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        New Message Board Archives >> 2006 General Board Posts >> Are you faking your CH ... ?
        
(Message started by: floridian on Oct 26th, 2006, 8:56pm)
Title: Are you faking your CH ... ?
Post by floridian on Oct 26th, 2006, 8:56pm
... the way Michael Fox is faking his parkinson's disease?

http://www.youtube.com/watch?v=a9WB_PXjTBo

Hard to believe the lengths that some people go to.
Title: Re: Are you faking your CH ... ?
Post by Mrs Deej on Oct 26th, 2006, 8:59pm
You're kidding me, right?


:-X
Title: Re: Are you faking your CH ... ?
Post by floridian on Oct 26th, 2006, 9:01pm
No, Rush Limbaugh said he was either faking it, or didn't take his meds on purpose. And O'Reilly on Fox and his visiting Republicans are defending the comments.
Title: Re: Are you faking your CH ... ?
Post by Mrs Deej on Oct 26th, 2006, 9:04pm
Yeah, I heard what Rush said, but if you watched the evening national news tonight, you would have seen the interview that him and Katie Couric did.  He said that he was actually over medicated.

The whole situation is very sad...

The comment that Rush made was disgusting...

Just my opinion...
Title: Re: Are you faking your CH ... ?
Post by Jonny on Oct 26th, 2006, 9:05pm
Give it a rest, Flo  ::)
Title: Re: Are you faking your CH ... ?
Post by Charlie on Oct 26th, 2006, 9:08pm
Tough ad but no one fakes it and basically, a good sign that it's so is the far more crass last ditch "no fair" response by these fair and balanced commentators.

Charlie
Title: Re: Are you faking your CH ... ?
Post by chewy on Oct 26th, 2006, 9:19pm
Fox has stated that there have been times when he has stayed off his meds in order to demonstrate to politicians the severity of his condition.

Much like many of us have volunteered to take a hit to educate neuros.

Limbaugh is no one to talk about taking or not taking meds.
Title: Re: Are you faking your CH ... ?
Post by jimmers on Oct 26th, 2006, 9:20pm
Yeah Geeze,

Heaven forbid someone with that type of affliction trying to get some press and maybe try to get some more funding and do some good for mankind.

Would you feel the same if he had CH's and was filmed on national TV during an attack? Or would you chastise him for not doing a trex. shot before the filming because you wouldn't want him overacting and not let people see what these things can do to people.

Probably would have booed Jesus when he dropped the cross for the third time to Huh?
Title: Re: Are you faking your CH ... ?
Post by brewcrew on Oct 26th, 2006, 10:01pm
You caught me. I fake my clusters. I enjoy taking triptans and verapamil and lithium and methysergide. Gotta dig those side effects.

I also enjoy waking up four or five times a night, sucking down tank after tank of O2 and walking around like a zombie for months at a time for lack of sleep.

Now if I could just get 30 or so politicians to pay me for an endorsement. Where do I sign up for that?
Title: Re: Are you faking your CH ... ?
Post by Tata on Oct 26th, 2006, 10:30pm

on 10/26/06 at 21:01:14, floridian wrote:
No, Rush Limbaugh said he was either faking it, or didn't take his meds on purpose. And O'Reilly on Fox and his visiting Republicans are defending the comments.


O'Reilly on the Radio Factor said today that he disagrees with what Rush said about Fox--he said he believes Fox has a right to appear in the ads any way he chooses. He also said he believes that Rush has the SAME right to state what he believes-- I NEVER heard O'Reilly defend one or the other--I DID hear him defend their right to say what they want.  
Title: Re: Are you faking your CH ... ?
Post by Carl_D on Oct 26th, 2006, 11:21pm
Pure and simple - Rush Limbaugh is a Hillbilly heroin idiot!!!

However, Michael J. Fox is one of my heroes. I used to watch "Spin City" all the time, and before he announced he had Parkinsons, I knew something was up because he kept his hand in his pocket ALOT, and back then displayed a few light symptoms. It was after he gave up the show he came out with the news. That has been some time now, and his symptoms have progressed. He was on "Boston Legal" this season and they said he struggled to try and control his movements, and it took a long time to film his segments.

Another name for Limbaugh? Oxy-Moron!!!

Peace,
Carl

PS - Once I get the webcam setup to record, I plan to forego abortives a few hits to video for educational purposes on a few sites. I plan to do some educational stuff for Youtube.com including one explaining what CH is titled "Suicide Headache" and also a commercial for my radio show.
Title: Re: Are you faking your CH ... ?
Post by Sean_C on Oct 26th, 2006, 11:27pm
http://www.youtube.com/watch?v=whGbRBLDrOo&NR
Title: Re: Are you faking your CH ... ?
Post by Lizzie2 on Oct 26th, 2006, 11:45pm
I don't get it, Jonathan.  Are you actually saying that you believe the Republicans and think that Fox is faking his Parkinson's???

I would believe if he'd not taken doses of the meds to show people just how bad it is, but why would he fake such a thing?  Why fake it and have to take levadopa and all that shit?

I don't believe he's faking...

Do you really believe that crew?

However, I don't like the ad there as to me it seems like exploitation of a condition for political means.  I know the stem cell research is very important, but I don't like how the condition is used like that...

Sad...
Title: Re: Are you faking your CH ... ?
Post by vig on Oct 27th, 2006, 12:12am
Rush is a big fat A-hole

well, he's not big and fat anymore, but he's still an A-hole.
Title: Re: Are you faking your CH ... ?
Post by sandie99 on Oct 27th, 2006, 2:28am
I never fake my ch. >:(

Sanna
Title: Re: Are you faking your CH ... ?
Post by Gator on Oct 27th, 2006, 2:34am
1st, Rush never said Fox was faking his parkinson's disease.  He said Fox either did not take his meds or was acting in the McCaskill ad.  As it turns out, Fox admits to overmedicating which apparently can cause the symptons to worsen.

2nd, The Fox ad was a paid political ad.  Fox overmedicated and gave the politicians what they paid for.  What is truly sad and disgusting is that the politicians used Fox and his condition in an attempt to gain political support.  

When a person puts on the gloves and steps into the political ring, he or she should expect to get hit.  The fact that that person has some disease or condition does not give them protection from question or counter point.

Fox opened himself up for criticizm when he appeared in the political ad and took steps to appear as pathetic as possible in the process.

As far as the stem cell issue, adult stem cells are already being used to treat many disorders.  Embryonic stem cells thus far have yet to be used to treat any disorder and have shown disastrous results when they were used in human patients.  So the question is, why the mad rush to cross all legal, moral, ethical and religious lines to create and kill babies to obtain embryonic stem cells that do not work when adult stem cells have none of the legal, moral, ethical or religious issues and they actually do work?
Title: Re: Are you faking your CH ... ?
Post by BarbaraD on Oct 27th, 2006, 8:29am
My grandfather had Parkinsons and it's a horrible disease. I don't blame Michael J. for doing anything he can to promote stem cell research if there's any hope. It's nothing any of us wouldn't do to promote CH.

