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Title: Got Compassion? Post by Mrs Deej on Nov 11th, 2006, 7:26pm You know when something becomes meaningful enough to you when it goes from your head to your heart to your hand. So please bare with me...it's time I get somethin off my chest....PLEASE know that I'm not writing this to point anyone out. Did I miss something? Aren't we all here for the same reason...support? Whether you are a sufferer or a supporter, coming here is a way of life and/or sanity for many. Listening (reading) to people bitch about others (I know we all don't have to like each other), calling others out (when not at all neccessary), mud slinging, "mines bigger than yours is" attitude, or down right disrespecting others hurts my heart. Are we not all human beings here? Do we not all have feelings of comapssion for anyone in this world anymore? My life on a daily basis at home is not affected physically by this horrible thing, but emotionally with you all it is. I HATE the fact that those on here suffer, knowing that all I can do is listen (and read). I can't contribute meds, I can't contribute tips, I can't contribute an answer. But what I can contribute is the passion to help, be there in the middle of the night, listen, love and NEVER turn my back. Many of you may be rolling your eyes while reading this, but atleast I'm a brave enough woman to open myself up to y'all and let you in so you can understand where I'm coming from. The way my life was going I could have sat back and said, "oh whoa is me..." and wallowed in the bullshit that life was throwing at me, instead I stood up, brushed myself off, (fell in love along the way) and decided to kick it's ass back, pleadging to help others that need more than I do. We can't always choose the situations that life brings us, but we can choose the attitdes we will use to face them. The point I'm trying to make is, we may not be blessed with swift words of wisdom, a million dollars, good health, or a spoon-fed life, but what we are all blessed with around here is each other. Take a moment if you will for me and reflect on your life and what it has thrown you. Now, think of the person/people on this board that have helped you through the moments of the day or your even your life. If what you are doing won't make a difference in five years, it probably doesn't matter now..... I love and support each and everyone of you. Please remember why you are here, what good you do, and how many people your words or actions effect. Respectfully, Stephanie |
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Title: Re: Got Compassion? Post by andrewjb on Nov 11th, 2006, 7:38pm :). rave on mrs. Deej, fight the good fight. andrew. |
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Title: Re: Got Compassion? Post by davyp on Nov 11th, 2006, 8:03pm on 11/11/06 at 19:26:47, Mrs Deej wrote:
I have many things that i would like to say regarding this post but i just cant put it in to words so instead, http://www.cybergifs.com/angels/angelwink.gif Ime glad your watching over me. Thank you Dape :-* |
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Title: Re: Got Compassion? Post by Fredmyyster on Nov 11th, 2006, 8:09pm Wished i knew what brought that on... however, i love you too lil miss <3 Thanx for all that you Both do for us......... |
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Title: Re: Got Compassion? Post by kissmyglass on Nov 11th, 2006, 8:21pm [smiley=bow.gif] [smiley=hug.gif] |
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Title: Re: Got Compassion? Post by broomhilda on Nov 11th, 2006, 8:55pm on 11/11/06 at 19:26:47, Mrs Deej wrote:
TY Steph, words of wisdom from an angel... Big [smiley=hug.gif]'s |
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Title: Re: Got Compassion? Post by Sean_C on Nov 11th, 2006, 9:04pm Thanks Steph ;) Sean................................. |
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Title: Re: Got Compassion? Post by Linda_Howell on Nov 11th, 2006, 9:52pm Who is hurting tonight , and how can I help? This should be on all of our minds every night. |
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Title: Re: Got Compassion? Post by kcopelin on Nov 11th, 2006, 10:20pm Amen, Thanks Steph. Kathy |
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Title: Re: Got Compassion? Post by Cathi04 on Nov 11th, 2006, 11:51pm I've said it before, and this is as good a time as any to reiterate....... CH in itself, causes entirely TOO much pain........why would ANY clusterhead wish another sufferer or supporter any more at all?? Thank you, Steph..great words!!!!!!!!!!1 Cathi |
