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        New Message Board Archives >> 2007 General Board Posts >> My visit to the FNP........
        
(Message started by: aubmari on Jan 30^th, 2007, 1:30pm)

Title: My visit to the FNP........
Post by aubmari on Jan 30^th, 2007, 1:30pm

I went to the DR or I guess in my case the FNP and they brought me back to the room and there on the wall was a poster about rating your headache and the chart actually listed Migraine, CLUSTER!!!!, and tension. I have never seen anything re: cluster on a wall. So the nurse walks in and I told her how I was shocked to see this poster because there aren't alot of people who know about clusters. She said "yah, you know there are alot of people who dont think that they are even real?" ummm escus-e-muah! Do a majority of people really think that it is all in our head? (no pun intended) but really????

Aubmari

Title: Re: My visit to the FNP........
Post by brewcrew on Jan 30^th, 2007, 1:52pm

I used to get pissed off at this (people's lack of knowledge), but now I just try to "forgive them, for they know not what they do."

And speaking of ignorance, what's FNP?

Title: Re: My visit to the FNP........
Post by echo on Jan 30^th, 2007, 1:55pm

I'm guessing Family Nurse Practicioner

Title: Re: My visit to the FNP........
Post by brewcrew on Jan 30^th, 2007, 1:58pm

Makes sense to me.

Title: Re: My visit to the FNP........
Post by thomas on Jan 30^th, 2007, 2:16pm

I was thinking "Fuckin' Neurologist Prick" ;)

Title: Re: My visit to the FNP........
Post by brewcrew on Jan 30^th, 2007, 2:17pm

Makes sense to me.

Title: Re: My visit to the FNP........
Post by thomas on Jan 30^th, 2007, 2:23pm

Guess it all depends on your perspective. ;;D

Title: Re: My visit to the FNP........
Post by brewcrew on Jan 30^th, 2007, 2:24pm

You see, I'm just a caveman...

Title: Re: My visit to the FNP........
Post by LeLimey on Jan 30^th, 2007, 2:34pm

Brew's a trog ;;D

(love ya really Brew!)

Title: Re: My visit to the FNP........
Post by aubmari on Jan 30^th, 2007, 2:41pm

No I totally understand their lack of understanding ex: the extreme pain etc but just blew me away that she was like ......... they aren't real? Whoever wishes to trade me for even five minutes...... feel free to do so. ;) I would never do that because it isn't in me but you feel like it sometimes.

Aub

Title: Re: My visit to the FNP........
Post by brewcrew on Jan 30^th, 2007, 2:46pm

Ahhemmmm....back to the subject matter. I truly don't believe that a majority of people think it's all in our heads. I believe they don't know and don't care. Being born with a defective hypothalmus doesn't put me on a stage where I have to convince paying patrons that my pain is real. It is real - I know it, my bride and my son know it, my neuro knows it, and each of you know it. That's all that matters.

When it comes right down to it, who cares what everybody else believes?

Title: Re: My visit to the FNP........
Post by aubmari on Jan 30^th, 2007, 2:59pm

true enough... great perspective. I guess it just put me off a little. I am better now ;;D

Title: Re: My visit to the FNP........
Post by Linda_Howell on Jan 30^th, 2007, 3:01pm

Quote:

who cares what everybody else believes?

Because of :

ER personel who call us drug-seekers
Family Doctors who have no clue.
Dentists who pull peoples healthy teeth
Pharmaceutical Co.s
Ins. Co's who limit our drugs based on a Migraine criteria.
Employers who NEED to understand before they fire us.
Friends, family or colleagues who make us more depressed by the lack of understanding.

Title: Re: My visit to the FNP........
Post by brewcrew on Jan 30^th, 2007, 3:04pm

My pleasure.

And it's Helen's pleasure to point out that I'm a troglodyte. :-[

At least I know she loves me.

Title: Re: My visit to the FNP........
Post by brewcrew on Jan 30^th, 2007, 3:09pm

on 01/30/07 at 15:01:54, Linda_Howell wrote:

You're right, Linda. I should modify my response: who cares what other people who cannot affect my health or the care thereof think?