Personally I think RUSH should be taken out hung and quartered - he's a menace to society (in my opinion). Right now I'm having coffee with Imus in the Morning - at least he has the politicians on and calls them crooks to their faces.

As far as the political ads go -- they've gotten way outta hand. What happened to the ISSUES??? This is the dirtiest campaign I can ever remember.

I've written political ads for "heated" campaigns and NEVER - not once - did we say anything bad about our opponents (even when they were slinging mud at us) - and we WON.

This is just a subject that hacks me off...

Hugs BD
Title: Re: Are you faking your CH ... ?
Post by maffumatt on Oct 27th, 2006, 8:36am

on 10/27/06 at 00:12:43, vig wrote:
Rush is a big fat A-hole

well, he's not big and fat anymore, but he's still an A-hole.


All the viagra got his weight down.............worked his ass off
Title: Re: Are you faking your CH ... ?
Post by brewcrew on Oct 27th, 2006, 8:52am

on 10/26/06 at 23:45:49, Lizzie2 wrote:
Do you really believe that crew?

No. It was a piss-poor attempt at satire.

I should stick to straight insults. ;)
Title: Re: Are you faking your CH ... ?
Post by floridian on Oct 27th, 2006, 8:57am

on 10/27/06 at 02:34:28, Gator wrote:
As far as the stem cell issue, adult stem cells are already being used to treat many disorders.  Embryonic stem cells thus far have yet to be used to treat any disorder and have shown disastrous results when they were used in human patients.  So the question is, why the mad rush to cross all legal, moral, ethical and religious lines to create and kill babies to obtain embryonic stem cells that do not work when adult stem cells have none of the legal, moral, ethical or religious issues and they actually do work?


True, adult stem cells are being used for some things. But they are inherently more limited; they are not able to reprogram themselves as any type of tissue the way that embryonic stem cells can.

There is no "mad rush to cross all moral, ethical, and religious lines."   Blastocytes that are created for in-vitro fertilization are being discarded every day when a decision is made not to implant them.  Those could be used for embryonic stem cell research.  Instead of allowing those blastocytes to be used to benefit humanity, they must be destroyed to cater to the 'just say no' crowd.


You said that Michael Fox "opened himself up" to this.  Sure, just like the young men that reported that Congressman Foley was soliciting them - they told the truth and 'opened themselves' to Rush and Hannity and others calling them 'monsters' or 'leading-on' Foley or luring the Congressman into a trap.    Do you think all is fair in love and politics, or do you think that somewhere there a line of decency that should be respected?  
Title: Re: Are you faking your CH ... ?
Post by Mrs Deej on Oct 27th, 2006, 9:36am

on 10/27/06 at 08:57:17, floridian wrote:
Do you think all is fair in love and politics, or do you think that somewhere there a line of decency that should be respected?

Shouldn't there be a line of decency in everything we chose to do?
Title: Re: Are you faking your CH ... ?
Post by mynm156 on Oct 27th, 2006, 9:41am
Dude MJF OFTEN doesnt take his meds just for shows like this to demonstrate to the general public how bad this can be!  Damn dude the guys has Parkensons and Y would you listen to a DRUG addict like Rush Windbag anyway?
Title: Re: Are you faking your CH ... ?
Post by Bob P on Oct 27th, 2006, 10:10am
I think a lot of people here are faking CH just because they need to belong.
Title: Re: Are you faking your CH ... ?
Post by Kevin_M on Oct 27th, 2006, 10:28am

Quote:
I think a lot of people here are faking CH just because they need to belong.



I'm just hanging out for awhile to see the photoshopped squooshies of the Bob P pics in San Diego.


;)
Title: Re: Are you faking your CH ... ?
Post by rickyshot on Oct 27th, 2006, 10:37am
NOthing like faking CH I am sure. Everyone wants to be a head banger. Why I acutally love to roll off the bed or slide down the stairs. I wish they would build an extra flight of steps. I could really build momentum.

You know herion can burn a few brain cells. Judging by the way Russ L acts, he must have taken a whold lot of that shit. .

Yeah I could see ol Russ at the cross of Christ screaming with the others Save yourself if you are King of the Jews>

He is an not a very nice person...........

BTW I don't think we would even need to take less meds or none at all for drama effect of CH. ONe small hit is enough never mind a kip 10.
Title: Re: Are you faking your CH ... ?
Post by rickyshot on Oct 27th, 2006, 10:38am
Oh wow the sight would not let me type a s s hole instead of not very nice person. Not very nice person is an understatement. WE can type the word fuck but not a ss hole.  [smiley=laugh.gif]
Title: Re: Are you faking your CH ... ?
Post by georgej on Oct 27th, 2006, 10:47am

on 10/27/06 at 10:10:20, Bob P wrote:
I think a lot of people here are faking CH just because they need to belong.


I'm just here for the recipes.   ;)
Title: Re: Are you faking your CH ... ?
Post by Gator on Oct 27th, 2006, 12:35pm

on 10/27/06 at 08:57:17, floridian wrote:
True, adult stem cells are being used for some things. But they are inherently more limited; they are not able to reprogram themselves as any type of tissue the way that embryonic stem cells can.

That's not exactly true.  Adult stem cells have been harvested from various sources and converted into other types of cells in the treatment of nerve, brain, muscle and other injuries.  For now, the possibilities of embryonic stem cells is just theory.  Scientists have yet to be able to control what they grow into or regulate their growth, which has led to some pretty disastrous results, so far.  

There is no "mad rush to cross all moral, ethical, and religious lines."   Blastocytes that are created for in-vitro fertilization are being discarded every day when a decision is made not to implant them.  Those could be used for embryonic stem cell research.  Instead of allowing those blastocytes to be used to benefit humanity, they must be destroyed to cater to the 'just say no' crowd.

The problem comes in when the situation changes from using existing blastocytes that were aborted for whatever reason, to harvesting the sperm and egg cells for the specific intention of creating embryos for the purpose of killing them to extract stem cells.  It all really comes down to peoples' beliefs in when does a baby become a baby.  At what stage of development does life gain value as a human being and therefore become entitled to live?  Society as a whole has yet to agree on this issue.

You said that Michael Fox "opened himself up" to this.  Sure, just like the young men that reported that Congressman Foley was soliciting them - they told the truth and 'opened themselves' to Rush and Hannity and others calling them 'monsters' or 'leading-on' Foley or luring the Congressman into a trap.    Do you think all is fair in love and politics, or do you think that somewhere there a line of decency that should be respected?  


Don't get me wrong.  I like Michael J. Fox as an actor and respect the work he does for Parkinson's Disease.  I can only aspire to reach as many people as he has in the name of Cluster Headaches.  When Fox entered the political arena and took sides in a political fight, then he needs to be ready to take what comes.  Opposing opinions are allowed.  The politicians are trying to hide behind Fox and take potshots at the competition, believing no one should shoot back because Fox has some disease.  It's like the politicians thought they could use Fox as a "Human Shield" against controversy and that is reprehensible.