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Title: Re: Got Compassion? Post by Jimi on Nov 12th, 2006, 12:41am DJ is such a lucky man..............now I want to have HER baby. [smiley=baby.gif] Now it's time for. [smiley=sleep.gif] [smiley=snore.gif] |
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Title: Re: Got Compassion? Post by Jonny on Nov 12th, 2006, 1:11am on 11/11/06 at 19:26:47, Mrs Deej wrote:
Touche', Mrs Deej :-* |
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Title: Re: Got Compassion? Post by BB on Nov 12th, 2006, 2:09am Thank you so much Steph :-* You have a special knack for touching peoples heart with your sincerity and love and care, no wonder DeeJ is head over heels in love with you :) Somehow reading your post reminded me of DeeJ's signature: " adversity doesnt build character, it reveals it ". You have shown to be a wonderfully caring lady, with courage and integrity, coupled with a determination to make a difference in peoples lives. I am honoured to have you as a cyber sister. Sincerely, Annette |
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Title: Re: Got Compassion? Post by LeLimey on Nov 12th, 2006, 4:57am and the award for post of the year goes to Steph - now THIS needs to be pinned please Deej, Stephs post at least not the rest of ours. Thank you Stephie love Helen x |
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Title: Re: Got Compassion? Post by bothofus on Nov 12th, 2006, 8:00am Well said Steph. Your post should be required reading before posting. I know where you are coming from. Carl |
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Title: Re: Got Compassion? Post by davyp on Nov 12th, 2006, 9:35am http://www.blogadorn.com/graphics/friends/friend00004.jpg |
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Title: Re: Got Compassion? Post by kayarr on Nov 12th, 2006, 10:32am Absolutely correct and nicely but firmly put! Being on the supporter end of this thing I know that sometimes lack of sleep and ongoing pain cause some grumpiness. We do have some limits at our house and just because a person is tired and cranky it doesn't give license to mistreat someone else. If we treat even family members the way we would a complete stranger (and ya'all feel very much like family here;) social rules would seldom be breached. No one is perfect! Love each other through the slips and forgive the way we hope to be forgiven when we goof up. (and it is WHEN we goof up) Kimberly |
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Title: Re: Got Compassion? Post by Mrs Deej on Dec 11th, 2006, 8:43pm Just thought maybe a refresher course was in order..... |
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Title: Re: Got Compassion? Post by Jonny on Dec 11th, 2006, 8:53pm Again.....Touche' :-* |
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Title: Re: Got Compassion? Post by catlind on Dec 11th, 2006, 10:35pm A friend is someone who reaches for your hand and touches your heart. Steph touches hearts wherever she goes. I am blessed to call her friend, and the news Deej and Steph gave us all should be cause for much joy and happiness, it should remind us at this time of year (and all year) that there are people who do not have a blessed life. CH sucks. No question. Many of us have other health issues as well. Instead of questioning the validity of a person or their plights, read Steph's post again. We all suffer the same thing - lets work together to make each others lives as joyous as can be in between the excquisite pain - you see the in between is excquisite pleasure if you know where to look. Deej and Steph are a shining example of that truth. Thanks Steph, you are a true angel. Many times our friends are angels in disquise, and you are certainly one. Cat |
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Title: Re: Got Compassion? Post by The mad viking on Dec 12th, 2006, 5:15am WOW This message got straight to my heart Steph. Deej and Steph are a shining example of what the word FRIENDS means in my eyes as many of you are.She just put the words to it in an exelent way The very best from Svenn |
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Title: Re: Got Compassion? Post by aprilbee on Dec 12th, 2006, 9:27am We all love you too! Thanks for putting into words what most of us just roll our eyes at and go on to the next thread....you're a blessing here Steph! :-* |