I won't lump your last bullet point in with that, however. Other people cannot make me more depressed. Only I can do that. ;;D

Title: Re: My visit to the FNP........
Post by Cathi04 on Jan 30^th, 2007, 3:12pm

Hear, Hear, Linda! People who serve the Clusterhead community NEED to understand in order to serve appropriately!
Awareness!!!!!!!!!!!!!!!!!!!!!!!!!!!
Brew, some of these people do need to be excused, but only ONCE, then they should have been educated.
Yes, it's a "headache".but the similarity stops there. It is like NO other headache, in a class by itself!

Cathi

Title: Re: My visit to the FNP........
Post by taraann on Jan 30^th, 2007, 3:21pm

on 01/30/07 at 14:41:48, aubmari wrote:

That has ALWAYS been what I say, "I wouldn't wish this pain on anyone BUT if so and so could just have a Cluster for just a minute......."

Title: Re: My visit to the FNP........
Post by brewcrew on Jan 30^th, 2007, 3:24pm

on 01/30/07 at 15:12:55, Cathi04 wrote:

To a point, yes. If someone can have any impact on my health or my healthcare, then yes, they should be educated.

The reality is, though, that most people don't know about CH and therefore can't care about it. I only have to walk into a wall once before I realize that it's not a door.

Title: Re: My visit to the FNP........
Post by seasonalboomer on Jan 30^th, 2007, 4:25pm

--------She said "yah, you know there are alot of people who dont think that they are even real?"----------

First it was the Loch Ness Monster, then Area 51, then Susquatch. Now, Cluster Headaches.

So I'm picturing some Deliverance looking mf'er saying it sometihng like this:

"Lotta people round these parts ain't never actually seen one in person. Been rumored to live back in those woods. Couple of old droopy eyed old witches back in the woods just call him "the beast". Me, I don't believe'm"

Title: Re: My visit to the FNP........
Post by Charlie on Jan 30^th, 2007, 5:36pm

Dr. Donohue, the newspaper MD, today replied to a headache question saying that not all severe headaches are Migraines. No shit. Not a peep about clusters in the reply however.

I have to be fair though; he has mentioned clusters several times. But Geeze.... http://www.netsync.net/users/charlies/gifs/slap.gif

Charlie

Title: Re: My visit to the FNP........
Post by Charlie on Jan 30^th, 2007, 5:58pm

http://www.netsync.net/users/charlies/gifs/beast.jpg

Not sure if anyone has a use for it but feel free. It's from the cover of a May 1940 Amazing Stories that I sold on ebay. The eyes are right anyway

Charlie

Title: Re: My visit to the FNP........
Post by Linda_Howell on Jan 30^th, 2007, 7:36pm

Yep. I saw that same exact story in my newspaper Charlie and I gasped. What an opportunity to maybe SUGGEST clusters.

I agree with you too Brewcrew about the depressed part.

I give a rats behind, about people I meet who don't understand and not be depressed about it at all. but there ARE others here who cannot and their lives are affected by that.

Title: Re: My visit to the FNP........
Post by Redd715 on Jan 30^th, 2007, 7:54pm

Quote:

who cares what other people who cannot affect my health or the care thereof think?

Here is where the line needs to be drawn.

Although these people may not affect "our" life and health, they may be in a position where the lack of education and understanding may affect the life and health of another brother or sister in arms with this condition.

That is why each and every person MUST understand CH well enough to sympathize as they do with people they have contact with suffering Migraine even though they don't suffer for themselves.

That is point of educating about Migraine, so that there is an understanding and willingness to make the needed accomidations for the sufferers.

It's no less, if not more SO important to educate on CH to the same degree.

Title: Re: My visit to the FNP........
Post by brewcrew on Jan 30^th, 2007, 8:26pm

on 01/30/07 at 19:54:35, Redd715 wrote:

Maybe this is just a semantic argument, but I pissed into the wind once. I got it all over myself. From it I learned not to piss into the wind anymore.

I'm not saying that the world wouldn't be a better place if a lot more people knew about CH. I try to educate everyone I can if the circumstances are right. But if I made it my mission in life to convert the world, it's all I'd be doing. I've got other things that I like to do, and most of them don't involve thinking about CH.