I believe, we should adhere to some rules of common decency - on BOTH sides of the issue.  The rules can't be one way for one side and different for the other.
Title: Re: Are you faking your CH ... ?
Post by Giovanni on Oct 27th, 2006, 12:38pm

on 10/27/06 at 02:34:28, Gator wrote:
1st, Rush never said Fox was faking his parkinson's disease.  He said Fox either did not take his meds or was acting in the McCaskill ad.  As it turns out, Fox admits to overmedicating which apparently can cause the symptons to worsen.

2nd, The Fox ad was a paid political ad.  Fox overmedicated and gave the politicians what they paid for.  What is truly sad and disgusting is that the politicians used Fox and his condition in an attempt to gain political support.  

When a person puts on the gloves and steps into the political ring, he or she should expect to get hit.  The fact that that person has some disease or condition does not give them protection from question or counter point.

Fox opened himself up for criticizm when he appeared in the political ad and took steps to appear as pathetic as possible in the process.

As far as the stem cell issue, adult stem cells are already being used to treat many disorders.  Embryonic stem cells thus far have yet to be used to treat any disorder and have shown disastrous results when they were used in human patients.  So the question is, why the mad rush to cross all legal, moral, ethical and religious lines to create and kill babies to obtain embryonic stem cells that do not work when adult stem cells have none of the legal, moral, ethical or religious issues and they actually do work?


Oh, I see another Democratic Conspiracy.   [smiley=laugh.gif][smiley=laugh.gif]
Title: Re: Are you faking your CH ... ?
Post by Gator on Oct 27th, 2006, 12:50pm

on 10/27/06 at 12:38:57, Giovanni wrote:
Oh, I see another Democratic Conspiracy.   [smiley=laugh.gif][smiley=laugh.gif]


Not so much a conspiracy as just plain bad form using Fox as a human shield to protect them from criticizm.  
Title: Re: Are you faking your CH ... ?
Post by fubar on Oct 27th, 2006, 1:17pm
Flo,

You are a *perfect* example of a spoon-fed democrat.  You believe you know what Rush said because your media fed it to you.  If you cared enough to get that upset about it, then maybe you should care enough to find out what was really said, and more importantly, what it was about.  Put some original thought into your media consumption and maybe you'll stop being a meat puppet.

-Fu
Title: Re: Are you faking your CH ... ?
Post by floridian on Oct 27th, 2006, 1:18pm

on 10/27/06 at 12:35:22, Gator wrote:
1st, Rush never said Fox was faking his parkinson's disease.  He said Fox either did not take his meds or was acting in the McCaskill ad.  As it turns out, Fox admits to overmedicating which apparently can cause the symptons to worsen.


Acting? Whe Rush said "it's purely an act" wasn't it clear that he meant it was pretend or fake?

And Rush did a physical imitation of Fox as well - I suppose  he meant well by that?  http://www.youtube.com/watch?v=xhtYk5crxVY

And where did Fox admit to purposefully overmedicating? He didn't.  Although the fools defending Limbaugh have siezed on his words and twisted them:


Quote:
In a CBS Evening News interview with Katie Couric on Thursday, Fox explained that the effects of his medication are hard to predict: "I just take it and it kicks in when it kicks in. Sometimes it kicks in too hard and then you get what's called dyskinesia, which is that rocking motion."

When Couric said Limbaugh had suggested Fox intentionally skipped his medication to increase his symptoms and appear more sympathetic, the actor said, "The irony is that I was too medicated and was dyskinesic. Because the thing about being symptomatic is that it's not comfortable. No one wants to be symptomatic – it's like wanting to hit yourself with a hammer."


If he took less medicine he would not have been fidgety - he would have been immobilized.  The simple fact is, that someone with intermediate to advanced parkinson's is never going to look and act normal, no matter what they do.  



Quote:
That's not exactly true.  Adult stem cells have been harvested from various sources and converted into other types of cells in the treatment of nerve, brain, muscle and other injuries.  For now, the possibilities of embryonic stem cells is just theory.  Scientists have yet to be able to control what they grow into or regulate their growth, which has led to some pretty disastrous results, so far.  


Embryonic stem cells can ONLY be a theory if it isn't funded, or if it is criminalized, as people are trying to do in Missouri.  Disasterous results?  Isn't that the road that most medical research goes down to get to a better treatment?  What is the fatality rate for the first deep brain implants?  Pretty high.  Should we stop research on such treatments due to the 50% mortality rate?  Or admit that it could lead to a good treatment for otherwise untreatable CH?  



Quote:
I believe, we should adhere to some rules of common decency - on BOTH sides of the issue.  The rules can't be one way for one side and different for the other.


Ok, but which advocates of stem cell research are mocking the physical afflictions of their opponents?  Which side insults the other,  gives a qualified apology the next day, then goes back to their original assertions?  If people want to disagree with Fox's facts or conclusions, fine.  That isn't what we are seeing.  
Title: Re: Are you faking your CH ... ?
Post by floridian on Oct 27th, 2006, 1:20pm

on 10/27/06 at 13:17:17, fubar wrote:
Flo,

You are a *perfect* example of a spoon-fed democrat.  You believe you know what Rush said because your media fed it to you.  If you cared enough to get that upset about it, then maybe you should care enough to find out what was really said, and more importantly, what it was about.  Put some original thought into your media consumption and maybe you'll stop being a meat puppet.

-Fu


No need to invoke the media as a hypothetical cause of confusion and deceipt ...

Listen to the audio clips that have his words.  Look at Rush on the YouTube clips.  Then get back to us.


I suppose you support his attacks on the Congressional Pages that reported that Mark Foley made making advances on them?  They were kids involved in chicanery - they were out to get an otherwise innocent good guy?

http://www.youtube.com/watch?v=egWvKwbmhK8


Limbaugh is out to smear anyone that challenges the Republican power base.  If he has to mock the disabled and assassinate the character of victims of sex abuse, that's just another days work.  Sorry to hear your drinking the kool-aid, Fubar.

Title: Re: Are you faking your CH ... ?
Post by seasonalboomer on Oct 27th, 2006, 1:30pm

on 10/27/06 at 13:17:17, fubar wrote:
meat puppet.


...and then someone called someone else a meat puppet.....well, at least I'm not a meat marionette was the remark back.... to which the retort came, damn you and all of you meat ventriloquist dummies.... and that offended the meat ken and barbie dolls, hey quit overgeneralizing, its not all about meat you know, they said.... careful or we'll grind you up and make little ken and barbie burgers was the reply.... to which the meat puppet skulked away nursing the fork marks created by  the carniverous insult hurlers..... at which point someone exclaimed its FRYDAY...no it's not it's friday!... wrong, you don't understand, we're all just variations of meat puppets and we look at it as FRYDAY, when they sear in the flavor and serve us rare....
Title: Re: Are you faking your CH ... ?
Post by Margi on Oct 27th, 2006, 1:43pm
C'mon, Scott - don't Bogart that baby.  Pass it around, man.

;)
Title: Re: Are you faking your CH ... ?
Post by maffumatt on Oct 27th, 2006, 1:55pm
Sure is alot of drama over an entertainers comments. I care about what Rush said about as much as I care about what the Dixi Chicks have to say. Its not important.
Title: Re: Are you faking your CH ... ?
Post by Tiannia on Oct 27th, 2006, 2:31pm

on 10/27/06 at 13:18:54, floridian wrote:
Acting? Whe Rush said "it's purely an act" wasn't it clear that he meant it was pretend or fake?

