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        New Message Board Archives >> 2006 General Board Posts >> scary symptoms
        
(Message started by: taraann on Oct 7^th, 2006, 10:35am)

Title: scary symptoms
Post by taraann on Oct 7^th, 2006, 10:35am

I just got out of a 3 day hospital stay. The neuro says I have some major neurological symptoms going on. I've hardly slept for a month (yes a month no exaggeration, usually just an hour or two here and there) I have times of confusion/disoriatation, a cluster type headache that hasn't gone away for a month (sharp pains on my cluster side, but not a cluster) shakes, dizziness (and yes I'm blonde lol) all of these things come and go but they are scary. I'm an avid reader and can sometimes finish a novel in a matter of days and lately I can't barely understand what I'm reading, I feel stupid all the time, the simplest things have become a struggle. Just had some tests done, waiting for the MRI to be done, then hopefully I'll have some answers.

Just needed to vent, I'm scared.

Title: Re: scary symptoms
Post by LeLimey on Oct 7^th, 2006, 10:39am

They wouldn't have let you home if they were worried hon, I know its scary and I'm scared for you too but I know you'll be okay, you've got all of us right behind you and we're not letting ANYTHING happen to you!
love you lots
Helen xx

Title: Re: scary symptoms
Post by E-Double on Oct 7^th, 2006, 11:01am

Are you still taking lithium Tara?

I had massive confusion on it.

Hugs to you and relief!

Title: Re: scary symptoms
Post by kimmiedawn81 on Oct 7^th, 2006, 11:14am

I hope that they figure out what is wrong! And you get better soon!

Title: Re: scary symptoms
Post by cynjeep89 on Oct 7^th, 2006, 11:16am

Check your PM. I sent my phone # and I mean what I said....call me if you need to talk. I'm home all weekend.

CyndiS

Title: Re: scary symptoms
Post by taraann on Oct 7^th, 2006, 1:33pm

THanks. No I'm not on lithium anymore, they started me on a "new" preventative called Lamactil (not positive I'm spelling it right) and Soma for pain.

I actually checked myself out of the hospital against medical advice cause the doc I had there was an IDIOT! I love my new doc.

I've also had off and on ringing in my ears, bright spots in my eyes and had my vision go dark for a few seconds. Weird stuff!

Title: Re: scary symptoms
Post by Callico_Kid on Oct 7^th, 2006, 3:08pm

We'll be praying for you. Hope the results come back quickly and that there is nothing wrong. I'll also ask my church to add you to our prayer list. I'm heading out on a long trip, but I'll ask Linda to check in on the board to see how you are doing.

Jerry

Title: Re: scary symptoms
Post by TxBasslady on Oct 7^th, 2006, 5:33pm

Lots of vibes to ya, Taraann. :-*

Keep us updated!!

Love ya,

Jean

Title: Re: scary symptoms
Post by Karla on Oct 7^th, 2006, 5:39pm

We will be praying for you. Take care.

Title: Re: scary symptoms
Post by Charlie on Oct 7^th, 2006, 7:17pm

Quote:

they started me on a "new" preventative called Lamactil (not positive I'm spelling it right) and Soma for pain.

I've been taking Lamictal (500 mg per day) for 6 years for my seizures. It's not all that effective but it's not useless either. It makes me cough a little (common effect) a bit all the time and of course it has loosened me up elsewhere.

It's mostly an anti-depressant, I believe but it's used a lot by epileptics.

Please keep track of whatever this new thing is. The only thing worse than having it is not knowing more about itl.

Hang on.

Charlie

Title: Re: scary symptoms
Post by maffumatt on Oct 7^th, 2006, 7:25pm

Hang in there, keep us updated.
Well wishes
Matt

Title: Re: scary symptoms
Post by deltadarlin on Oct 8^th, 2006, 10:29am

Soma can be a nasty drug (I've never taken it, but I know people who have). Just a question though, Soma is normally used as a muscle relaxer, not for straight pain relief. Lamictal can enhance the effects of muscle relaxers. Here's some interesting info on it.

Reactions-dizziness, vertigo, ataxia, tremor, agitation, irritability, headache, depressive reactions, syncope, seizures, and insomnia

Title: Re: scary symptoms
Post by DonnaHar on Oct 8^th, 2006, 7:12pm

I used it for a very short time as I had an adverse reaction to it........double vision.

Title: Re: scary symptoms
Post by Charlie on Oct 8^th, 2006, 10:42pm

Quote:

I used it for a very short time as I had an adverse reaction to it........double vision.

Ditto. My glasses do wonders but if I sit here and read ~~porn~~ the board or other stuff for more than an hour or two at a time, I have double vision. I'm not happy and I would have been off the stuff if my glasses didn't make it better.

I still hate this drug.

Charlie

Title: Re: scary symptoms
Post by alienspacebabe on Oct 8^th, 2006, 10:57pm

on 10/08/06 at 22:42:20, Charlie wrote:

but if I sit here and read ~~porn~~ the board
Charlie

Snickerdoodle, if you have to read your porn, then you need to stop visiting the braille porn sites....

Title: Re: scary symptoms
Post by BB on Oct 8^th, 2006, 11:33pm

Can you double check to se if its Lamictal or Largactil ?

Both can cause bad confusion.

Hope you get better soon.

Painfree wishes to you. HUGS.

Annette

Title: Re: scary symptoms
Post by ClusterChuck on Oct 9^th, 2006, 12:35am

Tara, m'luv, I just read this post! OMG!!!

All my vibes, prayers, good ju-ju, and anything else I can find, are headed your way, in hopes they find and fix whatever is causing this ....

DAMN!!!!!!!!!!

Chuck

Title: Re: scary symptoms
Post by Mattrf on Oct 9^th, 2006, 12:00pm

Hang in there, hope it all works out fine.
Vibes coming your way.

Matt

Title: Re: scary symptoms
Post by taraann on Oct 10^th, 2006, 4:24pm

Just checking in and saying I'm still alive lol, pc was unhooked for a couple days (moved it from upstairs to downswtairs).

The drug is lamactil. And as for the confusion getting worse wow is that true! I think the doc prescribed Soma cause I also have a lot of muscle/joint pain and maybe all of these weird symptoms are tied in together?? That's my thinking anyways I've always thought my headaches had something to do with my muscle pain (dx with fibromyalgia when I was only 15/16 and I always thought that was just a wrong dx) now I'm off on a probably confusing tangent...... Hugs and thanks for all the vibes and prayers.

Title: Re: scary symptoms
Post by Lizzie2 on Oct 10^th, 2006, 4:39pm

Sorry to hear this Taraann....

I took lamictal for about a year or so to prevent basilar migraine, and in all honesty, I didn't have any side effects from it except for dry mouth. Sorry to hear that it's causing issues for you! And also for Charlie!

I just think it sucks so much that meds we take have such awful effects to come with them....even when a med works, sometimes the side effects are so intolerable that we can't enjoy the benefit. It's just awful...

I hope they figure out what's going on and that you feel better soon!

Hugz,
Carrie :)