Like I said, I think this is just a semantic argument. I'm pretty sure I'm on the same page as most everyone else here. I'm certainly not anti-education. But I have a life to live, too.

Title: Re: My visit to the FNP........
Post by Redd715 on Jan 30^th, 2007, 8:48pm

I understand that Brew, truely I do...
But if everyone took that stance, there would be no OUCH, and no one working to further the cause of our plight.

We are all we have...I don't see any celebrities or Politicians coming to help us.

I remember back when I first was getting Divorced and was asked to run for a seat on the BoD of the Women in Poverty Innitiative. My first thought was...I'm living in low income poverty housing..what can I offer to this...

"Who better..." I was told...

A "so called" friend aske me...why do you have to do this, why not just live your life...

I said to her...

If everyone felt that way, no one would ever stand up for something and there would never be change....if not me...then who?

Maybe it's closed some doors for me, but it's opened even more.

Title: Re: My visit to the FNP........
Post by chewy on Jan 30^th, 2007, 9:00pm

Quote:

You see, I'm just a caveman...

EXCUSE ME !?

http://img.photobucket.com/albums/v388/bgull2/2518044518.jpg?t=1170208778

Title: Re: My visit to the FNP........
Post by brewcrew on Jan 30^th, 2007, 9:05pm

Or perhaps...
http://img20.photobucket.com/albums/v60/lindstroms/caveman-lawyer2.jpg

Title: Re: My visit to the FNP........
Post by Jonny on Jan 30^th, 2007, 9:11pm

on 01/30/07 at 13:30:32, aubmari wrote:

What did the chart look like and how did it rate headaches?

Title: Re: My visit to the FNP........
Post by Linda_Howell on Jan 30^th, 2007, 9:21pm

If it looked anything like the one I saw last time I was in the hospital. It had a scale of 1 to 10 but underneath it was smiley faces. From broad grin to tearing it's hair out smileys. and everything in between.

How about it Aubmarie...is that what it was?

Title: Re: My visit to the FNP........
Post by E-Double on Jan 30^th, 2007, 9:26pm

http://im1.shutterfly.com/procserv/47b7df11b3127cce811596cb9a2500000016103QasWrlwx0

Title: Re: My visit to the FNP........
Post by Kevin_M on Jan 30^th, 2007, 10:14pm

From the Clusterville museum, another big pain scale called the Chewy chart, rates his posts by the stage of development he seems to be in when writing. The first stage being the biggest pain.

http://wilderdom.com/images/evolution/1.jpghttp://wilderdom.com/images/evolution/2.jpghttp://wilderdom.com/images/evolution/4.jpghttp://wilderdom.com/images/evolution/5.jpg

http://wilderdom.com/images/evolution/6.jpg

http://wilderdom.com/images/evolution/7.jpg

http://wilderdom.com/images/evolution/8.jpg

Title: Re: My visit to the FNP........
Post by artonio7 on Jan 30^th, 2007, 11:02pm

It would be interesting to see an episode of House, or E.R. or any of the other popular Television dramas mentioning Cluster Headaches. It seems that more people care about who or what Dr. Mc Dreamy or Mc Creamy is doing.

Are there any writers here? I can see pitching a pilot based on the days in the lives of Clusterheads. Maybe a catchy title like "Betty and The Beast".

People need a good story laced with commercial interruptions it seems... before you can get there attention.

Just my two sense,
with warm regards,
Tony

Title: Re: My visit to the FNP........
Post by artonio7 on Jan 31^st, 2007, 2:32am

on 01/30/07 at 15:09:38, brewcrew wrote:

I also suffer from Chronic depression. I agree that one must be on guard and try to maintain a healthy positive outlook. But... I can not count the number of times I was told to just "Cheer up" or... oh, everyone gets the blues now and then. Or "I wish I could afford the luxury of a good depression." or "You make yourself depressed." or "Snap out of it." or " Just take a little walk... you'll be fine."

They may as well hand me a loaded Glock and a mirror and draw a circle in the middle of my forehead.

OHHHHHH! I could go on for days with this one.

All of the above is the equivalent of telling a Clusterhead to take a baby aspirin during a kip ten.. Because "My sister gets her little headaches now and then and it works for her." For some people Depression is just not as simple as wishing it away nor chasing it away with a little pill.