And Rush did a physical imitation of Fox as well - I suppose  he meant well by that?  http://www.youtube.com/watch?v=xhtYk5crxVY


The only thing I will say here is that each and every person could come up with what he "meant".  The only person who knows what he meant what Rush and he wont tell anyone because everyone deciding what he meant get more people talking about him.

Back to the Show.
Republicans on the Right, Democrates on the Left
http://members.iinet.net.au/~vroncol/Smiley_gifs/cannon01.gif  http://members.iinet.net.au/~vroncol/Smiley_gifs/soapbox.gif  http://members.iinet.net.au/~vroncol/Smiley_gifs/shoot4.gif

Everyone one else in the stands.

Popcorn and beer will be searved shortly.
http://members.iinet.net.au/~vroncol/Smiley_gifs/drinking.gif  http://members.iinet.net.au/~vroncol/Smiley_gifs/popcorn.gif
Title: Re: Are you faking your CH ... ?
Post by Linda_Howell on Oct 27th, 2006, 2:51pm


Quote:
C'mon, Scott - don't Bogart that baby.  Pass it around, man.


    [smiley=crackup.gif] [smiley=crackup.gif]
Title: Re: Are you faking your CH ... ?
Post by Gator on Oct 27th, 2006, 3:15pm

on 10/27/06 at 13:18:54, floridian wrote:
Acting? Whe Rush said "it's purely an act" wasn't it clear that he meant it was pretend or fake?

Rush was speaking to the McCaskill ad - not to the disease in general, which is what Democrats and the media is trying to twist it into.

And Rush did a physical imitation of Fox as well - I suppose  he meant well by that?  http://www.youtube.com/watch?v=xhtYk5crxVY

What I see is Rush demonstrating what Fox looked like in the ad to his DittoCam subscribers.  The key to the issue is that it's all about the political ad.  No one is making fun of Parkinson's sufferers or even Fox himself in general.  It's about how he is behaving in the political ad.

And where did Fox admit to purposefully overmedicating? He didn't.  Although the fools defending Limbaugh have siezed on his words and twisted them:

Actually, the quote you just used has Fox admitting that he was overmedicated.  Pretty much takes care of that.

If he took less medicine he would not have been fidgety - he would have been immobilized.  The simple fact is, that someone with intermediate to advanced parkinson's is never going to look and act normal, no matter what they do.  

So, Fox knows exactly how much medication to take when acting on television, but does not know how much medication to take just before a political ad where he's trying to use his symptoms to make a point?  Sorry, I'm not buying that.  Fox has been taking his meds long enough to know how to manipulate them for maximum effect.


Embryonic stem cells can ONLY be a theory if it isn't funded, or if it is criminalized, as people are trying to do in Missouri.  Disasterous results?  Isn't that the road that most medical research goes down to get to a better treatment?  What is the fatality rate for the first deep brain implants?  Pretty high.  Should we stop research on such treatments due to the 50% mortality rate?  Or admit that it could lead to a good treatment for otherwise untreatable CH?  

The question is again, why create and kill babies (goes back to when does life begin which you did not address) to get something that might work in favor or something that is readily available that already does work?  

From a National Review Online interview with David Prentice, professor of life sciences at Indiana State University and an adjunct professor of medical & molecular genetics at the Indiana University School of Medicine.

But studies done with adult stem cells (studies which mirror the ones done with embryonic stem cells) DO show that adult stem cells have the capacity to form essentially any tissue.

http://www.nationalreview.com/interrogatory/interrogatory022601a.shtml


Ok, but which advocates of stem cell research are mocking the physical afflictions of their opponents?  Which side insults the other,  gives a qualified apology the next day, then goes back to their original assertions?  If people want to disagree with Fox's facts or conclusions, fine.  That isn't what we are seeing.  


It all goes back to the Democrats wanting to strike out at Republicans while hiding behind Fox and his disease.  They can't have it both ways.  Stem cell research is not what is at issue here.  You can't go on the attack and expect the opponent not to counterattack.  Free speech is a wonderful thing as long as your opponent isn't allowed to speak back, eh?

If Fox had made an ad in support of stem cell research where at the end, he made a statement, like "Find out where your representatives stand on stem cell research." without naming names or publicly taking political sides, THAT would have been more appropriate, caused no negative press for his cause and there would have been no reason for any political attacks on Fox.  It comes down to what was more important for him - research or politics.  Sadly, Fox chose politics this time and made himself a valid political target.
Title: Re: Are you faking your CH ... ?
Post by BMoneeTheMoneeMan on Oct 27th, 2006, 3:28pm
In that ad, Fox spoke quite clearly.  Thats because he took his meds.

Look at other interviews he has done, while not quite as active, he is very difficult to understand.  

If he takes more meds, he can speak more clearly, but has more movement.  If he takes less meds, he doesnt move as much, but is much more noticably difficult to understand.  

I guess Fox figured he should speak clearly for this ad.
:-/
Title: Re: Are you faking your CH ... ?
Post by floridian on Oct 27th, 2006, 4:09pm

on 10/27/06 at 15:15:53, Gator wrote:
It all goes back to the Democrats wanting to strike out at Republicans while hiding behind Fox and his disease.  They can't have it both ways.  Stem cell research is not what is at issue here.  You can't go on the attack and expect the opponent not to counterattack.  Free speech is a wonderful thing as long as your opponent isn't allowed to speak back, eh?


There are issues related to stem cell research being voted on in this election - but Rush cant and wont talk about them.  I have no problem with his free speech rights of accusing Fox of being deceptive when he had no evidence, or when he suggests that the sexually harrassed pages were the guilty ones.  And its your legal right to support him all you want. Just don't expect the least bit of agreement from me.

There IS a referendum in Missouri to give legal protection to stem cell research - there are 2 major research institutes (1 in St. Louis, 1 in KC) that are talking about moving facilities because of the continual threat of having their work criminalized. And there is an election between a candidate that supports embyronic stem cell research and one that opposes it.    


Quote:
If Fox had made an ad in support of stem cell research where at the end, he made a statement, like "Find out where your representatives stand on stem cell research." without naming names or publicly taking political sides, THAT would have been more appropriate, caused no negative press for his cause and there would have been no reason for any political attacks on Fox.  It comes down to what was more important for him - research or politics.  Sadly, Fox chose politics this time and made himself a valid political target.


It seems like classic blame the victim rhetoric, Mike.  Rush is not wrong for smearing and mocking Fox - Fox is wrong for endorsing a candidate?  Rush is merely exercising his free speech rights, while Fox has stepped over the lines of decency?