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Title: Re: Got Compassion? Post by Mattrf on Dec 12th, 2006, 11:07am Well put Steph. The pain is a monster that invades every inch of our lives and yes makes us angry and some times we lash out, but lashing out at a fellow sufferer is wrong, don’t we have enough pain without someone inflicting more? There have been many times that I have felt baited on this site but have resisted the urge to strike back and have simply ignored the person looking for a fight. Like others I am here to give and receive support nothing more or less and truly do not understand those that seem hell bent on finding a fight, as if that will make them feel better or there pain less intense, last time I checked out bursts of anger does not make pain go away and if you are on the receiving end it only makes it worse. I actually feel sorry for those that are this way, it just seem they have a lot of hate in them and that can’t be a good way to live especially topping it off with the pain that we live with, I don’t think for a second that it’s the pain that makes them this way, but it is just how they are and for that they have my sympathy even if they don’t wont it. Matt |
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Title: Re: Got Compassion? Post by phillyfrank on Dec 12th, 2006, 12:25pm :)having someone there to just listen,can be just as good as having someone there to hold your hand, when times are tough. |
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Title: Re: Got Compassion? Post by seasonalboomer on Dec 12th, 2006, 1:28pm Yes, Steph, I do have compassion. But, I also know that some of the most important and positive changes in my life came when someone called me out and challenged me to think differently than I was showing I was thinking at the time. At the time many of these folks might not have been first in my heart, but today, for each person who played the role of challenging me to think differently when I wasn't ingesting the full picture, I thank them. That includes some of the folks on this site. Without them calling me and others out I probably would still think that "gutting out" CH is a valid approach. Instead, because of the tough love that exists around here I've moved from simply being a victim/sufferer of CH to being an active manager of my condition -- largely in control of my situation. I love the love that flows around here. It is essential and everywhere. But, I would present the possibility that love appears in a lot of forms here at CH.com. :-* Scott |
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Title: Re: Got Compassion? Post by roy21302 on Dec 12th, 2006, 3:03pm Steph, thanks for those speciel words. Cheers Roy [smiley=bow.gif] [smiley=bow.gif] [smiley=hug.gif] |
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Title: Re: Got Compassion? Post by Kingjames1 on Dec 12th, 2006, 4:28pm Yeah, well, you didn't show much compassion for my football team this past weekend, little missy. :( KJ :-* |
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Title: Re: Got Compassion? Post by Mrs Deej on Dec 12th, 2006, 10:57pm LMAO..... I showed you compassion....compassion to KICK SOME ASS!!!!!!!!! :P :-* |
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Title: Re: Got Compassion? Post by brewcrew on Dec 13th, 2006, 7:25am on 12/12/06 at 22:57:06, Mrs Deej wrote:
Maybe that would be "compression." Compression from boot to ass. ;;D |
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Title: Re: Got Compassion? Post by dave..... on Dec 13th, 2006, 8:17am compassion ?? whats that... i thought i could find some here...... insted i got insulted and made fun of........ because in a moment of weakness i opened up to someone in the chat room.......... my mistake |
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Title: Re: Got Compassion? Post by brewcrew on Dec 13th, 2006, 8:27am on 12/13/06 at 08:17:04, dave..... wrote:
So, you judge an entire group of people based on the actions of one or a few? They have a word for that. You've obviously stuck around. Continue to do so. You'll find we don't all have teeth and claws. |
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Title: Re: Got Compassion? Post by dave..... on Dec 13th, 2006, 8:41am i am sure there are some great people in here...... thats why i am still here...... |
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Title: Re: Got Compassion? Post by brewcrew on Dec 13th, 2006, 8:52am on 12/13/06 at 08:41:33, dave..... wrote:
Excellent. It took me two years to realize that. As far as I'm concerned, you are welcome anytime. The beast shows no prejudice, and nor should we. |
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Title: Re: Got Compassion? Post by Charlie on Dec 16th, 2006, 2:05pm Compassion isn't rare around here but it's nice to see it at the surface. I still can't get over reading stuff from people that don't need to explain a thing about the beast. It's part of why I stay. It's unique and we owe you and.....and that uh other guy a lot. 8) Charlie |
