Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2006 General Board Posts >> Input appreciated
        
(Message started by: Callico_Kid on Dec 4^th, 2006, 10:06pm)

Title: Input appreciated
Post by Callico_Kid on Dec 4^th, 2006, 10:06pm

Recently I have noticed a trembling in my right hand just prior to, during, and after an upper K hit. It seems the harder the hit the stronger the tremors. They can appear as much as 10-15 minutes before the hit, but always during a shadow. In some ways they resemble the tremors my mother has with Parkinson's, but I don't have the other symptoms. Frankly, I'm getting concerned about them. Does anyone else experience this, or am I alone. I've gotta find a new neuro, and cant get in for about three months, and don't have the money for it either, so I'm trying to do some research on my own first to try to limit the expense when I do get in to see one,

Thanks,
Jerry

Title: Re: Input appreciated
Post by floridian on Dec 4^th, 2006, 10:52pm

I get a tingling in the foot or shin when I am in cycle - mild tremors with that. I think it is probably more related to CH causing extra nerves to fire than anything else.

Title: Re: Input appreciated
Post by purpleydog on Dec 4^th, 2006, 11:11pm

I've noticed I get a mild trembling during high K hits too, not much though. I tend to agree with floridian, but please, do get it checked out on your next neuro visit. Hope you get a good one.

Title: Re: Input appreciated
Post by sailpappy on Dec 4^th, 2006, 11:32pm

;) ;)Hello,
I don't remember discussing this issue in some time!
I also get serious right side tremors, usually in the right leg first and then depending on the hit, sometimes gravitates into the right arm and shoulder.
My tremors developed in about the 7th or 8th year and gradually got worse. or more pronounced, for a better description.
In my case: I believe the tremors are a subconscious coping mechanism that allows me to vent pain without effort on a conscious level? That's my story and I'm sticking to it! Pappy ::)
http://home.comcast.net/~jhallahan2/wsb/media/299782/site1269.gifhttp://home.comcast.net/~jhallahan2/wsb/media/299782/site1269.gifhttp://home.comcast.net/~jhallahan2/wsb/media/299782/site1269.gifhttp://home.comcast.net/~jhallahan2/wsb/media/299782/site1269.gifhttp://home.comcast.net/~jhallahan2/wsb/media/299782/site1269.gifhttp://home.comcast.net/~jhallahan2/wsb/media/299782/site1269.gif

Title: Re: Input appreciated
Post by BB on Dec 5^th, 2006, 6:50am

Hi Jerry,

Is the tremor on the the same side as your CH ? Is it present only before a cluster hit? Is it still there after the hit? Can you stop the tremor if you try? Is it only on the hand/fingers or is it the whole limb? Is sensation to touch and temperature still normal?

Annette

Title: Re: Input appreciated
Post by LadyElaine1 on Dec 5^th, 2006, 7:31am

Jerry what kind of meds do you take? I have head tremors.
I can't take certain drugs or they cause them to be worst.
I don't know if my head tremors are from clusters, or from a mass I have on my adrinal glan. I do know some meds cause them.

Title: Re: Input appreciated
Post by Karla on Dec 5^th, 2006, 8:27am

I have not had any tremors. I will pray for you to have peace of mind and that you find some good answers to your questions and that it is nothing serious.

Title: Re: Input appreciated
Post by Margi on Dec 5^th, 2006, 10:13am

Hi Jerry,
Sorry to hear you've had this scary new development. Of course, you should get it checked but... Mike gets that too, just so you know. It usually only starts when he's been in cycle for a long time and it's only started happening in the last two cycles. (The last two were his longest ever - thanks to prescription meds - and they were 6 and 9 months, respectively. The shaking started well after the half-way point in both cycles and it did start for him pre-hit as well.)
Elaine's right to question what meds you're using. Lithium is a big culprit for giving the shakes.

Not fun, Jerry - you are prayed for, my friend.

Margi

Title: Re: Input appreciated
Post by Callico_Kid on Dec 5^th, 2006, 10:17am

Thanks for the input!

Currently on no meds. Used Verap and Lithium for a while, but that has been over a year ago, and the tremors didn't start until about six months ago.

jc

Title: Re: Input appreciated
Post by Margi on Dec 5^th, 2006, 10:20am

not sure how long Lithium hangs around in your system, Jerry - but it sure took a long time for Mike to get over the side effects from it. A few months, anyway. :-/

Still does sound like you should mention it to a doc, even a G/P?

Title: Re: Input appreciated
Post by Guiseppi on Dec 5^th, 2006, 10:30am

I get the Parkinsons tremors when I've been on the lithium for a couple of weeks. It doesn't vary with headache pain, it's pretty much a constant while I'm at the 1200 mg lithium level. I'd sure wanna see a doc about that just for the peace of mind.

Guiseppi

Title: Re: Input appreciated
Post by E-Double on Dec 5^th, 2006, 10:57am

on 12/05/06 at 10:30:22, Guiseppi wrote:

yup.signalled to me that I had lith. toxicity.sure enough, I did!

Title: Re: Input appreciated
Post by tanner on Dec 5^th, 2006, 11:36am

Well Jerry it sounds like enough of us get some form of this so that you should not add to your worries until you can get it checked. I'm kind of glad you asked the question. Saves me from worrying about it.

I like Pappy's read on it :) of course I don't agree with it, but I like it because I know what a gentle soul he is. I vent in much more spectacular fashions ;).....Tim