If there were one candidate that supported cluster headache research, and one that wanted to outlaw some promising treatment alternatives, should everyone here make bland statements like 'Cluster headaches are bad. We want a cure. Check out the issues and make a decision.'?  Or would some people actually take a stand on a candidate?  
Title: Re: Are you faking your CH ... ?
Post by tanner on Oct 27th, 2006, 4:15pm

 Margi and Linda, if there is anything left of that baby when you get done pass it this way please ::)
Title: Re: Are you faking your CH ... ?
Post by Margi on Oct 27th, 2006, 4:19pm
too late, Scott sucked 'er back.  Muttered something about going to go lay on beach on his way out the door too, the buggar.
:-/
Title: Re: Are you faking your CH ... ?
Post by tanner on Oct 27th, 2006, 4:35pm


 Oh well, I guess I can ask Linda to pick some up along the road to French Lick. Last time I was up there it seemed to be a pretty successful agricultural area ;)
Title: Re: Are you faking your CH ... ?
Post by JeffB on Oct 27th, 2006, 4:41pm
We grow some great stuff here in California like:
Spinach
grapes
lettuce
Almonds
Tomatoes
Squash
Blondes
Weed
;;D
Title: Re: Are you faking your CH ... ?
Post by Richr8 on Oct 27th, 2006, 4:51pm
Nope!  I only fake orgasms. You know, likw when you have had enough already.  :)
Title: Re: Are you faking your CH ... ?
Post by fubar on Oct 27th, 2006, 5:09pm

on 10/27/06 at 13:20:05, floridian wrote:
No need to invoke the media as a hypothetical cause of confusion and deceipt ...


Listen to the audio clips that have his words.  Look at Rush on the YouTube clips.  Then get back to us.

No need... I heard the comments live.  I heard the comments IN CONTEXT.

I suppose you support his attacks on the Congressional Pages that reported that Mark Foley made making advances on them?  They were kids involved in chicanery - they were out to get an otherwise innocent good guy?

http://www.youtube.com/watch?v=egWvKwbmhK8

You suppose a lot.  It's these kinds of erratic leaps in your thought process that you mistake for original thought.  Unfortunately, it's all the same vomit whether it's being fed to you, or you are spewing it out.

Limbaugh is out to smear anyone that challenges the Republican power base.  If he has to mock the disabled and assassinate the character of victims of sex abuse, that's just another days work.  Sorry to hear your drinking the kool-aid, Fubar.

If the 'kool-aid' you speak of is what makes me disagree with your fanatical support of the Democrat talking points for the day, then ya,  I guess I am.  If you think I'm a Rush supporter, you have made yet another incorrect assumption.  I choose to think for myself.  Try it someday.
Title: Re: Are you faking your CH ... ?
Post by Gator on Oct 27th, 2006, 5:26pm

on 10/27/06 at 16:09:32, floridian wrote:
There are issues related to stem cell research being voted on in this election - but Rush cant and wont talk about them.  I have no problem with his free speech rights of accusing Fox of being deceptive when he had no evidence, or when he suggests that the sexually harrassed pages were the guilty ones.  And its your legal right to support him all you want. Just don't expect the least bit of agreement from me.

So, you've been listening? Actually, Rush has spent the better part of this week on the entire issue of Fox's performance, Amendment 2 and the Democrats using people with illnesses as human shields against criticizm.  

RE Foley: The way I took Rush's comments, is if what Foley did was so bad to warrant such reaction in the media, why did the people with the information not report it six months or more ago rather than hold it until just before the elections?  If it was bad, it was bad way back then and should have been addressed way back then.

Personally, I think Foley is disgusting and allowing him to just resign is wrong, but those who knew what happened on either side of the issue and did not bring it forward at the time they found out about it are not pure by any means.  Their waiting to use the IM's as an election issue puts their actions in a negative light and unfortunately draws questions about their motivations.  Shame on them.  

There IS a referendum in Missouri to give legal protection to stem cell research - there are 2 major research institutes (1 in St. Louis, 1 in KC) that are talking about moving facilities because of the continual threat of having their work criminalized. And there is an election between a candidate that supports embyronic stem cell research and one that opposes it.    

Just can't let go of that desire to kill them babies, can you?  Sad thing is, the child that is killed during research for a cure may have been the one to discover the cure.  

All the emotio-moral crap aside, I have been reading stem cell information for two days now and nothing I have read has made embryonic stem cell research seem worthwhile in the light that adult stem cells work.

It seems like classic blame the victim rhetoric, Mike.  Rush is not wrong for smearing and mocking Fox - Fox is wrong for endorsing a candidate?  Rush is merely exercising his free speech rights, while Fox has stepped over the lines of decency?

Rush did not "smear Fox."  He questioned his actions and motives in participating in a political ad.  Rush is political, that is what he does.  If Fox wants to inject himself into a political debate, then that is his right.  Just like it is anyone else's right to question his motives and actions for doing so.  Having a disease does not automatically protect any statement you make or action you perform above reproach.

If there were one candidate that supported cluster headache research, and one that wanted to outlaw some promising treatment alternatives, should everyone here make bland statements like 'Cluster headaches are bad. We want a cure. Check out the issues and make a decision.'?  Or would some people actually take a stand on a candidate?  

I think that speaking as a representative of OUCH, I would avoid specific public political involvement so as not to bring discredit and question upon the organization.  I would present accurate information and tell people where that information could be found and then trust the people who cared enough to listen to do their homework.  

Now, personally, I would support a candidate who was for CH research and would privately do what work I could to help his campaign, but I would not drag the organization I have dedicated my life to into the political circus.

Just like in the Fox issue, if a person injects him or herself into political deabte, they had better be ready to defend themselves.  

Again, having a particular disease does not automatically protect any statement you make or make any action you take above reproach.
Title: Re: Are you faking your CH ... ?
Post by floridian on Oct 27th, 2006, 6:20pm

on 10/27/06 at 17:26:35, Gator wrote:
Rush did not "smear Fox."  He questioned his actions and motives in participating in a political ad.  Rush is political, that is what he does.  If Fox wants to inject himself into a political debate, then that is his right.  Just like it is anyone else's right to question his motives and actions for doing so.  Having a disease does not automatically protect any statement you make or action you perform above reproach.



Not saying that having a disease makes his statements above critical scrutiny.  But that isn't what Rush is about. He is about belittling people without really considering the merits of their arguments. He is about innuendo and character assassination - Fox isn't really that bad, he either didn't take his medicine or is acting.  

When Rush had a TV show, he once held up a picture of a dog, and side-by-side to that, he held up a picture of the President's daughter and made unflattering comparisons.   You just keep defending him - he's all about advancing policy discussions for a better America.  

You've spent the last days looking for evidence that embryonic stem cell research is worthwhile, and can't find it?  Good for you, Dr. Gator, MD.  I have one brother that died from muscular dystrophy, and a sister that has the same disease.  And everything I have read suggests that there are 2 main approaches that might help people with that disease - gene therapy, and embyronic stem cell research.  Nancy Reagan thinks embyronic stem cell research might one day add life to people with Alzheimers disease.  So do lots of other people with relatives that have, or will have alzheimers.

Looking over your reply, this stuck out:


Quote:
(Floridia) - There IS a referendum in Missouri to give legal protection to stem cell research - there are 2 major research institutes (1 in St. Louis, 1 in KC) that are talking about moving facilities because of the continual threat of having their work criminalized. And there is an election between a candidate that supports embyronic stem cell research and one that opposes it.    

