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Title: Is Oprah a dead horse? Post by artonio7 on Jan 24th, 2007, 6:02pm I was talking to a couple people in the chat room last night and the subject of Oprah came up, specifically, starting an email campaign to encourage her to do a CH show. Well then I searched some old threads and see that the issue was debated at great length a couple years ago. At that point in time O.U.C.H. board members opted for another course of action pending the medical society and felt that the Oprah issue wasn't prudent at that point in time. I'm sure allot of the older members here remember this. So... what is the current position on the Oprah issue? Is it a better time to start a email campaign? with warm regards, Tony |
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Title: Re: Is Oprah a dead horse? Post by JeffB on Jan 24th, 2007, 6:10pm Buddy, Friend, Pal........ Just what the heck were doing in a chat room discussing anything that has to do with Oprah??? [smiley=laugh.gif] Kidding. I think it would be beating a dead horse. IMHO. |
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Title: Re: Is Oprah a dead horse? Post by Jackie on Jan 24th, 2007, 6:19pm Tony. There was a time when we constantly e-mailed EVERYONE. There was a campaign started where we picked a different 'target' every week or so.......nothing every happened. We would get a few 'thank you for writing but sorry' answers. As to Oprah....she does a good job but wants to FIX everything and everyone.....then come back and show how she did it. She might think we are to tough a case. We did try her though....more than once. Good thought though....keep it up.... :) Hugs to you and Oscar... :D Jackie |
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Title: Re: Is Oprah a dead horse? Post by chewy on Jan 24th, 2007, 6:25pm That horse has been beaten, revived , beaten again, killed, resurected, and beaten down again. Good thought though. |
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Title: Re: Is Oprah a dead horse? Post by artonio7 on Jan 24th, 2007, 6:36pm Ok so if approaching the talk shows circuit is a moot point. How about kicking in to support the documentary that's already in the works.... I see here from another thread that Justin started doing work on one a couple years ago. Surely (if there are no concerted efforts at this time) there must be some way we can help in his efforts to get the ball rolling again on his project. From what I've witnessed here in my brief time as a member of this group, there is a phenomenal wealth of, passion, talent, resourcefulness and determination. What do you all think? with warm regards, Tony |
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Title: Re: Is Oprah a dead horse? Post by Bob P on Jan 24th, 2007, 6:46pm Quote:
She sure looks like one! |
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Title: Re: Is Oprah a dead horse? Post by froggy on Jan 24th, 2007, 6:55pm Tony, Although it's great to get support and encouragement on anything, my input is: If YOU want to get the ball rolling and your whole heart and soul is into to it, GO FOR IT! There are leaders and followers. Which one are you? much encouragement, froggy |
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Title: Re: Is Oprah a dead horse? Post by Jonny on Jan 24th, 2007, 6:56pm This is the only dude that put a CH documentary together that aired. http://pahlow.net/ch/ch_images/aki.jpg I think it ran two segments over two nights in the market of the TV station he worked for. No idea how to get ahold of him, aint seen him here in over a year....bummer! |
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Title: Re: Is Oprah a dead horse? Post by artonio7 on Jan 24th, 2007, 6:58pm on 01/24/07 at 18:55:03, froggy wrote:
Sweet! Can I count on your help? with warm regards, Tony |
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Title: Re: Is Oprah a dead horse? Post by JeffB on Jan 24th, 2007, 7:00pm I have written the Doc. on the fox news morning show, Dr. Manning and Gupda from CNN. No response! |
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Title: Re: Is Oprah a dead horse? Post by artonio7 on Jan 24th, 2007, 7:00pm on 01/24/07 at 18:56:28, Jonny wrote:
Thanks Jonny, Do you remember his name? We can track him down. with warm regards, Tony |
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Title: Re: Is Oprah a dead horse? Post by Jonny on Jan 24th, 2007, 7:04pm on 01/24/07 at 19:00:39, artonio7 wrote:
