Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2006 General Board Posts >> Daily Mail article on CH
        
(Message started by: Mosaicwench on Oct 24^th, 2006, 8:35am)

Title: Daily Mail article on CH
Post by Mosaicwench on Oct 24^th, 2006, 8:35am

http://tinyurl.com/y9fo5a

"Barbara Cullen, 52, suffered from 'cluster headaches' for three years. The pain was so unbearable she considered taking her own life. But a remarkable new treatment has left her virtually pain-free."

Comments?

Title: Re: Daily Mail article on CH
Post by pattik on Oct 24^th, 2006, 8:41am

Quote:

All patients with cluster headaches jump at the chance of this operation. And it is wonderful to meet them later and discover their life is pain-free.

Huh? [smiley=huh.gif]

Title: Re: Daily Mail article on CH
Post by JDH on Oct 24^th, 2006, 8:47am

No thanks.

Jim

Title: Re: Daily Mail article on CH
Post by Charlotte on Oct 24^th, 2006, 9:25am

"It seemed to come in waves, and even during a lull it never died away completely."

"Even in between, I still had what most people would describe as a bad headache."

She never had pf time, now she does, so this was a success for her, whether it was ch, hc, cph or another TAC. I hope it works for a long time for her.

(I have heard of the operation and a few people have posted with varrying results.)

"All patients with cluster headaches jump at the chance of this operation. And it is wonderful to meet them later and discover their life is pain-free."

(I don't remember filling out a survey about this.)

Charlotte

Title: Re: Daily Mail article on CH
Post by seasonalboomer on Oct 24^th, 2006, 9:42am

I'm pleaed as punch that this lady was helped by this but to infer that CH'ers "jump at the chance to have this surgery" is highly irresponsible and more akin to a paid advertisement than journalism.

Secondly, I may be dim, but when has the hippocampus ever been inferred as the source of our problems?

This article is an example the double-edged sword of getting more attention brought to our affliction. It surely pays to have more people know about CH, but too often they will obfuscate or distort the reality. It would be great if we get only the people that need to know more (doctors and neuro's, employers, family members) and leave the rest.

Scott

Title: Re: Daily Mail article on CH
Post by georgej on Oct 24^th, 2006, 11:55am

ONS. Others have posted here with varying accounts of success or failure. For some, I suppose, it may be very helpful. I wish them success.

But....no thanks.

"All patients with cluster headaches jump at the chance of this operation."

News to me.

Hippocampus? Eh?

Best,

George

Title: Re: Daily Mail article on CH
Post by BarbaraD on Oct 24^th, 2006, 1:05pm

NO, all people with CH do NOT jump at a chance for this surgery!!!!!!!!

It should be a LAST RESORT!

I'm happy for the lady, but remarks like that hack me off!

Hugs BD

Title: Re: Daily Mail article on CH
Post by fubar on Oct 24^th, 2006, 1:09pm

I don't believe the proper term is hippocampus.

It's "School for Hippos"

Title: Re: Daily Mail article on CH
Post by mrs mac on Oct 24^th, 2006, 1:15pm

i beleive the paper has been contacted and put right on a few things ;)

Title: Re: Daily Mail article on CH
Post by BMoneeTheMoneeMan on Oct 24^th, 2006, 1:37pm

Hippocampus.
Damn thats a funny one. That one needs to go in the archives next to the sweat-bands and the dude with the star-trek thingy on his head.

[smiley=crackup.gif]

Title: Re: Daily Mail article on CH
Post by Kevin_M on Oct 24^th, 2006, 2:17pm

A kind of sad part is her doctor couldn't diagnose and a 14 day stay in the hospital couldn't, IV'ing morphine and sending her home with morphine tablets after that, with a neuro referral.
The neuro started her with steriods, but then continued the pain killers with O2, no preventatives, a sure hell.

That seems a low awareness by the doctors of clusters. With that kind of treatment, the procedure would seem perhaps more easily preferable to her.