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Title: Re: Got Compassion? Post by noranate on Dec 16th, 2006, 11:36pm I'm new here and i,m not sure what went on to cause that post but all I know is that in the short time I have been coming here here I have found so much compassion and support that it has really helped me through some tough times. I rate right up there at 10 on the kip scale and go into full blown panic attacks during my episodes and on the day of my first posts I was able to get great advice and support as to how to get through those panic attacks so I could use my oxygen correctly and try and rid myself of the thoughts of hurting myself. To anyone here who may be acting negative towards others or who is nitpicking that "I'm worse than you" there is no time for that. We all suffer through this and it all sucks. We need each other almost to the point of desperation and the slightest infighting just sends us backwards.Even if one person cant give words of advive than words of encouragement can go along way in making someone more comfortable in dealing with what the have. Just knowing you people are out there is like knowing I finnally have a shoulder to lean on and although I cant put a face to the words I will learn to love you guys like a best friend because I know you care. Anyway thats enough of the newbee spouting off. The beast is real but so is the compassion we have for each other so lets keep it that way. Merry christmas and happy holidays to everyone. Peace. Peter |
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Title: Re: Got Compassion? Post by hopefullyhelpfull on Dec 17th, 2006, 7:40pm Are you happily married?? Is that smile forced,doesnt look it but "gotta ask"i know this ace guy,own teeth ..........no seriously nice thing to post take care |
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Title: Re: Got Compassion? Post by georgej on Dec 18th, 2006, 2:57am on 12/17/06 at 19:40:21, hopefullyhelpfull wrote:
I'm trying, Steph.... >:( I'm really trying...... Best, George |
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Title: Re: Got Compassion? Post by boybath on Dec 18th, 2006, 9:45am I sorta understand where you are coming from there is alotta agression here more than you find in the UK site. And sometimes it does get in the way but unless we are able to discuss important issues of the day then we are guilty of condoning these actions by our silence. Now I know sounds alittle hard but so many issues affect us and others in the world. what im saying is Its great to discuss accept occassionaly we will differ just keep it impersonal. cheers mad from bath |
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Title: Re: Got Compassion? Post by BMoneeTheMoneeMan on Dec 18th, 2006, 10:59am on 12/17/06 at 19:40:21, hopefullyhelpfull wrote:
Uh, dude. That happily married woman is our friend. And you know what? Her Big Lug of a Husband is also our friend. Be careful with your tongue. I don't think anyone here finds that funny. |
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Title: Re: Got Compassion? Post by brewcrew on Dec 18th, 2006, 11:19am on 12/18/06 at 10:59:57, BMoneeTheMoneeMan wrote:
And I thought nobody here even understood it. [smiley=huh.gif] |
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Title: Re: Got Compassion? Post by alchemy on Dec 18th, 2006, 2:40pm on 12/17/06 at 19:40:21, hopefullyhelpfull wrote:
Steph is someone near and dear to us,she's always here with a shoulder to lean on or an ear to bend. That was a pretty punk ass thing to write. Maybe you should know who you posting about before you let your fingers go for a walk on the keyboards. |
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Title: Re: Got Compassion? Post by Jonny on Dec 18th, 2006, 5:22pm on 12/17/06 at 19:40:21, hopefullyhelpfull wrote:
Do you realize that Steph owns this website and will delete your sorry ass if she feels like it? ;;D....LOL |
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Title: Re: Got Compassion? Post by Mrs Deej on Dec 18th, 2006, 6:04pm LMAO!!!! WOW!! Thanks gentlemen!!! I knew I could count on you to have my back!!! I saw this last night, was VERY hormonal, and decided to stay Christian and let you all have some fun. Poor soul, he'll never know what hit him....LOL!!! He just pissed off the wrong bitch!! Thanks boys!!!! :-* ;) :-* |