(Gator) - Just can't let go of that desire to kill them babies, can you?  Sad thing is, the child that is killed during research for a cure may have been the one to discover the cure.  


That should make it clear to everyone that you aren't about the science - you've already decided the issue on moral or religious grounds, since your calling me a baby killer.  Have a good life, Mike.


Quote:
Some people mistakenly believe that adult stem cells offer the same, or better, potential as
embryonic stem cells for treating disease. This reflects an incomplete understanding of the
qualities of the respective stem cell types. While embryonic stem cells have qualities that give
the potential to treat a wide range of diseases and injuries, adult stem cells simply do not.

From the Juvenile Diabetes Research Foundation
http://www.jdrf.org/files/legislative_action/2005_Stem_Cell_Facts_Sheets/5.AdultLimitations.pdf
Title: Re: Are you faking your CH ... ?
Post by maffumatt on Oct 27th, 2006, 8:33pm
Flo you oughta start your own radio station, you can call it Air Florida.
Title: Re: Are you faking your CH ... ?
Post by Jonny on Oct 27th, 2006, 8:41pm

on 10/27/06 at 20:33:46, maffumatt wrote:
Flo you oughta start your own radio station, you can call it Air Florida.


LMMFAO....your hitting a grandslam on making me laugh, Bro!!

;;D
Title: Re: Are you faking your CH ... ?
Post by Ree on Oct 27th, 2006, 10:14pm
Rush shouldn't be talking about anyones medication consumptions... Michael J. Fox is a hero in my heart to throw himself out there in the name of Parkinsons disease.  I don't think anyone would want to "FAKE" any affliction.  
ree  
(sometimes I wonder what the heck we are doin here)
Title: Re: Are you faking your CH ... ?
Post by Gator on Oct 27th, 2006, 10:32pm

on 10/27/06 at 18:20:22, floridian wrote:
Not saying that having a disease makes his statements above critical scrutiny.  But that isn't what Rush is about. He is about belittling people without really considering the merits of their arguments. He is about innuendo and character assassination - Fox isn't really that bad, he either didn't take his medicine or is acting.

There's the pot calling the kettle black. Dems/libs have been carrying out character assasinations on conservatives since 2000, well, earlier than that, really.  So, based on Fox's own admission of taking or not taking medication depending on the message he wanted to convey, I'd say "What's your point?"  

When Rush had a TV show, he once held up a picture of a dog, and side-by-side to that, he held up a picture of the President's daughter and made unflattering comparisons.   You just keep defending him - he's all about advancing policy discussions for a better America.  

Yes, conservatives in general and  Rush in particular hold a monopoly on bad taste.  Uh, NOT.  January of 2003: In receiving a special filmmaking achievement award from the National Board of Reviews, actor George Clooney joked that "Charlton Heston announced again today that he is suffering from Alzheimer's." Clooney still had a chance to apologize for the bad humor day. When questioned about the remark by New York Newsday, Clooney sputtered: "I don't care. Charlton Heston is the head of the National Rifle Association. He deserves whatever anyone says about him."  Gotta love the selective outrage.  Liberal Clooney can make fun of an alzheimers patient and that's okay.  Rush can question the actions based on past history of Fox and he is automatically wrong.  Got it.

You've spent the last days looking for evidence that embryonic stem cell research is worthwhile, and can't find it?  Good for you, Dr. Gator, MD.  I have one brother that died from muscular dystrophy, and a sister that has the same disease.  And everything I have read suggests that there are 2 main approaches that might help people with that disease - gene therapy, and embyronic stem cell research.  Nancy Reagan thinks embyronic stem cell research might one day add life to people with Alzheimers disease.  So do lots of other people with relatives that have, or will have alzheimers.

That should make it clear to everyone that you aren't about the science - you've already decided the issue on moral or religious grounds, since your calling me a baby killer.  Have a good life, Mike.


Oops, I made a boo boo.  I studied the issue, read the scientific evidence available and made an informed decision based on fact, not hype or speculation.  Yeah, I'm a bad person.

I'm sorry for the loss of your brother and for your sister's condition.  That really sucks.  Guess what?  I lost a grandmother to Alzheimers.  It runs in my family.  I think my mother may be starting to show early signs of it (as well as being diabetic) and there's a good chance I could suffer the same fate.  I'm sorry if I haven't fallen victim to, what is currently, the false hope of embryonic stem cells.

I still haven't seen you point out anything but the popular hype for embryonic stem cell research, Dr floridian, MD.  Only what MAY happen in the future IF scientists learn how to manipulate the ESC's to become what the want them to AND IF they learn how to regulate their growth.  

I have read the science and so far the ASC's are the ONLY ones making a difference in peoples' lives.  Well, except in giving people something to argue about.  You've said ASC's can't be converted to other cells, yet there is plenty of evidence (not just theory) that they can.  One of the articles I read said that adult stem cells had been used over 3000 times to treat over 45 different disorders.

Question.  Does harvesting embryonic stem cells kill the blastocyste?  I'll make it easy for you, Yes  

So, if a person, or a society as a whole, believes that life begins at conception, then to harvest ESC's does kill babies, right?  Again, Yes

I've asked this question before and just out of curiosity I'll ask it again, "What is the magic age when a developing mass of cells becomes a valueable human being worthy of life?"

Should we console couples who suffer through the pain of an early term miscarriage by telling them, it wasn't really a life, yet?  I'll tell you that if someone had told me that when my second wife miscarried our child early in her pregnancy, they'd have been peeling me off of someone.
Title: Re: Are you faking your CH ... ?
Post by floridian on Oct 28th, 2006, 7:34am
Ok, lets ignore the research foundations for juvenile diabetes, alzheimers disease, parkinsons disease, and dozens of other diseases that have concluded that embryonic stem cells do have unique potential. Lets reject the consensus of the scientific community that embryonic stem cells are far more flexible and more likely to give us treatements for a wide variety of diseases.  It only takes a day or two for the divinely inspired to review and reject the evidence for evolution, or the 'hype' around stem cells.

And lets ignore the fact that if we ever reach that ultimate goal that you say you want, where adult stem cells are fully totipotent and able to become any tissue, then each of those cells would be the functional equivalent of an embryo, and allowing them to die would be homicide in the minds of the moral absolutists.

And Mike, you should not only stop embyronic stem cell research, you should use your moral absolutism to stop couples that are engaging in vitro fertilization.  Not only do most of their attempts fail (resulting in the loss of what you consider a human life to meet their selfish desires), but every day, those evil people thow away thousands of fertilized eggs - the ones that you don't want to use for research.  Seems inconsistent to oppose embryonic stem cell research because it benefits from the destruction of blastocytes, but allow the process that demands that blastocytes be destroyed in the first place.  In vitro fertilization is the real reason that blastocytes are destroyed, and you would rather have the eggs incinerated than help anyone.  
Title: Re: Are you faking your CH ... ?
Post by AussieBrian on Oct 28th, 2006, 9:18am
Recently won a carton of beer in a pub competion, on stage, for 'Best Fake Orgasm (female)'.