Title: Re: Daily Mail article on CH
Post by Gator on Oct 24^th, 2006, 2:44pm

Before y'all go getting too crazy with the hippocampus thing, you should know there really IS a part of the brain called the hippocampus.

http://dictionary.laborlawtalk.com/prev_wiki/images/thumb/7/7d/128px-Hippocampus.png

Quote:

The hippocampus is a part of the brain located inside the temporal lobe (humans have two hippocampi, one in each side of the brain). It forms a part of the limbic system and plays a part in memory and navigation. The name derives from its curved shape, which supposedly resembles that of a seahorse (Greek: hippocampus).

We know (as much as research has shown anyways) that it is the hypothalamus that is the culprit. I bet the reporter just got the terms mixed up. The article should be corrected to reflect the proper terminology.

Title: Re: Daily Mail article on CH
Post by Charlotte on Oct 24^th, 2006, 3:17pm

Doesn't the hippocampus have to do with memory? And isn't ther hypothalamus slightly lower down in the brain, but really close considering?

I think he misread his release.

c

Title: Re: Daily Mail article on CH
Post by brewcrew on Oct 24^th, 2006, 3:20pm

I think the author meant hippopotamus:

http://www.yptenc.org.uk/docs/factsheets/animal_facts/animal_facts_images/hippopotamus.jpg

I'd have a huge headache if I had one of these big guys stuck in my head.

Title: Re: Daily Mail article on CH
Post by Turts on Oct 24^th, 2006, 4:21pm

Quote:

I don't believe the proper term is hippocampus.

It's "School for Hippos"

I miss read it as hippicampus.

I thought it was the part of the brain responsible for all that grass smokin free lovin stuff back in the seventies.

Turts

Title: Re: Daily Mail article on CH
Post by Gator on Oct 24^th, 2006, 4:37pm

on 10/24/06 at 15:17:06, Charlotte wrote:

Doesn't the hippocampus have to do with memory? And isn't ther hypothalamus slightly lower down in the brain, but really close considering?

I think he misread his release.

c

Yes, the hippocampus deals with learning and memory. It is one of the first areas of the brain affected when a person develops Alzheimers.

The hypothalamus is located deep in the brain and is responsible for regulating automatic activities of the body, such as sleep, hunger, thirst, body temperature, and sexual activity.

http://content.answers.com/main/content/wp/en/9/9f/LocationOfHypothalamus.jpg

Title: Re: Daily Mail article on CH
Post by pubgirl on Oct 24^th, 2006, 8:22pm

Mrs Mac is right.

OUCH UK has formally written to The Daily Mail to point out all the many errors (almost everything in it is wrong)and to clearly state how misleading the article is

What a bloody shame of a missed awarenes raising opportunity on many levels, The Daily Mail has huge readership here.

God save us from shoddy journalists

W

Title: Re: Daily Mail article on CH
Post by Jonny on Oct 24^th, 2006, 8:27pm

Whats sad Wendy is that the daily mail didnt know the wealth of knowledge they have right the in OUCH/UK.

But, they do now!!!!! [smiley=headbanger.gif]

Title: Re: Daily Mail article on CH
Post by chewy on Oct 24^th, 2006, 8:33pm

Quote:

OUCH UK has formally written to The Daily Mail to point out all the many errors (almost everything in it is wrong)and to clearly state how misleading the article is

Will OUCH/UK push for a retraction ?

Title: Re: Daily Mail article on CH
Post by brewcrew on Oct 24^th, 2006, 8:46pm

on 10/24/06 at 20:22:35, pubgirl wrote:

God save us from shoddy journalists

Good f'n luck on that front.

Title: Re: Daily Mail article on CH
Post by pubgirl on Oct 24^th, 2006, 8:53pm

Chewy, I'm not sure but I would expect so as they are very angry about it, mainly because it gives so much false hope (our ONSI results here for CH aren't great at all- so far no-one who has had it is pain free I'm afraid) They are also angry as we have a very close relationship with Queen Square and find it impossible to believe that if the journalist actually talked to people there that they wouldn't have referred them to OUCH UK.
We could have reached thousands of sufferers via that article and had our Helpline number in etc etc.

