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        New Message Board Archives >> 2006 General Board Posts >> Good Job, OUCH
        
(Message started by: georgej on Oct 11th, 2006, 11:04am)
Title: Good Job, OUCH
Post by georgej on Oct 11th, 2006, 11:04am
After hearing about the National Organization for Rare Disorders on NPR the other day--a database for hospitals and educational institutions--I took a look at their website.  

I see that CH is listed there under Headaches--Cluster, and that OUCH is already listed as one of the contact organizations for more information.

Very impressive, guys.  You're really on top of things.  Being listed in this database can only help spread knowledge about CH and appropriate treatments to the people who need to hear about it.

Best wishes,

George

edited to add:

http://www.rarediseases.org
Title: Re: Good Job, OUCH
Post by Jonny on Oct 11th, 2006, 3:39pm
[smiley=headbanger.gif]
Title: Re: Good Job, OUCH
Post by Jimi on Oct 11th, 2006, 4:14pm
;;D


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