No, I dont, but someone that has been here as long as me will. I almost forgot I had this on my website....this is our very own BobP (handsome bastard ;;D ) http://www.a-dzign.com/jonny/bob_news.ram |
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Title: Re: Is Oprah a dead horse? Post by Bob P on Jan 24th, 2007, 7:13pm Not sure of the exact spelling but his name is Aki Pederson or Peterson. |
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Title: Re: Is Oprah a dead horse? Post by Jonny on Jan 24th, 2007, 7:17pm Its "Peterson".....I remember now, thanks Bob :-* |
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Title: Re: Is Oprah a dead horse? Post by JeffB on Jan 24th, 2007, 7:31pm Just for the record, Bob really isn't that handsome! ;;D I'm kidding you stud muffin! |
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Title: Re: Is Oprah a dead horse? Post by froggy on Jan 24th, 2007, 7:47pm If you're sincere and serious about it, we sure can talk about what you plan on doing. froggy |
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Title: Re: Is Oprah a dead horse? Post by artonio7 on Jan 24th, 2007, 8:17pm on 01/24/07 at 19:47:49, froggy wrote:
Thanks sweetie. I'm glad I can at least have your ear. Any and All the support we can muster for each other is significant and hopefully help to ease each others pain. with warm regards, Tony |
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Title: Re: Is Oprah a dead horse? Post by froggy on Jan 24th, 2007, 8:49pm Okay, sounds good. Keep in touch. froggy |
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Title: Re: Is Oprah a dead horse? Post by Jonny on Jan 24th, 2007, 9:21pm on 01/24/07 at 20:17:45, artonio7 wrote:
That means "I aint doing shit"......LOL ;;D |
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Title: Re: Is Oprah a dead horse? Post by artonio7 on Jan 24th, 2007, 9:33pm on 01/24/07 at 21:21:27, Jonny wrote:
So far I've been able to find only this on Aki Peterson.... thanks for passing along the name and news link Jonny. And thanks for your patience and support. http://www.zoominfo.com/Search/PersonDetail.aspx?PersonID=430211408 with warm regards, Tony |
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Title: Re: Is Oprah a dead horse? Post by froggy on Jan 24th, 2007, 11:56pm lol ;;D |
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Title: Re: Is Oprah a dead horse? Post by artonio7 on Jan 25th, 2007, 12:37am on 01/24/07 at 23:56:07, froggy wrote:
;;D "No one can belittle you without your consent" ~Eleanor Roosevelt~ with warm regards, Tony |
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Title: Re: Is Oprah a dead horse? Post by froggy on Jan 25th, 2007, 2:19am If you're legit, the bullshit doesn't matter. Best regards |
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Title: Re: Is Oprah a dead horse? Post by artonio7 on Jan 25th, 2007, 2:29am Michelle what crawled up your ass? So we're from the same neck of the woods. Who gives a shit? Now do ya wanna help??? I think this is a good thing to do.You're being supportive of your husband and that's cool. He's lucky to have you. What's wrong with motivating Justin to work on his documentary? with warm regards, Tony |
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Title: Re: Is Oprah a dead horse? Post by froggy on Jan 25th, 2007, 2:37am Don't get whatcha mean. I'm just saying it straight. If you're legit, then what other people say shouldn't matter to you. Just let people see your actions. That's what I meant by "if you're legit, the bullshit doesn't matter" And why are you singling me out, I don't see you jumping down Jonny's throat (although I wouldn't want to see you try). Who the heck is Justin? |
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Title: Re: Is Oprah a dead horse? Post by artonio7 on Jan 25th, 2007, 2:40am on 01/25/07 at 02:37:49, froggy wrote:
Justin was a member of ch and is working on a documentary. And my action is to rally the members here to be supportive of him so he can work on it. http://www.justinott.com/ with warm regards, Tony |
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Title: Re: Is Oprah a dead horse? Post by froggy on Jan 25th, 2007, 2:47am Gottcha. Like I wrote to you earlier, I'm in, just let me know what's up. I think that everything that I've written to you has been supportive. I've learned the hard way on this board, you've got to have pretty thick skin to hang. And I'm glad I did cuz I've been able to find some great things for the husband. Get some sleep, Froggy |