I think to date the Mail has said they will be talking to the journalist concerned. The chances of column inches in a National newspaper being given to a retraction are slim to nil I would have thought - it takes £million threatened law suits to get that, not moral justice sadly.

W

Title: Re: Daily Mail article on CH
Post by pubgirl on Oct 24^th, 2006, 9:14pm

P.S.

Did you see on the link that you can comment on the article?

::) ::) ::) ::)

W the B
;;D

Title: Re: Daily Mail article on CH
Post by catlind on Oct 24^th, 2006, 9:15pm

Perhaps enough public outcry may make them rethink their article and print another article with accurate information. A retraction is unlikely as Wendy said, but I know I sent an email outlining Prof. Goadsby and OUCH UK as resources.

Maybe just maybe if enough people write letters (emails) to the paper with a wealth of factual information and sources for obtaining further information they will run another feature with some accurate informtaion in it.

Cat

Title: Re: Daily Mail article on CH
Post by thomas on Oct 24^th, 2006, 9:18pm

on 10/24/06 at 21:15:47, catlind wrote:

Great idea, I can think of another target for this type of campaign. ;)

Title: Re: Daily Mail article on CH
Post by catlind on Oct 24^th, 2006, 9:27pm

Have an email address Thomas? I'd be happy to write a letter to the men's mag about your article ;)

Guess I'm just in that kind of mood these days hehe.

Time to kick a$$ and take names, shoot first ask questions later.

Cat

Title: Re: Daily Mail article on CH
Post by rickyshot on Oct 25^th, 2006, 11:50am

So the hypothalmus has somehting to do with the sex drive huh? Unoffcial poll do most clusterheads have high medium or low sex drives?

Title: Re: Daily Mail article on CH
Post by chewy on Oct 25^th, 2006, 11:54am

Quote:

Unoffcial poll do most clusterheads have high medium or low sex drives?

None of the above.

Persistant.

Title: Re: Daily Mail article on CH
Post by rickyshot on Oct 25^th, 2006, 1:40pm

on 10/25/06 at 11:54:15, chewy wrote:

None of the above.

Persistant.

[smiley=thumb.gif]

Oh my horny with a headache. There's something you don't see everyday.

BTW Don you are my new hero.

Title: Re: Daily Mail article on CH
Post by pubgirl on Oct 25^th, 2006, 6:24pm

on 10/25/06 at 11:54:15, chewy wrote:

None of the above.

Persistant.

None of the above: Resistant

Title: Re: Daily Mail article on CH
Post by kissmyglass on Oct 25^th, 2006, 8:07pm

Well I can say for certain I know of 2 clusterheads with a high drive....I won't name names :)

Title: Re: Daily Mail article on CH
Post by kissmyglass on Oct 25^th, 2006, 8:08pm

on 10/25/06 at 18:24:22, pubgirl wrote:

None of the above: Resistant

Thanks for nuttin

Title: Re: Daily Mail article on CH
Post by sandie99 on Oct 26^th, 2006, 5:01am

Too bad that the article had plenty of errors... When I was studying journalism at the University of Westminster in London, they taught us to recall 3 things above all: make it accurate, make it fair, make it quick. Aguess they recall just the quick, then. :-/

Sanna

Title: Re: Daily Mail article on CH
Post by zanychef on Oct 26^th, 2006, 11:03am

on 10/24/06 at 21:14:18, pubgirl wrote:

P.S.

Did you see on the link that you can comment on the article?

::) ::) ::) ::)

W the B
;;D

comment posted if they let it through;)

Title: Re: Daily Mail article on CH
Post by pubgirl on Oct 26^th, 2006, 1:46pm

Not suprisingly mine criticised the article and wasn't allowed through ::) ::) ::) ::)