusterChuck on Mar 15^th, 2007, 11:53pm

Aw STFU, Sailpappy and get a freekin' haircut!

SHEESH!!! Damn long haired exhippies! Oh wait .. you're old enuff to be a beatnic ...

;;D [smiley=moonwiggle.gif] [smiley=guyflash.gif] [smiley=wave.gif] [smiley=headbanger.gif]

Chuck

Title: Re: what would you give? this may get interesting.
Post by Callico_Kid on Mar 15^th, 2007, 11:56pm

I would have to agree with Beth that no one is guaranteed a perfect life, and with Pappy that it has done a lot to develop compassion in me for others.

While we have to deal with debilitating pain it is not life threatening unless we do something to cause it to be.

My wife has MS, and has had for about ten years less than I have had clusters. Even though it was not very pronounced or active until about five years ago my quality of life as a chronic is vastly superior to hers. She rarely complains, so why should I?

Carrie, this is not meant to be a put down to you. You are going throughsome very trying times now, and are not feeling anything that many of the rest of us have not dealt with at one time or another. hang in there. We are all behind you. As I remember a lot of your other postings, you would not be where you are now, nor have been able to accomplish some of the things you have accomplished with out dealing with CH. Some of the things you have done would have been easier, but not nearly as productive.

Praying for relief for you.

Jerry

Title: Re: what would you give? this may get interesting.
Post by Cathi04 on Mar 16^th, 2007, 9:38am

I am in awe of the strength of will I see here on a daily basis! People who are determined NOT to allow CH to define them or to shape them, or to interfere one bit with their lives!
I think I like the way Eric says it. He is a father. He is a husband. He is a respected member of his community.....and, DESPITE the blows CH sends his way, he continues his own journey, with determination and humor.......'
come to think of it, that describes soo many CHers... Brew, how can you possibly add time into your life for your music?
Lizzie, despite what you deal with, you became a nurse....and a neonatal nurse to BOOT!
Jonny-how many years now?? And look at the success of your very own business! It's all YOU, man! Not CH!
Fubar makes a very good point. We ALL have something we must deal with........it is HOW you deal with it that defines you!
Thomas, you're RIGHT! Why should CH be allowed such importance that you would allow it to take one more thing from you?
I admire so many of you for your daily handling of CH, but the reason I remain here is the level of intelligence, the humor, the depth of the souls, and the strength of spirit.

Give NOTHING up for the beast! Never, EVER let him win!

THat said, I still wish you all PFDAN, so you would enjoy your sucesses even more...........

Oh, and Chuck is just a freak anyway......... :o

Cathi