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Title: Re: Is Oprah a dead horse? Post by artonio7 on Jan 25th, 2007, 2:52am Ok... You're right, I was wrong. Please forgive me. with warm regards, Tony |
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Title: Re: Is Oprah a dead horse? Post by artonio7 on Jan 25th, 2007, 3:10am All right Michelle I'll take your posts as being supportive. To show you that I'm serious I'll do one of the things that I think will be worth doing. Justin Ott is working on this Cluster Headache documentary http://www.justinott.com/. I had correspondence with him last week and asked him how it was progressing. He told me that it's on the back burner due to financial reasons. So I think it would be a good Idea to send him some money. I propose to donate one of my oil paintings for an auction to be held on this board. All of the procedes will go to Justin to help him complete the film. The following is what I have available for this auction. Title of painting: The Artist Medium: Oil on Stretched Canvas Size: 24" X 30" http://artonio7.com/oils/markhayden.jpg with warm regards, Tony |
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Title: Re: Is Oprah a dead horse? Post by LeLimey on Jan 25th, 2007, 5:58am Tony what a lovely gesture. You need to put it on the auctions board hon and set a time scale for it and maybe a starting bid (it might be prudent to "finish" the auction near a payday too LOL) I'd suggest mid Feb as an end time as its too close to the end of the month for you to get a good response this time. Once you've set the auction thread we can post a reminder on this board and keep bumping it Thank you for doing this, I think you're pretty damn not bad and I'm even going to "not pick on you" for AGES! (ten minutes and its backdated ;) ) Helen |
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Title: Re: Is Oprah a dead horse? Post by chewy on Jan 25th, 2007, 7:55am Quote:
Check her teeth. |
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Title: Re: Is Oprah a dead horse? Post by B14CK5H33P on Jan 25th, 2007, 7:27pm You do some incredible work Tony! Very impressive! As far as the 'dead horse' - I won't even post here what I call Oprah because it is very offensive, but exactly how I feel about her after seeing her Nancy Grace-style interview with the Hornbeck's following his abduction. Instead, go after the new horses. Has anyone written The Greg Behrendt (sic) show? Maybe if we get someone lower on the totem pole's interest it will catch the interest of the biggies. Just a thought. Peace, Carl D |
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Title: Re: Is Oprah a dead horse? Post by chewy on Jan 25th, 2007, 7:32pm What do we expect to get out of it? |
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Title: Re: Is Oprah a dead horse? Post by Jackie on Jan 26th, 2007, 6:46am on 01/25/07 at 19:32:14, chewy wrote:
Exposure! Makes sense to me....but what do I know... ::) |
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Title: Re: Is Oprah a dead horse? Post by chewy on Jan 26th, 2007, 6:56am Exposure sure but what will change for sufferers All I would expect is a flood of misdiagnosis. |
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Title: Re: Is Oprah a dead horse? Post by Jackie on Jan 26th, 2007, 7:00am on 01/26/07 at 06:56:32, chewy wrote:
Yep....could lead to some misdiagnosis. Could also lead to some correct diagnosis. I'll say it again......what do I know... ::) |
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Title: Re: Is Oprah a dead horse? Post by artonio7 on Jan 26th, 2007, 7:22am on 01/26/07 at 06:56:32, chewy wrote:
Well, the way I see it is:
and the list can go on and on. I feel that the power of a documentary will work to inform so many more people than a pamphlet buried in a few doctors office waiting rooms. Not that well designed pamphlets aren't useful... they are tremendously helpful. We live in a culture where the audience is more driven by the media. just my 2 cents With warm regards, Tony |