Sorry to poop on this post but my temperature just soared.

with warm regards,
Tony

Title: Re: My visit to the FNP........
Post by brewcrew on Jan 31^st, 2007, 7:30am

on 01/31/07 at 02:32:08, artonio7 wrote:

For some people Depression is just not as simple as wishing it away nor chasing it away with a little pill.

I agree, Tony. But it's just as invalid to blame it on others. If I'm depressed and I can't wish it away or chase it away with a pill, it's still not caused by other people. It's caused by how I react to my world and the people in it. In many cases it's a lot more involved, but never the world's fault.

I'm no psychologist - just my 2 cents.

Bill

Title: Re: My visit to the FNP........
Post by artonio7 on Jan 31^st, 2007, 8:06am

on 01/31/07 at 07:30:37, brewcrew wrote:

Snip
In many cases it's a lot more involved, but never the world's fault.
Snip
Bill

I agree with you 100% on this Bill.

The point I guess I was trying to make is that like Cluster headaches, Depression is very much misunderstood, it's gotten allot better over the last few years with the major pill push by the pharmaceutical companies. But for the most part mental illness is stigmatized. A person in the throws of a major depression can NOT just make up their mind to see the world through rose colored glasses. When the world insists that you do something that you are physically incapable of while you're depressed only adds to the depression... just as a warm sunny day or a bouquet of fresh cut flowers would. Everything seems to add to the depression when you're that depressed.

Depression is a sucking hole of blackness that withers the appearance and impression of everything in your world. It's impossible to change it when you are in the depths of it by mustering a fuzzy nice image. When the medications prescribed for it don't work then what? Then you are left to listen to the questions or advice which, may not be designed to add insult to injury but leave one feeling even more depressed and inadequate for not being able to somehow HEAL THYSELF. So... perhaps at this juncture I should recant about the 100% agreement and say that although it is not the worlds fault... with limited understanding of depression... the world certainly is not part of the solution either.

Again... it's very similar to someone saying to a Cluster Head in the middle of a cycle to just WISH AWAY THE HEADACHES.... it ain't gonna happen.

The more we educate the world about our condition... the better it will be.

with warm regards,
Tony

Title: Re: My visit to the FNP........
Post by chewy on Jan 31^st, 2007, 8:14am

Good chart E-Doub. Says it all.

And Kevin you left out the final phase of my development. Life is good!

http://rds.yahoo.com/_ylt=A9gnMiOilcBFf7YAaHCjzbkF;_ylu=X3oDMTA4NDgyNWN0BHNlYwNwcm9m/SIG=121npjfrh/EXP=1170335522/**http%3A//www.puerto-rico.net/imag/hunk/hunk.jpg

Title: Re: My visit to the FNP........
Post by Kevin_M on Jan 31^st, 2007, 9:29am

Chewy before photoshop skills aquired:

http://img.photobucket.com/albums/v388/bgull2/2518044518.jpg?t=1170208778

Are you looking in the mirror or through window of the guy next door.

Let's see, that last post rates a...

http://wilderdom.com/images/evolution/1.jpg

The Chewy biography

http://www.steveconley.com/pages/miniatla.jpg

For his dating help and attire:

http://www.steveconley.com/pages/minihypn.jpg http://www.steveconley.com/classics.gif

http://www.steveconley.com/pages/minitie.jpg http://www.steveconley.com/pages/minilift.jpg

Title: Re: My visit to the FNP........
Post by aubmari on Jan 31^st, 2007, 10:29am

on 01/30/07 at 21:11:48, Jonny wrote:

What did the chart look like and how did it rate headaches?

Similar to the one that E-Dub posted but more with statistics on percentage of women versus men and the pain level for clusters was about 3/4 from the top. Should have been all of the way but oh well. At least they rated that pain as excrutiating. I thought the chart was great. I had never seen anything posted like that.

I just was shocked honestly that there are people who dont think they are "REAL", as in, we are all faking it?????? We all no they are and there are always going to be people who dont understand what we go through and really how can they possibly grasp the amount of pain we are in. I really dont think that it is possible. Just as I couldn't understand the pain that someone with a broken arm may be experiencing.

Aubmari