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Title: Re: Got Compassion? Post by Guiseppi on Dec 18th, 2006, 6:14pm I read it about a dozen times.....I'm not sure if it's that British "dry humor" that I never seem to get, given the title of the post I can't believe he was serious. Like Linda, I sometimes give too much benefit of the doubt but I truly don't think he meant to be offensive! Either way "Hopefullyhelpful," a private IM to Steph to apologize and you can move forward! Guiseppi |
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Title: Re: Got Compassion? Post by noranate on Dec 18th, 2006, 7:16pm Man I thought this web site was for giving out support for cluster headache sufferers. I wish all the not a very nice persons with the negative shit to say and the shitty attitudes to spread around would dissapear so we all could get back to what we are here to do. >:( Our Energy could be spent on alot better things like convincing the medical community that wahat we are dealing with is real and to stop looking at us like we are babies. Any one who disagress with me I would love to get into a debate. |
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Title: Re: Got Compassion? Post by Redd715 on Dec 18th, 2006, 7:32pm We are here to support each other. But we are also family, and like any other family there is going to fights and disagreements between siblings. We are a protective bunch too. One day you could be getting ripped on by your sister or brother, and the next they've mailed you a card or gift. We are a very protective bunch too. Trolls and snake oil salesmen get whopped up long side the heads. One thing we detest is anyone coming here and trying sell false hope in any form. The person who chews your arse one day will be the first to come to your aid when you are in desperate need. Be it a link, an O2 mask overnighted by FedEx. Humans...we're all human, with faults and warts, but we're family, and in the CH world, we're all we got. |
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Title: Re: Got Compassion? Post by JeffB on Dec 18th, 2006, 7:36pm [smiley=argue.gif], I don't think we need that here. There will always be a few who speak before thinking. Just hang around and pick up what you can! Hope you have or find a Doc. that works with you and your pain! |
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Title: Re: Got Compassion? Post by JeffB on Dec 18th, 2006, 7:38pm For the record......I don't have warts anymore. But I did notice this barnacle looking thing on lil JeffB. Last time I go to the Bunny Ranch!!!!!!! |
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Title: Re: Got Compassion? Post by B14CK5H33P on Dec 21st, 2006, 1:47pm Very nice post Steph, and I totally agree. I, however know better than to vent on here anymore than I already have. I've come to realize that if you bare your heart to too many, there will be a few that will try to rip it out. I've only stuck around because I do have some good friends here. I also have a few people who hate me. At this point in my life, I could give two shits in the wind less. I am a more compassionate person towards others after having been chronic so long, and try to help anyone I can. I also try to make it a point to stay out of political and religious threads, because they always start some sort of argument that I could care less about. It's all moot to me. And if no one likes it, "try walking in my shoes..." Peace, Carl D PS. HopefullyNegativeful - Is ignorable to me. ::) |
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Title: Re: Got Compassion? Post by cootie on Dec 23rd, 2006, 10:16pm For every positive there's a negative........it's everywhere and in everything. I learned to 'hate' but have learned to 'love' comeing here. Love/hate ying/yang Pam |
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Title: Re: Got Compassion? Post by cootie on Dec 31st, 2006, 3:27pm Did I kill this thread or jus end it........hopein I don't get thread killer of the year award Pam :-/ I'm sooooooo bad ! |
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Title: Re: Got Compassion? Post by LindaLou on Jan 1st, 2007, 10:27am AMEN, Mrs. Deej .. well said!!!!!!!!!!!!!! It is amazing how God can take our being thankful for even the smallest good thing, or kind word and cause us to turn the corner to feeling better. You are a treasure. :) |
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Title: Re: Got Compassion? Post by Linda_Howell on Jan 1st, 2007, 11:11am By any chance would you be the LindaLou who just happened to give birth to a bald headed zipperhead that we all know and love around here? ;) the other Linda |
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Title: Re: Got Compassion? Post by Mrs Deej on Jan 1st, 2007, 4:47pm on 01/01/07 at 11:11:48, Linda_Howell wrote:
That would be the one.... ;) |
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