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Title: Re: Is Oprah a dead horse? Post by LeLimey on Jan 26th, 2007, 7:44am As a parent, see #3 over and over and over again. My son is "lucky" because I knew to get him to a neuro - and at first even I hoped it was "nightmares" :-/ If just one more child doesn't have to suffer.. We are all aware that vearious eminent neuro's feel the incidence of CH is much higher than previously thought. We need an Epidemiology study without a doubt but in the meantime, any exposure is good and if one, just one more person get's the correct treatment and gets some relief from this misery it's worth it. Yes there may be misdiagnosis. There will sure as eggs is eggs be a lot of people going to their doctors saying "I think I have clusters" but that is where the neuro and the mri come in. If they too end up getting treatment for whatever it is, CH or otherwise then at the end of the day, everyone's a winner. Even if all we get out of it is people recognising that we probably aren't drunk or high if we get hit in public places, some clearer understanding from friends and family. some validation that we aren't "whining" then THAT is worth alot for me too. Helen |
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Title: Re: Is Oprah a dead horse? Post by chewy on Jan 26th, 2007, 7:56am Quote:
How many Neuros watch Oprah? Quote:
Documentary, yes. Oprah, no. |
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Title: Re: Is Oprah a dead horse? Post by artonio7 on Jan 26th, 2007, 8:05am on 01/26/07 at 07:56:16, chewy wrote:
Sweet! Ok.. Anymore ideas on how we can motivate Ju$tin? From what I've seen so far the clips look pretty good http://www.justinott.com/ and it would be sad to see them sitting on the shelf much longer. All input is appreciated. with warm regards, Tony |
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Title: Re: Is Oprah a dead horse? Post by chewy on Jan 26th, 2007, 8:09am Contact Justin and ask what he needs to complete the project. |
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Title: Re: Is Oprah a dead horse? Post by artonio7 on Jan 26th, 2007, 8:49am on 01/26/07 at 08:09:05, chewy wrote:
Just got off the phone with him... asked him to jump in on the thread. with warm regards, Tony |
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Title: Re: Is Oprah a dead horse? Post by seasonalboomer on Jan 26th, 2007, 11:24am I'm "IN" as long as no one uses the phrase "worst pain known to man"..... :-/ scott |
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Title: Re: Is Oprah a dead horse? Post by jimmers on Jan 26th, 2007, 7:38pm Is Oprah a dead horse? Lets ask Steadman ;;D yimmers |
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Title: Re: Is Oprah a dead horse? Post by Jonny on Jan 26th, 2007, 7:42pm on 01/26/07 at 19:38:00, jimmers wrote:
No, lets ask Gail! Yonny |
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Title: Re: Is Oprah a dead horse? Post by jimmers on Jan 26th, 2007, 7:44pm [quote author=Jonny link=board=general;num=1169679724;start=25#44 date=01/26/07 at 19:42:11] No, lets ask Gail!Is Oprah a carpet muncher? ;;D |
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Title: Re: Is Oprah a dead horse? Post by Jonny on Jan 26th, 2007, 7:58pm on 01/26/07 at 19:44:40, jimmers wrote:
http://www.gifs.net/Animation11/Creatures_and_Cartoons/Game_Characters/Pacman.gif |
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Title: Re: Is Oprah a dead horse? Post by chewy on Jan 26th, 2007, 8:50pm She once did a whole show on a newly discovered dinasaur fossil that scientists somehow determined was a lesbian dinasaur. Called it the Lapalotapus. |
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Title: Re: Is Oprah a dead horse? Post by andrewjb on Jan 26th, 2007, 9:23pm on 01/26/07 at 20:50:50, chewy wrote:
[smiley=laugh.gif], [smiley=laugh.gif], [smiley=laugh.gif]. |
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Title: Re: Is Oprah a dead horse? Post by andrewjb on Jan 26th, 2007, 9:26pm on 01/26/07 at 21:23:30, andrewjb wrote:
[smiley=crackup.gif], [smiley=laugh.gif]. |
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Title: Re: Is Oprah a dead horse? Post by Ree on Jan 26th, 2007, 10:16pm I emailed Oprah about our cause and nothing... not even a blink... I can't believe it either... I guess if one of us does something crazy or insane or jumps in front of a train then she will put us on... its all about the top headlines... not the headache that 80%of the people dont get... we have a better shot at getting a house built from that house show... ree |
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Title: Re: Is Oprah a dead horse? Post by chewy on Jan 26th, 2007, 10:20pm Why do we even need exposure ? What we need to do is educate Docs and fight insurance companies. Thats done from within. |
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