Does that count?
Title: Re: Are you faking your CH ... ?
Post by alchemy on Oct 28th, 2006, 9:24am

on 10/28/06 at 09:18:40, AussieBrian wrote:
Recently won a carton of beer in a pub competion, on stage, for 'Best Fake Orgasm (female)'.

Does that count?


LMMFAO
Title: Re: Are you faking your CH ... ?
Post by chewy on Oct 28th, 2006, 9:53am

Quote:
Are you faking your CH ... ?


Absolutely!

I also have used fake plaster to fill the fake holes I've put in fake walls

And fake glass to replace a fake punched out windshield
Title: Re: Are you faking your CH ... ?
Post by AussieBrian on Oct 28th, 2006, 10:07am
Face it, Chewy. You're a fake.  I well remember you complaining that your blow-up doll went down on you.
Title: Re: Are you faking your CH ... ?
Post by BB on Oct 28th, 2006, 10:25am

I have to say that I read this thread and wondered where the hell its going ...

Flo,  I have to commend you on the title you chose for the thread, most excellent choice as it would make people jump to read it the minute they saw it, great marketing skill here ..

But then I was surprised to find that the topic being discussed has nothing to do with CH at all, bit disappointed really

So I will quietly slip out again...

Folks, please dont mind me, please resume your battles .. but please wait until I am out of the firing range .. Thank you muchly!

Annette
Title: Re: Are you faking your CH ... ?
Post by Gator on Oct 28th, 2006, 11:11am
Actually, this thread might have more to do with CH than is apparent on the surface.  If CH is truly the product of a faulty hypothalamus, then all the drugs in the world probably won't fix it.  The answer will likely be something along the line of stem cell therapy.  Which version of stem cell research will lead to a possible cure is yet to be determined, but little debates such as this make people think, if only for a moment, about issues broader than their own daily existence.  That can't be a bad thing.  There is also a lot of incidental learning that goes on and that is definitely a good thing.

I'd like to hear an opinion other than mine and Jonathan's on the subject.  We're pretty much chasing each other's tail at this point.  So, what do you think, doc?
Title: Re: Are you faking your CH ... ?
Post by andrewjb on Oct 28th, 2006, 1:27pm
:). science should/must remain controvershall, thats how come we know theres a hypothalmus to discuss. but lets not eat the furrie animals-eh ?
Title: Re: Are you faking your CH ... ?
Post by wildhaus on Oct 28th, 2006, 2:13pm


I DO----->  I DO----->I DO----->I DO----->I DO----->I DO----->I DO
Title: Re: Are you faking your CH ... ?
Post by thebbz on Oct 28th, 2006, 2:42pm
I'm busted...big faker. I don't believe anything I hear and only half of what I see. It's all about ratings. I'm with Vig....Limbaugh is a loud mouth doper. They all have their own motives, none are connected with the greater good.
I think these talk show idiots should clean their own back yard before starting on someone elses.
Those that live in a glass house should not throw stones.
jb :-*
Title: Re: Are you faking your CH ... ?
Post by Charlie on Oct 28th, 2006, 8:48pm
The Republican howling about campaign ethics is hilarious. The unforgiveable treatment of their own John McCain and then the campaigin against Max Cleland are prime examples of just how sweet the GOP has become.

Everything Rush Limbaugh says or does is an act. Limbaugh is a shit-stirring entertainer only. It works for him and guys in beer can hats driving Humvees.

The press is at fault? Naturally..... Throughout history people who abuse power or don't get their own way blame the media. The worst despots in history are guilty of this. No message? Bomb the press.

Damn. I'm late to a political thread. http://subscribe.smileygenerator.us/new/albums//TVsnack.gif?SSImageQuality=Full

Charlie
Title: Re: Are you faking your CH ... ?
Post by BB on Oct 28th, 2006, 8:55pm

on 10/28/06 at 11:11:48, Gator wrote:
Actually, this thread might have more to do with CH than is apparent on the surface.  If CH is truly the product of a faulty hypothalamus, then all the drugs in the world probably won't fix it.  The answer will likely be something along the line of stem cell therapy.  Which version of stem cell research will lead to a possible cure is yet to be determined, but little debates such as this make people think, if only for a moment, about issues broader than their own daily existence.  That can't be a bad thing.  There is also a lot of incidental learning that goes on and that is definitely a good thing.

I'd like to hear an opinion other than mine and Jonathan's on the subject.  We're pretty much chasing each other's tail at this point.  So, what do you think, doc?



Stem cell therapy is a big subject and I personally dont know much about it yet so its hard for me to enter a serious discussion with valid points.

I also have personal moral and ethical issues about embryonic stem cell research which I have not had the time nor the need to deal with now. Adult stem cells on the other hand have much less potential and much more problems with implication.

CH is such a rare condition that its really really hard to get funding to do any kind of research into it. Not much at all really is known about CH. Dr Goadsby's work indicates that there is some cellular abnormality in the hypothalamus. But that is only the tip of the iceberg. There are so much more involved here that no one knows yet.

No Government body or Medical Board will approve research into stem cell therapy for CH until a lot lot more is known about the condition, so its a looong way to come.

Furthermore right now I have a husband screaming on the floor, banging his head 3-4 -5 times a day ... so what I really need now is how to stop his pain, not how to replace his maybe or maybe not malformed hypothalamus. Therefore to me, and I am sure many more would agree that the priority here is pain management.

Find us something that will universally control the CH pain to a satisfactory level first then we can spare all the time and energy and money needed for finding the cure.

JMHO.

Annette
Title: Re: Are you faking your CH ... ?
Post by chewy on Oct 28th, 2006, 9:05pm

Quote:
Find us something that will universally control the CH pain to a satisfactory level first then we can spare all the time and energy and money needed for finding the cure.


I agree with you 100% but it does raise a question.

Why are you conducting a height suvey?
Title: Re: Are you faking your CH ... ?
Post by maffumatt on Oct 28th, 2006, 9:09pm

on 10/28/06 at 20:48:54, Charlie wrote:
The Republican howling about campaign ethics is hilarious. The unforgiveable treatment of their own John McCain and then the campaigin against Max Cleland are prime examples of just how sweet the GOP has become.

Lieberman.
Title: Re: Are you faking your CH ... ?
Post by Charlie on Oct 28th, 2006, 9:11pm
Nobody "rescues" these so-called potential humans. They are lost anyway so lets not discard science and make it possbile to actually save some children.

How I miss the "New Frontier." Beats me how someone my age, Bush, missed out on the exciting explosion of science in the 1960s.

Science. Humbug.

Charlie
Title: Re: Are you faking your CH ... ?
Post by BB on Oct 28th, 2006, 9:18pm

I started the height survey very early in the course of my quest to understand CH. I was only really "exposed" to CH from the 1st August when I diagnosed my own husband with it.  I didnt know much about CH then and it was something I found interesting at the time.

I then talked to Prof Spira about the survey and showed him the numbers and he was interested. So I kept it going if more people continued to post as the Prof seemed keen to know. He is looking at hormonal effects on CH as part of his own research at the moment.

Right now I am actually researching into pain mechanisms and pain management. Others here such as BillyJ and Wildhaus are looking into it with me also. I have been talking to Dr Gronow who is a top pain specialist in Sydney about the different pain mechanisms in CH and its really interesting as so far it has been found to be quite complicated and very different from the pain mechanisms in other forms of headaches. Wildhaus has given me the email addresses of the top pain specialists in Switzerland and I am going to converse with them on the topic.

I will start a thread soon on the topic of pain mechanisms in CH and its management, but I need to get my head around all the terminolgy and need to get a fairly good grasp of the topic before speaking publicly about it. I want what I am going to post to be as accurate and valid as possible, so please bear with me.

Sorry Flo for diversing from the topic of your thread.

Painfree wishes to you all.

Annette
Title: Re: Are you faking your CH ... ?
Post by maffumatt on Oct 28th, 2006, 9:27pm

on 10/28/06 at 21:18:59, BB wrote:
I started the height survey very early in the course of my quest to understand CH. I was only really "exposed" to CH from the 1st August when I diagnosed my own husband with it.  I didnt know much about CH then and it was something I found interesting at the time.

I then talked to Prof Spira about the survey and showed him the numbers and he was interested. So I kept it going if more people continued to post as the Prof seemed keen to know. He is looking at hormonal effects on CH as part of his own research at the moment.

Right now I am actually researching into pain mechanisms and pain management. Others here such as BillyJ and Wildhaus are looking into it with me also. I have been talking to Dr Gronow who is a top pain specialist in Sydney about the different pain mechanisms in CH and its really interesting as so far it has been found to be quite complicated and very different from the pain mechanisms in other forms of headaches. Wildhaus has given me the email addresses of the top pain specialists in Switzerland and I am going to converse with them on the topic.

I will start a thread soon on the topic of pain mechanisms in CH and its management, but I need to get my head around all the terminolgy and need to get a fairly good grasp of the topic before speaking publicly about it. I want what I am going to post to be as accurate and valid as possible, so please bear with me.

Sorry Flo for diversing from the topic of your thread.

Painfree wishes to you all.

Annette


As Far as I am concerned this the only thing in the thread worth reading. Annette please keep up the good work. With more people like you maybe we can get enough people interested to where something will get done. I know I am not the only one who respects what you try to do and the input you provide here. Thank You
Title: Re: Are you faking your CH ... ?
Post by chewy on Oct 28th, 2006, 9:37pm
Sounds like it should be Dr. Gronow that should be doing the height research.  8)
Title: Re: Are you faking your CH ... ?
Post by maffumatt on Oct 28th, 2006, 9:38pm
it sounds like your being an ass to someone who cares and is trying to help. Why?
Title: Re: Are you faking your CH ... ?
Post by chewy on Oct 28th, 2006, 9:41pm
Because I had a question.

Annette didn't have a problem with that and cleared it up nicely for me.

You got a problem with that ?
Title: Re: Are you faking your CH ... ?
Post by Kingjames1 on Oct 28th, 2006, 9:56pm
Hey Matt-I thought Chewy was making a joke...you know, the doctor's name is Gronow (Grow Now!). So that's why he should be in charge of height research.   [smiley=laugh.gif]

Anyway, take it easy. :)
Title: Re: Are you faking your CH ... ?
Post by chewy on Oct 28th, 2006, 9:59pm
Glad SOMEONE is awake.
Title: Re: Are you faking your CH ... ?
Post by maffumatt on Oct 28th, 2006, 10:03pm
Anyone ever tell your cute when your mad Chewy? If I'm wrong...then I'm wrong..........
Title: Re: Are you faking your CH ... ?
Post by chewy on Oct 28th, 2006, 10:09pm
http://img.photobucket.com/albums/v388/bgull2/cletus.jpg
Title: Re: Are you faking your CH ... ?
Post by maffumatt on Oct 28th, 2006, 10:10pm
A self portrait Don?
Title: Re: Are you faking your CH ... ?
Post by Kingjames1 on Oct 28th, 2006, 10:10pm
I'm not awake...it was the talking points and youtube video that clarified it for me. Otherwise, I would have taken it out of context.

Whoops! Wrong thread!
Title: Re: Are you faking your CH ... ?
Post by BB on Oct 28th, 2006, 10:21pm

Actually he is quite a short man! So I am afraid that if his hypothalamus didnt make him " gro then " , its a bit late for him to try to " gro now " ... :P

Annette

PS: Please dont anyone tell him I said that or he wont speak to me ever again  8)
Title: Re: Are you faking your CH ... ?
Post by Gator on Oct 28th, 2006, 11:09pm
Thanks, Annette.  You are absolutely right about finding a treatment that will ease the suffering being of utmost importance.  So far, between the triptans, oxygen and olanzapine, we have meds that work for just about everyone as far as aborting.  That's not to say I want anyone to quit working on a better abortive.

Preventing is trickier, though.  How screwy is it that for one person, a blood pressure med works, an antipsychotic for another, an anti-epileptic for yet another.  But what works for any of these three will not work for the other two.  And why are there some people for whom nothing works?
Title: Re: Are you faking your CH ... ?
Post by BB on Oct 28th, 2006, 11:23pm

The answer lies in the different channels that are activated before,  during and after a CH attack. Thats why CH is so difficult to understand and the causes so elusive.

Other conditions have 1 or 2 causes, for eg diabetes is caused by insulin deficiency or resistance , fix that and you fix diabetes, Parkinson disease is caused by dopamine insuffiency, again fix that and you fix the condition... The mechanism in CH involves at least 6 or 7 things going wrong. Depends on which one has gone wrong or how many have gone wrong at which combination that gives you different scenario with CH. Thats why what works for one may not work for others and then for the same person what worked before may not work again later.

Please bear with me, as soon as I can make things clearer to myself so that I make sense when trying to talk about it, I will post.

Again, sincere apology to Flo for hijacking his thread.

PFDAN to all.

Annette
Title: Re: Are you faking your CH ... ?
Post by AussieBrian on Oct 28th, 2006, 11:32pm
Of course, there's then all the other "cluster traits" that go so far beyond our apparent leonine appearance (whatever that's supposed be).  For instance, every CHead I've met personally is male, just under 6 foot, stunningly good-looking, a great conversationalist and an absolute tiger in bed.
Title: Re: Are you faking your CH ... ?
Post by E-Double on Oct 29th, 2006, 9:04am

on 10/28/06 at 23:32:42, AussieBrian wrote:
Of course, there's then all the other "cluster traits" that go so far beyond our apparent leonine appearance (whatever that's supposed be).  For instance, every CHead I've met personally is male, just under 6 foot, stunningly good-looking, a great conversationalist and an absolute tiger in bed.


So that's what you mean when you say, "Good on you" to another Aussie.
Not like there is anything wrong with that but I would prefer to test the tigresses ;)
Title: Re: Are you faking your CH ... ?
Post by Sean_C on Oct 29th, 2006, 9:29am
I'm with you E  [smiley=laugh.gif]


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